Hello Everyone, It has been a while since I last posted, but I am checking in to say hello and give some hope to those who are still at the end of their ropes. I just celebrated five years with my...
I had three completely healthy babies while on a weight-based dose of Imuran. I was told that the benefits of the drug outweighed the risks of miscarriage, since I was in the group of women who got...
Thanks, everyone! Sue, I already looked up Foundation Training and have tried the 4 basic exercises for the last couple of days. Is it possible that they are already working??? I already feel changes...
I thought the recovery was tough for me. It took me a good 6 months to feel myself again. I remember thinking I was closer to death than actual life for at least two weeks after surgery - I had no...
Hey All, Just wondering if there are any core body exercises I can do without risking a hernia. Last spring I tried to get back into running and my back started to kill me, even with a lot of...
I was sick for 14 years and was in remission for the better part of that time. Imuran was the key for me. Unfortunately, my last flare was terrible, and I couldn't get the disease even remotely under...
I went through this too right after surgery and it was hell. There is no other way to describe it. For me, the itching was so bad that I actually pulled my entire appliance off one night to scratch...
I would say it took me a good 3 months to really start putting the weight back on. For a while there, although I could eat anything, I had almost no appetite, and was completely turned off by sweets....
I noticed this immediately after surgery. In fact, I used to have a major sweet tooth, and post surgery, the thought of anything sweet was not at all appealing. All I wanted were salty foods!...
Very happy that you are okay, and unbelieveable that you were teaching only a few hours later! Good for you! Even if I had been okay physically, I don't know if I would have been "with it"...
When I was hospitalized and deciding whether or not to have surgery, I was introduced to a young woman with an ileo. I too am finished having kids, but this woman had had a child while she had her...
The stoma I had constructed at Mt Sinai is perfect and I am very happy with it. But . . . Anyone who knows my background knows I had a 2.5 inch long stoma before my revision. Not only did it screw...
Andi87 - I am so sorry you are going through this. I had pyoderma for several months after my surgery. It was probably one of the most painful things I have ever experienced. What cleared it up for...
My initial reaction was to be pretty ticked off about it - only because we have become so PC about so many things, and it does bother me from time to time that there is STILL a stigma associated with...
I had a REALLY hard time peeing after surgery. It was pretty much the worst thing that I delt with once they took out the catheter. For the first 12 hours I did okay. Initially I needed water...
I know how you feel! I went through this for months last year between both of my surgeries. I also had the same thing happen with the powder and skin prep until I figured out that I am severely...
I am of a completely different camp because I am in education. I agree with others in the medication aspect, but something does sound like it is going on there. Granted, he sounds like he is only in...
I flared too prior to the ileo whenever I drank. Now I do just fine with wine and some malt liquors. I haven't gotten too ambitious with the other stuff yet. One thing, as others have said; stay...
I was in the weird situation where my GI said definitely and the surgeon said he didn't know when he would fit me in, and that I was way younger than he liked permanent ileo candidates to be (???)....
I didn't see the other thread, so this is the first I am reading about your son. Is his anxiety affecting school performance? That is a very high IQ. In my kids' district, he'd be placed in the...
I remember trying to decide whether or not to have my second surgery last year due to the worry of pyoderma coming back again, the problems not being solved, etc. I really struggled with what to do,...
That does sound a little strange. When you apply the wafer over the Eakin, are you pressing around the part closest to your stoma to make sure it's really on there? Someone on this site, I think it...
Well, I am a mom and a teacher, LOL. I may not word it the way you did above, but I do ask a similar question of the students many times in the day. That's not to mention how many times I say it to...
This is a huge milestone for me. I stopped in 2002 when the disease got the best of me and I started having foot and joint problems. It took some convincing me, but I am going about 2 miles with...
So sorry to hear about your friend. Life truly is very short, and you have to embrace each moment while you can. Good luck to you as your turn to the next page in life. This site was also a wonderful...
LOL - Being a teacher, and not having the option of the restroom when I need it, I have had a lot of very full bags at the time of emptying. Can be gross, but I have managed to conceal it all just...
One more thing I want to add: I have three children. The pain of having children can be extreme, but varies from birth to birth and person to person. Despite the pain, people still choose to have...
Probiotic - Actually, I was mostly responding to the symptoms aspect of a blockage. Since that blockage over a year ago, I have had a stoma revision. I introduced foods back in very slowly and in...
I had a blockage last April that lasted over 12 hours. It was terrible, and I'd say both nausea and pain were 10/10, and I have a really high pain tolerance. As has been said, I ate without realizing...
NYC is where I went....
I would personally be nervous to have a j-pouch done by anyone other than a top surgeon in one of the few top GI hospitals in the country. Now is a good time to start doing your research so you are...
My butt wound healed just as I heard it was supposed to, which was good, because I had other issues. I didn't really need any special pillows until the stitches started bothering me. My surgeon did...
Itching is the worst! I know because I itched for months before discovering the problem to be isopropyl alcohol. The problem with allergic reactions is that it is tough to clear them up to pinpoint...
NCOT, I never said emotion didn't come into play "at all." What I said is that I didn't make my decicion with emotion as the basis. Meaning, the "idea" of having a bag and how it would make me "feel"...
I am sorry, but I am still on this diaper thing. I can't imagine how that could possibly be more appealing than a bag. I get that we do what we have to do, but I would never want to be in that...
I have found that I can really cut down on odor by doing my bag-exchange regimen daily. I find that my output seems to smell more when I have the same bag on for a few days (which makes sense). I use...
Not to barge into this thread . . . NCOT, I do feel for you, but I do think a lot of your feelings are related to your depression at this point. Anyway, somedude, haven't you mentioned you have to...
I did stop eating most types of citrus. Occasionally I will have some lemonade or something with a bit of citrus flavor, but I won't eat oranges or anything like that. The rashes went away and I was...
I had that a couple of months post op - every morning I would wake up covered in a rash that would subside a bit as the day went on. I figured out that I had developed a citrus alllergy, which made...
I was in similar shoes a year and a half ago. I was really sick in the hospital for almost two weeks, and prednisone had stopped working. I was not doing well at all. I had not tried remicade, but,...
It seemed like I had the choice, but I really didn't. I had UC for 14 years and was in remission for most of that time. The worst part of my last flare hit me like a ton of bricks in about one...
I am definitely not one who felt wonderful immediately after being lifted off the operating table! In fact, I had a lot of complications right after surgery, and I had been wondering if I had made...
I am trying to remember and I really think I have blocked a lot of things from that time period out! I know I did not eat for 48 hours prior to surgery and was in the hospital for that time period. I...
I wear the Coloplast Sensura extended wear two piece as well with about 6-7 days of wear time. I love being able to go so long between changes, and the extended adhesive enables me to do that....
I was completely knocked on my butt after surgery, and I could not manage on my own for a long time. I don't know if it was because I was very sick going in, and was extremely weak and hardly able to...
I had to have a revision surgery to correct a stoma that was way too long - 2.5 INCHES! You can only guess what it resembled, and all of the medical staff that had to look at it during my troubles...
I think your case sounds really severe to me, based on what you have written. Picture yourself off the steroids . . . What shape would you be in then? That is how you should picture your symptoms....
I love to read. Some of my favorites are by Jodi Piccoult including The Pact, Handle with Care, 19 Minutes, and My Sister's Keeper just to name a few. I also SECOND the Hunger Games series....
Not in the least. The last month of my illness, before surgery, put me over the edge. There is no way I miss the roller coaster of UC and all that came with it....
Hi NCOT, I can relate a lot to things you wrote. I never had an actual panic attack, but I struggled a lot after my surgery. It took me months to feel even remotely well again, both physically and...