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Jlang12

HealingWell Forum
>
Member Profile
Display Name
Jlang12
Profile Created
9/14/2016 4:29 PM
Last Seen
3/29/2021 6:28 PM
Total Posts
24

Last 50 Posts

Severe Perianal Crohns Disease Experience

Hi! I’m so sorry you’re going through everything! I was having severe joint pain and bad acne cysts all through crohns. Once I had the surgery and stopped all medicine, everything went away. I have...

3/15/2021 7:51 PM

Ostomies
Severe Perianal Crohns Disease Experience

Hello! I do not believe that there was inflammation in my ilium, but not 100% sure. I had zero issues with stomach issues my whole life up until I found out that I had C diff in August 2015.. I had...

11/24/2020 8:12 AM

Ostomies
Severe Crohn’s Experience - End Ileostomy

At this time, no medicines for now unless anything starts to happen with my small intestine!...

11/21/2020 8:02 PM

Crohn's Disease
Severe Perianal Crohns Disease Experience

Hello, I am sharing my experience and hoping it will help anyone who is dealing with or has dealt with similar issues I have had over the years. I have have had Crohns for 5 years and was quickly...

11/21/2020 12:07 PM

Ostomies
Severe Crohn’s Experience - End Ileostomy

Hello, I am sharing my experience and hoping it will help anyone who is dealing with or has dealt with similar issues I have had over the years. I have have had Crohns for 5 years and was quickly...

11/21/2020 12:03 PM

Crohn's Disease
Loop Ileostomy vs End Ileostomy

Hello, I wanted to see if anyone has had both a temporary loop Ileostomy and then moving to and end Ileostomy to see what their experiences were. How is managing the ostomy and does it feel any...

8/12/2019 10:19 AM

Ostomies
Crohns and Joint Pain

Hello, I was diagnosed with Crohns a few years back. Failed on remicade and entyvio, and am currently taking Humira every week. One major symptom of my Crohns is joint pain in my knees and ankles...

7/12/2019 6:11 AM

Crohn's Disease
Life after colectomy

Hello! Quick background. I have crohns with a lot of perianal disease - fistulas and abscesses. Failed on multiple medications and the next step would be to have my colon removed and have an end...

3/21/2019 6:10 PM

Ostomies
Colectomy/Surgery Options

Hello, Long story short - I have had Crohn's disease for over 3 years now (along with a temporary loop ileostomy) and it is primarily confined to my colon. I have had numerous fistulas and abscesses...

2/26/2019 7:13 PM

Ostomies
Colectomy/Surgery Questions

Hello, Long story short - I have had Crohn's disease for over 3 years now (along with a temporary loop ileostomy) and it is primarily confined to my colon. I have had numerous fistulas and abscesses...

2/26/2019 7:11 PM

Crohn's Disease
Colectomy and NO MORE MEDICINE

I have Crohn’s disease and am on Humira 1x per week. My gastro doctor advised that it could be possible that if I have my entire colon removed, there is a chance that I would be able to stop all...

10/21/2018 4:00 PM

Ostomies
Loop Ileostomy Output

My loop ileostomy output is fine, it’s the output from my rear end that annoys me. I constantly have to release myself multiple times a day, upwards for 10 times a day. It is liquidy bloody mucus and...

3/25/2018 6:04 AM

Ostomies
Proctocolectomy

When you say limit bending because of the muscle, is that permanent? I have a little one and that would be very difficult having limitations wth bending over. I am also a golfer and that requires a...

9/4/2017 3:34 PM

Crohn's Disease
Acne with Humira?

Does anyone get facial/body acne with Humira? I never had a problem with pimples/boils up until i started taking Humira every week. I am getting recurring large pimples on the side of my jaw and on...

9/4/2017 2:26 PM

Crohn's Disease
Proctocolectomy

@riddlemethis Did you lose any mobility in your leg since they took muscle out? What is VNA and what was your recovery time to return t normal activities after the flap surgery? Also, do you have any...

9/3/2017 11:03 PM

Crohn's Disease
Proctocolectomy

Hello All, I was diagnosed with Crohns disease over two years ago and the disease has progressively gotten worse over time. I currently have a temporary loop ileostomy. I continue to have recurring...

9/3/2017 8:39 AM

Ostomies
Proctocolectomy

Hello All, I was diagnosed with Crohns disease over two years ago and the disease has progressively gotten worse over time. I currently have a temporary loop ileostomy. I continue to have recurring...

9/1/2017 3:52 PM

Crohn's Disease
FAILING MEDICINE

Has anyone with Crohns failed on Remicade and Entyvio, and then had success with Humira? I was on Remicade for 2 months before my body built up antibodies against it and switched to Entyvio. I have...

4/2/2017 1:51 PM

Crohn's Disease
CROHNS AND JOINT PAIN

I started to get swollen ankles and lupus like symptoms. My gastro doctor had tested for lupus and everything came back negative. I did get a test done to measure the remicade levels in my system and...

4/1/2017 6:06 PM

Crohn's Disease
CROHNS AND JOINT PAIN

Hello All, I was diagnosed with Crohn's disease Aug 2015. I have failed on remicade shortly after taking the loading doses and am currently on entyvio every 8 weeks. I also have a temporary ileostomy...

4/1/2017 11:14 AM

Crohn's Disease
Proctocolectomy Question

I love having it honestly. It gave me my life back. I didn't leave the house from January to March this past year. I also ended up losing 65 pounds and gained 60 back within 2 months of having the...

9/15/2016 6:27 PM

Crohn's Disease
Proctocolectomy Question

Thank you for the response! As of right now, they believe that the Crohns is only affecting my colon. The two colonoscopies I had done last year, I was too inflamed for them to complete a full...

9/15/2016 8:52 AM

Crohn's Disease
Protocolectomy Question

Hello All! This is my first post on the website. I am hoping anyone could provide me with some advice or own experiences. I was diagnosed with Crohn's disease in September 2015 and has been a long...

9/14/2016 5:38 PM

Ostomies
Proctocolectomy Question

Hello All! This is my first post on the website. I am hoping anyone could provide me with some advice or own experiences. I was diagnosed with Crohn's disease in September 2015 and has been a long...

9/14/2016 4:36 PM

Crohn's Disease
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