Sounds like you guys ought to stick to discussing what you know and it appears none of you know much about Protons. Just seems to be very topical to diss the teatment based on cost or proof of...
Very nice Dave to see you post with those numbers. I still appreciate the encouragement I received from you and Dutch at the time I was starting my Proton journey. I came here this evening to post my...
Hi rsilver, I am another here who had Protons at Loma Linda, 44 treatments to be exact. I am now 18 months removed from completion of treatment and have never had any retrograde ejaculations, in fact...
Don't know how I ever missed this but here is my current sig....
You're welcome Bud. Hope you got some info you can use out of our chat yesterday. If you have any other questions post them here or send me another email and I will get right back to you. Take care...
5"9" for me. My father was about 5'7" and he also had PCa....
John T thanks for the link. Not surprising that it doesn't show up in a google search as it is a private mail list. I joined the list to read the topic referred to in your post and in fact have...
Hi Bud, I would encourage you to email me by clicking the link under my name if you would like to have a discussion about Protons from someone who has been through the whole process as a primary...
Well I have spent a couple of hours on the web searching the terms proton, proton therapy, pelvic, lawsuit, pelvic bone, proton radiation, etc. etc. and in multiple combinations and there are ZERO...
John T not saying your statement is BS but would you care to provide a link to the forum you are referring to? Save us all some Google time. You do understand how protons work and deliver the dose of...
Heh you guys all got off cheap, well except Tony. My insurance was billed about 144K for my proton treatment. I haven't been around here posting much but just got my latest PSA done and thought I...
I think the 159K is probably in the ballpark as far as total cost. I have added up all my statements and it came to about 144K however they settled for "reasonable and customary charges" of much less...
It is the Lupron that has reduced the PSA. As to the ionized water I will just say click the link I have provided. http://www.chem1.com/CQ/ionbunk.html So if the cancer is now in his bones, etc. why...
It is the Lupron that has reduced the PSA. As to the ionized water I will just say click the link I have provided. http://www.chem1.com/CQ/ionbunk.html ...
Margins refer to the area immediately adjacent to the prostate but outside of the actual organ itself. Positive margins are not good as that means the PCa has escaped the capsule of the prostate....
I've been an Aircraft manufacturing mechanic/lead/manager for 29+ years. Have built approximately 1500 747,767,777 aircraft over those years....
A hug to you Swim. You do realize that most Christians Easter was celebrated over a month ago? I thought for a moment I was stuck in some kind of time warp. A little Google helped with that as I...
Fred I don't think your urologist is correct that the cancer is active, but I am not a doctor. There has been no real doubling. Your 1st PSA was obviously suppressed by the HT. The 0.3 that you are...
You guys understand that the original post and replies are from over 1 and 1/2 years ago? I am also curious as to the logic of taking a prostate health supplement when all of you have had it...
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I'm missing the point as well. Loma Linda makes no bones about being a 7th Day Adventist facility but the proselytising is so minimal that except for the cross on the exterior of the hospital, you...
This article http://pennhealth.com/perelman/proton/ says 2009. Remember that in order to treat they must obtain FDA approval and certification for the gantry and the cyclotron, which is why it can...
The doctor is only going by the same nomograms that are avaiable to all of us. Try using the Sloan-Kettering form to create your own. I think you need to be positive about this and realize that there...
Frank it was nice chatting with you the other day. I have to say the 2 above have given good advice, results look good. You need to relax if possible and concentrate on healing and not worry....
Generally after radiation the trend would be a slow downward progression taking possibly 2-3 years to reach a low point or nadir. In your case though, given your fairly low PSA at start of treatment...
I had no additional scanning or tests after my positive biopsy. It is not unusual considering your PSA and Gleason score....
Bob I have replied to your email. We will be in contact soon....
He was turned down for [b]Proton treatment because of the Gleason score, not that they won't treat at all. Their Proton program is new and they are cherry picking patients to improve the success...
I have my PSA results. I am currently at 1.1 , a fair drop from the 5.7 I was at just prior to treatment. WOO HOO . Brought my wife Cindy to tears when I told her. At the time she was talking to her...
Some of us have an aversion to having things implanted in our body. Some of us have an aversion to cutting and the subsequent complications or side effects. Some of us feel that Quality and Quantity...
Lee here is the link to the pictures on my web page that you asked me for several months ago. I had forgotten all about this until I read through the last few posts here....
Thanks Lee for resurrecting this thread. I am here almost daily reading the forum but often don't log in. I do converse frequently with a whole group of folks who I became aquainted with during my...
Another here from the Great Northwet, State of Washington. I live in Lynnwood, just north of Seattle and travelled all the way to Loma Linda CA for Proton treatment....
uncledan you are overstating PCa deaths by almost a factor of 10. According to the CDC 29,554 men died from prostate cancer in 2003, which is the latest year for which complete statistics are...
Well not all of us here have had surgery, just the majority. I found the side effects and aftermath as described by many here to be undesirable to the point where I chose Proton Therapy at Loma...
Loma Linda is just south of San Bernadino, CA about 60 miles east of LA off I-10. San Diego is 120 miles farther south. Daily treatment there for me meant a short term move to the area as I live near...
Fred, I am curious as to why Protons are not available to you? You are not that far from Loma Linda. Met several people from Colorado while there. John...
Rdlesstrav'ld, Having just completed 44 treatments at Loma Linda on the 28th of September, I know of several issues that could be influencing your ability to get a faster track for consult. One is...
Thank you Lee. Sharing will take place in an hour or 2. Here is a hug back /community/emoticons/tongue.gif . I have only logged in a couple of times in the last 4 or 5 weeks and I log in tonight to...
Hi Lee and Buddy and all here, I have been busy the last 6 weeks or so with the whole Loma Linda experience. It is almost over for me as I have but 4 treatments remaining and should finish this...
Welcome Computerguy, Congratulations on choosing Protons and wishing success in your treatment I speak as a current Proton patient at Loma Linda. See my signature for the details. Your story is very...
Thank You Lee, Hugs are always appreciated I would be glad to post the other pictures later today. I plan to visit some of the other facilities at Loma Linda today and take some more pictures. I...
Hi to all and Thank You for the well wishes. I am having the time of my life down here in Loma Linda and while I am missing Cindy and the rest of our furry feline companions, Katie and I are doing...
Thank you. I most certainly will. I have become quite vested in this forum over the last month or so. My thread is probably a couple of pages down right now, but I will update it as I move forward...
Nice to see you back after a break. For all the views on your thread I wish we would see more choose Protons. Wishing you a lower PSA next week as I am sure it will be. I am leaving this weekend for...
Just want to bump this to say that 41 and I had a great phone conversation this morning regarding his thoughts of treatment and his concerns re: an all eggs in one basket treatment approach. Protons...
Dutchy, Found this after a google search for symptoms. Men taking Lupron for prostate cancer may find that their symptoms get worse, or that new symptoms appear, during the first few weeks of...
Thanks Tony and Bluebird, Murphy is a cutie. Cindy and I have 5 cats, all rescue cats. They were all saved at various stages of development in their lives. George and Tiger are 2 brothers who were...
41, If you would like to talk with me about some of the issues and concerns you are expressing please contact me at Jayadub ) and I would be happy to talk with you in person, not just about[b]...