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dkob131

HealingWell Forum
>
Member Profile
Display Name
dkob131
Profile Created
4/13/2008 7:11 AM
Last Seen
3/28/2020 6:50 AM
Total Posts
364

Last 50 Posts

Wanting the best Prostate cancer Drs. At University of Washington/Fred Hutch

Mark: Celestia is great, another is Bruce Montgomery he's involved in numerous clinical trials and has a great bedside manner. Good luck David...

1/9/2018 6:29 AM

Prostate Cancer
Sarasota/Bradenton, Fl urology recommendations

Tinkerbell: I was treated by Dattoli in late 2012, I live just outside of Seattle so you can imagine it was quite a trip. My experience was excellent, he's as good as they get. Good luck David...

9/1/2017 6:45 AM

Prostate Cancer
Hematuria after Radical and Radiation 20 years out.

J.R. A couple of more things, my treatments were over 2 years ago and I haven't bled since. Most of the people I was "diving" with were in for wound or burn treatment one even had just completed...

8/5/2017 3:55 PM

Prostate Cancer
Hematuria after Radical and Radiation 20 years out.

J.R.: I had 40 hyperbaric treatments for the exact same issue. I was treated at Virginia Mason in Seattle which is one of only 4 sites in the U.S. that have a chamber big enough to hold 8 patients...

8/5/2017 3:49 PM

Prostate Cancer
AUS update

SC: It's great to hear the AUS is working great. Good luck David...

6/13/2017 8:06 PM

Prostate Cancer
AUS activated - thrilled

SC: I forgot to mention this but it may be something you want to discuss with your Doc, in fact I'm a little surprised he didn't mention it to you. Virginia Mason has a hyperbaric chamber( I believe...

5/25/2017 5:54 AM

Prostate Cancer
AUS activated - thrilled

SC: I have a lot of the same issues that you do, interestingly enough I started at Virginia Mason but had numerous problems with them so I switched to Harborview and Volzke. It seems almost like a...

5/25/2017 5:26 AM

Prostate Cancer
AUS activated - thrilled

SC: Did you end up using Dr. Volzke? Congratulations on the dryness!!!! David...

5/24/2017 1:34 PM

Prostate Cancer
AUS Revision Uro Recommendation

Tallguy: Dr. Volzke in Seattle is one of the best, he's out of Harborview Hospital and the University of Washington. Good luck David...

5/5/2017 5:09 AM

Prostate Cancer
Time for AMS 800

psaayten: I originally went to Virginia Mason for the implant but switched to Harborview and Dr. Volzke, I just didn't like the way things were handled at Virginia Mason. Dr. Volzke was great and is...

12/10/2016 6:30 AM

Prostate Cancer
Questions on AUS with or without implant

SC: You're in great hands with Dr. V, he's a Baylor undergrad and a little touchy about their recent issues(football). I went to O.U. so we're sworn enemies but have a great relationship. Rib him a...

11/13/2016 8:24 PM

Prostate Cancer
AUS - WHEN IS A REDO NEEDED AND CAN IT BE DONE?

TV: I had an AUS installed a couple of years ago and it has been working great up to this point. Obviously everyone is different but I have heard the average shelf life for an AUS is between 7 and 10...

11/5/2016 6:27 PM

Prostate Cancer
Good news but incontinence has become a major issue

SC: For some reason I thought you were a Rocky Top guy. A Tennessee Volunteer fan and a resident of Tennessee. David...

11/5/2016 5:35 PM

Prostate Cancer
Good news but incontinence has become a major issue

SC: You're in great hands with Dr. Wessell, he's as good as it gets. I'd try and hook up with you while you're in Seattle but I'm down in Arizona until April. Good luck David...

11/5/2016 5:30 AM

Prostate Cancer
Good news but incontinence has become a major issue

SC: Who's the Doc. you're seeing in Seattle? I had my AUS installed by Dr. Volzke at Harborview. It's been a pretty good ride for me, very little dripping and I can do just about anything. Good Luck...

11/4/2016 7:55 PM

Prostate Cancer
Doc says I am cured

NY-Sooner: Congratulations!!!!!! Boomer ? David...

8/10/2016 7:40 AM

Prostate Cancer
An article on the uptick in metastatic disease...it's not good

That's me, a day late and a dollar short. Sorry about the re-post. David...

7/20/2016 6:35 PM

Prostate Cancer
An article on the uptick in metastatic disease...it's not good

http://medicalxpress.com/news/2016-07-metastatic-prostate-cancer-cases-skyrocket.html Good luck David...

7/20/2016 5:17 PM

Prostate Cancer
I'm lucky

I just received my latest P.S.A. test results and I'm still rolling undetectable. I'm a very lucky person: My story really quickly: I had a prostatectomy at U.W. in June 09 after being biopsied as a...

6/8/2016 6:02 AM

Prostate Cancer
Any experiences with Dattoli Center for metastatic PC?

Allen: First of all, I try to read all of your posts without a doubt you are one of the most educated individuals on this forum. Thank You for all of the info. you provide us. I believe the Feraheme...

5/2/2016 11:40 AM

Prostate Cancer
Any experiences with Dattoli Center for metastatic PC?

Bob: It's good to hear you are doing well after your treatment. When I was in Sarasota it seemed that everyone on Medicare had no issues with insurance but being a young guy (lol) I had to fight like...

5/2/2016 6:54 AM

Prostate Cancer
Any experiences with Dattoli Center for metastatic PC?

Why: Fairwind brings up a really good point, as has been pointed out this is a little out of the box and your dad should be sure and contact the insurance company so there are no surprises down the...

5/1/2016 7:26 PM

Prostate Cancer
Any experiences with Dattoli Center for metastatic PC?

Why: I saw Dattoli a little over 3 years ago after I had already completed surgery and salvage radiation. It was my last best shot I believed after talking to him. I didn't have wide spread mets but...

4/30/2016 7:49 PM

Prostate Cancer
Recurrence of Psa 4 years later

jliggett69: I was seen by Dattoli after ART had failed, he sent me to Sand Lake for the ferahemme and saw two aortic lymph nodes that he radiated, since then I've been undetectable (a little over 2...

2/25/2016 9:14 AM

Prostate Cancer
hyperbaric oxygen chamber

Mine was from ART also. David...

2/24/2016 11:41 AM

Prostate Cancer
hyperbaric oxygen chamber

Tony: I completed 40 treatments last year for bleeding caused by a bladder neck constricture. I haven't bled since the treatments, I saw some great results also for people who were in for wound care...

2/22/2016 7:07 AM

Prostate Cancer
Still undetectable

jpenn: Thank you for the support, you're in a tough fight and just taking the time to respond means a lot to me. I wish you the best. David...

2/17/2016 9:22 AM

Prostate Cancer
Still undetectable

I just received my blood work results and I'm still showing as undetectable. It's basically a miracle in some ways, I had DaVinci surgery in 2008 and reoccured immediately, then I had SRT and...

2/17/2016 8:52 AM

Prostate Cancer
SAPE vs. hyperbaric O2 for gross prostatic hematuria?

Howard: Yes, my bladder neck issue was caused by SRT although some individuals have problems caused by surgery. It can be a crap shoot on SE's with any treatment. Good luck David...

2/16/2016 3:07 PM

Prostate Cancer
SAPE vs. hyperbaric O2 for gross prostatic hematuria?

JRNY: After 142 posted it reminded me that I had eye sight problems also, particularly at night. It's so common that Virginia Mason sold cheap sets of eyeglasses that adjusted so your eye sight at...

2/16/2016 12:20 PM

Prostate Cancer
SAPE vs. hyperbaric O2 for gross prostatic hematuria?

JRNY: I did 40 hyperbaric treatments a little over a year ago and had great success with it. I was bleeding substantially from some bladder neck issues caused by SRT prior to the treatments and...

2/14/2016 6:37 AM

Prostate Cancer
Management of Strictures

James: Here is one of the leading authorities in the world on urethral strictures, Dr. Joel Gedman. His mantra is "if you've had the stricture dialated once and it comes back you need reconstructive...

1/26/2016 12:51 PM

Prostate Cancer
Anyone have a Stricture after RP

James: I actually spoke with Dr. Gelman on the phone at one point, he does surgery on both urethral strictures and bladder neck strictures. Mine was a bladder neck issue. Dr Gelman is one of the true...

12/13/2015 5:47 PM

Prostate Cancer
Anyone have a Stricture after RP

Fellas: Here's something to consider, some uro's are going away from suggesting self-cathing, they believe it does more harm than good. Here's some info. if you have a reoccurring stricture. I...

12/12/2015 7:51 AM

Prostate Cancer
Update- Bladder issues

Greg: I'm sorry to hear about your issue, I was wondering how you were doing. I hope things work out well for you, I believe it was 2 years ago that we were sitting around a table discussing PCa....

11/27/2015 7:05 PM

Prostate Cancer
Still a zero

I'm a very lucky guy, I just received my results and I'm still rolling 0's on the PSA. I'm one of the guys who went to Dattoli/Bravo for the feraheme scan and radiation afterwards. I had already had...

11/4/2015 6:49 AM

Prostate Cancer
Update: Found the source of rising PSA after failed RP and SRT

Jerry: Up to this point, a little over 2 years later my PSA is undetectable. Obviously I was on ADT 3 for a little under 1 year of that time, yes they hit everything they could find. David...

10/17/2015 12:27 PM

Prostate Cancer
Update: Found the source of rising PSA after failed RP and SRT

Bob: I just now had the chance to read your response, the upside to your journey is now you're in the hands of a real expert in my opinion. When I went through the "Datolli experience" they were...

10/16/2015 5:52 AM

Prostate Cancer
Update: Found the source of rising PSA after failed RP and SRT

Bob: The atmosphere at Dattoli's is outstanding, I found that some of the patients I was getting radiated with were as knowledgeable about prostate cancer as some of the Doc's I've seen and that's...

10/13/2015 1:04 PM

Prostate Cancer
Radiation after failed surgery and radiation?

Bob: Good luck and be sure to eat at one of the Amish restraunts, they have a large area in Sarasota and they have great food. David...

9/15/2015 12:58 PM

Prostate Cancer
Strictures

Alan: I had an issue like you, I did a lot of education and actually found some information that you might want to look at. Here's a link: https://www.centerforreconstructiveurology.org/ I spoke to...

9/15/2015 12:14 PM

Prostate Cancer
Radiation after failed surgery and radiation?

After reading what I posted above I believe it may appear that I had more radiation to an area where I had already had radiation at. That is not the deal, my target field with Dattoli was in a...

9/15/2015 11:10 AM

Prostate Cancer
Radiation after failed surgery and radiation?

Bob: Thanx for the info. It's a little surprising that Dattoli hasn't taken the time to explain to you where he believes the cancer still is, he was very open with me about it. I had full pelvic...

9/15/2015 5:21 AM

Prostate Cancer
Radiation after failed surgery and radiation?

Bob: Of course you know I have. It sounds like you saw Bravo and Dattoli, if you did what type of scan are they now doing at Sand Lake? David...

9/13/2015 6:03 PM

Prostate Cancer
Clinical trial at MD Anderson to see if Feraheme helps to see cancerous lymph nodes

Bob: Keep us informed on how things go for you. Your last message is a little broken, are you going to Sand Lake and what type of scan are you having, are you receiving treatment from Dattoli ? David...

8/12/2015 1:26 PM

Prostate Cancer
Clinical trial at MD Anderson to see if Feraheme helps to see cancerous lymph nodes

Bob: I agree with you, Dattoli undoubtedly knows his stuff. I actually had a fair amount of in-depth discussions with him when I was receiving treatment. With that said if you can get the feraheme...

8/12/2015 10:54 AM

Prostate Cancer
PSA on the rise after RP, ADT and SRT: next step?

Mel: I don't believe so, when I went to Sarasota SBRT was just a twinkle in the eye of most of the Rad Docs. ( just kidding but it wasn't very well known at the time.) Dattoli does something he calls...

7/29/2015 12:37 PM

Prostate Cancer
PSA on the rise after RP, ADT and SRT: next step?

Bob: I don't particularly agree with the individuals who say everything from here on out is pallative, the fact that the C-11 scan didn't show anything doesn't really surprise me, your PSA was .4...

7/29/2015 11:36 AM

Prostate Cancer
2 years out

Greg: It's great to hear that you're hanging tough. Those Dattoli mornings were really enjoyable other than the zapping. Have you kept in touch with Jim or any of the other members of the group ?...

7/29/2015 9:29 AM

Prostate Cancer
Testosterone RecoveryAfter HT

JNF: Do you take Avodart ? It helps increase your testosterone but decreases your dihydrotetosterone I believe. I was lucky that my testosterone bounced back so fast, I thought one of the causes has...

5/14/2015 7:33 AM

Prostate Cancer
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