you gotta feel good about your choices and journey my PCa brother...
way to go Todd, never seen anyone else with such high stats have such decent psa numbers 8 years later and you got quality of life and the band plays on with you guys literally rocking the night...
It is possible to do low dose chemo (weekly like 3 weeks and a week off or similar), lesser side effects would be the benefit to you, read up on the side effects and especially if adding ADT2 like...
Yep, paralysis is my current condition and didn't see it coming at all......good too see another Dec 1st Saggitarian with Olds...
Update #2 from hospital stay, urinary track issues from foley after weeks being in, so got the supra pubic drainage method now which may be better in my situation. They said it gets changed in a...
my experience with PCa drugs has been perhaps different than some others, different drugs may work for some patients but not others, I tried keto high dose and low dose and in combo with leukine and...
thanks guys, the colonoscopy went well no polyps no cancer envolved, had maybe a hemmorhoid envolved, anyway no real issue to worry on that particular front, I did get zometa yesterday and today got...
Well they found blood in bowel movement, so moved from my Heartland Care Center back to Crittenton Hosp. for the scan (which seemed clear of issues) and now liquid diet for actually for 2 days...
thanks for your support we are all warriors and brothers for each other in the fight on PCa......the years of support have been very helpful to me endure the battles....don't believe I am ever going...
I have been having nasty back pains and had previous radiations to spine over the last 2 yrs., recent pain was constant and not going away. Went in to emergency for pain relief mainly, given hydoncon...
We cannot know how long he may live with certainty, to many variables envolved, like others have mentioned certain drugs may help beat back the PCa and some mets and lower psa level and that varies a...
Suggestion: start getting control over your whole medical thingy, you can maybe get a psa test from a free screenings type facility (they exist) and even some hospital or clinics might offer a walk...
You hopefully are getting various blood and urine markers done so as to monitor the disease, psa alone is not worthy enough (although is very useful post treatments, screenings is another argument on...
they should have done those tests as Squirm mentioned would be useful in your decision process earlier on, 142 good response answers......cyber education is needed see: www.yananow.net and look at...
Interesting to note 142, mine was done in the docs local office as it is no big deal a simple injection thing, but I guess the rules are rules. I hear Xtandi is now available without the pre-chemo...
Interesting discussion on other things we patients contend with and enjoy reading them all. Sharing information is useful for others and gives the heads up and gets you considering more when in the...
I have great insurance coverage (normally) through Blue Cross (traditional-the better plan not an HMO thing). They have covered many things in the past, including Zytiga which is very costly stuff....
Docs also should be using the urine testing for bone breakdown (they are sensitive testings) like the UnTx that indicate if you are out of normal range (and high), you can expect mets happening, also...
His son posted a notice on facebook today and some of us replied there too......met Terry online back in 2002 and his website was one of the few available sites especially being pro-patient and...
Hummbug- he Yananow protocol guy you spoke of is a friend of mine here, Doug F. I am very familiar with the protocol and his findings, he has guys around the world whom have tried this because of...
Might not be fun chasing down mets, but considering what mets can do to your spine, femur and other areas. It is probably worth it to the patient to find them and to relieve pains (which can be ugly...
More info sources for fast education: www.yananow.org (1000 patient histories experiences listed too) www.hrpca.org (proven treatments has great info) www.prostatepointers.org www.paactusa.org...
be aware of the disclosures on radiation, especially on the spine, high dosage and one day would have more risk for collateral issues is my s.w.a.g. (guess), amazingly you didn't have pains, but my...
Got my T-9 through T-12 radiated at two different time periods (T9done first), it did get rid of pains and likely stopped further damage deteriorations....T-9 was last years gig. You may be getting...
Checkout nomograms (statistical data you plug in to compare your odds- Sloan Kettering et al showing such) or Partin tables another comparison thingy. A lot of docs don't mention your odds for cure...
I just switched back from Xtandi to Zytiga (which I used before and did not totally fail on results with), Xtandi side effects were getting bad on me, super tiredness and lack of steam, going to bed...
thanks amigos and amigas (fun with words intended), glad my doc has been there with an open mindedness and can write scripts accordingly, this is my kind of doc regardless of what my outcome ends up....
As you might know been involved in high risk PCa case from day one in 2002. Started with Zoladex (uro-doc), then I got further opinions and added casodex and proscar to get to ADT3 combo, figured Dr....
thanks to all of you for the nice comments and support that always makes your day and floats ones boat when dealing with this dragon, will be considering anything and everything in this, my ears are...
Thanks Steve I have been waiting for a bonus most of life (LOL), usually waiting for it in the form of a large check. Money cannot buy health of course, might ease some pain or hire some top guns...
I like that Jim, I should send you a check in the mail (LOL), we know this dragon is a sob and plays unfairly.....I don't mind playing unfairly against it and the system (as you know). My femur...
Been fighting the PCa dragon for 12+ years now with lousy prognosis from day one and high risk stats that were very scary to start with and included the ER urinary blockage issue from PCa leading to...
The drug you tried to mention is Xtandi (aka Enzalutamide, aka MDV3100, aka Super Casodex)......can be useful on many patients. His scenario seems grave with weight loss and weakness and multiple...
Considerations for you to think about, without drug control, possible mets causing a lot of pain or limitations of normal working or worse yet fractures or debilations especially at risk bones of the...
NKinney- thanks and good to see that link for me and others Ray (SteelGuy)- good to see your reply, one of our members from our local support group died last week after being in and out of the...
I posted on Peter's thread started on this, it is useful stuff for most patients, just didn't work in my situation. Self injectable, from Specialty Pharamacies only, keep refrigerated, maybe good for...
I was fortunate enough to get and try this for free (don't ask-don't tell), still have some too. Very costly to get from only Specialty Pharamacies too. You keep it refrigerated and self inject like...
Femur was envolved with mets, luckily avoided having fracture and pin replacement work (thus far), radiation finished a few weeks ago....finally the pain is gone and improving leg seems to be...
It has been found that 1 mg of DES is considered very safe (5 mg unsafe) (Journal of Urology article Nov. 2003) It can work on hrpca cells, when casodex or Lupron fails, however like anything no...
friend of mine filled me on that Goodlife, needless say that is to darn unreal and funny to comprehend as a fix/repair for such......truth is stranger than fiction in some of these medical things...
thanks for the replies, I another friend of mine is experiencing something weird like this right now, will send him the info on your replies above, hope his is something unrelated to this, but who...
Wow got it covered off label, glad I read this thread I maybe looking into doing the same soon enough. One guy in our local support group is in trials with this via U of Mich. and his before and...
It may or may not work for you it is a gamble, but it is a low cost possibility to use. Make sure you drink soda or acidic drink prior (recommended), you cannot drink grapefruit juice (could cause...
(Joe Doe) FROM OUR SUPPORT GROUP HAS BEEN IN THE HOSPITAL 4 TIMES IN THE LAST 6 WEEKS. HE HAS BEEN IN THIS TIME FOR 2 WEEKS AND LOOKS LIKE HE WILL BE THERE FOR AT LEAST 5 MORE DAYS. UGLY...
thanks Jim one rad doc mentioned xofigo and maybe that is going to be the future pathway, just got a bone scan (full) done today, results maybe to me on mon.-Tuesday. I am 1/2 way through the...
littlenm- with your rough stats the risk of casodex working well or longer time frame is perhaps not going to do much but likely not known right now, although with PCa the condition or state of the...
thanks again guys my cup runneth over with your kindness, who wouldn't enjoy receiving such from others with goodwill? I have avoided chemo because I can (lol), the doc has suggested it and I really...
thanks for your additional support in words and deeds, thoughts to all of you above, I have still got options and choices.....as you can guess knowing which is best or wisest and least in side...
thank you all for your replies and support it is very heart warming to receive when you need that community of mindset on medical discussions and care.....the pain has let up just recently after 3...
Currently dealing with left leg femur pains that are pretty constant an substantial. My UnTX urine test for bone breakdown has been high for months, which is a red flag for the dragon being somewhere...