After surgery I was thin from being so ill. But in the past year I have gained weight ( too much) and now my belly looks like it has a valley down the middle where my scar is. I have a large bump on...
I was a tummy sleeper before my surgery. I have found a way to do this still by laying with a pillow under your chest so that your belly is raised up a bit from the bed. Or I swing my leg out but...
There is nothing i hate more than having to shower in the middle of the night and then feel totally awake. Leaks are embarrassing but it sounds like you have a good fiance that will help you out. I...
I was worried about my butt wound too but it healed beautifully, it is the abdominal incision that has opened up again and has to heal by secondary measure (from the inside out) My belly will have...
There are more of us crohnies with a permanent ileostomy than you think. Although I do not post often I am on here every day, I am sure there are many more like me. I have only had my permanent...
My bladder is what they are questioning today. I have had lots of output since I have been on iv fluids since I came back to hospital 6 days ago. My catheter came out yesterday and now I have to...
August 2 I had a total proctocolectomy, end ileostomy with anal closure. After surgery I had epidural in for 4 days then oral diluadid and tramaset. I went home day 8, still in great pain expecting...
My surgery is Friday and I just finished my period yesterday. I was so thankful mine came right before surgery so now I done have to worry about the mess post op....
I checked your profile but could not see your email address, the flange is too big for my stoma but prep wipes and eakins. I live in Canada, so not sure about shipping?...
So sorry to hear this. I only have one very large extensive fistula that has yet to heal so don't have any advice. I hope that you do not have to deal with another fistula. My fistula has certainly...
Having two young kids myself naming my stoma (Sheila) has made things so much easier. When the girls want to come up on me I say watch out for Sheila or I have to go take care of Sheila. In public...
Every day at least seven times per day I have to pass mucus. It causes me alarm because most often it is blood, fresh and old clots either alone or mixed with mucus. If I added all of the daily...
I live in a rural community of 200 in North Ontario, two years,ago our general store and restaurant burned. It has left a large gap in our community. The new restaurant and grocery is almost done and...
I will be having a proctocolectomy with end ileostomy. It is planned to do it laproscopically but my fistula is very complex, a horseshoe with many tracts so they may not be able to. I do not know if...
In September 2012 I developed a peri anal fistula. Since then I have had a temporary loop ileostomy to see if it would help healing. I realized upon having my ileo that I have few choices to fix my...
My stoma was 1.5" at surgery and now 6 months later is just a bit smaller than 7/8". It took a few months before it changed size....
I agree that you need a more proactive gi. Maybe asacol is not the drug that works best for you. For too many years I did the same low dosage of asacol with little change in my disease. I figured Dr....
I am going for a colonoscopy tomorrow in preparation for my proctocolectomy. I have to do two enemas to prep :smhair: not the most fun but I suppose it is better than drinking gallons of prep. I have...
I do not have advice on how to decrease mucus my doctor told me the same thing that it is normal. I also have daily mucus at least 6 times per day so i understand your frustration with it. My...
I was diagnosed at 22, although I had symptoms since 19. After 9+ years of living with this horrid disease I am going to be having a proctocolectomy with end ileostomy in the next couple of weeks....
It is very uncommon but not impossible for UC to cause fistulas, much more common with CD. I was also diagnosed with colitis for 11 years and was told that it is crohns colitis after my fistula...
I am making this decision now as well to have surgery and be rid of my fistulas. If anyone had told me 8 months ago how debilitating they are I would not have believed them. It has turned my life...
I don't have any words of advice and i am not the greatest at comforting others but I do hope that some of the other words in this thread can help you. When I joined healing well a few months ago my...
that is exactly why I am skipping the biologics, I know that eventually I will be at this point again in my life after they don't work anymore (if they work). My body has been through so much, 14...
After living with crohns colitis for 14 years I am at the top of my mountain. My disease has gotten to a point where I have to make big decisions; surgery vs meds. I can step down the way I came, try...
After living out of my parents home for 12 years, I had to move In with them when I was becoming too sick last June. My husband works long hours and we have two young children. It was a hard decision...
Dark blood is usually from higher in the GI tract (older) blood. Your doctor should listen to your concerns, answer your questions so that you are not needlessly worrying....
Before I was diagnosed with UC and having a flare (before I had any idea what IBD was) I started an elimination diet. I did not know what was going on but figured it had something to do with food. I...
I also have swollen lymph nodes in my groin. I have been able to feel them for awhile and a recent MRI report noted them. My GI and family doc said That they are understandably swollen as I have some...
I had 15, once a week for 15 weeks. My iron was so low (0.23) my doc said he was surprised I could even walk. I felt better after 8 but my iron did not come back to "normal" levels until after 10. So...
I have bloodwork done twice a month as I am taking Imuran. my results are sent to the doc and he calls if he thinks things need to be checked or changed. I don't mind eating unhealthy foods as i lost...
Before surgery I never added salt to my foods, just a bit when cooking. I add it now to most things but find I do not enjoy it as much as all I can taste is the salt. Salty snacks work well if I am...
my blood pressure is always low, normally 95/55 but often it goes lower. I have read that this is often caused by dehydration but I drink water like a horse since my surgery. always thirsty. I am...
Personally I would wait to talk to your regular doctor, especially if the uti symptoms are not too bad. I have never had c diff but can imagine it is not pleasant....
To be honest I don't even remember I have my seton in most of the time. It is much better than having the recurring abscess. It is very overwhelming when you don't know what is going on, I can...
Welcome to the forum! Sorry to hear that after 3 years you are "back in the woods" . It sounds like you have a fistula, this can be determined through investigation under anaesthesia, ct scan or MRI....
Try Convatec two piece moldable wafers, no cutting and it hugs up to your stomach creating a turtleneck that helps seal. Changes are fast as all you have to do is pull it open a bit to the...
Welcome Sorry that you are feeling so poorly. You will find this group to be helpful, there are many here with great knowledge and we are all here to help lift spirits, lend a bit of info or just be...
Some nights I find that my bag fills up like a balloon with gas. I usually have to get up once, sometimes twice to empty my bag and each time it is a third full and then full with gas. I am afraid...
Good luck on your surgery, I hope that recovery goes well for you. I did not want to leave the crohns or uc forum either so now I look at all three. My ileo is still new and the ostomies forum has...
I did not mean to sound patronizing at all, sorry if I sounded indelicate. I suppose I should have been a bit more clear in my comment. I was meaning that what we go through is not visible to...
NCOT unfortunately our disease is invisible as we suffer from the inside unless you are unfortunate enough to experience drastic weight loss. I am sorry that you feel uncomfortable by the...
Diagnosed age 24, now 32....
I have lost 65 pounds in the past year. Sometimes during a particularly bad week 8+ pounds. My doctor was concerned at hoe quickly I was losing and told me to drink boost or ensure 3 or 4 times a...
You will be thankful for your seton in time. After the first week it will feel so much better. At times I will forget that it is there and there is no more abscess pain as it is always draining. It...
I too was sick when I had my surgery. I had been in my most severe flare yet for a year and had lost 65 lbs, most of my muscle and was turning into a skeleton. I tried diet modifications to help but...
I too have recently had my surgery and have mucus too. Some days it is alot, some days many times with little result and sometimes i will have a few days with nothing. My Dr also told me this is...
That is exactly how I am starting to lean as well. I did not know how life would be with the bag but to be honest I like it so much better. I was sick for so long, I had to give up jobs and put off...
I have had crohns colitis ( originally diagnosed as ulcerative colitis) for 14 years. For many of those years I dealt with the disease as it flared off and on, although mostly on. Starting in 2011 my...