A great friend indeed. He drove 300 miles to meet me while I was a moderator here. That as ten year ago. I met him again at a GFMPH meeting near the Kennedy Space Center. Sonny's house. Dick Baldwin...
13+ years. Even though stage 3b after RP I never had a climb in PSA. Technically 11 years after stopping adjuvant HT. Great to see all of the long term success stories....
ASAdvocate, You are absolutely correct. When I wrote that I fully reworded a thought and did not reread what I typed well enough. I have changed the statement to: "Last note: And many probably won't...
Mattam, Precisely my point. But then again we do use mice in research? :-)...
2019Guy, Please look for comments from Klotz on recent reports on AS and increase in higher mortality. I'd love to watch it but my son came over this afternoon and I can't. I doubt he'll comment on...
No worries, Jim, You'll see it if you look. But I'm glad it was able to outline the PSA screening history. There were a lot of opinions on the topic. I know there still are on PCa boards on FB. I...
Pratoman stated: "P.S. My son had his first PSA done at age 37 and has it checked annually since, he is now 40. Surprisingly, and thankfully, no pushback from his PCP when he first requested it." I...
Djin Tonic, TY for the input. You are an excellent poster here. You describe the use on molecular tools but they're only good after the screening and diagnosis part has detected cancer. In December...
mr bill I am currently serving on the NIH PCa task force and also have served on a Covid and Cancer committee a few months back. At the height of the outbreak of Covid-19 in April our trusted docs at...
In another thread someone stated: "probably have the same effect as not PSA testing young guys like Tony C ironically used to push on this forum a few years ago. we can now see how that worked out."...
Andrew, Good luck and best wished in retirement. I love Reno and prior to Covid19 I traveled there regularly. The university of Nevada has been my account in technology sales since 2002. Same with...
Just a thought to share. i went through my very old and undeleted emails. I had 12 old emails from Dr. Peter Grimm. My last one was in 2015. He and I started communicating in 2009. Again in 2010 when...
Great post, I have been working on a couple prospective trials that are way too early to yield information. 1st the neuro-biomarkers were not easy to establish. And working with older men in trials...
Hi Melaine, I did receive your message in email and came here to answer. I do know many doctors in the Northwest area in both the Portland and Seattle area. The University of Washington has a strong...
Hi again everyone. As panelists for the AUA/ASTRO/SUO clinical treatment guideline for advanced prostate cancer we went through the chemotherapy options and we remained pretty silent on what to do...
I think alephnull touches a point that I need to clarify and the document does not. nmHSPC was a 6th state we dropped after peer review in March due to conflicting opinion. We added it to BCR and we...
I hope you are doing well, alephnull. Here's what's in the test. I'll add to it. Biochemical recurrence is a rise in PSA in prostate cancer patients after treatment with surgery or radiation (PSA of...
SJO, That's a lot of great points. In our comments on evaluation there is this statement: Optimize pain control or other symptom support and encourage engagement with professional or community-based...
Tud and JNF, TY for the kind words. But I'd be forgetful if I didn't mention that my journey to becoming a published patient representative started right here at HealingWell in 2006 when I was...
Steve, It will help to define visceral in your case. Visceral is basically soft tissue organs such as: liver, kidney, lung, brain, etc. So if your lung nodules are confirmed (through biopsy or...
The American Urological Association, American Society of Radiation Oncology, and Society of Urologic Oncologists has released a new guideline today for Advanced Prostate Cancer (APC). This is...
It's been quite a while since posting on Healingwell. But it's great to see this site still helping people after all these years. I'm posting because I have some good inside on molecular biomarkers...
Not posting as much here as I used to, but a great question. I can say that 13 years ago when I first joined HW I would have chosen a different answer other than "other". Today I would say recurrence...
Haha, I luv sushi. Why cook it at all? And now that it's the Lent season I get it every Friday. Stay Well! and Stay Positive!...
Valentines day 11 years ago I was checked into the City of Hope for tests prior to surgery for my prostate cancer. After the surgery couldn't get it all the next few years were game on. I was late...
Hey Allen, You are not kidding about whether all institutions and non-institutions (private practice urology centers) but the panel was academia and the peer reviewers represented pretty much the top...
Having worked with Laurence Klotz over the two years development of the AUA/ASTRO/SUO clinical guideline for localized prostate cancer I know his thoughts well on what tests to use and when to jump...
When I had my surgery in February of 2007, I had a bad enough post op pathology and went searching out the next steps. My PSA at the time of surgery was 20, by post op pathology was bilateral seminal...
I went through these emotions at the forum when I was a regular/moderator/survivor. For me when I decided I got what I needed here, I wanted to stay and help others but learned a valuable lesson, not...
I never got a chance to meet you Steve. That's something I regret. I've got an agreement with my wife to enter a secession program. She is 5 years younger than I am (she's a "light" smoker) and now...
Thumbs up, Jerry. This is awesome....
"I have always been a friend of the drinking man; I respect him for his courage to withdraw from the world of the thinking man." ~ W.C. Fields...
I was one of Tim Wilson's patients in February 2007. He had it down way back then. Excellent results. He is very highly regarded. He has also come out to Las Vegas where I run a support group and...
NowhereMan, I have been on the scene for 11 years now as a survivor but I remised on the mustaches. I have worn a beard for more than 20 years (with exception to one time when I accidentally started...
Hi Jerry, TY for the nitpick! :-) But I digress, many people don't know if they are at high risk for diabetes. Even with a bathroom scale screaming it's time to lose weight. But I guess the good news...
Good post Allen, As with any medication being repurposed we lack sufficient data on them for recommending them as treatment. In fact the likelihood is that there is more harm than good when doing so....
As an active cancer researcher I have taken to heart those willing to participate in trials. Thank you for your participation. I recently co-authored an article due out by the year end in Urologic...
PSA, Gleason, and stage are the gold standard for determining risk. That has not changed with the newest genomic tests available today....
Your MO is likely right. Though I am surprised he missed an opportunity. Many clinical trials are out there that are gathering data as primary and secondary end points looking at molecular biomarkers...
City of Hope is where I had my RP in early 2007. The doctor that did it was Dr. Tim Wilson. He is still in the LA area but no longer at CoH. but my bias says if I had to do this all over again it...
Good topic for discussion. I'll add on to a thought by my friend Brian Lawenda. The topic here is how do Pet scan's work? Pet scan's use basically simple sugar molecules because they will be absorbed...
In a word...no. There is no perfectly healthy diet. At least not scientifically....
Awesome! I love this post......
This is totally awesome. I'll try to check it out. Given the immense amount of information at these sessions I highly recommend watching the presentations. Great effort, Rick. Do you know if open...
If I attended this year it would be my 8th conference. I partially agree with Allen but not entirely but that may be my own personal biases. I am skipping this year for family reasons. My son turns...
Haha, I happen to appreciate Martin Sanda better than most for some reason. But I digress. At age 44 I entered this game 11 years ago. I don't know why but in the regards of having surgery,...
Man, you've seen it all, Jim. Give my very best to Marylu! And I give my very best to you, my friend. Thank you for ever being on this website. May God bless you sir! Stay positive! Tony...
Agreed Allen, These Phase II trials are a great opportunity. Take advantage if you can. PD1 and PD-L1 inhibitors have been successful in several cancers. I believe they will have some benefit in...
Allen, We have four trial concepts for phase III approaches for prembo at SWOG. ECOG and Alliance also have proposals pending. It will be n interesting race to the finish line. UCSF is both an...
Interesting. There are studies that say, 6, 12, 18, 24, 32 months are best. Until the high levelclinical trials compare head to head, the standard here is substandard but rather comparative with bias...