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JNF

HealingWell Forum
>
Member Profile
Display Name
JNF
Profile Created
12/18/2010 5:16 AM
Last Seen
3/13/2023 6:24 PM
Total Posts
5734

Last 50 Posts

New guidelines ?

Your PSA is in the normal range for your age and you said the DRE was unremarkable. Thus you continue to monitor it, perhaps more frequently as was mentioned. You should expect your PSA to increase...

3/13/2023 6:23 PM

Prostate Cancer
Is Trublood prostate screening a scam?

Hope they have learned from Theranos and are rock solid. Time will tell how useful this is....

2/28/2023 9:48 AM

Prostate Cancer
Are PCP appointment delays nationwide?

Not with mine. I have a lingering cough and cold and decided to go in today. Sent an email overnight and got a 7:30am appointment this morning. Sounds like you need a better PCP to me....

2/28/2023 9:38 AM

Prostate Cancer
2 months in

Fatigue is often a symptom of active cancer. Left untreated, the cancer will grow and probably cause even more fatigue. Cancers consume a lot of the body energy. Many treatments do not degrade the...

2/28/2023 9:35 AM

Prostate Cancer
OT - Covid and Heart Disease

Uh…….Jack and Ken…….you do know that being masked in the OR has absolutely nothing to do with Covid and the practice didn’t just start in 2020…..don’t you? I’ll assume you are just jokingly tongue in...

2/26/2023 7:19 AM

Prostate Cancer
OT - Covid and Heart Disease

We have used mainly three different dentists in our 23 years in Georgia and all have consistently worn a mask and/or clear shield and gloves at all times as do the hygienists. We have a good friend...

2/22/2023 6:10 PM

Prostate Cancer
OT - Covid and Heart Disease

Ken, Dentists in Georgia have worn masks for decades, based on the HIV/AIDS situation to protect themselves. Our dentist in Kuala Lumpur, Malaysia through the entire decade of the 1990’s, when we...

2/22/2023 2:56 PM

Prostate Cancer
OT - Covid and Heart Disease

Similar to Tudpock. My wife and I are vaccinated (Jansen) and subsequently had Covid twice, once moderate feeling like bad flu for a few days, and once mild, hardly felt bad. Our docs did not suggest...

2/22/2023 1:36 PM

Prostate Cancer
Statin Recommendations

My docs want my LDL under 75. Last year my LDL cholesterol and triglycerides were running a little high and they ordered a calcium coronary scan. It came back a bit over 100 and I was put on a...

2/6/2023 1:39 PM

Prostate Cancer
HDR Brachytherapy; 8-Year Check In….

Well done Dewayne. Great choice of treatment and wonderful results. How are you managing any long term treatment side effects?...

1/28/2023 5:26 AM

Prostate Cancer
Hello

Great update. Thanks for the info. Best wishes for your complete knee recovery so you can get back on the skis. And prayers for your brother. And of course our love to Mandy....

1/12/2023 7:49 AM

Prostate Cancer
Looking for doctors in southern California, especially at Kaiser

Melanie, if he is in a Kaiser Advantage plan then it is not a Medicare issue as he would have opted out of traditional Medicare and is solely provided for by Kaiser. He will likely be restricted...

1/11/2023 9:40 AM

Prostate Cancer
What's the standard of care for men over 85?

Get him to a good Medical Oncologist. The Urologist either doesn’t know or was lying, either way he should be fired. However, as I understand Kaiser is usually a HMO so will have to make a referral...

1/9/2023 7:46 AM

Prostate Cancer
Prostate Cancer spread to bladder looking for advice

MJ, I am also in the Atlanta area. My urologist would be a good one to visit. Let me know. Re IU Medical,Center, they are excellent with Urological Cancers. They became of prominence when Dr. Larry...

1/8/2023 5:53 AM

Prostate Cancer
Thanks to Nat King Cole- UNDETECTABLE

Well done and well re-written. And my condolences for the absolute drubbing your Bucks suffered at the paws of my Dawgs....

1/3/2023 9:47 AM

Prostate Cancer
Prostate Cancer spread to bladder looking for advice

It has to be confirmed that it is PCa spread to the bladder versus bladder cancer. If PCa, then the treatment would be for PCa which is often different than the types of treatments for bladder...

1/3/2023 9:45 AM

Prostate Cancer
6 months post IMRT

BB, very few men have undetectable PSA after radiation as the initial treatment. As Turboz noted that you still have the prostate and should expect it to express some PSA. Your initial drop to the...

12/17/2022 1:07 AM

Prostate Cancer
2017 Cancer screening report

Both of my wife’s breast cancers were found due to her diligence with self examination, but not the by annual mammograms. In each case, the lump she could feel did not show on the mammogram. My...

12/17/2022 12:53 AM

Prostate Cancer
10 years and still going G9 Stage 4

Hi Ray, great to hear from you. Thanks for the update. We met several years ago at Sonny’s GFMPH in Florida, I think spring 2014. You came in for the Saturday meeting and I had to leave that evening....

12/17/2022 12:40 AM

Prostate Cancer
Brachy Dosimetry G9 T3 - too low? What to do?

Quietleaf, I suggest you have a consult with Dr. Alvaro Martinez at Beaumont in Detroit. He is the best HDR oncologist at the present time and over the past 3 decades has developed the current...

11/6/2022 10:13 AM

Prostate Cancer
Another Celebrity Reveals PCA

Classic rock group Duran Duran guitarist Andy Taylor, age 61, revealed in a letter at the Rock and Roll Hall of Fame that he is battling metastatic stage 4 PCA diagnosed four years ago. Report I read...

11/6/2022 7:13 AM

Prostate Cancer
Radiation Bounce

Vic, glad you stayed calm and followed Dr. Martinez advice. Now let’s see the PSA continue to decrease....

10/6/2022 12:11 PM

Prostate Cancer
Husband Diagnosed 2 months Ago

Pitgirl, I had a similar high risk diagnosis with 59 PSA. I used a combination of High Dose Rate brachytherapy, external beam radiation and androgen deprivation therapy drugs. That was 12 years ago...

9/25/2022 6:36 PM

Prostate Cancer
Access to Journal Research Papers

Search PubMed at NCBI. If the study received any NIH funds it has to be available through PubMed....

9/25/2022 6:27 PM

Prostate Cancer
Radiation question

Thanks for the distinction, Djin, but I see it without much of a distinction in practice. The effective range in the report agrees with what I reported, 76-81. The study I saw stated 78.1 as a median...

9/14/2022 1:09 PM

Prostate Cancer
Radiation question

JRK you are an excellent candidate for radiotherapy. In my opinion, both SBRT-external beam and High Dose Rate brachytherapy should be seriously considered. SBRT can be done in 5 or 6 non invasive 20...

9/14/2022 6:54 AM

Prostate Cancer
Salvage lymphadenectomy - anyone try it?

If he had radiation to the pelvic lymph nodes, they should no longer be a concern. Thus, if in the future a lymph node shows up as affected, it would be farther distant. Only then the specifics of...

9/1/2022 4:42 PM

Prostate Cancer
Decipher Test Cost - What Can I Expect?

How do you know it will be denied? Did you have a pre determination through your doctor? If not, why not? Call decipher and ask them. Why would you consent to a test if you don’t know the cost you...

9/1/2022 4:27 PM

Prostate Cancer
Salvage lymphadenectomy - anyone try it?

Sounds like you are on top of things. For cancer clinics in Florida Moffitt is excellent as is Datolli near Tampa, leading edge PCa radiation for decades. If you let us know where you are some...

9/1/2022 10:06 AM

Prostate Cancer
Salvage lymphadenectomy - anyone try it?

Apart from the potential difficulty excising pelvic nodes as Melanie reports, another risk factor is developing lymphedema after the removal. When the lymphatic system is disrupted by the removal of...

9/1/2022 7:31 AM

Prostate Cancer
Salvage lymphadenectomy - anyone try it?

Thanks Teddy. .07 is <.1, so maybe no difference. But why the testing report difference? As to radiating a node, it would depend on where it would be. A positive node may be far from the pelvic area,...

8/29/2022 4:06 PM

Prostate Cancer
Salvage lymphadenectomy - anyone try it?

Clearly something to be aware of and consider, though as I understand radiating positive nodes is more common. Radiating suspected nodes is common as are biopsies, but I don’t remember anyone having...

8/29/2022 1:21 PM

Prostate Cancer
Right treatment plan?

You clearly want to be in the hands of a board certified urologist that can show you he has several men in an organized AS program. Kinda hard to think such a doc would be in his 20’s. If,for any...

8/29/2022 1:03 PM

Prostate Cancer
PSMA Scan as part of pre-treatment evaluation

Wall, don’t limit to the hospitals. Many of the best radiotherapy practitioners are in their own clinical practice, not always within a hospital. Expand your search for SBRT and HDR-BT practitioners....

8/29/2022 9:40 AM

Prostate Cancer
Gleason 3+4, Age 50

JRK, no doctor that does not do prostate surgery or perform radiotherapy can possibly be an expert on either. Quit looking for such an unicorn. Specifically go to the true board certified high volume...

8/29/2022 8:06 AM

Prostate Cancer
Advise on next treatment and side affects

Guy, I again suggest you research medical oncologists to asses your situation. Possibly on the team you are looking at, but also people like Oliver Sartor at Tulane that will use a tele-visit to...

8/29/2022 7:18 AM

Prostate Cancer
New: 55yo, 4+5=9, PSA 7.6->5.2, ECE SVE(?) what treatment ?

Quietleaf, upon re-reading your brachytherapy concerns, I think there may be a disconnect between HDR and permanent seeds regarding prostate size. With permanent seeds, prostate size is a concern and...

8/29/2022 7:02 AM

Prostate Cancer
Advise on next treatment and side affects

TJ, it is very mixed. I have seen several studies indicating some 5-15% recurrence at 15 years. What we don’t know is what happens to men who proclaim a cure after 5-7 years and stop testing as they...

8/29/2022 6:47 AM

Prostate Cancer
Whelp... The result was 0.2ng/mL.

Next step will probably be some scanning, perhaps the latest PET/Pylarify method that is showing good results finding tumors at low PSA expression. If scans clarify a local recurrence in the prostate...

8/29/2022 6:36 AM

Prostate Cancer
New: 55yo, 4+5=9, PSA 7.6->5.2, ECE SVE(?) what treatment ?

The smaller the prostate the better the radiation target for both external beam and interstitial. That is why the best radiation oncologists insist on 4-8 weeks of ADT before radiation. Large...

8/28/2022 4:31 PM

Prostate Cancer
PSMA Scan as part of pre-treatment evaluation

Good distinction Mumbo. Our discussion really wasn’t specific to the MRI or PET scans, but that more sensitive scans in general being used initially in the diagnostic process. Starting with a scan to...

8/28/2022 8:44 AM

Prostate Cancer
PSMA Scan as part of pre-treatment evaluation

Mumbo, I have heard of some of this that just a few years ago wasn’t considered due to the payors wanting the traditional biopsy first. Now the biopsy cost appears to rival the lower end of MRI...

8/28/2022 5:59 AM

Prostate Cancer
Advise on next treatment and side affects

Such dormancy of 10-15 years is not uncommon. That’s why we never stop PSA testing. Similar with some breast cancer. A leading thought is that PCa cells can travel to the ends of large bones and go...

8/28/2022 5:45 AM

Prostate Cancer
OT: it was a good week!

Well done Ed. I’m anxious to see some remarkable photos....

8/28/2022 4:27 AM

Prostate Cancer
PSMA Scan as part of pre-treatment evaluation

In my recent urologist visit this was discussed. His practice pushes hard up front for a MRI scan before a biopsy with increasing reimbursement success. They use their mountain of clinical evidence...

8/27/2022 7:24 AM

Prostate Cancer
New: 55yo, 4+5=9, PSA 7.6->5.2, ECE SVE(?) what treatment ?

As you can see from my signature, I had a similar high risk and significant tumor volume diagnosis. Three different surgeons said no surgery as it would not be curable in my situation and they did...

8/27/2022 7:16 AM

Prostate Cancer
A dozen years

Great news Clocknut. Keep up the zeros!...

8/22/2022 6:15 AM

Prostate Cancer
Friday humor (funny story)

Actually an attorney and future successful politician....

8/19/2022 10:30 AM

Prostate Cancer
Gleason 10, PSA 146, lymph node + age 50, looking for input

As Mumbo stated, Dr. Kwan is legendary in his approach with advanced stage PCa. Another is Dr. Oliver Sartor at Tulane University, in New Orleans. You can arrange with either, or both, to send...

8/19/2022 6:30 AM

Prostate Cancer
Covid question

Recently after my son and daughter in law caught it, so did my wife and I. We were mild to moderate symptoms for a few days, but did not go for any treatment. Did fine without the paxlovid....

8/17/2022 6:12 PM

Prostate Cancer
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