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Fairwind

HealingWell Forum
>
Member Profile
Display Name
Fairwind
Profile Created
7/3/2010 10:19 PM
Last Seen
12/18/2020 12:46 PM
Total Posts
4107

Last 50 Posts

Bipolar Androgen Therapy

You are lucky you were able to find an MO who would prescribe and administer BAT therapy...I never could find one in Denver......

12/18/2020 11:45 AM

Prostate Cancer
PSA 700

My PSA at the moment is 3600. It has been as high as 3800..My cancer is still confined to my bones. I have no bone pain or any other pain..I have had 11 or 12 different treatments and therapies in my...

11/14/2020 2:07 PM

Prostate Cancer
Corona vaccine poll

[b] I will be first on line.....

11/14/2020 1:42 PM

Prostate Cancer
Getting one's prescriptions by mail: the procedure is there, but problems are possible

90% of the scripts issued by VA doctors are delivered by mail..Very few problems.. They ask you to request re-fills at least 10 days in advance to cover possible shipping delays..Some high-value or...

9/28/2020 1:50 PM

Prostate Cancer
Gleason 10 update and any suggestions

I had a similar problem and it turned out to be a bladder stone found by a 'scope exam...Stone removed (using the 'scope) and problem went away......

9/27/2020 7:12 AM

Prostate Cancer
Prestigious medical journal The Lancet publishes findings on Russian Covid vaccine

40%, some say 50% of the people who have tested positive for Covid for whatever reason NEVER have any symptoms....So, to my way of thinking, you can reduce the number of reported infections as...

9/6/2020 2:29 PM

Prostate Cancer
After Lupron, Docetaxel, Zytiga, & Xtandi Now LU-177?

I recently completed the Vision Trial and received 6 rounds of LU-177 spaced 6 weeks apart..At first, the results were dramatic..After the first 3 treatments, my PSA had gone from 2300 to 185. But...

8/29/2020 1:05 PM

Prostate Cancer
Gleason 9 - Advice

Gleason 9 is deadly...Hit it as hard as you can with everything that's available to you...In many places, finding a good brachy RO can be difficult...If they can't do it, they won't recommend it.....

7/15/2020 7:14 PM

Prostate Cancer
PSA doubled (again), should I be concerned?

If you are not seeing a MO, I would start seeing one...Also, check back in with your RO...Another doubling or two, you need to get back on ADT..Also maybe time for a fresh set of scans (bone and...

7/4/2020 2:15 PM

Prostate Cancer
Taxotere

Cabotaxel can be rough..Try Jevtana (Cabazitaxel) For me, it worked better with far fewer side-effects.....

7/4/2020 10:06 AM

Prostate Cancer
To biopsy or not to biopsy

2.2, 2.0, 1.6, I'd say steady as she goes for now..Biopsies are not risk-free and those numbers don't justify one.....

6/21/2020 11:01 AM

Prostate Cancer
Failed IMRT?

It's still to early to call it a failure...But maybe some scans will be next to try and spot any mets......

6/19/2020 2:29 PM

Prostate Cancer
Options in Canada vs US

At diagnosis, what was his Gleason score ? 8, 9 or 10 is a whole different animal than Gleason 6 or a soft 7....(3+4)...

6/19/2020 10:50 AM

Prostate Cancer
10 years later and I'm back here again

With a PSA of 3.4, they should be able to spot to location of the met(s) using one of today's sensitive scans. With that knowledge you can look at a more focused treatment, like SBRT.. Just a...

6/19/2020 10:41 AM

Prostate Cancer
lynparza possiblity

Lynparza is a PARP inhibitor, one of the new genetically targeted treatments..I've been on it now for 2 weeks.. To early to tell if it's working..I'm running out of options....I did get a good...

6/19/2020 10:23 AM

Prostate Cancer
New to hospice

If all your mets are confined to your bones, you may have a couple of more shots left in your gun before you go into hospice..R-223 and Lu-177 come to mind..Also, have you done any genetic work-ups...

6/11/2020 7:41 PM

Prostate Cancer
Texas reopened early, here's the result

This won't end until 40% of the population has been infected and recovered or 40% of the population has been vaccinated.. Methods in place today are designed to SLOW the rate of infection to the...

6/9/2020 9:34 AM

Prostate Cancer
How can I be sure that cancer is not progressing

Plan 1 is valid as long as your PSA stays below 1.0.. Should that threshold be crossed, you will have to move on to plan 2.....

5/31/2020 7:29 PM

Prostate Cancer
strange PSA result number

This thread was started 7 years ago...HK4376 never returned......

5/25/2020 9:54 AM

Prostate Cancer
To Chemo or not to Chemo

Your Dad is 75 years old now, correct ? As far as chemo, you might try Cabazitaxel (Jevtana) as an alternative to Dosetaxel. Caba worked well for me, gave me a good year with few side-effects...Your...

5/24/2020 10:17 AM

Prostate Cancer
ZYTIGA IN MEXICO

There are several pathways to obtain expensive drugs without being forced into bankruptcy.. There are "Co-pay Foundations" that will cover the co-pay 100% They are online or you can ask the...

5/22/2020 7:08 PM

Prostate Cancer
Taxotere Rant

Just a note..If the side-effect from the Cabaztaxel becomes unmanageable, you might try Jevtana, a similar compound that worked better for me all around..Better response, fewer side-effects.....

5/15/2020 5:33 PM

Prostate Cancer
CDC: Covid-19 deaths projected to rise to 3000 per day, new cases to 200,000 per day

The U.S. Treasury can't afford to put 100 million people on unemployment for very long...We can't just keep printing money and handing it out....In my opinion, Covid-19 has such a very low death rate...

5/12/2020 7:15 AM

Prostate Cancer
CDC: Covid-19 deaths projected to rise to 3000 per day, new cases to 200,000 per day

You would do well not to put to much faith in any of the C-19 numbers being tossed out, regardless of their source..There is just too much bad information out there.....

5/11/2020 3:25 PM

Prostate Cancer
Thoughts about the PSMA PET scan??

I had a PSMA scan to qualify me for the Vision trial..The radioactive tracer they use (Ga-68) has a VERY short half life..Something like 68 minutes ? So it has to be made nearby the site where it...

12/9/2019 7:46 PM

Prostate Cancer
Glc100

I sleep on a large waterproof pad that prevents a "little accident" from turning into a complete disaster....Booze and fatigue are contributors..Maybe tea, too......

12/7/2019 8:38 AM

Prostate Cancer
Which scans are suitable for recurrent PCa with very low PSA

I agree with Alephnull, save your money on the scans at this point.. Have you considered adding Lupron to your treatment ? Give the Casodex a little help.....

12/3/2019 7:42 AM

Prostate Cancer
The Last Mile

I can't add much to this, the guys above me have said it all..RIP Rocky.......

12/1/2019 9:43 AM

Prostate Cancer
Immunotherapy gives hope for incurable Prostate Cancer

Keytruda only works if your cancer has a certain genetic (rare) makeup. Without that it's a waste of time. It's also very expensive..The problem today with most immunotherapy is that in many cases...

11/28/2019 11:26 AM

Prostate Cancer
G9 Mets Daughter

The ADT treatment he is receiving can also be called chemical castration and it's side effects are what you would expect from that...The first to appear are usually hot flashes and fatigue along with...

11/27/2019 2:53 PM

Prostate Cancer
Bone Metastases

Once again, the mice are rejoicing.....

11/27/2019 2:39 PM

Prostate Cancer
OT: What will we die from in the future?

A huge number of people in this country and many other countries die from gunshot wounds.. Nine Billion people now swarming over the planet, stripping its resources, fighting for some sort of decent...

11/25/2019 9:06 AM

Prostate Cancer
MAJOR VENT FROM LOGO

Windows 7 is okay, but anything above that, Microsoft owns it and you...I don't own a Smart Phone yet but I don't know how long I can hold out..There's this glow all around me....Look ! It's coming...

11/24/2019 4:50 PM

Prostate Cancer
My father in law has a 700 PSA & is in pain

While the aneurism might blow tomorrow it may never rupture and kill him..In many cases, most cases, ADT can bring on a dramatic improvement in his PSA and tumor burden. From 700 down to 10 or less...

11/24/2019 4:42 PM

Prostate Cancer
MAJOR VENT FROM LOGO

You're supposed to buy a new one every year..Or at the minimum every two years. And all the things you once got for free you are now expected to pay for..You mean your old XP computer is now...

11/24/2019 4:26 PM

Prostate Cancer
Travel with PCA and Tourist Visa Advice?

You probably told them more than they needed to know.. You should be aware that Medicare, all forms of Medicare, will cover Emergency medical care anywhere in the world.. So it's unlikely your Dad...

11/22/2019 7:58 AM

Prostate Cancer
Opioids and the Clerk and Walmart

Few patients are issued written paper prescriptions anymore. 90% of the time, the doctors office just phones them in to the pharmacy with all the necessary coding in place. You just walk up to the...

11/21/2019 2:29 PM

Prostate Cancer
do I need my urologist?

Uros and MO's fight like dogs and cats for PC patients business..Did you have a Prostatectomy and was it performed by this uro ? If you had SRT then his surgery failed and from now on a MO should be...

11/20/2019 6:06 PM

Prostate Cancer
New PSMA With LU177 Trials in Australia

I read the link you posted SS, VERY interesting....It's interesting to note that Endocyte / Novartis is a major funder and contributor of these Australian trials and studies.. Australian doctors have...

11/18/2019 8:31 PM

Prostate Cancer
uPSA accurate to the hundreths or thousandths?

When you get down near true undetectable, ALL the tests seem to "drift" around a little. Background noise. The uPSA test (0.000) tends to float around from test to test, meaningless numbers really,...

11/16/2019 9:54 AM

Prostate Cancer
PSA 700

I hate to bring this up but make sure your Dad's health insurance is up to the task your dad is facing.. You don't want any nasty surprises later on..Find out what your co-pays and deductibles are...

11/15/2019 7:48 PM

Prostate Cancer
PSMA With Lu-177 Treatment Way Earlier...is that a bad idea?

The medical fraternity is a little leery of injection powerful and dangerous radio-pharmaceuticals into your body at an early stage of treatment hoping that it will extend your life for a few months...

11/12/2019 2:45 PM

Prostate Cancer
PSA 39 ng/ml..scared to death but what should I do?

Your PSA is abnormally high. SOMETHING is causing this. Urologists get paid to find out what the problem is. It took them three biopsies before they found mine.. Ask that your next biopsy be MRI...

11/12/2019 10:24 AM

Prostate Cancer
Determining what to do after AS

Yes, find out as soon as you can if brachy and IMRT combo is still an option....To me, that MRI report suggests the horse may have left the barn but I'm not a doctor.....

11/10/2019 9:09 AM

Prostate Cancer
So now what? I just got my last Lupron shot.

Tailguy gave you good advise ...Have your MO or GP check your PSA every 4 or 6 months for a while. You can even do this on your own, most labs accept walk-ins and you don't need a prescription..As...

11/10/2019 9:00 AM

Prostate Cancer
RADIUM 223. Rising PSA. Any known compatible blocker?

These radio-pharmaceutical treatments are usually reserved for stage 4 terminal PC patients who have failed both ADT and chemo. The mortality rate for this group is high and few live more than 5...

11/9/2019 8:25 AM

Prostate Cancer
RADIUM 223. Rising PSA. Any known compatible blocker?

A more effective radio-pharmaceutical is Lu-177, not approved in this country but available in Germany for several years.. $7500 cash per treatment plus travel expenses..You must test PSMA positive...

11/8/2019 4:54 PM

Prostate Cancer
Surprise Medical Bills

Call your insurance company and ask them for a list of anesthesiologists who are in your network. Armed with that information, find one that is accredited at the hospital where the surgery will be...

10/30/2019 8:40 AM

Prostate Cancer
My consult with RO

RO's get paid by how many treatments they perform. So 40 treatments is far more profitable than 5 treatments..Paxton brings up a good point. Maybe your RO does not have access to the equipment...

10/24/2019 6:31 PM

Prostate Cancer
how to get into a trial

There is probably a way to harvest sperm from men with no prostate gland.. When considering clinical trials, be sure to read the fine print very carefully...They can be full of catch 22's that...

10/24/2019 6:18 PM

Prostate Cancer
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