Daffodil, I'm in NE MS. About an hour from Tupelo and Oxford. Had my surgery Nov. 1. Been doing great since. Glad to get rid of UC. Update: I am still wearing the same wafer from last week without...
I trying the wafer without the ring right now. It has been on for 3 days now and still sticking. Maybe this is the trick for me for now. I will keep you posted. Thanks for all the suggestions. They...
The spanx worked really well. No complications with the bag or wafer at all. They actually feel really good in my opinion. Not too tight. I had a great time with old friends....
I am having problem with my wafer not sticking again. I use the Hollister extended wear wafer with the adapt rings. It just seems that output seeps under the ring more lately. I am changing wafer...
Hey everybody. Gotta clothing question. I am going to a class get together with some old friend Friday and am needing something to smooth out my pudgy belly. I bought a spanx body smoother but I was...
I received a sample of the extended wear wafers from hollister and some of the adapt rings. They are working. I ordered some from my supplier....
Shaz, How do you keep yours moisturized?...
I have psoriasis on my hand and feet and it hunts pretty bad. Last summer I came down with it all over my body. It started with puss like blisters and spread to red scaly spots. My dermatologist says...
I have had some fiber a few days this week that I worried about. Whole Grain Bread. I try to avoid it mostly but I thought I would try it. It could have irritated my intestines I guess....
Congrats by the way. I meant to put that at the top on the other post. Sometimes my brain works faster than my fingers....
Hare your pregnancies went well. My husband wants a child and I worry about trying to have one with all the medications I have been on and the ileostomy also....
I am having dark output when I empty my bag. It is either black or a dark reddish brown. It is not watery. When I changed my bag yesterday my stoma was bleeding at the bottom and in the middle. It...
Christine, This may sound stupid but are the wintergreen mints you eat the candy mints or actually mint leaves?...
thanks so much. I had not thought of that....
I have a blister above my stoma where the wax and the tape meet on my wafer. I have had it for a few weeks. It is pussy and bloody but I don't know what to do about it since it is under the wafer. It...
Cathy, I wish I could send some of my weight your way. I'm sorry your gastic bypass went out of hand. Can it be reversed? My grandmother was super skinny. She never weighed anything. She was 5'8" and...
Renee- We seem to have the same height and weight. And I am a foodie too. The main problem I seem to be having with the bag is that the fat around my stoma seems to be indented. My stoma looks like...
This is the second night in a row that I have had to change the wafer because of leakage. It has taken me at least 30 minutes to do so. The stoma kept exploding and I had to keep wiping it and...
My wafer doesn't stick to my skin around my stoma. I am overweight and have an indention around the stoma. It looks like my stoma is in a shallow bowl. I know this the is the reason that the the...
Thanks for all your advice. I have always believed that the key is to cut back on what you eat and exercise (and to stay off prednisone.) Not into the fad diet things. I do believe programs like...
OK. It has been one month since ileostomy surgery. I am still tapering off prednisone but am depressed that I haven't lost any weight. I thought a whole week not eating and having an organ removed...
I'm still really sore. It is hard to sit or stand for very long. I am also still having problems get up when I lie down. I cannot lay on my side yet either. I can walk and get out of a chair easily...
I will get my meds filled Monday. Really needing pain mess. Side hurts. The pillow really does help....
I have not personally tried them but one of the nurses I had in the hospital was using conve tec and told me they were the way to go. She said she could bend and move around really well and swim and...
I can really smell the pouch through the day. What do you suggest I do to mask the smell or get rid of it all together?...
I'm just having problems dealing with the pouch and stoma. I thought I could deal with it and I know I ultimately will. It just bothers me sometimes and I have felt really alone not being able to...
Thanks for the kind words Christine. I was gonna have the jpouch but it looks like the is a chance they will not be able to do it. I am just overwhelmed. The pouch And stoma are just so different. I...
Well, I'm up and about after surgery and will probably go home tomorrow. Surgery went well. Dr. Mathew removed most of my colon and I have a beautiful incision that everyone keeps bragging on. One RN...
I'm about to head to Memphis for surgery. UT here I come. If they're good enough for Steve Jobs I guess they're good enough for me. LOL. I am amazingly calm right now. Surgery is a 7:30 in the...
5 more days. I have gone into crying and anxiety attacks but then I get better. Just want to feel better....
I know I am asking a lot of questions but I just need to know. What will I have to wear after surgery, clothing wise? How bloated will I be? What about underwear? I'm not sure what to pack for the...
I am having colon removed Nov. 1. First of 3 surgeries. My mother-in-law called me at work today and said she was just thinking about me and how I needed to get everything prepared before surgery. I...
That's the way mine are. My hand and feet just won't heal. They hurt really bad. I get the small puss blister and then it spreads. Still have scales and itchiness on legs and torso, but they have...
I got psoriasis after being on Remi for 9 months. It is really bad on my hands and one of my feet. I am still a little itchy on my stomach and back but for the most part it is gone there. I was broke...
Scrap Girl. Are you still in the process of surgeries or have you had your final?...
I will be cut open. That is scary. The surgeon said it would be three steps....
The surgeon said I would need three surgeries. First to take it out. Second to bring small intestine down and third to close up the stoma....
Well, I finally took the big step and have scheduled surgery. Cannot go on with problems and prednisone. I will be cured of UC on Nov. 1 in Memphis. I will be having the jpouch. This will be my first...
Well, I finally took the big step and have scheduled surgery. Cannot go on with problems and prednisone. I will be cured on Nov. 1 in Memphis. I will be having the jpouch. This will be my first...
Wow. Ages vary. It is encouraging that most of you are happy with the decision....
How old were you guys when you had colon removed? Just curious. I am 34 and probably will have it done soon. Been living too long with uc. 15 years almost....
I had a consultation with a surgeon in July. I had to drive to Memphis by myself and go to the UT medical center in Germantown. I was so nervous that I could not think of anything to ask the doctor....
I have a consultation with a surgeon on July 15. Going to talk about J pouch. Not sure if I will go through with it. Nervous. Just tired of uc. NO meds seem to work. I'm tired of hurting and having...
How many times do you those of you with a J pouch have to go to the bathroom? Is leaking common? Will I still be always looking for a bathroom if I have this surgery? What should I expect?...
I have posted in both places also....
Anyone had surgery with UT Medical in Memphis? Dr. setting me up with consultation with them....
Anyone had surgery with UT Medical in Memphis? Dr. setting me up with consultation with Dr. Matthews or Mathew. Just wanting some feedback....
How old are you who have had babies? How long do you typically have to wait? I feel that surgery is the only option left for me but my husband wants a baby and I am getting old. Don't know what to do....
I am the same way. I have been in bed since I got home from work. Just now got up. No energy. I don't feel like doing anything. Don't care about doing anything. I just want to sleep. But sleep...
Thanks everyone for the encouragement and tips. I just feel so terrible sometimes and it helps to hear from people who know what I am going through....