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Carlos

HealingWell Forum
>
Member Profile
Display Name
Carlos
Profile Created
11/5/2009 11:30 AM
Last Seen
8/22/2019 4:44 AM
Total Posts
486

Last 50 Posts

Bone health vs PC treatment vs treatment for bone health

Dr. Strum covered many of your questions in his book, Prostate Cancer:Essential Concepts for Survival. He has a chapter that discusses the importance of bone integrity and why it is so important when...

4/15/2018 12:50 PM

Prostate Cancer
My PSADT has changed from 36 mo. to 9 over last 2 yrs. Why now 7 yrs after SRT?

TA, Thanks for the reply. I really shouldn't be surprised at the recurrence since the MSK nomogram only gave a 25% chance of success....

2/19/2018 3:21 AM

Prostate Cancer
My PSADT has changed from 36 mo. to 9 over last 2 yrs. Why now 7 yrs after SRT?

My PSADT was 36 months 2 years ago. It dropped to 18 months last year and just recently dropped to 9 months. I had RP 10 years ago and SRT 7 years ago. I had a large volume of G5 cells in one lobe....

2/18/2018 12:28 PM

Prostate Cancer
Time left to go

I had SRT at 75. I haven't had any issues until this year. SE's from SRT were hematuria and occasional stress incontinence. I am 80 now and my primary care Dr says I can easily make it into my 90's....

4/4/2017 4:07 PM

Prostate Cancer
Anyone have experience with fulguration?

I have had problems with hematuria and clots over the last two months. I had two small lesions causing all of my problems. My uro fulgurated the lesions inside my bladder and stopped the bleeding....

2/26/2017 1:15 PM

Prostate Cancer
A question about hematuria and low dose aspirin

I started having some problems with hematuria a couple of months ago. Uro took a look inside the bladder and found several radiation damaged blood vessels. Labs and some imaging did not reveal any...

2/6/2017 11:50 AM

Prostate Cancer
POLL - For Salvage/Adjuvant Radiaition Treated Men

SRT in 2010. Three small ink marks and used a Varian rapid arc....

9/26/2016 11:36 AM

Prostate Cancer
Anyone have a Stricture after RP

James, thanks for bringing this topic up again. Do you know if there is a written procedure that describes the proper way to perform a dilation? I had surgery in 2008 and have had 6 bladder neck...

12/20/2015 1:00 PM

Prostate Cancer
To SRT or not to SRT

Green, I had surgery at 71. I Developed a bladder neck stricture a year or two later. I had four dilating procedures that helped a great deal. I had my 4th dilation in 2009 and then started SRT in...

8/20/2015 3:35 PM

Prostate Cancer
MediCare Advantage and PSA testing

OK Mel,you win. Medicare makes a distinction between PSA screening tests and diagnostic tests. The lab assays may be identical but the coding is different. Screening is allowed once a year but...

8/19/2015 7:59 AM

Prostate Cancer
Sloan Kettering Nomogram change

Thanks for mentioning the update (I think). I entered my numbers and it says I have 0% chance of being BCR free 6 years after SRT. And, I guess they are right. My PSA is almost to 0.1. This only...

5/20/2015 12:37 PM

Prostate Cancer
Is there a generally accepted protocol to follow after failed SRT?

Here are some comments from the New Prostate Cancer Info link with their position about when to start ADT: Here are some really important facts that are worth remembering about the use of ADT: • It...

5/7/2015 11:47 AM

Prostate Cancer
Is there a generally accepted protocol to follow after failed SRT?

Thanks for the replies. I realize the small changes in my PSA over the last few years haven't reached statistical significance. I'm just trying to learn as much as I can before I meet with my...

4/30/2015 3:33 AM

Prostate Cancer
Is there a generally accepted protocol to follow after failed SRT?

I really like the latest ideas suggesting no ADT until absolutely necessary. But I still have many questions. What PSA level to start bone scans? What about soft tissue scans? Should one wait until...

4/29/2015 11:47 AM

Prostate Cancer
Rising psa, question on HT

Steve, My situation is similar to yours. Unfortunately, I have more questions than answers. Allen mentioned surveillance for mets. Is this something readily available at the local imaging center or...

4/22/2015 4:07 AM

Prostate Cancer
How important was maintaining erectile function in your primary treatment decision?

I had ED problems long before PCa came along so it wasn't an issue. I probably would have gone with an implant had I been in my 60's rather than 70's....

3/2/2015 9:13 AM

Prostate Cancer
What was your age at Dx? (A look at how we break down, age-wise)

Dx at 71, now 78. You are right about the age distortion. Very few of my elderly friends use the internet....

12/24/2014 2:40 PM

Prostate Cancer
2014 PCRI Conference in Los Angeles ~ Great to see Before Treatment and/or After.

Tony, are there going to be any transcripts of the presentations? I really would like to see the Dr. Scholz presentation on Treating PSA Relapsed Disease....

6/13/2014 8:31 AM

Prostate Cancer
Immediate ADT offers little OS benefit for PSA-detected PC relapse

I noticed that the study excluded men if they received secondary treatment such as salvage radiation. That probably includes a lot of us on the HW site. RalphV also posted a contradictory study in an...

5/16/2014 8:39 AM

Prostate Cancer
Cost of Lupron shot - here's my bill/insurance

Mel, My office visit similar to yours was fully covered by Medicare Part B. Medicare usually covers all costs for meds administered in the docs office as well as all lab costs. Carlos...

2/5/2014 4:48 AM

Prostate Cancer
How risky is pelvic lymph node radiation after failed SRT?

Baptista, Thanks for your comments. I met with my onco yesterday and we covered most of my options. The plan at this time is simply to test my PSA for a couple of 3 month cycles to get a better feel...

1/25/2014 9:36 AM

Prostate Cancer
How risky is pelvic lymph node radiation after failed SRT?

TA, thanks for the info and the links. I meet with my onco this afternoon to talk about my options and will mention SBRT. I guess the real problem is the inability to detect mets that may be out of...

1/24/2014 8:57 AM

Prostate Cancer
How risky is pelvic lymph node radiation after failed SRT?

Sonny, Yes I saw your report and found it very informative. I'm really not inclined to try any more radiation at this time. I have a good quality of life and don't want to ruin it. My PCP said I was...

1/23/2014 1:27 PM

Prostate Cancer
How risky is pelvic lymph node radiation after failed SRT?

Purg, There was no intent to radiate areas previously targeted. He simply planned to target lymph node areas that were excluded in the original plan. Carlos...

1/23/2014 12:59 PM

Prostate Cancer
How risky is pelvic lymph node radiation after failed SRT?

My last PSA went up a little and has me looking at my options if it turns out to be BCR. My RO did not recommend whole pelvic radiation with SRT. He said I could always come back and target the...

1/23/2014 12:37 PM

Prostate Cancer
January Tests-- Post Here

My PSA has taken a turn on me. It had been in a downward trajectory for 2 years but changed directions and doubled over the last 5 months. It is still a very low 0.06. So now I'm back to 3 month...

1/14/2014 9:12 AM

Prostate Cancer
Physical training

Here is a link to an NAFC article that has some good info on pelvic floor exercises. If you skip on down towards the end of the article you will find a section on incorporating pelvic exercises with...

12/28/2013 5:24 PM

Prostate Cancer
encouraging salvage radiation news

Thanks for posting the link, it is very encouraging. Good luck on your next PSA. Carlos...

12/26/2013 5:22 PM

Prostate Cancer
You're 75. do you want to know if you have cancer?

Yep! I am 77 and plan on getting tested until I turn 90. Carlos...

10/19/2013 10:48 AM

Prostate Cancer
Surgery Date set with Dr. Smith at Vanderbilt Medical Center

Here is a link to some good info on Kegel exercises: National Association for Continence http://www.nafc.org/uploads/pdf/Pelvic_floor.pdf . I found the various floor exercises to strengthen the...

9/5/2013 12:43 PM

Prostate Cancer
PSA takes a surprising drop 2 1/2 years after SRT.

My PSA just dropped to 0.03, 5 years after surgery and 2 1/2 after SRT. I increased my veggie and fruit intake and increased my exercise level about 6 months ago. These are about the only things I'm...

8/14/2013 12:43 PM

Prostate Cancer
diet and exercise?

Dr. Brian Lawenda has published some good info on nutrition and exercise. Tony(TC Lasvegas) originally posted this link to his web site:...

8/9/2013 11:09 AM

Prostate Cancer
Frozen Pathology while under and Final Pathology Report (Pros/Cons)

Kdeinv, I had frozen section pathology at St. Vincent's in Birmingham. The surfaces of resection were negative but I still had BCR 2 1/2 years later. In my case it didn't make any difference....

8/8/2013 4:08 AM

Prostate Cancer
Dilation of Urethral Structure

I had to have several dilations and chose to have the "in office" procedure with the sounds rather than the surgical procedure. I avoid hospitals and anesthesia when possible. The actual dilation...

7/22/2013 3:48 AM

Prostate Cancer
Published paper on Non-prostate cancer-specific mortality rates in a cohort of > 3,000 patients

Yooper, Thanks for posting the study. Tell me if I have interpreted it correctly for my situation. I am 76 with high risk disease but don't have any other health issues. Although I may have ARCD (Age...

7/10/2013 11:56 AM

Prostate Cancer
Blood transfusion

Dave, I started out with 500mcg of sublingual cyanocobalamin B-12. My B-12 level continued to drop. My PCP recommended I change to 5000mcg. I also changed to the methylcobalamin type as I had read...

5/24/2013 10:58 AM

Prostate Cancer
Blood transfusion

Dave, both my red and white blood counts have been below normal since SRT. My PCP thinks this may be my new normal. She is not recommending blood transfusion at this time. My B-12 was also very low...

5/24/2013 3:30 AM

Prostate Cancer
Vitamin Supplements

Yooper, I found the link to the longer 64 page article and included it with the other link above. It does have a lot of detailed info about vitamins and other supplements. Here it is again....

5/21/2013 11:51 AM

Prostate Cancer
Vitamin Supplements

I believe these are the links that Yooper was referring to: http://www.ucsfhealth.org/education/nutrition_and_prostate_cancer/index.html [u]http://cancer.ucsf.edu/_docs/crc/nutrition_prostate.pdf...

5/21/2013 11:23 AM

Prostate Cancer
A low dietary ratio of omega-6 to omega-3 Fatty acids may delay progression of prostate cancer

Medved, thanks for posting the article. Information like this helps with the motivation to keep on keeping on. Carlos...

5/21/2013 10:17 AM

Prostate Cancer
Question on Medicare Part B vs Part D on Lupron, Xgeva, and subsequent PCa drugs

My Eligard (same as Lupron) was covered by Medicare part B. My Medicare booklet says that a limited number of drugs like injections you get in a doctors office and certain oral cancer drugs are...

5/9/2013 12:16 PM

Prostate Cancer
PSA still stable 5 yrs after dx

My PSA has remained stable since finishing SRT about 2 years ago with latest PSA 0.07. It has been about 5 years since surgery with no SEs at this time. Still trying to get at least 3 hours of...

4/16/2013 12:19 PM

Prostate Cancer
Hubby's fed up with hot flashes, etc.

Dr. Sartor had this comment about using Megace (megestrol acetate): " But in prostate cancer, Megace may interact with the androgen receptor, particularly mutants, and cause excessive cancer growth....

3/18/2013 3:48 AM

Prostate Cancer
The strange case of Dr. Jekyll and Dr. Hyde

Dr. Myers is also a big believer in optimism and made a great observation: "Not only do pesimists do worse medically, but they're absolutely miserable while they wait for bad things to happen. For...

3/15/2013 1:35 PM

Prostate Cancer
Off-label against cancer - metformin and inderal

robert, The article seems to imply that off-label prescriptions are against the rules. Yet, Myers, Scholz amd Lam have no problems prescribing Avodart off-label against cancer. Are there any...

2/25/2013 12:06 PM

Prostate Cancer
Good article on current options for managing early biochemical recurrance

HD_Rider Here is a link to the abstract of a study that compared Early PSADT (values <0.2) to standard PSADT (values>0.2). The author concluded that there was a low correlation between the two....

2/25/2013 9:32 AM

Prostate Cancer
And ....another bit of hope for advaced cases.

Very interesting Mag. I think this may be the same study about mushrooms and soy that robertc posted several days ago. Here is a link to the Science Daily article:...

2/23/2013 5:07 PM

Prostate Cancer
2013 PC/Aerobic Challenge - Week 4 (of 4)

Week 4, Friday. 40 Minutes treadmill, 2.5 miles. Two sets of lower body exercise glutes, legs, etc. Quote from Dr. Myers: "While exercise does not appear to reduce the risk of prostate cancer, it can...

2/22/2013 8:39 AM

Prostate Cancer
2013 PC/Aerobic Challenge - Week 4 (of 4)

Week 4, Thursday. 39 minutes treadmil, 2.5 miles. Upper body exercises, 1 set of chest, back, arms and shoulders....

2/21/2013 10:52 AM

Prostate Cancer
HIFU treatment for prostate cancer

Len, here is a link to a Feb. 2012 thread with some good info on HIFU outcomes. http://www.healingwell.com/community/default.aspx?f=35&m=2339304 . Just enter HIFU into the HW search function and...

2/20/2013 2:50 PM

Prostate Cancer
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