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knotreel

HealingWell Forum
>
Member Profile
Display Name
knotreel
Profile Created
1/7/2006 10:53 AM
Last Seen
6/1/2022 10:12 AM
Total Posts
674

Last 50 Posts

No More AUS

Thanks , Randy Joe. Hope things keep going the right direction you and yours. I am going to look into the SP later on for incontinence. I have read that the SP is used for incontinence, just haven't...

1/24/2020 1:06 PM

Prostate Cancer
No More AUS

Randy joe, I didn't mean to hijack your post, I just wanted to hear about your thoughts on the supra pubic catheter as a long term solution for when I say no more AUS. sorry...

1/19/2020 12:25 PM

Prostate Cancer
No More AUS

Just like what your wedding band does to your finger, the constant pressure eventually indents your finger. The AUS cuff does the same thing to your urethra. As the atrophy progresses, the thinning...

1/19/2020 12:22 PM

Prostate Cancer
No More AUS

don't let me discourage you from trying the AUS. I seem not to be typical in the time it takes for atrophy to kick in. Still though, everybody experiences atrophy but not as bad. I think maybe it's...

1/19/2020 6:23 AM

Prostate Cancer
No More AUS

All us with an AUS have to take a deep breath after reading of your husband's ordeal. I complain about my AUS lost effectiveness (three revisions so far in 9 years) but that seems petty compared ....

1/18/2020 10:49 AM

Prostate Cancer
AUS Nightmare Part 2

I've tried a few different clamps but after a day or so irrational sets in so that is reserved, in my case, for short usage. Ever since the prostate removal I have used my most trusted method, condom...

11/15/2019 8:55 PM

Prostate Cancer
AUS Nightmare Part 2

boy that is disappointing. I am a long lime AUS user, ( about 9 years) while I am not that happy with my, 4 operations to get me where I am now, nothing that happened to me was anything like what you...

11/15/2019 12:32 PM

Prostate Cancer
AUS Installation Report

" I'm like the paper work says squeeze the sides first like you did when we try last time. Oh you don't have to do that just squeeze the bottom soft part so I tried " "The part about squeezing the...

8/29/2019 11:50 AM

Prostate Cancer
Worsening Incontinence

I'd just be guessing on any kind of advice I might offer, except the advice to see a doctor. A urologist certainly, and hopefully one who is an incontinence specialist. I live in Louisiana and I went...

7/17/2019 5:09 AM

Prostate Cancer
AUS new implantees

This is a pet peave of mine. A lot of HW guys with implants back when I got my AUS did not know how to operate their AUS's, yeah they could pee but never bothered to learn to de-activate and...

7/15/2019 3:38 PM

Prostate Cancer
Artificial Urinary Sphincter

OP, boy that sounds familiar I did all that, thousands of kegels in all kinds positions and the fun ET (electro-stimulation). my case was simple, everything worked but my sphincter was buggered up. I...

7/15/2019 3:22 PM

Prostate Cancer
AUS , journey, I guess

What was all that about? I didn't think what I said was controversial, maybe I have been away from the forum too long? The point of my post was not to complain or draw sympathy. I think someone...

7/15/2019 3:03 PM

Prostate Cancer
AUS , journey, I guess

I got my original AUS, 12/2009 and it was 100% (pad free) for a while. By 6 months a light shield was needed. This progressed until 2 years I was a little more than one pad per day. I opted for...

7/15/2019 10:44 AM

Prostate Cancer
AUS AMS biking?

my original AUS Dr. said it would not hurt anything but pressure on the cuff and/or pump will cause urine leakage. In my case the amount of leakage made riding impractical to do anything but put...

3/28/2019 3:25 PM

Prostate Cancer
My new AUS pump and it's roomate, my testicle

really it wasn't been trourblesome. the biggest problem was my expectations, my fist revision was my mistake. I have to say maybe my doctor could have prepared me better for the certainty of atrophy...

1/16/2019 8:58 PM

Prostate Cancer
New Aus pump moving?

As time goes by, in the months to come, the pump will or should find it's spot within the surouinding tissue. Before my latest revsion I could move my pump to the other side of my scrotum if I wanted...

1/16/2019 8:41 PM

Prostate Cancer
My new AUS pump and it's roomate, my testicle

I wish you had'nt said that! It is going to be hard to get that image out of my mind. Or maybe, that's the next thing....

1/14/2019 8:08 PM

Prostate Cancer
My new AUS pump and it's roomate, my testicle

After much trepidation I signed up for and had revision #2 on dec3 2018. My AUS was implanted 1/11/2011 the first revision was a smaller cuff in 2013. Now I finally decided to fix my badly leaking...

1/12/2019 4:28 PM

Prostate Cancer
AMS 800 surgery -- any experience with existing cognitive problems in the patient?

Probably he should get evaluated by maybe his GP . His gp might have some valuable input, then again evaluated by a uro. My guess is that conditions like he has are progressive and you are right to...

12/20/2018 4:22 AM

Prostate Cancer
Pro and Con Advice Regarding the AdVance Male Sling from Implanted Users or Urology Surgeons

I see that this discussion has shifted to comparsion of slings, I can't add to that but I will update my status with the AMS 800 AUS. I reported in 2013 that it had began to leak some. Well, I ended...

11/24/2018 4:47 PM

Prostate Cancer
Incontinence getting worse

I would give it at least another 6-8 weeks and if no improvement get referred to a physical therapist that can offer incontinence training. Didn't work for me but I can see how it could help if it...

6/4/2018 2:24 PM

Prostate Cancer
Update after 9.5 years

Congrats on the 9.5, but hey who's countin. That's the thing, we'll still be counting, well at least to 10.5. Come to think, I am 8.5, wow it doesn't seem that long. Hopefully your hernia wont be a...

5/17/2018 6:42 AM

Prostate Cancer
Dual implants not covered by Medicare

as of yet I have not been found medicare's rules that require two separate surgeries I did see that if the same dr. does both operations he gets paid 50% of the rate for the second op. Doesn't make...

5/14/2018 12:09 PM

Prostate Cancer
Dual implants not covered by Medicare

Back in 2011 when I got my AMS 800 artificial urinary sphincter I also got the the AMS 700 IPP in the same operation all covered by medicare. Now with me needing a revision to the AUS and having the...

5/10/2018 1:35 PM

Prostate Cancer
AUS saga continues...

I hope you can get a good result this time. I bet you never planned on having so much to write about in your blog you are starting. Gook luck....

5/30/2017 12:29 PM

Prostate Cancer
AUS saga continues...

Wow, sorry to hear the saga is continuing. I have read quite a few reports by members experiences with their implants and none that I recall had a rough go with catheters after AUS. I However I think...

5/27/2017 10:49 AM

Prostate Cancer
End game for my AUS?

thanks, peter, I already saw that reference but didn't read entirely, I think for obvious reasons. Some take away points were for me that, they use, as they must, some assumed number of pads for...

5/24/2017 3:52 PM

Prostate Cancer
End game for my AUS?

not sure but your starting off at a set number of pads rather than unlimited in my case should be reason for a good out look. I like said you have to be optimistic. Mean time enjoy. good luck....

5/24/2017 2:46 PM

Prostate Cancer
End game for my AUS?

funny thing is up until recently, though nothing has really changed in my wetness, I would have given the AUS a thumbs up. If you wear one pad all day what is wearing 4 pads in the same day, better?,...

5/24/2017 12:59 PM

Prostate Cancer
End game for my AUS?

Some of the recent posts about those of us getting new AUS implants or revisions to their existing AUS made me give my own AUS experience some honest (what’s that) thought. I am now trying to think...

5/24/2017 11:31 AM

Prostate Cancer
AUS has stopped working. Activated 2 months ago and I'm in philippines

I have never heard of the reservoir being close to the skin and visible. Mine as well as those I have talked to have the reservoir rather deeply implanted in the abdomen. I hate to add to your...

5/6/2017 3:38 PM

Prostate Cancer
AUS Implanted Yesterday

good luck with the AUS, Mine is about 7 year old. At first I went from 100% incontinent to 100% dry. Wow, it was great, after a year or so from the original implant and about 6 months after the...

5/6/2017 3:17 PM

Prostate Cancer
AUS Revision Uro Recommendation

Like Neo, my AUS was done by Dr. Timothy Boone of Methodist Houston. Incontinence after prostatectomy is one of his areas of specialty. He did my original implant in jan 2011 and then a smaller cuff...

5/5/2017 7:02 PM

Prostate Cancer
12 months after surgery need advice on incontinence

never noticed any effect like you speak of, but if someone is stressed, perhaps their bladder pressure can increase with the stress? That would be a good question for your PT visit....

3/20/2016 2:18 PM

Prostate Cancer
12 months after surgery need advice on incontinence

I ended up with an AUS, my leakage after a year was lot worse than yours. Given your activity, averaging 4 oz is not bad, but I know how even that or really any leakage that requires pads is not a...

3/17/2016 6:55 PM

Prostate Cancer
ED problem Is there anyone using Penile Implant?

I can't say, maybe some injection guys can comment, but with you only being 44 and looking at many years of injections ahead (if you go that way ) would make the implant worth considering. There are...

12/14/2015 3:39 PM

Prostate Cancer
Reduced, Painful Ejaculate After Prostate Biopsy

I think you should consult your Uro. you may have an infection that is causing swelling. In any case something has happened and need to find out....

12/13/2015 8:19 PM

Prostate Cancer
ED problem Is there anyone using Penile Implant?

my implant was done at the Houston medical complex by Dr. Larry Lipshultz of Baylor. I highly recommend him. About the length issue. I meant that during inflation it expands in girth and length. Only...

12/11/2015 1:58 PM

Prostate Cancer
ED problem Is there anyone using Penile Implant?

I was implanted 1/11/11 with the AMS 700 LGX which expands both length and girth. I am very satisfied with my implant. You will find lots of help on the implant forum on the FrankTalk website....

12/11/2015 12:11 PM

Prostate Cancer
Need Advice About Penile Implant

I had an AMS LGX 700 implanted in Jan 2011 and at the same time the AMS 800 artificial sphincter was implanted as well for incontinence. I am happy with both devices and the IPP works just as...

10/26/2015 7:27 PM

Prostate Cancer
My search for ultrasensitive PSA

I don't have any uro in my small town so I use my GP in town and he does the blood draws and a lab picks it up and tests in a city. So, think out the box. I figure that since I don't have any...

10/3/2015 5:48 AM

Prostate Cancer
My search for ultrasensitive PSA

I would think that your doctor could easily arrange for your samples to be tested however you wanted, if not I would do what I did, go to another doctor. unless there were some complicating issues...

10/2/2015 7:04 PM

Prostate Cancer
Pee after biopsy

This is sort of indelicate, but in a week or so he should consider ejaculating to flush out the prostate. There is usually a lot of thick blood and "stuff" that is best not left in there. Some...

10/2/2015 11:37 AM

Prostate Cancer
PSA test result 0.1 vs <0.1: doc says it's just noise in the system

bear in mind that article is from 2007. After my doctor, the uro that diagnosed my Pca, did my first 6mo. post surgery follow up psa and gave me the <0.1 result and told me the "noise" theory I left...

10/1/2015 11:12 AM

Prostate Cancer
Looking for Implant Doctor in Houston TX

I used Dr. Larry Lipshuktz at Bayor, Houston Medical Complex. Google him for more details. I got what I consider as excellent results....

9/17/2015 12:19 PM

Prostate Cancer
Coloplast Urinary Leg bags leaking HELP PLEASE!! (US - "Conveen")

so you are looking to sue instead of glue?...

9/12/2015 5:02 AM

Prostate Cancer
Coloplast Urinary Leg bags leaking HELP PLEASE!! (US - "Conveen")

have you tried putting the bag on your calf and using an extension tube to run from the catheter to the bag. this way you can have the bag in a place that is much less likely to slip down and with...

9/11/2015 5:36 AM

Prostate Cancer
Penile Implant Experiences and Questions.

Geez, who would have thought, a metal penis!! So far the efforts in AUS and IPP's have more or less imitated nature in the way they function. So what happened? some guy in a lab makes this alloy of...

8/1/2015 8:53 AM

Prostate Cancer
It works great!!!

as a great leader once said "Dry at last, dry at last"...... it is a great feeling that a lot of us can relate to....

7/23/2015 6:48 PM

Prostate Cancer
how to activate ams 800

OK, the squeezing the sides helps to bypass the valve so the reservoir press can fully inflate the bulb, if the bulb is not fully or near fully inflated you will not be able to pop the valve open. So...

7/5/2015 5:21 AM

Prostate Cancer
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