I am 7 weeks post op (total colectomy) I had 2 duty and one emergency. I’m having a terrible time with my stump and diversion Colitis and not responding to rectal meds. I’m trying to push my surgical...
Thank you! I have hadseve refractory UC, am 7 weeks post op for (total colectomy) I’m suffering badly with my perennial area (stump) & pushing the surgical team to act fast in setting surgery date...
HExamine hipperate changed the game for me too. Docoput me on 5 years ago andtbe only UTI I’ve had in past few years was acquired in hospital because i hadn’t been taking my meds. Get onto it....
Hello Kanditron I had UTI's plague me thought my UC years and my doctor put me on a drug that stops the bacteria multiply and prevents infection.Its called Hiprex and its a game changer. The only UTI...
Greetings my fellow UC sufferers. I have been in a flare since Christmas. previously i had two miracle years on Remicade with no trouble at all. Around October 2020 i started to come up in bruises...
Hello all 🤓 I’ve been on Remicide for the past 3 years, it literally gave me my life back for a time. Recently in the past month I’ve been breaking out in hives all over my body. I ruled out soap,...
Hi Tblock1985 🤓 Good to hear you are getting some quality of life. It started working like 3 days after my first infusion. I’d forgotten what it was like to actually live life, nothing else worked...
Hi ambling Thanks for the info. 🤓🤓...
Thanks for the reply Jane974 🤓 I’ve familiarised myself with the research relating to biologic medication and UC/Crohns. I did a fair bit of reading when I was put on this treatment. I really want...
Hi all 🤓 I’ve been on Infliximab (Remicide) infusions since late 2018 after 6 months on and off in hospital and nil response to IV steroids or my previous meds. It has changed my life and allowed me...
Cyclosporine is next in line. I failed steroids last year also so I knew this would come again....
So everyone it’s day 4 and nil response to IV hydrocortisone. I’m still in hospital and am having a flex sig today. Yesterday I was so unwell, I have never been this way before, it’s a first for me....
Hi noodles noodles I just had visit from gastroenteroligist and surgeon is coming. I’m being placed on IV steroids and medicine is being changed, just doing bloods now. He was very lovely and...
No c/diff came back negative. Waiting waiting waiting now on gastroenteroligist and dietician....
Hi guys, I’m already on 4grams asacol and that is a high dose. As for pred I’ve not responded to that either last time or this time. All the steroid enemas and mesalasime enemas don’t work either....
Been a while but hi guys and gals 😊 Every year I flare smack on 6 months. I’ve been through so many GI’s and still after all the flares and steroids I’m told to stay on asacol?! I’ve been in a nasty...
I realise the date, i just wondered how years on it panned out?...
JudeTN That is horrible. Well my culture grew nothing in the lab but i had the opportunity to look at it prior under microscope and i saw the bacteria in my urine and the scientist said is def a UTI...
Mia @;----- Can u tell me how this all panned out? I have been plagued with continuing UTIs literally since i was diagnosed. Had my first one a few days after my official diagnises and i always seem...
Hi quincy, They are culturing it today, and the results will be sent off to the urologist. Im exhausted as the antibiotics are killing my gut, I'm in a full flare now but still not sure if it is...
The perks of working as a plebotemist and having scientist in a lab behind me. So my urine was done at work today and sure enough bacteria present, the scientist let me look at it and gee those...
Thanks and yep i am scheduled for all these bloods, i told doc all this and he is concerned so investigating it all....
Hi TooManySteves / yes they suck!! There is definatley a connection since i never even had one before my UC reared its head and i get them even when I'm not flaring. quincy yes i have had all the...
Hi :-) Im jusr wondering what the signs and symptoms you had prior to diagnoses. I am being investigated for a cytoscopy but i have recently found glucose and key tones on the regular on urine...
Hi Quincy, Yes my GP has sent my urine off for culture several times and it doesn't grow anything? The last time i had the Kidney Infection it came back as E-Coli resistant bug, first time ever for...
Hi everyone, thank you for the insights and replies I have looked into the salafalk and have continually been trying to investigate this further for kidney effects but seem to be finding nothing?...
HI Chicky, You are most sefinatley NOT in remission honey. Get to the GI ASAP or the hospital. When i was new to this all i ignored these symptoms and ended up in CCU after i had to go to A/E due to...
OK IM at my wits end! since diagnoses i have literally down to the day suffered continual UTI's and the antibiotics are what throws me into a flare. So nearly every 3 months I'm flaring again as my...
Hi pb4 :-) I am starting my training in pathology so I'm pretty excited, I'm staying in bed today because now i have the flu, darn pred suppressed my poor little immune system and now this. We can't...
pb4 Hi :-) Update on this is…. My GI has been very co operative and is considering CD and looking into possible fistula (rectovaginal) He has sent request form for a pelvic MRI, I'm possibly having...
Pb4 OK I'm taking this all in and I'm demanding pelivic MRI and another colonoscopy + a small bowel follow through. This is so frustrating! I have been trying to juggle a career for the 3 yrs since...
Pb4 :-( Hmm, well i told my GP and she was like it is highly unlikely u have a fistula, my GI just didn't say much other that yes there is the likelihood but that was it. It is hard because i live...
Pb4 :-) Wow, i relate to alot of this! I never thought my diagnoses was on point. Can you tell me what the first sign of your fistula was? I have ben complaint to my GI and GP for a while of constant...
Pb4 I will keep you updated, i am being very firm at the present as i know my body and know something is not right. My first diagnoses was incorrect they didn't even diagnose me with UC they said...
zengrrl HI Yes i got some feedback today and I'm told it is infact drug induced so the Change to AZA night be a good thing for more reasons that the fact it doesn't work for me really anyway. Thank...
Pb4 - Thank you!! I have always felt i had the wrong diagnoses hence why i have never really had this under control. My go is doing a fecal cal protection test to see how far my inflammation is at...
Hi PB4, Thank you so much for the insight, its strange they have put me in the too hardcore basket and I'm feeling on my own treatment wise now. They are def not hemmies . I first noticed them 1 yr...
Hi, Just was after some feedback on anal skin tags and if anyone on here has them? I have 3 one a few centimetres long like a little tail 2 two other shorter ones. Why when i have bought these up...
Hi garylouisville, Thank you for the insight yeah my worry is that AZA takes a while to kick in, i will try the probiotics for sure. The AZA and the netrophils was the first thing that sprung to mind...
C-diff has never been formerly diagnosed however i have been on Flagyl before for suspected C-diff, my gp put me on it as a precaution. Last time i took it i was nearly 100% better in 2 days? This...
Hi there, I have a question for all you UC sufferers on here that have or are on azathioprine. My new GI has advised that he would like to do a faecal calprotectin test and if high place me on...
Hi Quincy Thank you for the kind words, i am so very fortunate for the family i have as i often wonder how others cope without the added financial support. I am currently trying to look for work but...
Go called, suspects after yest blood results it is from the Asacol, I'm reducing to 2g daily. Not sure why he isn't changing my meds, he said we will just closely monitor. Far out, i do feel at a...
John, I feel your pain!! Your story is very similar to mine, i ignored it and was diagnosed in my early 30's. Hang in there, this forum is amazing and when I'm feeling lost with my UC i come straight...
Hi everyone :-) Thank you for the replies it always helps getting on here. Quincy, i would say I'm not doing ok currently as i am in a flare and it is like one i have not experienced before. I have a...
Just recently my doctor picked up an alarmingly low white blood count & has advised that as it has dropped consistantly i will need to see a blood specialist for further treatment as it is in the...
DMC2011 We share much likeness in our situations. I hope u feel better soon, i too am lying on couch yet again.. Fingers crossed for both of us xxxx...
DMC2011 :-) Thank you for understanding! My job is already at risk as they seem to be getting tired how it impedes my work performance when I'm there and all the time i have had off. I'm a single...
Hi momto2 boys Thanks for advice, yes i am taking probiotic....
I am very firm actually and as i said I'd had a wk off work was seriously ill with crohnic sinusitis, my doctor was away on leave. I had no choice but to take the risk, i could not get another app...