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Another UC wife

HealingWell Forum
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Member Profile
Display Name
Another UC wife
Profile Created
6/22/2007 5:54 AM
Last Seen
11/17/2013 4:59 PM
Total Posts
2111

Last 50 Posts

Helping him with his Ileostomy

Alisa my husband from the very beginning has been using the Ostomy Secrets men's briefs and is very pleased with them. They are a longer leg brief and have an extra layer of material that supports...

11/17/2013 4:58 PM

Ostomies
Ileostomy here I come

Welcome and good luck Edith...

10/8/2013 9:16 AM

Ostomies
my dr says I am facing getting my colon removed

Lorraine is there a support group in your area that you might be able to also go to and see and speak with others? You will get most every question answered here and get as much information as you...

8/8/2013 12:58 PM

Ostomies
is it just me?

Hubby is allowed one bottle every 3 months of the spray and it lasts every bit of that and longer...I never really checked if it is 4 months or longer....and as I said he changes 2x each week. If you...

8/8/2013 12:49 PM

Ostomies
is it just me?

Hubby uses the coloplast sensura and the skin prep he has had great luck with for a few years is Smith and Nephew brand and it comes in a pump spray bottle and seems to last quite awhile. He likes...

8/6/2013 8:02 PM

Ostomies
How do you stay hydrated?

Having urine that is very light in color or colorless you are well hydrated...when it is dark you are definitely not getting enough water...hubby always has water nearby and basically sips all day...

8/6/2013 7:56 PM

Ostomies
Still no supplies!!

Is this a permanent ileostomy? We have some Coloplast one piece units we could send you. What other supplies do you also use if any? I will send you an e-mail Meanwhile also check the places that...

8/2/2013 7:50 AM

Ostomies
Time between appliance change

Every Sunday and Wednesday my husband does a full change however he can and has gone up to a week with no problems. He just thinks/feels his skin behaves better with this schedule and likes to do the...

7/21/2013 8:19 PM

Ostomies
On the way to the cruise ship...

We went out to eat with friends last night. After dinner we talked awhile in the parking lot. As we walked to the car I said to my husband we better go right home (we were going to stop at the...

7/21/2013 8:13 PM

Ostomies
Pain around wound area from swimming

I also think slow and steady even if you feel great....

7/7/2013 1:31 PM

Ostomies
Naming my stoma...

Hubby doesn't have a name for his...I occasionally ask how's the "little guy" behavin'...

7/4/2013 5:06 AM

Ostomies
Naming my stoma...

How about your screen name "music maker" ?...

7/3/2013 8:14 PM

Ostomies
So emotional...

Understandable for emotions to run all over the place. In my husband's case it is permanent and he honestly has accepted and adjusted to it just fine which of course is a big relief for me. In the...

7/3/2013 6:04 AM

Ostomies
What's a wafer?

We live in an over 55 community...many times the women in particular almost turn their purses upside down looking for the exact change at the register....that gets me crazy! And these are not all...

7/3/2013 5:56 AM

Ostomies
Ola!

Bruce said it well. Good luck with the surgery and hope the pathology confirms UC only so you can have the pouch ultimately. You will be amazed even with the surgical healing and recuperation how...

7/3/2013 5:48 AM

Ostomies
will they refuse doing surgery cuz of a lung disease?

My guess is this is an additional thing that goes into the mix with the anesthesiologist. I'm sure you Dr will have the answer on that. Insofar as the internet goes...yesssssssssss...while it is nice...

6/26/2013 3:54 PM

Ostomies
Random question - brownies!

Marsky post the recipe please...I like simple...

6/26/2013 6:17 AM

Ostomies
Having a down day

I hope your day starts to get better for you real soon....try and do something you enjoy in the house if you get some time to yourself...a girlie thing....do your nails, put on some makeup, something...

6/26/2013 6:11 AM

Ostomies
epidoral

hubby had it as well and glad he did his surgeon highly recommended it and had it himself with some hip surgery awhile before my huband's surgery which convinced my husband to go that route it was...

6/24/2013 6:00 AM

Ostomies
Still undecided

Not easy to make a decision when you have the added pressure of the insurance situation. Because my husband's surgery was successful and his healing and recovery were with no complications, he needed...

6/24/2013 5:52 AM

Ostomies
My stoma died.

I am so sorry to hear of your complications....I truly pray things are taken care of quickly for you. {{{Hugs}}}...

6/24/2013 5:46 AM

Ostomies
Calling out to all swimmers I need your help!

excellent advice....definitely spend some time in the tub to ease your mind if you want to picture frame the wafer with tape..I know there is waterproof tape but we have found that the 3M Micropore...

6/24/2013 5:44 AM

Ostomies
Haven't been here in a long time

Hey David...nice to hear that life is going fairly well. Hubby prefers to wear the darker colors too even though he has an ostomy. I think the UOAA (ostomy.org) website may have more people with...

6/22/2013 7:37 PM

Ostomies
There comes a time...

Larasmom...condolences on the loss of your friend Eric. He is so right....it's the little things that really do mean so much. On the brighter side.....So happy you were able to enjoy your daughter's...

6/22/2013 7:34 PM

Ostomies
I am Running Again!

That's awesome....I wish I could walk 5 miles let alone 10....lol...

6/22/2013 7:28 PM

Ostomies
I will never understand why negativity is a bad thing

Every one of us has some negativity...it is human nature. Nothing wrong with that. When it consumes you and makes you a toxic person those around you will put up with it for so long and then tune you...

6/22/2013 7:27 PM

Ostomies
Negativity

ep....so many posts to go through that will give you a lot of information. It is not a decision to be made lightly but when the time comes you know it. As already stated the stoma has literally saved...

6/22/2013 3:22 PM

Ostomies
Group Meetings

We have one locally that meets on a Saturday once a month. Initially thought we did not need it but decided to go and see what it was all about. Very glad we did. We made contact with 2 WOCNs in the...

6/19/2013 2:29 PM

Ostomies
Still hating the stoma, part 2

we keep a ketchup bottle (the long neck type) filled with water on the back of the toilet which comes in handy for several purposes...just emptied another one that I will take for travel in Oct and...

6/19/2013 12:28 PM

Ostomies
Grandma Mabel's Ostomy

Awhile ago someone posted this....I brought this to an ostomy support meeting last year and read it on a meeting day that had no agenda/guest speakers In comparison today to back then it certainly...

6/19/2013 6:08 AM

Ostomies
Hobby options with an ostomy

The 3M Medipore flesh colored 1" tape is very skin friendly and adheres very well and is very gentle to remove. My husband is allergic to the outer adhesives. We live in Florida and he changes on Wed...

6/18/2013 2:08 PM

Ostomies
Still hating the stoma, part 2

All I know is my husband is out of pain and no longer feeling like he has a ball and chain attached to him and the toilet. For the past 2 1/2 years he has been able to accept his new normal and we...

6/18/2013 1:46 PM

Ostomies
Disappointed

Sorry to hear about your close colleague's sad news. Yes you are so right that sometimes when we see the tough trials another person is going through it does minimize our own situations. Makes it a...

6/14/2013 7:47 PM

Ostomies
I'm getting too obsessed by this board for my own good

Hi Rosemary...as I have said before so sorry for all you are going through and continue to battle. I truly hope a relocation is the be all end all of this once and for all for you. I realize how...

6/14/2013 8:37 AM

Ostomies
Ostomy Belts - Finally clued in....

My husband has used them from the very start and feels the added pressure does indeed help. He got used to it with no problem. He uses wafers with light convexity....

6/14/2013 8:34 AM

Ostomies
Disappointed

Is it because of his schedule that he cannot do the surgery? Regardless if you are doing well...you had your head psyched and it fit in personally with your life, husband's schedule etc. Try to...

6/14/2013 8:32 AM

Ostomies
Am I crazy?

If you go ahead with the surgery and if the frequency might be an issue I would use a large purse and wear the depends and have an extra or two on you or the thicker pads. Wear something comfortable...

6/13/2013 6:39 AM

Ostomies
Anyone have any issues with watermelon?

Hubby eats watermelon with no problems. He doesn't eat a lot of it. Also the Florida local corn has been great....again he only eats a max of 2 small/medium ears once or twice a week and chews really...

6/12/2013 8:18 PM

Ostomies
Life line

My Mom had it and several times needed to use it as she lived alone and was very independent. She also had an emergency pull chain in her bathroom and her bed in her senior citizen apartment....but...

6/12/2013 8:07 PM

Ostomies
Am I crazy?

If you have your heart set on the wedding I would agree to have the surgery afterwards. Between now and then if you are having any pouching difficulties you undoubtedly will get it under better...

6/12/2013 8:01 PM

Ostomies
Once healed up from surgery, how well do you need to chew?

My guess is not too chunky since you have a faster transit time since it won't break down like it does when you have your colon and the opening of the stoma is not very large. I guess my husband...

6/10/2013 8:09 PM

Ostomies
"top c-r surgeon's in the nation"

Thanks for the info...hubby and sister's doctors are both in there which is reassuring even though we both knew they are excellent surgeons....

6/9/2013 1:13 PM

Ostomies
Seriously considering surgery. Advice?

As stated it is such a personal decision not to be made lightly but I honestly feel each person knows when it is their time even with the "what ifs" issues that can occur after surgery. When you are...

6/7/2013 7:59 AM

Ostomies
Have some question after meeting with the Ostomy Nurse!

Hubby had the same surgery....yes his butt area seemed to be tender for maybe 2 months or so....he got an inflatable waffle type cushion from the hospital that they added onto the hospital bill which...

6/6/2013 7:53 AM

Ostomies
First leak ever on my five month anniversary

Wow Liz I am impressed...you did awesome! It is so much easier for the gals with larger purses to keep a change handy. I am not always with hubby to tote a fast emergency change for him. He tries to...

6/6/2013 7:29 AM

Ostomies
Muscle relaxers

Point of clarification... Pain meds and muscle relaxers help in different ways. My husband (and myself) can tell when our backs are weak and ready to "give out" and fortunately it doesn't happen...

6/5/2013 6:01 AM

Ostomies
What next....good lord it's Shingles.....

So happy you have a doctor you love and has such a great track record!...

6/5/2013 5:55 AM

Ostomies
What next....good lord it's Shingles.....

so happy to hear you are at least getting relief from the shingles pain and discomfort...

6/3/2013 12:34 PM

Ostomies
Muscle relaxers

my husband has a chronic back situation....flexerol (generic cyclobenzaprine) definitely works for him...most times he just uses 1/2 tablet when he feels it coming on to nip it in the bud... of...

6/3/2013 12:32 PM

Ostomies
Itching

Since my husband uses the type of wafer with no outer adhesive as a security measure (even though he is sure he does NOT need it) he uses the 3M MEDIPORE flesh colored 1" tape across the top of the...

6/1/2013 8:08 AM

Ostomies



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