I take 2000 Mg Metformin, 40 Mg Crestor and 81 Mg Aspirin. 2000 Mg Niaspan also. Dr.Charles "Snuffy" Myers who does the weekly videos prefers Crestor over Lipitor due to more PCa compatible pathways....
Cajun Jeff. It was great to talk to you earlier this week. Karen and I are looking forward to seeing folks we know so well and meeting new ones who can attend....
Great metrics JimBear from a fellow Jim whose T is only 37 after 21 months ago SBRT from Dr King. Hope the urgency wanes quickly and painlessly...
I am in west central nowhere FL and my RO is at UCLA (SBRT, not Proton) and my MO is in Marina del Rey CA. I rarely have any contact with Dr King but he responds quickly to email when I do, most...
Thinking positive thoughts for you Gunner. Hoping to see and our buddy Neil at GFMPH Baton Rouge Apr 20, 2017. I had my Provenge and SBRT October 2014. January 2017 blood tests still the same...
Regardless of what you hear from Dr. Zagaja, it is wise to get a second opinion. Brian Moran at Chicago Prostate Center was one of several who provided me a second opinion. I was very impressed with...
Once you get comfortable that the reason fellow posters ask a lot of questions is to know how they can help, update your Healing Well profile to provide email address, area of country etc. First...
When I did Provenge in conjuntion with SBRT I viewed it as can't hurt, might help. The procedure itself was done every other Friday and was uneventful as I watched a movie and then the reinsertion on...
It has been 27 months since my successful SBRT/Provenge combo therapy and 21 months since I stopped Lupron and Zytiga. My PSA is undetectable but so is my testosterone which has not recovered like...
On Todd's blog, if you hit Control-A a few times and recenter it, it is more legible. Thanks for getting the word out on the potential value of Provenge, Todd. Looking forward to meeting you and...
Hi TC Vegas. Congrats for the successful battle you waged and for the help you have provided to so many of us along the way....
Houseboy is too modest. He was published in a national magazine article as having has disappearing bone mets. His success in Toronto though I did not know it was due to SBRT at the time is one of the...
Thanks to the wise counsel and advice of my mentor Tall Allen, I did my SBRT in conjunction with Provenge to leverage any potential "Abscopal Effect"...
With respect to the statin, Dr. Charles "Snuffy" Myers (not a patient of his but used to watch his weekly videos) recommends Crestor over Atorvistatin or any other statin. Something to do with the...
I got your email Don. Spot radiation to that nuisance single met seems like the way to go. Good luck and keep us posted....
Hi Jan: I got your email yesterday. Punta Gorda is about 2 hours 40 min south of where I live in rural west central Florida. I would caution folks thinking about attending to make their hotel...
Mel, since I was on Provenge, the 5 Mg Prednisone twice a day with Zytiga could have adversely affected my Immune system. So Dr Lam's associate, Dr Turner prescribed 50 Mg Eplerenone (Inspra) once a...
Hi Don, I sent you an email reply and await your reply to my email with respect to Zytiga. With respect to Provenge, as long as it is covered by insurance, I can't understand why anyone would not do...
Don: Send me an email so we can discuss Zytiga off-line....
So if Rubio and Trump are right about the relationship to size of a man's hands, does ADT and radiation shrink the hands too?...
Houseboy - FYI: Tall Allen normally takes most of the month of November off of HealingWell to write his annual novel. However he does reply to email...
Since you are Gleason 7, you have a lot of options for SBRT/Cyberknife As a Gleason 9 my choices were Dr Chris King at UCLA, Dr. Alan Katz in NY and Sunnybrook in Toronto. Since none were close to...
Other than making sure it is covered by your insurance, no reason why not to go to UF & Shands. Since I live in west central rural Florida closer to Gainesville than to Jacksonville, I see Dr. Bruce...
Welcome to what my mentor Tall Allen refers to as the post-toasties club. It has been a little over two years since I completed the combo of Provenge and SBRT overlapping and to date no side effects....
Can't help with urologists or oncologists in AZ, but if you ever need scans, AZ Molecular Imaging in Phoenix and Dr Fabio Almeida are the best. Not sure if they have any facilities in Tucson also....
Did he do his research when he initially thought he was G7, or after he knew he was G9? Needs to know how much if any mets before deciding on surgery versus radiation. agree with recommendation that...
Yeh, worst part is waiting for the movie to end so you can go pee after 3 hours with needle in each arm, just wear sweat pants with elastic band just in case nurses have to come ot your rescue....
Mel, you still have a ways to go to pass Cajun Jeff for number of times un-retired....
I have not been to Mayo, Mel, but my guess is the big institutions almost always agree to the Medicare approved rate so as to keep in good standing with Medicare, to earn the large market share...
I had the gold fiducials 09-04-14 and the first SBRT 10-06-14. It was more a case of me trying to time the first Provenge cycle before my SBRT, the second concurrent with, and the final after SBRT to...
Can't answer the chemo time frame question, but wanted to congratulate you on excellent response to treatment....
I had heard you were considering Provenge and talking to Todd about it. If you had gone with it, would that have deferred the second round of chemo, or could they have been done concurrently rather...
I am not a health insurance expert, but IMO, a G9 should enroll in Medicare Supplement Plan F which for a higher monthly premium pays all co-pays and all deductibles. For a G7 it is a toss up and you...
Mel, I was able to qualify for financial assistance on the travel portion. The PAN foundation also helps with co-pay assistance but mine was entirely covered by Medicare/AARP Plan-F. I think you...
In case you have not seen it yet, here is the original thread on the G9 crew thread with all the various success stories http://www.healingwell.com/community/default.aspx?f=35&m=2863652 As you will...
The recommended PSA range for best results of Mayo's C-11 Choline test is PSA >2.0. They sometimes make exceptions. A big issue for most people would be whether insurance would pay for it....
I resemble that. Dr. King told me and Tall Allen that it was a perfect storm of visceral fat and favorable anatomy that led to such very low SBRT doses to rectum but very high doses to the pelvic...
Hi Mel: As I think you know, I had SBRT to the prostate, tho what we would be calling the prostate bed had the prostate been previously removed and to the entire pelvic girdle, not just the 3 micro...
Last night Goodlife did a great job cooking the chicken and Sat night is always feast night. Jeff the chef has been teasing us with the meat smoker aroma for past two days. Most have arrived but a...
It's beginning to look a lot like GFMPH. Cajun Jeff and I had the same connecting flight from Baltimore to Rochester , and just leaving to pick up 142 at ROC airport since his chauffeur Sonny could...
I had no special dietary restrictions either. BTW, the first 2 fiducial placements were a piece of cake but that third one expanded my vocabulary. The radiation itself was uneventful, SBRT at UCLA...
With you being in Fort Myers FL and having already consulted Dr, Patel in Orlando, if you decide on Cyberknife/SBRT, consider Dr. Debra Freeman in Tampa. In my case I qualifies for Provenge with a...
Besides researching local Radiation Oncologists, you should enlist the counsel of a national PCa Medical oncologist. Rely on the MO for general approach and the RO for specifics. In my case I live in...
You may want to get the second PSA increase at least 14 days apart to qualify for Provenge and then do Cyberknife and Provenge concurrrently. ADT can then be done after the spot radiation. That was a...
Based on the 10 day forecast of rain every day, good move to rent the tent. I gotta quit looking at it, yesterday showed Friday as only clear day, and today all wet. Not a deterrent since west...
Check with Sonny3 and with wampuscat. I know they have both done a lot of studies but can't recall if it was NIH or NCI. Also check with Tony Cirspino who is a national PCa advocate in Vegas....
Continued good metrics in your future. For me, approaching two years post SBRT/Provenge and PSA remains <0.01 but Testosterone only at 42 on 9-15-16 results....
Only one week from right now, Karen and I will be aboard the first leg of our SW flight from FL to Rochester. Can;t wait to see old friends again and meet new ones....
I hope the platinum fiducials were not as much a pain in the toosh as the third gold one was for me, right after I had mistakenly said aloud that the first two were not that painful....
I had the F18 Sodium bone scan and the C-11 Acetate at AZ Molecular Imaging in Phoenix by Dr. Fabio Almeida. This was not for recurrence but rather initial onset. In fact it changed my diagnosis from...