I had my proctocolectomy in July 2011 after a diagnosis of Crohn's Colitis with never having any involvement in my small intestine. I have never been on meds since my surgery and have no indication...
Like you, I haven't posted in a while, so thought I would check in for a bit. This post caught my eye. So happy things are going well for you. I think about the ones who were here back when I came...
With the exception of the use of paste, my products and system is pretty much just like what Blueglass described. BCT is definitely one of the best products in my arsenal. The Brava Strips are also...
Katie, I am so sorry that you are having so much trouble. I also developed a really bad allergy to the taped border of the Convatec Moldable with pretty much exactly what you describe with your...
I am really happy to hear your good news :) I also hope the 2nd opinion will agree that it needs to go. And, if it were me, I would get a third if I didn't feel right about it. Bleeding from your...
I wonder how many others with a "Barbie Butt" were not sewn up tight at surgery. I have mentioned here before that the incision to remove my anus was left open for the last 1/2 inch [or so] along the...
Karen is right. You don't need to get the water all the way up to the stoma area if you are concerned about compromising the seal. You can just swish the water in the bottom part of the pouch to...
Yes, I am in love with a few ostomy supplies :wink: They probably are jealous of each other, but that just encourages them work harder to be #1 with me !!! When I made this decision, I searched and...
Christine, are you also using an Eakin or other seal? I swear by TBC and my Eakin....
No matter what the biopsy shows, Christine, please get another opinion. A third, if necessary. I had all of my parts removed in one she-bang, so I am not one of the people you are addressing here....
I pull off 4-6 squares of TP and fold and fold again until is about 2 inches wide and I crease this in the middle. I have a small spray bottle with water nearby and spritz the folded and creased TP...
I also swear by Dan's BCT :) My favorite appliance is the Convatec Moldable. I love it so much that I continue to use it even though I have to cut the taped border off due to an allergy to the tape....
Are you using Eakin's or convex? What brand of appliance do you use?...
I may not qualify to answer your question because I was never-ever a candidate for a j-pouch because I had Crohn’s Colitis. It had affected my rectum and I had a stricture in the rectum which had...
Oh my !!! I am sorry to hear about all that you have gone through. Makes my episodes pale in comparison. I can also be a "fluke", at times. So, I don't get too comfortable and try to stay tuned-in to...
Boy, you sure have had a time with your hernia situation. And, I also wonder why some of us are more prone to them than others. I am feeling great and hoping that I won't have any issues with this...
Two weeks ago today, I had my 3rd hernia repair since November of last year. My colo-rectal surgeon told me after hernia repair #2 in April that if I had any more issues, I would have to have my...
I "hear" you about the red tape. I hope it works for you. I did the crusting with stoma powder and Cavillon for a while, but once I tried the Compound Tincture Benzoin, I never looked back. I now use...
Like Larasmom, I swear by Compound Tincture Benzoin. Her application process is near the same as mine. Burns like the :devil: on broken skin, but heals very quickly. It can be purchased in the...
I agree with Tom 100% After taking Dan's advice and trying Compound Benzoin Tincture, the skin under my wafer has never looked better. It can now be purchased in the right "formula" off Amazon or...
NCOT, I am really happy for you and wish you all the best with this surgery. I know how unhappy you have been with your stoma....
Has it really been a year, already? Time passes so quickly as I get older. I think of Rosemary often and wish there had been something that could have been done for her. I never knew the complete...
Oh my !!!! Scary stuff, blueglass. I just posted below about my hernia surgery. Sounds like a piece of cake compared to what you have gone through. So glad you went to the ER....
No, they did not move my stoma...thank goodness. Yeah, the cat scans concern me. I don't think I have had an overwhelming number and at 60 years old, not sure it is too much of a worry since I am...
blueglass, I had hernia surgery in November. Sounds very similar to yours. Mine was a small break in the muscle right around/behind my stoma and a bunch of intestine pushed through. Surgeon said I...
SwollenColon: You should look for an ingredients list similar to these below. There is an other kind of Benzoin Tincture, but it is not the compound, if I remember correctly. The right kind is "da...
I also continue to use Benzoin Compound Tincture with every change and have no skin issues. I use the swabs. And, I would also have no leaks if I would change consistently every 7 days. However, I...
k-del, I wasn't sure you would go back to the Mio topic. The Convatec moldables I have used are: Flat 411802 Convex 404593 I thought at one time that I really needed the convex, but I have found I do...
k-del: The Convatec moldables I have used are: Flat 411802 Convex 404593 I thought at one time that I really needed the convex, but I have found I do just as well with the flat one. Either way I...
You guys got me to thinking maybe I should give the Mio another try with the Brava Strips for longer wear time. So, I pulled out my 2 remaining sample Mio's. Honestly, the closure on the Mio is not...
From what I have read and found to be true for myself is that filters are useless for those of us with ileostomies. For gas there are "Osto-Vents". I have some of them, but have never tried them....
I really wanted to like the Mio after all the anticipation and things I read about it. However, I think it was only 3 days before I leaked. I get 7+ days with my Convatec moldable, even with cutting...
I wondered where you have been, Dan. Glad you checked to see if we were still here :)...
Unfortunately, there is no "one size fits all" when it comes to these tough decisions. You have to make your own decision after you have done all the research you can on your own and talked to the...
Yippeee !!! I agree with Larasmom--it is the best....
I'll be the "anyone who has used BCT". Hopefully, Dan and Larasmom will be along to add their thoughts. BCT helps me within just a few days. I know there have been times when I have had some...
Bummer :cry: Sorry, you have to have that dreaded NG tube, but I do think in some instances it does help speed things up. They gave me some throat lozenges which seemed to help, somewhat. Hang in...
I did after my big surgery where they took it all in July 2011. Same thing--Oxycodone. Against my better judgement, I continued taking it when I was released because they told me I should for 2...
Glad to hear yours wasn't extensive, either, and that you needed no revisions. Also, happy to know that you are doing so well and can go home tomorrow. I sincerely hope it doesn't mean no fiber for...
Convatec's Sensi-Care Adhesive Remover wipes or spray works wonders. Silicone based, so no oily residue and you can even re-pouch without washing with soap & water, if you choose. But, I have heard...
Good luck to you, blueglass. I haven't shared this yet, but last Wednesday [yeah, the day before Thanksgiving] I had to have an unexpected surgery to correct a peristomal hernia. Like you, I had been...
Yay !!!! Great news !!! Yeah, I had to stop taking NSAIDS because we IBDers are not supposed to take them due to flares :shakehead: Ibuprofen and Aleve really did work well for me in certain...
That does seem like a long time. I do like thinking of it as, "no news, is good news." Fingers crossed you will hear something soon. Keep us posted....
I have been checking back for an update. Have you gotten the results of your biopsy? Hoping you got good news :smile:...
Yeah, the Convatec nurse kinda hesitated on the phone the other day when I told her what I used. She did go on to say that she wouldn't tell me to stop using it, but I got a vibe. Oh well, so far so...
Unlike many, I refused the biologic drugs. My dad died with Multiple Myeloma and once they asked if I had ever had that, drugs were no longer an option in my mind. My insurance would only have paid a...
Try not to worry too much, Christine. I know--easy for others to say. I think pictures can look pretty scary, but still not be malignant. I sure do hope so in your case. It is very unfortunate that...
Glad to see Blueglass posted to you. She has such good advice to offer from her own experience. I also had the whole shebang at one time and did not have the problems that many others mention...
Yay, I am so happy to hear that there was no Crohn's or inflammation and definitely no cancer :) Helps strengthen my hope that Crohn's Colitis does have a lower recurrence rate with the surgery that...
I wonder if he meant that later in life, with arthritis, it may be more difficult to manage with things like emptying and pouch changes, etc....