Jerry, my good friend, very happy to hear your latest PSA news! As for some more time on ADT... I have a friend who survived testicular cancer and was treated more than 25yrs ago. At the time of his...
Great news geop! It is so important to have a team you can trust and appreciate! Keep the good news coming.......
Very happy to read this my friend, big congrats! Always our best, Don and Wendy...
Great report Ray, very happy to see such positive results! You definitely kicked it hard, and that strategy is paying off! Always my best, Don...
Gator, I've had 12 rounds, with the 13th currently on hold. You might find some information in this other HW thread> http://www.healingwell.com/community/default.aspx?f=35&m=3219774 My post within...
DJ, Sincerely sorry to hear of your loss. Our thoughts and prayers are with you during this very difficult time. Our condolences to you and your family. Don...
Sonny, Really happy to see your positive results in your other posts, congrats! I took part in the Eovist (Gadoxetate) study in April 2014. I was undergoing an MRI for another trial and Dr. Turkbey...
arthur, Interesting you should ask... I saw Dr. Myer's video on Metformin shortly before a scehduled visit with my local oncologist, who is quite conservative and follows NCCN guidelines for...
Thanks for posting this arthur!, This site is a great source of "new" information. Although too many of these early findings don't end up panning out, at some point it may be a "lets give this a try...
don826, That's great to hear! Hope your experience at NIH is as positive as mine has been. I'll be going there on Feb 3rd and 24th, so I won't have an immediate chance to see you there, but schedules...
Gunner, that is a great report, thanks for the update! Since we talked at GFMPH in Rochester I have watched your reports with great interest. It's difficult to get an Onco that is willing to be so...
Hey Don, I was on the Xtandi/Prostvac clinical trial that Marie mentioned. I agree it is a great trial if you can get in and either arm is a great treatment. I truly believe I am the exception to the...
Welcome CADguy, you've come to a great source of experience. My hip bone pain is what drove me to the doc and my diagnosis, with mets on the hip. However, I also have lesions on a number of other...
A year ago my brother had a 3/12 biopsy pos, all g6 (verified by Hopkins). This year 3/6 biopsy pos, all at g7 (verified by Hopkins). Thought that was strange, but last month he completed LDR @...
Moonlitnight, Sorry to read of Don's advancement while on abiraterone. Even though there has been some recent evidence that suggests if aberaterone is not effective, then enzalutamide will also...
Dawn, According to this site click here , it states; "Clinical Studies of LUPRON DEPOT 22.5 mg for 3-Month Administration. In clinical studies, serum testosterone was suppressed to castrate within 30...
Hi KLC, I just want to add my welcome. Those first few weeks are so full of emotions, ones that you never forget, you just learn to adjust. You're getting a great treatment strategy already from MD;...
Wow, that's some great news on the CT scan Jerry! Hope that news makes your Thanksgiving a lot less stressful......
Thanks winmui, I have not had any mouth sores, but now I know why the docs keep looking closely for them. I also had some low phosphorous numbers, and was provided a supplement. I am not diabetic but...
Hey Mel, this site says 5-7days before Lupron click here , but I have also heard 7-10days before. This flare appears to be of most concern when there is bone mets, but I don't know why anyone would...
Just an overdue journey update... Sept. 30th – I had my 8th chemo treatment. Since I had experienced the low nuetrophil count following my previous chemo cycle, as Tall Allen suggested, NIH gave me...
Thanks for posting this arthur-qa! Very interesting to me, since Xtandi did nothing for me, and I suspect I may have the AR-V7 variant. Here is your link clickable --> here ...
Welcome to HW UK-bear, but sorry you need to be here... Best of luck with your MRI and biopsy. Wishing you good results, and that your visit here can be a short one!...
Travling_guy, sorry to hear about your scans. I can't provide any suggestion on the financials, but having bone mets, you should be made aware of an initial Flare Effect caused by Lupron. To minimize...
Agree totally, I have a GP whom has said “I look forward to your visits,as I learn so much from you”. Now, he is no dummy, and is clearly not so egotistical to hear of breaking news. I admire his...
TimG, nice thread you started here, thanks! As a G9, with a tough battle to fight, I appreciate all responses to my posts and never once questioned someones comments based upon their disease stage....
Welcome to HW geop, sorry you need to be here, but you will get some great and diverse support here! You have quite a high PSA, and in my opinion, you should prepare yourself for a positive diagnosis...
Funny Mel!, Tomorrow put the pedometer on top of the phone, and hope for a long distance call, that'll get you some good miles.......
Jerry, great news on the PSA, CONGRATS!!! I started Xgeva just about a month ago and the ONJ really scared me. I had dental issues, but finally got things to a point of being able to start the drug....
Travling_guy, Really sorry to hear of your recent results, that totally sucks. You will have to wait for those scan results in order to get a complete diagnosis and decide what next. Your doc sounds...
zufus, Very sorry to hear your latest news. I've always appreciated your posts and sometimes out of the box suggestions. Thanks for all you've done here and for sharing the latest on what we need to...
Mickey, very sorry to hear of your loss, with all our thoughts and prayers....
WOW! That is some terrific report Sonny! Very happy for you both, looks like you'll need to go out for another celebratory dinner!...
Pratoman, looks like you've been around here a while, and its' OK to rant and let it out. Your signature indicates that you've been doing some serious monitoring for PCa over the years. Even if you...
Jerry, Catching up on posts...Your story sure does provide a real message of hope for those diagnosed with advance cases. Congratulations on your success and thanks for all you do here on HW! If you...
Lupron Jim, Little late to the party, but a big Congrats! Your journey and aggressive attack of the beast is definitely one to watch. Looking forward to many more reports like this from you!...
Welcome to HW Fnp256, from another G9 with stats similar to your husbands. Sorry you need to be here, but glad you found us and that you decided to post. I was diagnosed just about two years ago and...
Deanna, look what you made me do.... At my initial PC diagnosis I was told by my Onco that ADT was my only option given my stats. When I asked him how long ADT would work, he said there was no way to...
Great report on a great weekend. In addition to all the other activities mentioned; under the “Scientific, Professional and technical” category, my wife and I learned of a unique technique, that can...
I agree Allen. When the doc suggested that, it made sense to me also. However, the curious side of me wanted to know if AR-V7 was the reason for my resistance, and maybe the data would further...
Looking for opinions concerning something my NIH trial doctor said when I asked if they would collaborate with Hopkins and test my circulating tumor cells for the AR-V7 variant (which they are...
Bob, great to read of your success and the HT vacation! Enjoy yourself, and wishing you a long vacation. Keep us posted!...
142, Sorry you're not happy with your initial response to the ADT. Although these attached studies don't necessarily correlate with your specific journey / condition, MAYBE having a slow drop in PSA...
That's excellent news! Very happy for you both, and now you get to celebrate in Hawaii. Enjoy your trip!...
Sal, Thank you for starting this thread and providing updates. I also find this thread to be very informative, knowing that someday I will likely be looking at this treatment option. It is extremely...
It was an amazing weekend, and very difficult for us to put into words the experience of it all! We made some wonderful new friends, and got closer to some of those whom we had met briefly once...
PeterD, that's funny. Could have saved it for Friday humor, but every day is a good day for a laugh! deannakay, I just finished with my 8th cycle of chemo and I'm getting it every three weeks. I...
Eitan, I never experienced aches in my joints, nor had bouts of uncontrollable shivering, but I did have the local site injection symptoms you discussed. I also had a rash over my entire body shortly...
Rob will surely be missed here on HW. His posts have been of great interest and value to me, as he put up an admirably fight. Very sad news, RIP....
Welcome to HW Eitan, sorry you need to be here looking for answers. I was on a Prostvac, combined with Xtandi, trial at NIH for 3 months. Very minimal symptoms for me, some pain at the injection site...