Hello, I wanted to see if anyone has had both a temporary loop Ileostomy and then moving to and end Ileostomy to see what their experiences were. How is managing the ostomy and does it feel any...
Hello, I was diagnosed with Crohns a few years back. Failed on remicade and entyvio, and am currently taking Humira every week. One major symptom of my Crohns is joint pain in my knees and ankles...
Hello! Quick background. I have crohns with a lot of perianal disease - fistulas and abscesses. Failed on multiple medications and the next step would be to have my colon removed and have an end...
Hello, Long story short - I have had Crohn's disease for over 3 years now (along with a temporary loop ileostomy) and it is primarily confined to my colon. I have had numerous fistulas and abscesses...
I have Crohn’s disease and am on Humira 1x per week. My gastro doctor advised that it could be possible that if I have my entire colon removed, there is a chance that I would be able to stop all...
My loop ileostomy output is fine, it’s the output from my rear end that annoys me. I constantly have to release myself multiple times a day, upwards for 10 times a day. It is liquidy bloody mucus and...
When you say limit bending because of the muscle, is that permanent? I have a little one and that would be very difficult having limitations wth bending over. I am also a golfer and that requires a...
Does anyone get facial/body acne with Humira? I never had a problem with pimples/boils up until i started taking Humira every week. I am getting recurring large pimples on the side of my jaw and on...
@riddlemethis Did you lose any mobility in your leg since they took muscle out? What is VNA and what was your recovery time to return t normal activities after the flap surgery? Also, do you have any...
Hello All, I was diagnosed with Crohns disease over two years ago and the disease has progressively gotten worse over time. I currently have a temporary loop ileostomy. I continue to have recurring...
Has anyone with Crohns failed on Remicade and Entyvio, and then had success with Humira? I was on Remicade for 2 months before my body built up antibodies against it and switched to Entyvio. I have...
I started to get swollen ankles and lupus like symptoms. My gastro doctor had tested for lupus and everything came back negative. I did get a test done to measure the remicade levels in my system and...
Hello All, I was diagnosed with Crohn's disease Aug 2015. I have failed on remicade shortly after taking the loading doses and am currently on entyvio every 8 weeks. I also have a temporary ileostomy...
I love having it honestly. It gave me my life back. I didn't leave the house from January to March this past year. I also ended up losing 65 pounds and gained 60 back within 2 months of having the...
Thank you for the response! As of right now, they believe that the Crohns is only affecting my colon. The two colonoscopies I had done last year, I was too inflamed for them to complete a full...
Hello All! This is my first post on the website. I am hoping anyone could provide me with some advice or own experiences. I was diagnosed with Crohn's disease in September 2015 and has been a long...