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Purgatory

HealingWell Forum
>
Member Profile
Display Name
Purgatory
Profile Created
10/13/2008 12:06 PM
Last Seen
7/8/2022 6:46 PM
Total Posts
25448

Last 50 Posts

I am still alive - just passing by for old times sake

Saw my prostate cancer oncologist a few months ago. I was dx. I believe in 8/2008?, had failed open surgery in 11/2008(?), Salvage Surgery in 11/2009 (?). My PSA has been checked every 6 months by...

7/8/2022 4:53 PM

Prostate Cancer
Long Over Due Update

81 - on the voice activated stuff, nothing works with me well, voice is too soft for such things to pick up my voice, even my wife's Alexa doesn't understand my voice.. Via the VA, I have good...

4/26/2021 4:53 PM

Prostate Cancer
Long Over Due Update

I come like a ghost from the past. Wonder how many of my old HW friends are still around. I still have PC, but I only see my oncologist once a year instead of twice. Only check PSA once a year, same...

4/26/2021 12:31 PM

Prostate Cancer
Who here has been undetectable the longest? (Survey)

I have never been undectable, so I can't vote. I started in 2008, and despite surgery and radiation, still active, last PSA was above 34.XX a few months ago. Congrats to all the seemingly "cured"...

10/10/2020 12:56 PM

Prostate Cancer
Miami has 30 months worth of condos sitting due to Covid

depends where you live for sure. in my specific part of western s.c., still a seller's market. house next to mine, was flipped and put back on market, and it sold for its full asking price in 24...

8/25/2020 2:06 PM

Prostate Cancer
Got Covid-19 tested today

the VA is doing mine this Friday, not looking to the "doing" it part. Good luck on your results....

5/27/2020 1:09 PM

Prostate Cancer
142 passed away last night

oh my gosh, was not shocked or surprised, but deeply saddened may you RIP, my PC brother, and suffer no more purgatory...

1/24/2020 12:33 PM

Prostate Cancer
Veteran forum status

test...

1/5/2020 10:08 AM

Prostate Cancer
Purgatory (David)

sorry,, didnnt kknoww its been that long. see my ocologsy before end oof monntthh can no longer write at all, cant use cell phone.only able to on very limited basis. parkliinson is woerse thing I...

12/3/2019 1:11 PM

Prostate Cancer
Update: Radiation Issues Not Gone Yet

I feel for you for sure. I am still suffering perm. radiation damage myself. I underwent SRT in 2009, and it went very wrong. I too had the nasal drain thing, it was horrible. While it was going on,...

8/29/2019 3:16 PM

Prostate Cancer
Very brief update - 7/30

Bohemond - ran across someone recently from my sister squadron. I was in VP-17, he was in VP-50, both serving at the exact same time, in a Walmart of all places. Small world....

8/7/2019 3:40 PM

Prostate Cancer
Very brief update - 7/30

thanks, to all my old friends and new ones too. dj, we sure go a long way back, glad you too are plugging along. 81 - appreciate your tribute, but I am hardly a "Luke", in my case, just too stupid to...

7/31/2019 3:42 PM

Prostate Cancer
Three weeks post surgery

sound like you are doing good thus far.. no such thing as normal or average, best not to compare, to many factors from guy to guy. hang in there...

7/30/2019 4:33 PM

Prostate Cancer
Very brief update - 7/30

Just a quick word. On my last PSA, I get mine done twice a year now, it jumped from 23.xx (?) to 40.xx. Biggest jump in a while. Still choosing to wait and watch, oncologist still agrees as scans...

7/30/2019 4:31 PM

Prostate Cancer
Big Anniversary

My dear friend, Seeing your update, made me struggle out of hiding to both congratulate you well. You have done well....

7/30/2019 4:24 PM

Prostate Cancer
Baking soda and prostate cancer: what am I missing

utter horse crap, snake oil comes in so many variations....

6/25/2019 2:09 PM

Prostate Cancer
To Tud and all the other old timers

hey Ziggy, now there's a blast from the past. still here, don't post often. still have PC,, but last year or so, been fighting stage 3 Parkinson's - really kicking my butt. hope you are faring well...

6/8/2019 1:29 PM

Prostate Cancer
Update

great update, congratulations...

5/22/2019 4:13 PM

Prostate Cancer
ED Survey

Surgery (open) in 2008. left nerve removed, right never intact but damaged, never had any ED issues. was getting wood and "o" with original cath in place (miracle dr. said). even after very damaging...

5/21/2019 4:18 PM

Prostate Cancer
Switch Back From Advantage To Original Medicare

i have been on medicare since 2008 at age 56. I was on 2 different supl. plans for a few years and both sucked. I have been back on 100% medicare only past 2 years, much better. I am on a drug only...

5/21/2019 4:13 PM

Prostate Cancer
Update: 04-25-19

Saw my oncologist for my first of two yearly visits. Waiting for PSA results. In April 2018, it was 21.xx. In October 2018, it jumped to 31.xx, the largest increase in years. Doctor still wants to...

4/25/2019 3:56 PM

Prostate Cancer
What We're NOT Supposed to Know

good news indeed...

4/25/2019 3:47 PM

Prostate Cancer
Screen name origins

Purgatory - for the pure hell and purgatory I suffered and endured from 4 major cancer battles, and all the aftermath. Most assume Catholic. I am Catholic, but in this case, the name is not connected...

4/25/2019 3:43 PM

Prostate Cancer
How much will it hurt?

pain is very subjective and personal. each person's pain tolerance can vary a lot. after my open RP with 5-6 days in hospital (can't remember), I was on morphine every 4 hours up until the last day,...

4/13/2019 3:25 PM

Prostate Cancer
Alf still zero

Congratulations my old friend. I am glad you are well enough to be able to start forgetting about all this PC nonsense. That's a good sign. I am in the Class of 2008 myself, not many of us old HW...

4/13/2019 6:56 AM

Prostate Cancer
Post treatment sexuality-a contrary view

good topic. good mix of replies. this past Saturday, we just had our 45th anniversary. we did a romantic weekend getaway in Charlotte, NC. My wife was hot at 18 when we got married, she still is just...

4/8/2019 4:55 PM

Prostate Cancer
Is aging actually reversible, not just slowable? (Article)

No...

3/26/2019 9:38 AM

Prostate Cancer
truth is in the eyes and the eyes don't lie

thanks, I think too literally to ever understand abstract thoughts and 99% of poetry, lol...

2/28/2019 3:00 PM

Prostate Cancer
To radiate or not to radiate

Don't do what you don't need to do. Don't let microscopic fluctuations cloud your thinking. Later, if you have true BCR, there will be time to pull the trigger with SRT. Lot of risk, and no guarantee...

2/28/2019 2:07 PM

Prostate Cancer
truth is in the eyes and the eyes don't lie

???...

2/28/2019 2:01 PM

Prostate Cancer
Hope it's just a bounce...

garyi: I need to make a new history here, somehow got lost over the years. Had SRT late in 2009. Since then, PSA been all over the place. Last reading, late last year, was 26.xx, yes, 26 in whole...

2/9/2019 2:33 PM

Prostate Cancer
Hope it's just a bounce...

dj, my old friend there isn't usually any such thing as a bounce with SRT. My ill-fated SRT was considered failed within 6 months of completion. Big difference, you went nearly 10 years without...

2/8/2019 6:56 PM

Prostate Cancer
OT: Rams 37, Pats 20

Been a Pat's fan since 1970, Red Sox fan since 1968. Couldn't be happier! I had predicted that they would do 12-4 regular season, missed it by 1, 11-5, and that they would be the AFC champ, again, be...

2/4/2019 11:24 AM

Prostate Cancer
Ultrasensitive PSA test that is more precise than <0.05?

Why? What would be the point or use? Never been into ultra sensitive testing, all I have ever seen it do here, is to create or increase PSA anxiety, and in most cases, has no real use even with...

1/31/2019 3:01 PM

Prostate Cancer
Why do scientists often CLAIM they will make a great discovery?

"Will make" is that same thing to me as "haven't made". Promises, promises....

1/31/2019 2:58 PM

Prostate Cancer
Do psychiatric drugs really help lessen cancer anxiety? (Article)

tud, I fully agree with your take on mental illness in general. I run across too many people that can't or won't understand those of us that suffer from the "invisible" diseases or illnesses. Even...

1/24/2019 7:03 PM

Prostate Cancer
Do psychiatric drugs really help lessen cancer anxiety? (Article)

redwing : actually hard to OD on Lithium, not saying it can't be done. My VA shrink monitors my blood levels with the Lithium at least 4-6 x a year. Said studies that its proven that still the best...

1/23/2019 2:50 PM

Prostate Cancer
less than .1 VS less than .01?

you are making the classic case for the dangers of ultra sensitive testing. if you are under .10, feel fortunate. who said .003 is evidence of BCR? that doesn't sound correct or sensible to what I...

1/22/2019 8:24 PM

Prostate Cancer
Do psychiatric drugs really help lessen cancer anxiety? (Article)

hard for me to type tonight but wanted to pipe in, from my experience was on Lexapro for several years, never helped me with either anxiety or depression, but if you want to lose all your sex drive -...

1/22/2019 8:20 PM

Prostate Cancer
My Story in men’s health magazine

todd, yours has always been an amazing story, great magazine spread, lots of detail in it. we joined HW the same month and year, seems so long ago wish you many more good years of beating both the...

1/21/2019 2:41 PM

Prostate Cancer
End of 2018 Update

thanks to my old friends here and newer ones as well. some of you (a few) I met in person years ago, but most I have met online here. nice to be remembered. my uro in 2008 estimated that I had 8-10...

1/7/2019 7:40 PM

Prostate Cancer
A shout-out to nurses and the great job they do

I agree, being married to a nurse for nearly 45 years. My DIL is also a Intensive Care RN, and teaches nursing at one of our largest tech schools. With all my medical woes, I often get better care...

1/4/2019 2:57 PM

Prostate Cancer
Does fasting heal some cancers?

NO. Fasting for cancer related reasons is unsound wishful thinking....

1/4/2019 2:55 PM

Prostate Cancer
End of 2018 Update

sorry for another long gap in updates, been rough for me most of this year in October, was my 10th year with HW PC here. in November, was my 10th year post PC surgery, 9th year post salvage...

12/25/2018 3:16 PM

Prostate Cancer
Looks like PC will soon take my friend

very sorry to read about the loss of your friend, may he RIP, and may his family find peace via their memories of his rich life. all cancer is evil, PC or the many others. it's a shame when anyone...

12/25/2018 3:06 PM

Prostate Cancer
7 years to elite

Congratulations Andrew. Glad to see someone else here get into the all exclusive, all inclusive "elite" club. I remember clearly when you came aboard. You have giving a lot of good advice and support...

12/8/2018 2:33 PM

Prostate Cancer
We have lost a brother

May he rest in peace, and peace to his family. Didn't really know him, but still a brother...

11/14/2018 5:28 PM

Prostate Cancer
40 percent of Americans think “alternative therapies alone can cure cancer”

A fool and their money are soon parted. Snake oil is just that. Kind of like people that are overweight. No magic formula, just calories eaten vs. calories burned - not rocket science. I will stick...

11/1/2018 8:29 AM

Prostate Cancer
MRI and Claustrophobia

I have been through over 15 MRI's in the past 10 years. Narrow, wide, and open. My routine is to close my eyes the entire duration. I either day dream or simply zone out. Never had to have a calming...

10/12/2018 9:14 AM

Prostate Cancer
OT: Gripes about posts

tudpock, I have known you here for 10 years. Your reply was on-target. I have always known you to be fair and even handed, the way a good moderator should be...

10/9/2018 2:13 PM

Prostate Cancer
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