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Ouchie2

HealingWell Forum
>
Member Profile
Display Name
Ouchie2
Profile Created
7/31/2006 4:04 AM
Last Seen
2/26/2019 5:43 AM
Total Posts
332

Last 50 Posts

flaxseed and stoma...not a mix?

Coca-Cola is great for blockages...

2/24/2019 8:50 PM

Ostomies
Using a composting toilet

Looking at living in a converted bus full time and looking at toilet options. Has anyone done the same using a composting toilet option. If so, I'd love some feedback....

2/23/2019 3:48 AM

Ostomies
Easing Colostomy Bag Odor

I light a match before i leave the toilet ....im so embarassed when someone has to use the toilet after me....sometimes i stay in the cubicle until people have left...

Today 9:00 PM

Ostomies
Will be 1st time ilieostomy bag carrier with no hope of reconnect

I went in for surgery (I had colitis for years) mine had spread and they also needed to operate because of the amount of polyps I had and because the remicade stopped working and I'd tried everything...

11/28/2015 5:45 AM

Ostomies
Being denied the j-pouch

Three years ago I went in for j pouch surgery and woke up with a permanent ileostomy ...unfortunately a rare case where there wasn't enough bowel create the j pouch ..and because it was attached to...

10/3/2015 9:59 PM

Ostomies
Colon removal and other immune diseases

I had no choice ...my large intestine needed to come out ...it's been almost three years ...I had iritis once before my surgery and psoriasis in my younger years briefly ....now I have joint pain in...

6/20/2015 5:18 AM

Ostomies
showering w/ no appliance

I'm too scared to shower without mine ..it's been almost three years...

6/12/2015 4:53 AM

Ostomies
Lower Back Pain

Just a couple of months on and my back pain is much worse ...almost three years since surgery (perm ileo) waiting for scan results .......

6/6/2015 5:15 AM

Ostomies
Post surgery issues

Chronic back pain...it's been almost three years since surgery ( permanent illeo) and I'm in absolute agony most mornings ....it's painful to even put my socks on...

6/6/2015 5:13 AM

Ostomies
Lower Back Pain

Unfortunately I am not a candidate for a j pouch but have a permanent illeo ....two years later ...I have cronic lower back pain too...especially in the mornings ....once I move about it eases...

3/8/2015 5:13 AM

Ostomies
Mentally accepting my ileostomy

I had UC and a lot of polyps......no drug worked ....remicade infusions stopped working....and so I was eventually booked in for a temp ileo with the hopes of a J pouch, but unfortunately I woke from...

2/23/2015 6:42 AM

Ostomies
Ileostomy Dietary Restrictions -- PLEASE READ IF CONSIDERING

I researched the internet on a regular basic well before surgery and the hospital supplied information on diet too...can't understand how someone could get it wrong to be honest...I do feel for him...

1/20/2015 5:12 AM

Ostomies
What does it physically feel like not having a colon in your body?

I'm so pleased someone asked the question I often wonder about. Apparently the other organs do just settle after a while ...I also wonder what an X-ray looks like without the large intestine.....and...

12/14/2014 4:34 AM

Ostomies
stomach sleepers?

Same .....I'd love someone to invent something to help.....I've thought about cutting a hole in my mattress hahahaha...

12/7/2014 4:02 AM

Ostomies
Surgery question

I ended up with a permanent ileostomy after a rare problem during surgery ...and felt like it was the end of the world...for about an hour....it saved my life, enabled me to live without drugs, not...

12/2/2014 5:09 AM

Ostomies
When does it stop?

Awwww......thank you Patty...how kind ...........

11/30/2014 5:13 AM

Rheumatoid Arthritis
When does it stop?

Hey thanks for that...interesting regarding the weather.....I have moved from very cold to warm and sticky .....I had blood tests for absolutely everything yesterday, got the results back and...

11/26/2014 3:45 AM

Rheumatoid Arthritis
When does it stop?

Thanks so much for your advice and comments, I will make another doc appointment and take your advice .....we have moved to a warmer climate ?...

11/23/2014 3:54 AM

Rheumatoid Arthritis
When does it stop?

Just spent the last two days with a migraine and nausea...last night my whole body ached ...the last time I went to a rheumatologist he said if it gets worse come back and we will give you an...

11/20/2014 7:47 PM

Rheumatoid Arthritis
When does it stop?

I had colitis, iritis, psoriasis, and back ache over the years (a doctor suggested AS) .......The colitis spread and two years ago I had surgery, complications meant I was unable to have a jpouch...

11/18/2014 4:00 AM

Rheumatoid Arthritis
What was your breaking point for surgery?

Medications stopped working ..polyps grew back by the dozen, colitis spread to liver, couldn't hold full time job down, always tired....and the possibility of death...my jpouch surgery wasn't...

11/18/2014 3:49 AM

Ostomies
I gotta stop going to doctors cuz I have too many dx!!

I usually am thankful my ileo saved my life too..but now I have rosacea and ankolysing spondylitis .........when does it end ....one auto immune problem after another...

11/18/2014 3:44 AM

Ostomies
Dry skin/eczema after ileostomy?

Yes ....as soon as I came home from hospital I noticed my skin had changed ..I used to have really nice soft smooth skin, now I have dry skin, bumps, age spots, and worse rosacea....it's awful...

11/5/2014 4:43 AM

Ostomies
Ankylosing Spondylitis/Colitis/Uveitis-Iritis/Psoriasis

I too am now experiencing lower back pain....I first had symptoms years ago in my thirties ...a a doctor actually suggested as ....it disappeared for years and had just returned ...but in between...

9/28/2014 3:31 AM

Rheumatoid Arthritis
ileostomy and chemo

I'm so sorry you are scared....and I understand it would be scary.....is there anyone close to talk to about ally this.....family or perhaps through a nurse at the hospital.......

9/28/2014 3:17 AM

Ostomies
colonic inertia, anismus, temporary colostomy, botox injection????

I'm another with a permanent ileostomy ...went I to surgery for a j pouch procedure and woke up with an ileo...rare circumstances...lots of complications, a month in hospital etc etc...but this only...

8/28/2014 7:25 AM

Ostomies
How long do your bags last

1 piece ...five days...

8/16/2014 5:52 AM

Ostomies
Acitivity limitations with ileostomy

I have a permanent ileo, unfortunately I had complications and the pouch could not be created...(unusual circumstances) I thought it would be the end of the world, and that I wouldn't cope at...

8/16/2014 5:48 AM

Ostomies
Two years already

It's been two years for me too....after years of uc and drugs not working ..it was time ...little did I know I'd end up spending a month in hospital, pnumonia, sepsis, three surgeries instead of one...

8/16/2014 5:32 AM

Ostomies
Total Colectomy Death Rates

I sincerely hope you come to the right conclusion for you ...it saddens me to hear that you lost your wife ......

5/21/2014 10:44 PM

Ostomies
Total Colectomy Death Rates

I also had a heap of polyps, went in for j pouch surgery, due to complications I left hospital after I month and three surgeries with a permanent ileostomy, pneumonia, renal failure and...

5/19/2014 5:07 PM

Ostomies
Bag or no bag?

You need to go back with your questions....

5/19/2014 1:01 AM

Ostomies
Wha do you clean your stoma with?

No soap, wipes...just water and unscented toilet paper...

5/19/2014 12:59 AM

Ostomies
One year later.....

So nice to read positive stories....I'm like you, but up to my two year anniversary....many awful years suffering with uc symptoms...and a long month in hospital with complications, permanent illeo,...

3/19/2014 12:11 AM

Ostomies
what to REALLY bring to the hospital...

I ended up in hospital for a month unfortunately ...and all I really wanted was lip balm and hand cream or moisturiser ....and a sipper bottle...

3/7/2014 6:27 AM

Ostomies
dealing with unsupportive family...

Tell your family to go speak to the surgeon who will tell them exactly what will happen if you don't have surgery......

2/17/2014 3:59 AM

Ostomies
Don't know if I should go for surgery or not..?

I'd the same decisions to make a little over a year ago. I was diagnosed with colitis and then as the years went on, I tried all available drugs including the vedolizamab trial which worked for a...

2/15/2014 12:45 AM

Ostomies
Diverticulitis & Colostomy Bag @ 29

Sounds like you might be over doing the exercise ..that's a long way...after such a big operation...just let your body heal....be kind ....lol....and chew chew chew...

2/9/2014 4:12 AM

Ostomies
New colostomy

I feel nauseas when I don't eat a lot .....

2/4/2014 4:41 AM

Ostomies
Diverticulitis & Colostomy Bag @ 29

I understand completely I also had complications, pnumonia, renal failure and sepsis and ended up in Hospital for a month, losing 15kgs in weight and woke up with a permanent ileotomy ....one day at...

2/4/2014 4:37 AM

Ostomies
Really nervous about reversal

Unfortunately I was not a candidate for a jpouch...rare circumstances when they went to create it ...there wasn't enough bowel to make it....so my ileostomy is permanent ....but I googled lots too...

1/26/2014 5:50 AM

Ostomies
quick food question

I eat loads do sushi without any issue. Stopped drinking coffee before my surgery...

1/26/2014 5:41 AM

Ostomies
venting

Might be your diet causing extra gas...

1/26/2014 5:38 AM

Ostomies
What do you miss the most...

I eat everything ..except corn and popcorn...but I miss sleeping on my stomach most of all...........

1/22/2014 6:14 AM

Ostomies
What's your stomas name?

Mr bumpy .......

12/27/2013 5:38 AM

Ostomies
(no subject)

Thank you ..I have made contact with the doctor to arrange a blood test...

11/24/2013 4:57 AM

Ostomies
(no subject)

Hmmmm...interesting, thank you...

11/22/2013 7:15 AM

Ostomies
(no subject)

Does anyone suffer more frequent cramp in the tops and bottoms of feet?.....lack of salt, potassium, magnesium perhaps?...

11/19/2013 4:22 AM

Ostomies
Marshmallows

Works for me too......

11/6/2013 4:07 AM

Ostomies
Nausea and headaches

Thank you..I also have high output...

11/1/2013 5:08 AM

Ostomies
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