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142

HealingWell Forum
>
Member Profile
Display Name
142
Profile Created
1/20/2010 1:52 PM
Last Seen
12/4/2019 7:55 AM
Total Posts
7298

Last 15 Posts

Immunotherapy gives hope for incurable Prostate Cancer

I took the genetic test for Keytruda - nothing. Just as well, it would price out at $23000/month, and I don't have that. I spent a couple of months in a Corvus CPI trial. It accomplished nothing but...

11/29/2019 10:37 AM

Prostate Cancer
Opioids and the Clerk and Walmart

And on top of that, WalMart is no longer honoring GoodRx for discount prices. I'll have my own issues Monday with my oncology clinic pharmacy. I've been warned...

11/21/2019 10:04 PM

Prostate Cancer
prednisone side effects when taking zytiga

Zytiga knocked down my PSA but also had negative liver impact, so stopped that and went on xtandi. It worked well for over a year. I don't have any prednisone feedback. It was prescribed and I took...

11/5/2019 10:35 AM

Prostate Cancer
Please share your daily life experiences while undergoing chemo

It will take a week of so for the port incision to heal up, but other than bumping the seat belt (until I got a spacer pad), I've had no issues with it bothering sleep or motion. Mine has been in...

10/16/2019 7:00 AM

Prostate Cancer
Please share your daily life experiences while undergoing chemo

Taxotere every 2 weeks 10/17 - 01/19, 31 sessions Things learned early- -GET A PORT. After a massive fail to find a decent vein at session 2, I insisted. And we are still using it in my experimental...

10/14/2019 5:38 PM

Prostate Cancer
Please share your daily life experiences while undergoing chemo

I'm going to write a chemo comment in an editor so I don't lose it mid-process. As to the signature, the limit is 400 characters. Be brutal and abbreviate to the extreme. A lot of what seem like...

10/14/2019 4:52 PM

Prostate Cancer
2020 Medicare Part D choices( drug plans)

Advantage plans can be very, extremely limited in providers. There are a couple in the DFW area that hype "8 hospitals". Here we tend to think Baylor = dozens of facilities scattered over hundreds of...

10/14/2019 11:03 AM

Prostate Cancer
2020 Medicare Part D choices( drug plans)

The manufacturer co-pay assistance plans normally exclude patients on Medicare, Tricare, or other government supported plans. In moving to 2020's part D, my monthly cost is going up a lot, but there...

10/13/2019 9:26 AM

Prostate Cancer
Signature option in Edit Profile??

The desired use of the signature (per our site owner), because they occupy real server space as any post content, is to include the sig only in the first post in a thread. You'll see that if you...

10/6/2019 9:50 AM

Prostate Cancer
Should I have my slides sent to Epstein / John Hopkins?

I was a 4+4 from the biopsy, and a 4+5 from post op path. I'll echo what others have said - it hasn't made a treatment decision difference to me over just under 10 years fighting the beast, so I'll...

10/4/2019 9:50 AM

Prostate Cancer
Do any MEDICARE part D plans pay for testosterone gels

My Aetna part D "covers" the gel as a tier 4 with a 100 or 300 gram limit per 30 days (depending on the strength). That tier is expensive until you hit catastrophic. It also requires a set of...

9/21/2019 6:55 AM

Prostate Cancer
Bitter Taste on Zytiga

I didn't notice any taste change while on Zytiga or Xtandi. Taxotere was a whole different story. I always take prednisone just before I eat, swallowed fast with a lot of water. It has not changed my...

9/20/2019 7:05 AM

Prostate Cancer
PCa and Social Security ?

JNF is correct in that "cancer" does not qualify you for SSDI. PCa does, when there are relapses (I think 3 is the starting point), and you are no longer able to work. I applied, since I went through...

9/19/2019 6:15 PM

Prostate Cancer
Now it's in the bone

I've done three sets of 15 radiation sessions for T12, L3, L4, L5, and nodes around my heart. It's just another day in paradise. Hang in there. My PSA fell over 50% after hitting the L vertebrae. It...

9/13/2019 3:11 PM

Prostate Cancer
Well that was a short vacation

Todd, Hang in there bud! We have to keep fighting. I started a clinical trial yesterday (Corvus CPI-006). They bumped me from the arm I was told I'd be in, but something is better than being refused...

9/13/2019 8:24 AM

Prostate Cancer



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