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gedman

HealingWell Forum
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Member Profile
Display Name
gedman
Profile Created
1/29/2013 3:06 AM
Last Seen
Today 5:10 PM
Total Posts
1138

Last 50 Posts

10 Years Post Surgery

Hey Jeff. My surgery was also 10 years ago this week with Dr. Tewari (April 3, 2013 to be exact). We probably passed each other in Dr. Tewari's office before the surgery or during follow-ups....

Today 5:09 PM

Prostate Cancer
10 years later...

The topic of whether to tell people (who and when) has been discussed and debated on this forum many times. It ultimately comes down to personal preference. Here is why I chose not to tell my family...

3/26/2023 12:03 PM

Prostate Cancer
10 years later...

Good question. My primary care doc did a PSA test and DRE as part of a regular annual checkup when I turned 40. He didn’t even tell me that he was ordering the PSA test with my standard checkup...

3/25/2023 7:35 PM

Prostate Cancer
10 years later...

I feel blessed to have reached the 10 year milestone after my successful RALP surgery. I was diagnosed at age 41 with no symptoms and no family history of PC. My PSA was 9 and biopsy was Gleason 3+4....

3/23/2023 5:26 AM

Prostate Cancer
I received my Surgery date today

Best of luck with the surgery. I am curious.... Why does urethral length matter and how do they measure it pre-surgery?...

12/30/2021 9:15 PM

Prostate Cancer
Survey: age at diagnosis

41 (Why are we all replying to a survey post from 10 years ago?)...

11/28/2021 3:56 AM

Prostate Cancer
The catheter is OUT and it wasn't so bad

My cath removal was somewhat painful but it was incredibly quick. Indeed was so happy to be “un-tethered”....

4/10/2021 8:41 PM

Prostate Cancer
8 years later

At age 40, a blood test in my regular annual check-up by my primary care physician found PSA of 9. (DRE was 100% normal. Zero family history of PC.) The high PSA started the ball rolling which...

4/7/2021 4:50 PM

Prostate Cancer
8 years later

This week is the 8 year anniversary of my date with the robot at age 41 with Gleason 4+3. Thankfully, my PSA remains undetectable. (Full PSA history linked below.) ED is minimal (an elastic “¢o¢k...

4/6/2021 3:33 AM

Prostate Cancer
Dr Tewari or Dr Samadi

Dr. Tewari is a great surgeon and a wonderful person. Kind, patient, empathetic, etc. i highly recommend him....

10/25/2020 8:08 PM

Prostate Cancer
Odds of being diagnosed with PCA

What are the odds of being diagnosed with PCA based on common demographic info such as family history, age and ethnicity? What are the odds of having a positive PCA diagnosis for a caucasian man, age...

8/17/2020 5:25 PM

Prostate Cancer
Kidney donation after PCA

I had successful PCA surgery in 7 years ago. Undetectable PSA ever since. Anyone know if I am eligible to be a living kidney donor? This study shows supports kidney donation from guys who had PCA....

7/31/2020 11:42 AM

Prostate Cancer
Telling the kids

I was diagnosed at 41. My sons were 15 and 8 at the time. A few daughters too. I never told my kids or relatives (other than my wife). No need for them to worry. The only thing anyone knew was that I...

2/23/2020 8:57 AM

Prostate Cancer
What age should my son start PSA testing

I was diagnosed with PC at age 41. My surgeon (Dr. Ash Tewari) told me that my sons should get a baseline PSA and prostate MRI at age 30....

2/12/2020 2:12 PM

Prostate Cancer
PSA test: Dr office vs Lab

I’m approaching 7 years post RALP, and my PSA results have been undetectable since the surgery. Is there any reason for me to continue using my surgeon’s office for PSA blood draws/lab (every 6...

12/23/2019 9:09 AM

Prostate Cancer
peyronie's disease?

Indent can certainly be Peyronie’s. See link in my info below. Be sure the Uro you see is experienced with Peyronie’s - most are NOT....

9/29/2019 7:33 AM

Prostate Cancer
Ready for a new home: ED pump and Peyronie's book

I have two items from my PCa journey that are brand new or barely used and looking for a new home: 1) The book " Understanding Peyronie's Disease " by Dr. Laurence A. Levine . Dr. Levine is one of...

9/15/2019 2:01 PM

Prostate Cancer
question regarding psa in young people

Prato, Nice to see you are so active here. I've rarely visited in the last few years. You may recall that I was diagnosed with PCa at the young age of 41. After successful surgery, I asked Dr. Tewari...

9/11/2019 7:16 PM

Prostate Cancer
Pyronies causes

Please see link in my signature with important information about Peyronie's....

9/11/2019 7:12 PM

Prostate Cancer
Post treatment sexuality-a contrary view

I had RP at age 41. Wife was 38 at the time....

4/10/2019 8:08 PM

Prostate Cancer
Penis bent when erect

Follow the link in my signature regarding Peyronie’s disease. Very important that you work with one of the few doctors with significant expertise in this condition. Gedman...

7/25/2018 6:56 PM

Prostate Cancer
My husband's story

Dr. Tewari was my surgeon. Your husband is in great hands. -Gedman...

7/9/2018 2:24 PM

Prostate Cancer
Erectile dysfunction after operation - can get erection (but more so outside than inside the woman)

Here is what I learned from Dr. John Mulhall, one of the world's leading experts in ED: When a man feels stress/anxiety, his body produces adrenaline. Adrenaline is the world's most potent...

7/6/2018 11:01 AM

Prostate Cancer
How is Peyronie’s Disease Treated?

Anyone wanting to know about Peyronie’s (relationship to PCA, treatment options, best doctors, etc) should read the link below in my signature. Gedman...

5/29/2018 6:53 PM

Prostate Cancer
Father recently diagnosed with recurrent prostate cancer

Another thread that reminds me what an amazingly helpful group of people we have on this forum. -Gedman...

5/18/2018 2:16 PM

Prostate Cancer
Bone Marrow donation after PC treatment - important info

I just completed an interesting exchange with a national bone barrow donor registry. I think this is important info for anyone treated for PC who later wants to donate bone marrow to save someone's...

5/13/2018 12:34 PM

Prostate Cancer
5 year surgery anniversary

I hear you. And I'm not suggesting that my approach is correct and yours is not. Every guy has to do what is right for them. I considered two factors: 1) PC is a slow growing monster. I chose to...

4/5/2018 8:15 AM

Prostate Cancer
5 year surgery anniversary

I chose surgery for a few reasons: *I met with Dr. Ash Tewari (world renowned PC surgeon) and Dr. Michael Zelefsky (world renowned radiation PC specialist). [u]Both of them recommended surgery as my...

4/5/2018 8:04 AM

Prostate Cancer
5 year surgery anniversary

Thanks to everyone for the warm wishes. I recognize how fortunate I am, and my thoughts/prayers are with all the guys who are still fighting the PC beast. Gedman...

4/5/2018 6:25 AM

Prostate Cancer
5 year surgery anniversary

I never discussed it with Tewari. His staff said that .03 was still "undetectable", so I saw no reason to discuss with Tewari unless I had consecutive rising PSA much higher than .03 level. Gedman...

4/5/2018 6:22 AM

Prostate Cancer
5 year surgery anniversary

Yesterday was the 5 year anniversary of my PC surgery. I was diagnosed and treated at age 41. My PSA has remained “zero” since the surgery. I’m 99% continent since a few weeks after the surgery. I...

4/4/2018 5:24 PM

Prostate Cancer
PSA Results - Houston, we have a problem

When you are in Manhattan to see Tewari or Zelefsky, go to Gulliver's Gate near Time Square. Wife and I (and teenage kids) enjoyed it quite a bit today. Lots of coupons online to get in for around...

4/2/2018 6:58 PM

Prostate Cancer
Should i see my surgeon?

Prat- We used the same surgeon. I also stopped seeing him for regular checkups. As you mention, it became a 3 minute conversation ("How is your continence?", "How are erections?", "See you in 6...

3/8/2018 12:07 PM

Prostate Cancer
So worried about future after prostatectomy.

Ivic, It is extraordinarily rare to be diagnosed with PCA at age 41. I should know, as I was diagnosed at 41 also. If you follow the links below in my signature, you can read more about me, my...

2/11/2018 11:00 PM

Prostate Cancer
First Rise in PSA Four Years Post RALP

clanda, I also have my blood tests at Tewari's office. You can check the link below for my PSA history. The difference between < 0.02 and 0.03 is negligible. It can be as insignificant as the...

10/28/2017 8:20 PM

Prostate Cancer
reality of post op surgery ?

See my summary link in signature below. I was 41 and in otherwise excellent health when I had my surgery, if that matters. Gedman...

10/26/2017 5:18 PM

Prostate Cancer
Post-treatment PSA test frequency?

It seems that my doc's protocol of every 3 months for the first 5 years is a rather aggressive/cautious approach. (It surely isn't a money-making scheme for him, since his office has never once...

10/10/2017 7:06 PM

Prostate Cancer
Post-treatment PSA test frequency?

I'm interested to know how frequently you were told to get PSA tests after surgery. Presumably, this varies based on the surgical pathology report, with higher risk guys getting re-tests more...

10/9/2017 11:41 AM

Prostate Cancer
Dr. Patel to reach 10,000 surgeries this week

I specifically asked Dr. Ash Tewari about this, and he assured me that no one touches the console other than him. His staff do the opening and insert the tools, and then do the closing at the end...

9/1/2017 11:22 AM

Prostate Cancer
Bulbourethral gland (Cowpers Gland)

Yes, Bulbourethral gland (Cowper's gland) is left untouched in RALP surgery. The Bulbourethral gland produces Cowper's fluid, which most guys call precum. Some guys (me included) find a significant...

9/1/2017 11:16 AM

Prostate Cancer
Not what I was hoping for

Hey Prat, Your PSA changes are micro- moves all within a tiny range of an overall very low PSA. I know the moves are disconcerting, but I agree with Tewari's team that you are still "undetectible"...

6/1/2017 8:02 PM

Prostate Cancer
End of life journey

My thoughts and prayers are with you. Though my PCA journey seems behind me now, I instead get angry or frustrated at life's more common issues (work, kids, whatever). Reading this thread just flung...

5/30/2017 7:35 AM

Prostate Cancer
4 years later...

Thanks, everyone. raypaul - It is hard for me to recall the timeline exactly. I think it was around 2 years that I started to experience the early signs of ED recovery. Some guys say that ED recovery...

4/22/2017 8:21 PM

Prostate Cancer
4 years later...

I just passed 4 years since my surgery. LARP with Dr. Tewari in NYC. My PSA remains undetectable. I get good erections naturally (no meds or injections needed any longer). The surgical scars have...

4/20/2017 6:41 PM

Prostate Cancer
OT (Sort of) enjoying life

Hey Pratoman, I saw your comment above about losing your "<". Do you get your PSA tests at Dr. Tewari's office in Midtown NYC? My PSA was < 0.02 or below for nearly 4 years following my surgery. Then...

3/21/2017 6:36 PM

Prostate Cancer
Cloniphene Citrate

Peter- After my surgery, I saw Dr. John Mulhall for ED rehab. Unrelated to the surgery or ED, Dr. Mulhall and I agreed that we needed to raise my Testosterone. (I had no symptoms of low Testosterone....

3/5/2017 7:49 PM

Prostate Cancer
Does the dentist have a need to know?

I may be on the wrong side of the popular vote here, but I didn't tell my dentist that I was diagnosed/treated for PCa. And I don't plan to. I simply value my privacy more than I value the...

2/26/2017 7:34 PM

Prostate Cancer
Hi all. A late introduction.(Update with post op Pathology)

Hi Jumpy, I am a Dr. Tewari graduate as well. I was 41 when I had my surgery. 45 is very young for Prostate Cancer. You are very fortunate that your PCP did that PSA test (which goes against current...

1/14/2017 6:32 PM

Prostate Cancer
PC at 44

Hi Rob, Getting diagnosed with PCa at age 44 is very rare. (I was diagnosed and treated at age 41.) Here are thoughts from my journey that may be helpful to you: * If you want to father more...

12/15/2016 7:39 PM

Prostate Cancer
If father is diagnosed with PCa, when should sons start PSA testing?

I asked this exact question to Dr. Ash Tewari - a renowned Prostate surgeon. He told me that since I was diagnosed with PCa at age young age of 41, that my sons should come for a Prostate MRI at age...

12/15/2016 7:26 PM

Prostate Cancer
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