David, do you have a spastic colon? Is that is what is making you cramp? Peter has the same type of urostomy stoma that you have. a convex. It took quite a while to find the right appliance to fit...
Oh David, I am so glad to see you here. I am hoping that you will be feeling better. My husband, Pete, was in the hospital in March with an ileus..blockage. He has both urostomy and colostomy from...
Today, Peter and I were on Dr. Samadi's radio call in show. I had contacted Dr. Samadi yesterday and told him about Peter's journey for the past 14 years. i.e. Radiation and seeds, lupron, and then...
Dear David, I felt like checking in here after almost a year to the day. I saw your name, and had to write. You and I joined about the same time (2008). You and my husband, Peter, have been through...
Halbert, my best wishes to you. Interesting that you said your father was a chemist. My husband was a chemist also., working with nicad batteries, (nickel cadmium), he has patents for some of the...
Well, how do some people live to 100 without cancer…Your DNA. My father in law died at 96 with alzheimers, (He had had the PCA treated with surgery when he was 67), so the cancer was taken out, but...
Cap Huff.. Oh, how I wish my husband could have read your story way before ours. We go back to 2001. Seeds, external radiation, then salvage surgery, incontinence, fistula, implant for...
no, he has advanced cancer. We are just so pleased now that he has been out of pain for a few days. This polymyalgia came on suddenly three days ago. Thank you for answering. You sure have a lot...
My husband started severe excruciating pain all over his body a few days ago. Legs are weak and arms and shoulders and hips are horribly painful. He went to the doctor and the doctor said he thought...
David, thank you. I am hoping and praying that this new year will be a good one for everyone here on this forum. There is a lot of difficult stuff everyone who comes here is dealing with. You and my...
Dear David, I just wrote you a note on your email. I have not posted here for awhile, but, want you to know how much your kind words have helped me, in the past years. Peter had the exenteration...
I think AS is a very good option for some. I, wish that my husband had just waited and watched the cancer. …his father had PCA some 25 years before, and had the prostate removed. We remembered that...
Big problem, constantly at night. My husband consistently pulls out the tube to the overnight jug when he turns over. Big wet messes often at night. What do some of your recommend. His stoma is very...
I hesitate to recommend…but , if this were my husband, at 55…I would say.."just wait. a little while..maybe 6 months or so". then check it. I can say this as a wife who has gone through 14 years of...
I started a new post…I am thinking that my husband has the ballooning problem because of his cpap machine for sleep apnea. I have contacted the sleep doctor, and as of yet, have not heard from him,...
Thank you…It is a nasal mask, but he is also a mouth breather at times. I hear him with a little snoring even with the mask. I will have to examine this whole thing. I had to think of this myself. No...
I am wondering if the horrible ballooning at night, and the consequential blowouts, (horrible mess) are a result of the C-Pap machine, and swallowing air? Has anyone heard of this? Di :sad:...
This would be very helpful indeed, to come up with something that would work for the ballooning. My husband has two permanent stomas…Ileostomy and urostomy. The last four nights the gas ballooned so...
Thanks Tony! Di...
You gathered all the facts, and made your decision, that is what a wise person does. Good luck, and don't second guess yourself. In time, it will all be OK. God Bless you. Di...
Thank you for the comments. I had forgotten that I posted this almost three months ago, and was glad to read it again. Since then, my husband has had the exenteration surgery, and we are trying hard...
Thanks very much. We do have a belt. good idea. during the day he wears suspenders for his pants, and lets the bags just hang! Long shirt over them. ! D...
Thanks very much KS ….That will probably be what we do also. Thank you! Di...
I called coloplast and explained the problem. you are so right. she is going to send me a sense bag..i think she said, and also a larger filter and a larger output bag for the night. and some barrier...
wow thank you all . I will call Coloplast immediately. Ill let you know how it goes. Thanks…so much. Di...
Thank you so much. yes..I think the gas plus the liquid poop and then when he gets out of bed , he tends to rock up and down with his legs to propel himself out of bed. I think the bag exploded with...
My husband has two permanent stomas . He uses the coloplast two piece. The last two nights he has had diarrhea and the bags tore loose in bed….All over everything… what a horrible mess. .I will call...
Anyone on lupron should make sure to take extra calcium and Vitamin D. My husband didn't and has had many problems because of loss of calcium due to lupron…Di...
Dear Pat, You are so strong and such an inspiration…and, also, an amazing writer. You could write a beautiful story that so many would want to read. I am so sorry for your loss.. We have been in...
Hi David, You are an amazing example…Thank you for your words to me over the many years. Pete and I are hanging in….Pete had the exenteration surgery March 7. The doctors couldn't believe how well he...
David, I have watched your posts for years. My husband and I have been in the trenches like you and your wife. …Peter is in great pain constantly…after radiation, surgeries, HT and now double...
Thank you An, Big Mac, and Ziggy….I appreciate your words…We all need to know that we are heard.… .thank you. Di...
We have had the worst two months of our lives…BUT, we have turned the corner this past week. Peter had the exenteration surgery at MSK on March 7 …which removed his bladder, colon, rectum, and anus...
David, I am so sorry to read your post. Just a thought. Have you been checked for Lyme Disease? It can cause lots of pain all over the body. I know you are an outdoorsman, and one of Peter's...
Dear Nice, My heart goes out to you. I totally hear you. You are suffering right now. Do you have any family close to you? You write beautifully. I picked up a book on Amazon last week, called "I'd...
Dave, I am answering this to give you great hope…. Forget Your PSa at .05. You are well…Move on. I am thinking that the PSA is a difficult number to get your head around. My husband's PSA now is over...
Hi Nice cup of tea…I understand your feelings… I am a wife, who is now changing her husbands 2 permanent stomas…urostomy and colostomy. It isn't as bad as I thought it would be. I have found a good...
I receive a poem every day. This morning's poem seemed particularly striking to me. It woke me up again to the beauties that are part of living. I hope that I can keep priorities straight. NOTICE by...
Thanks Bui, tonight, not so well….but hopefully tomorrow will be better. This was a really big surgery, and I honestly worry now. Thank you..please keep saying a little prayer for Pete…my rock….I am...
Thank you one and all. David, yes, he has two stomas….I have learned to change the devices every five days. It isn't as bad as I thought it would be…Peter is handling everything pretty well also,...
Peter's surgery is over and it and went very well, the 12 hour surgery at MSK, the four doctors who did the bladder removal, colon removal and rectal removal were optimistic that he would heal well....
Geetar,We have been in the trenches for almost twelve years. AS is certainly a fine alternative for you. I wish that we would have selected that for some time before we jumped in to "hopefully cure...
Thanks very much. I am getting ready to go in to the hospital this morning. The doctors say that he will be in almost two weeks. I have my bottle of Lourdes water with me! I ask the nurses and the...
Thank you very much. Pete is doing well. Yesterday he was up walking, and today he walked 5 times around the hallway. Knowing him, he will be doubling that every day. They have him on lots of pain...
Well, that is a very good question. It was dr Eastham at MSK, in2007,where we are today. I asked him then: why, if he wasn't a candidate for surgery before, why was he now? looking back on it, I...
Yesterday was the longest day in plus 40 year marriage. The exenteration surgery ,(removal of bladder, colon, rectum, and anus, ) leaving two permanent colostomies, was the latest in SEs of prostate...
Yes.i am going towriteanew thread . Thanks :yeah:...
Interestingly enough, the doctors at that point thought that because of the psa and gleason, that it probably was too late…and he was not a candidate. We had doctors from Gainesville, Moffit, and...
Thankyou BuiDoi, it is amazing to me how much it means when someone says they are praying. It really does seem to help. Pete, when someone sent him a prayer quilt, was really pleased, and keeps it on...
I am very sorry to say that Dana Jennings passed away Feb 1 of this year. I, also read his blogs, and especially the ones about his dogs, He was a wonderful writer, and must have been a wonderful...