7...
I don’t mean to highjack this thread but am in dire need of advice by jnf regarding a social security issue, nobody I talk to can answer this, you have helped me about 2 years ago regarding my wife...
Yeah, what a soothing, relaxing post, nice...
My wife too has Parkinson’s Disease, goes to Hopkins movement and Parkinson’s center. I have been here a long time too, I always felt your posts were informative and inspirational, wish you all the...
What can I say? As a physical therapist for 35 years I’ve seen patients getting gobs of medicines for pain many years ago to current patients with back surgery, hip and knee surgeries getting almost...
I’m not sure this will be much help to you but I had my robotic prostatectomy at Ochsner Hospital in 2008 by Dr Richard Vanlangendonck. I lived in Baton Rouge and they didn’t even do robotic at that...
I saw this this morning on cbs news although the cardiologist on the show summed it up as there was no difference in mortality between the cabg/stent group versus the medication/changed lifestyle...
Well I for one am inspired by all of your heroic stories here, makes me feel a bit better. I am typical post prostatectomy guy using trimix for over a decade with now a mild case of peyronies,...
The exact same thing happened to me 6 months ago, I saw 0.05 on one form and it was actually <0.05 on the CORRECT form. it’s easy to get unhinged by this disease......
I don’t know your particular situation but having seen multiple patients with als and snp if you’re looking for pain control rather than treating the prostate cancer directly wouldn’t your husband be...
I’ve been undetectable for 11 years, if I ever become detectable again (like I thought I was 5 months ago) I would get treatment because I’m paranoid as all hell but that’s me, I didn’t say it was...
Well the < .05 is great of course, and my T levels have fluctuated over the years and I’ve never had Lupron, unfortunately it continues to decline over time to the low 200’s even with TRT. I would...
Thank you Peter for the heads up, I looked at the coupons and they do look too good to be true but I will try that avenue for sure. There are a couple of compound pharmacies near me (I live in the...
Just an aside here, a number of my coworkers are using cbd oil in place of opioids and anti inflammatory meds with great results. I caution all that are still working and subject to drug testing (as...
In the not too distance future I will be going on MEDICARE (yay). I recently switched insurances due to job change and no longer have access through my job to a very inexpensive mail order pharmacy....
Make absolutely sure somebody just forgot about the < sign. I had a scare like this 4 months ago. My endocrinologist who was providing TRT mistranscribed the result from urologist office in my...
There may be some truth in what you said. I used trimix for 11 years and have a mild curvature. Perhaps it was from the trial and error at the beginning. I don’t use trimix anymore (although I could)...
I figured that out 11 years ago when my PCP told me I could never have TRT even though I had osteopenia due to extremely low T levels. I had Gleason 6 prostate ca surgery 3 years earlier with 3 years...
I can understand your anxiety, my psa had been undetectable for over 11 years after surgery for low level Gleason 6, I had a scare 3 months ago when I thought the psa was suddenly detectable but my...
A thorough description of the complications of T measurements. As a man with history of prostate ca followed by TRT I found your post very enlightening and will discuss with my endocrinologist at...
It does come in a rub but I’ve never used that. Trimix is pretty reliable as long as you inject at the 1100 or 100 positions (I know they say 10 or 2 but I found 11 and 1 better, fewer misses) and...
Yes, keep it going...
Yes the whole pricing thing for testosterone gel seems odd to me. When I started using it 8 years ago there was only trade name Androgel and it took a congressional act to get it approved. Now there...
Glad you got your T, I just moved to Baltimore a month ago, you gave me name of urologist and pharmacy for trimix, thank you. I’m going to endo in Towson in 2 weeks, hope to continue on TRT to avoid...
Nah, don’t leave, your abstract poetry/stream of consciousness is appreciated by me as a counterbalance to all the numbers we have to keep track of around here with this strange disease......
I took flomax many years before pca, it made me dizzy when I stood up (took a bp pill too) had to quit it because I was too lightheaded...
It looks like you’ve slain the beast, good for you.......
I have to say I am Joe Pantoliano, “ if only I had taken the blue pill, ignorance is bliss...”...
YAYY!...
Ah, I was in your shoes a month ago, Gleason 6, post-prostatectomy for 11years, always undetectable psa of <.01 . Then a new lab said 0.05. I kind of freaked out, thought here we go again. I resigned...
This topic is a real sore spot for me. My wife goes on Medicare in 3 months. I have researched for over a year her best options since she has Parkinson’s with beginning dementia. Imagine my surprise...
Well I’m no expert here but from what you’ve indicated in your post you have even less prostate cancer than I had when I had surgery. However your psa is higher than mine was. It looks like you had...
Yup, I’m like you I’d hit it hard too.....
I posted about a month ago about having an undetectable psa following surgery for 11 years followed by a reading of .05 from a different lab. I asked my endocrinologist what to do, he said that was...
Your poetry is moving, sometimes these enigmatic phrases have a power of their own.......
You r doing fine.......
Thanks for the info, I’ll make the calls...
I overreacted and started looking into options before even knowing the results of the biopsy! In retrospect I wish i’d Waited until the results were in before looking at options. But I’ve always been...
We are relocating to Baltimore MD next week to live near our daughter, my wife is in declining health. Anybody know a trimix doctor in that area? I’m not interested in caverject or any of the more...
You might want to ask your doctors about medications like Fosamax, boniva, prolia which can increase bone density if they feel T is too risky.......
Purgatory, Glad to hear from you, my wife has a Parkinson’s related disease, dystonia, treated with same meds. She can no longer drive, confused from medication reaction, a medication removed, now...
Well now after 11 years of undetectable psa since surgery with 8 years of TRT my psa last week was suddenly detectable at .05! As shown below I was an over treated Gleason 6 with tiny amount of...
F8, thanks for the encouraging words, 11 years after a Gleason 6 with negative margins and now detectable psa? Bobbesian, good point about the low T without TRT, my recent total T and free T was...
I can’t believe I’m actually ending up posting here for information on detectable PSA since I was one of those overtreated Gleason 6s whose PSA went to undetectable after surgery 11 years ago. I just...
I did fine with trimix for about 10 years and TRT. For some reason the libido has pretty much gone even T levels are in normal but low range. My wife has multiple medical issues, pretty much no...
You hit the trifecta for sure......
Sounds like you’re doing fine......
Wow, amazing. 9 years of active surveillance, I couldn’t make it past 2 months, such fortitude. I’m sure you’ll do fine because you’ve followed everything closely all these years...
I think when most people hear about prostate cancer they think of impotent men. As we know from being here the functional ability for sex after prostate cancer varies widely. Some guys are perfectly...