I have had a permanent ileo for 5 years, and I kept having problems with fungal infections under my wafer. After a TON of research I found out that recurrent yeast infections can be caused by...
My cat does that but I just put my hand over my stoma while she walks and then once she's settled down, I move my hand....
I've never tried this but I feel like waxed paper might work....
I was in a similar situation with UC/Crohn's colitis, and remicade and humira both worked for me for a short time, less than a year.i now regret trying them as I wonder if they will cause cancer or...
Ummmm....this is a no brainer. I felt the same way you do before my surgery, with the same pred dependency. I opted for the end ileo and had my rectum sewn shut. I have not regretted it for ONE DAY...
UC wife, yes, I definitely use the back panel as well. It still has elastic at the top. You just need to do a little more cutting on the sides. :)...
I make my own, based off the ostomy secrets idea. I don't like the fit of the ostomy secrets ones, plus they aren't as cute as I'd like, plus I can't afford them. I am a fairly experienced sewer, but...
I haven't dated much since the surgery. Just getting back into the scene and just want to know what I'm in for, that's all. I obviously wouldn't sleep with someone if I wasn't sure they would be...
I've been to the Gyno, and that's more or less the same, but haven't had sex since the surg. My surgery was 2 years ago, so I'm definitely healed, but I'm mostly worried about the butt wound creating...
Hi guys, I'm just wondering how common it is to have pain with sex after having ostomy surgery. Please reply whether it has happened for you or not...if it has, does it eventually go away? Thanks,...
I eat lettuce, spinach, and tomatoes with no problem....
You can even get your records sent to the GI who is far away so you don't have to travel there until they really know what's up. I know traveling with crazy diarrhea is horrendous. I agree with...
It could definitely be yeast if its warm and moist. It sounds like you are doing the best you can. I think the convex should definitely help...I've never heard of your stomach pushing it away....
Hi and I am so sorry you're living like this! I have had issues like this, both from a skin allergy and from a severe fungal infection. You need to figure out what is causing the problem before you...
I also think they're great. I've used the other brands and really don't like them. I think Hollister is BY FAR the easiest to empty, but I guess that just shows why they say "to each his own." We all...
Active UCer, I don't wear two pairs. I just USE two pairs to make my underwear. I cut out the front of a pair of bikini underwear and sew it inside the hi-cut ones to make the pouch. It's just like...
I also got 2 for $10 at Bed Bath and Beyond--a black and white. I only wear them under maxi dresses or things that I really need to smooth out the area to wear. I usually just wear a tank top under...
I'm probably going to regret asking this, since its going to make my anxiety hit the roof, but my curiosity is getting the best of me. What do adhesions feel like in the weeks/months leading up to it...
Mine didn't split, Christine...I just didn't close it all the way because I was half asleep. I've never once had a problem with hollister. I much prefer them to any other brand, for various reasons....
So I've never really had a huge "blowout" while sleeping. i always wake up before it gets everywhere because my skin itches under the wafer. Well, last night at some point I woke up and my pouch was...
Congratulations! I think things get even better after the first year...I was always told it was the hardest. I hope you're doing something to celebrate!...
I agree with others...do your research and learn everything you can...knowledge is power. Being educated about this is the best thing you can do to help yourself. Make sure you are confident with...
I agree with Sara. Not many cons as long as everything is working the way it should--and for most people, that is the case. It's all in your outlook. For me, a j pouch was not an option, and I am ok...
You can certainly go. I go twice a week. I made sure my dr knew about my stoma and its fine. He doesn't crack my back like most chiros. He uses these little clicky things on my vertebrae. He is...
No, I don't have ulcers or anything around my stoma. In fact, it hanging a little longer (It's maybe a little over an inch now) helps. My pain seems to be more like the feeling of thick output...
Hi all, Recently I've been having pain around my stoma area (sometimes it's like up to 2-3 inches away from it) and it feels like tight muscles. I've had that before and even had surgery for it (in a...
Good luck! Although there are a lot of questions, at least you will be able to eat again shortly. Will be thinking about you. Keep us posted when you can! Hugs!...
Blueglass, that sounds great! What a good idea to have social workers and nurses. How long do your meetings last and how often are they? I've looked and this is the only group in my area. I want to...
Don't be nervous! Seeing other people in person who all have ostomies and knowing that they are out there living their lives successfully is empowering. I remember my first meeting, just 3 weeks out...
Hi all, Does anyone go to a support group in their area? I do, and have since I got my ostomy. It was really helpful in the beginning, but now I feel it's getting stagnant. Most of the people are...
I have used paste and Eakins and adapts. All are the same. Seriously, stay standing in my bathroom for a half an hour? That is out of hand...what do you do for that long? Stare at yourself in the...
No, the divot is not a mucocutaneous separation. It's like a slight convexity in the skin perpendicular to my stoma at the right side, if that makes any sense....
I've had multiple stoma nurses look at it. Nothing they have suggested has helped. I am currently using convexity. To answer someone earlier, I put on my wafer while standing, then put a belt on and...
I've tried convex rings before, years ago, and they were worse than wearing nothing! Although, it has been a while...I will try it one more time to see if now it helps suddenly. As for the barrier...
Hi all, I'm kind of about the be at my wit's end...my stoma is about an inch long. I shouldn't need convexity (according to all my stoma nurses), but without it I always get leaks. They originate...
I agree; this is good news! They found the problem and can hopefully fix it!! Keep us posted and we will have our fingers crossed for you!...
I agree; remicade will only work for a short time. You'll end up facing surgery again anyway. So many of us are so happy with our decisions. I hope you can see that here. Surgery is far from a death...
I am small as well, 5,6 and thin but with a short torso. I found that using a pediatric pouch helps. As for the flange, convatecs are HUGE!! I just cut around the outside to make it smaller. Also...
Sometimes you can tell for certain foods...certain fruits and veggies really look like themselves coming out....
Hi all, I've had my ileo for 2 and a half years now, and I'm starting to notice that my output has taken longer to come out than I used to. My transit time used to average about 4 hours and now i...
Thank you guys. Good to know! Now if I could just stop coughing!...
This doesn't necessarily have anything to do with ostomies, but I knew you guys would know the answer to this... I just went to the dr for a sinus infection and they gave me antibiotics as well as a...
I have the same problem. Have had for months! Can't seem to fix it. Looking forward to hearing ideas....
Unless you sleep on your couch, I don't really think its necessary. I have a cover on my mattress in case of a leak that starts when I'm sleeping and I don't wake up, but the few times I've leaked, I...
I used a pediatric bag when I first got mine. All manufacturers have that. Ask to try one; it may fit better than the 12 inch....
Oh yes, that will make a difference. I had laparoscopic also. The pain of surgery is nothing compared to crohns pain and the best thing is they give you pain meds!...
I am no longer on meds! :turn: I am so thankful. Just like blueglass, I have a possibility it was UC. My disease was only in my colon....
My blockage problems are very unusual. My intestines twist like a balloon animal right behind the stoma site. My surgeon says this is normal peristalsis that the body normally resolves on its own,...
I have Crohn's and a permanent ileo. I had Crohn's all through my large intestine, and tried just about every drug from age 18-28. Finally the only option left was to have my colon out. I chose a...
Good to know!! I think the hairdryer thing sounds like the least time consuming but smartest plan....