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Ed C. (Old67)

HealingWell Forum
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Member Profile
Display Name
Ed C. (Old67)
Profile Created
1/26/2009 9:28 AM
Last Seen
5/7/2022 5:03 PM
Total Posts
2543

Last 50 Posts

Bad news

Thanks for your reply. My MO is scheduling a PSMA pet to get an idea or where and how much cancer is ther befor deciding on the next step....

5/7/2022 4:46 PM

Prostate Cancer
Bad news

Since completing my IMRT on 8/23/2021 my PSA has been incresing as follow: 9/22/2021 0.12 12/24/2021 0.13 3/24/2022 0.19 5/06/2022 0.3 PSADT is now 5.9 months. I met with my MO and he is scheduling a...

5/7/2022 3:40 PM

Prostate Cancer
Orchiectomy or ADT drugs

I'm 80 years old with ED since my prostatectomy. Both surgery and radiation have failed to cure my PC so, I find myself at a fork in the road. Do I have an Orchiectomy or use ADT medications. from...

4/25/2022 11:56 AM

Prostate Cancer
what do you pay for ADT drugs

Thank you all so much for your input. I'm starting this research knowing what is coming down the line having failed surgery and radiation. I'm hoping that with all the various information provided I...

4/23/2022 10:29 AM

Prostate Cancer
End of Treatment

Jerry2, You have been fighting cancer for a long time. Each of us have a unique situation but we all want live as long as possible with the minimum amount of suffering. Sometimes the treatment is...

4/22/2022 5:26 AM

Prostate Cancer
what do you pay for ADT drugs

Thank you all for your help. when i search on ADT drug prices I was shocked to see how expensive they are and what the out of pocket costs are. Now I can't complain about my wife's type 2 diabetes...

4/21/2022 9:41 AM

Prostate Cancer
Our Journey - The PC Express (PART 3)

Jerry, you are an amazing writer and your journey is an encouragement to us all who have been fighting for survival. Keep up the fight and enjoy every vacation....

4/21/2022 5:48 AM

Prostate Cancer
what do you pay for ADT drugs

I need your help in finding out what my expected cost of ADT drugs will be. I'm on Medicare Advantage insurance (AARP United Healthcare). I know that since both surgery and RT have failed, the next...

4/21/2022 5:32 AM

Prostate Cancer
How long after salvage RA for PSA to drop?

My RO didn't start me on ADT before radiation. I'm questioning his decision. My PSA didn't go down after RT, as a matter of fact, it went up from 0.12 to 0.19 in 7 months. I'll be scheduling an...

4/21/2022 5:24 AM

Prostate Cancer
Time to get back in the PCA fight...

Hi, like you I had surgery in 2009 and my PSA became detectable in 2016 until it reached 0.12 in 2021. I jumped the gone and had salvage radiation of the prostate bed in the summer of 2021 which did...

4/18/2022 8:35 AM

Prostate Cancer
What would you do?

Thank you all, I this point I'll wait and see how my PSA progresses and hold off on ADT as long as possible....

4/5/2022 5:13 AM

Prostate Cancer
Surgery, plus a decade

My URO suggested IMRT when my PSA reached 0.12 13 years after surgery. 7 months after IMRT my PSA has actually gone up to 0.19. I wish I had waited until my PSA reached 0.4 to have a PSMA pet I would...

4/4/2022 7:31 AM

Prostate Cancer
What would you do?

My last PSA result came in at 0.19 7 months after IMRT salvage radiation. Up from 0.13 three months earlier. My URO doesn't want me to start ADT yet. He wants to wait until it gets to the point where...

4/4/2022 7:04 AM

Prostate Cancer
what comes next?

Thank you all, F8, I'm 80 years old. I'm looking for a n experienced Prostate Oncologist in Austin Tx or any near by facility. If I can't find one in Austin, I'll try MD Anderson or Houston Methodist...

3/26/2022 4:40 AM

Prostate Cancer
what comes next?

Mattan, I exercise 7 days a week at a gym, and do a lot of stretching and so resistance training. When I don't go to the gym, I walk over 4 miles. I play golf once or twice a week and do a lot of...

3/25/2022 4:40 PM

Prostate Cancer
what comes next?

My plan is to consult with an MO and see if I can get a PSMA Pet. Most likely he will put me on ADT with possibly Zytiga or Xtandi. I just hope that it can work long enough....

3/25/2022 12:45 PM

Prostate Cancer
what comes next?

II got the result of my PSA test and it was 0.19 up from 0.13 three months ago. As you can see from my history, I had prostate surgery in 02/2009. in 2016 my PSA was 0.01 followed by slight increase...

3/25/2022 11:20 AM

Prostate Cancer
Long Over Due Update

David, I'm still around, you were the first to respond to my post when I first diagnosed with PC back in 2009. I had a prostatectomy in 2009, has undetectable PSA for 7 years followed by slow...

3/19/2022 7:31 AM

Prostate Cancer
post radical prostectomy extraprostatic extension, but

Rich, I had similar pathology report to yours back in Feb 2009. I had EPE but negative margins. I didn't have any additional treatment since my PSA was undetectable for the first 6 years Last year my...

3/11/2022 6:25 AM

Prostate Cancer
Seven years since RALP

Congratulations on seven years. You have done really well being continent and no ED. I had my prostate removed 13 years ago and I'm still here. I do have ED and have started a new battle when my PSA...

3/3/2022 6:26 AM

Prostate Cancer
PSA result after Adjuvant radiation

I had a PSA test 4 months after the completion of radiation. the result was not encouraging. It was 0.13 which is higher than was it was prior to radiation (0.12) and 1 month after radiation (.12...

12/29/2021 5:32 AM

Prostate Cancer
Timing of hormone treatment with salvage RT

I had salvage radiation when my PSA reached 0.12. My oncologist did not want me on ADT probably because he wanted to see the effect of radiation without the help of ADT. 4 months after radiation my...

12/29/2021 5:13 AM

Prostate Cancer
PSA result after Adjuvant radiation

Thanks, I hope you are right...

12/20/2021 2:08 PM

Prostate Cancer
PSA result after Adjuvant radiation

Duck2, I agree, it is a shot in the dark since imaging would have been useless at such low PSA (.12). My PSA has been really erratic for few years. Here it is: 2/2015 <.01 2/2016 .01 2/2018 .03...

12/19/2021 9:19 AM

Prostate Cancer
PSA result after Adjuvant radiation

I was not on any ADT medication. I'm meeting with my oncologist on 12/27 to discuss the latest PSA results. I'll post what he has to say. Thanks for your responses....

12/19/2021 5:28 AM

Prostate Cancer
Just curious, has anyone had a failed radiotherapy and went back again for RT?

Mel, What type of scan did you get that found the ext. illiac nodes?...

12/17/2021 11:42 AM

Prostate Cancer
PSA result after Adjuvant radiation

My PSA was .12 prior to the start of radiation. I had 8 weeks of IGRT/IMRT radiation that ended in late August. First post radiation PSA in September remained the same. Today I received the result of...

12/17/2021 10:57 AM

Prostate Cancer
PSMA PET SCAN

I wish your Dad the best in his battle with PSA. I'm following your Dad's case with interest since I may end up in the same situation. I completed my salvage radiation 3 months ago and will be having...

12/2/2021 5:01 AM

Prostate Cancer
Radiation Plan

nmckinley, sorry to hear about your Dad's PSA rising. I Just finished salvage radiation last month and hope for good result. What was the lowest PSA that your dad had after radiation?...

11/29/2021 8:49 AM

Prostate Cancer
Radiation Plan

My recurrence started 8 years after surgery in 2009 until it reached 0.13 in June of this year. I had 8 weeks (39 sessions) on IGRT/IMRT. I'll be getting a PSA test in mid December hoping it will go...

11/29/2021 8:36 AM

Prostate Cancer
Survey: age at diagnosis

67...

11/29/2021 8:16 AM

Prostate Cancer
What was your experience having prostate removed?

My PSA creeped up from 2.5 to 3.8 in less than 2 years. I had a biopsy that showed 2 nodes with Gleason 8. I chose surgery which was done on 2/9/2009. The recovery from surgery was quick, I had...

11/29/2021 8:09 AM

Prostate Cancer
What does this mean?

yes, it just seems that when you think you kicked your cancer, it shows its ugly head again and you are back to the dreaded PSA anxiety all over again....

10/4/2021 7:04 AM

Prostate Cancer
What does this mean?

on 4/29/21 my PSA was 0.12. I started IMRT on 6/26/21 and completed it on 8/23/21 (4 months later). I had my first post IMRT PSA test on 9/23 and the PSA was 0.12 (didn't go up or down). My urologist...

10/4/2021 6:07 AM

Prostate Cancer
What does this mean?

Thank you all for your responses. My Oncologist told me that the first PSA is not an indication of success or failure. My next PSA test is in 3 months and that hopefully will show a decrease in PSA....

9/24/2021 2:16 AM

Prostate Cancer
Finished SRT 1 month ago - PSA coming down

Teddydog, thanks for your response. My oncologist told me that the first test one month after completion may not show a decrease. May be the PSA staying the same for 5 months is a little bit of good...

9/23/2021 2:05 PM

Prostate Cancer
Finished SRT 1 month ago - PSA coming down

Teddydog, you boyfriend situation is exactly like mine. My PSA started rising after 9 years. In 04/29/2021 it was 0.12. I also pulled the trigger on RT (no ADT) 0n June 26th and finished on August...

9/23/2021 1:04 PM

Prostate Cancer
What does this mean?

10 years after prostatectomy my PSA became detectible. at the end of April, it was 0.12. My Urologist suggested salvage radiation (IMRT) which I completed on 8/23. I had a PSA test on 9/22 and the...

9/23/2021 12:27 PM

Prostate Cancer
Almost 9 years post RP - PSA creeping (SRT?)

Teddydog, I am in the same boat. My PSA became detectible 8 years after prostatectomy. I am currently in consultation with my Urologist and a radiation Oncologist. Currently my PSA is 0.12, the plan...

5/21/2021 4:24 AM

Prostate Cancer
PSA increase after 11 years.

I met with another Oncologist today who was recommended by my Urologist. He said that he would do 8 weeks of SRT for the pelvic area without ADT. He believes that he normally does add ADT unless the...

5/5/2021 3:49 PM

Prostate Cancer
New here 4+5=9

Steve, welcome to Healing well. I am a Gleason 8 guy, I had robotic surgery on 2/2009 at the age of 67, fortunately my PSA remained undetectable until 2017 when for the first time it was .01. since...

5/4/2021 4:19 PM

Prostate Cancer
PSA increase after 11 years.

My PSA on 3/30/2021 was 0.126 up from 0.042 on 3/2020. I retested on 4/30/2021 and it was down to 0.12. My Urologist wants me to wait and retest again at the end of June before I see an Oncologist....

5/4/2021 3:58 PM

Prostate Cancer
PSA increase after 11 years.

Thank JNF, I’m seeing an Oncologist on 5/3 and another one on 5/5. I just had Blood drawn today and hope the get the result tomorrow. The friend’s BCa story is what is scaring the hell out of me. I...

4/29/2021 10:59 AM

Prostate Cancer
PSA increase after 11 years.

Thank you all for your input and advice. As I mentioned, I decided to retest in mid May which is 6 weeks after my last one so my Oncologist can see the acceleration. I’ll post my results....

4/24/2021 12:10 PM

Prostate Cancer
PSA increase after 11 years.

I do have High deductible Medigap. My max out of pocket is $2500. I’m concerned about the length of time it took my PSA to start rising. From 2/2009 to 2016/ it was <.01 then it started to rise...

4/23/2021 5:11 PM

Prostate Cancer
PSA increase after 11 years.

I had a meeting with my Urologists and he suggested a retest in July followed by a re-visit. If the PSA continues to rise then he will recommend that I consult with a prostate Oncologist. I'm already...

4/23/2021 6:27 AM

Prostate Cancer
PSA increase after 11 years.

Thank you all for responding. The latest PSA of 1.26 which was confirmed with a retest 10 days later woke me up. 11 years had passed with my PSA being undetectable, so you can imagine what kind of a...

4/10/2021 6:14 PM

Prostate Cancer
PSA increase after 11 years.

I'm few months short of being 80 years old. I'm physically in very good health, I exercise regularly and the only medication I take is 20 mg of a cholesterol medication. The 2019 Ultra sensitive PSA...

4/9/2021 3:51 PM

Prostate Cancer
PSA increase after 11 years.

Djin, thanks for your response. All my tests have been done with the Ultra sensitive tests. They are all documented in my signature profile. As you can see, this is the first time that it exceeded 0.1...

4/9/2021 12:01 PM

Prostate Cancer
Jerry J

Jerry1, Your journey started out the same as mine. I had the deVinci surgery few month after yours, my Gleason was the same as yours and I also had negative margins. For 11 years, my PSA remained...

4/9/2021 10:12 AM

Prostate Cancer
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