quincy I had similar results with provenge. Very few people get a durable remission with just provenge alone. I started Xtandi 6 weeks following provenge due to a sudden rise in psa and mets....
Recap: Became hormone refractory late last year. Began Provenge mid Jan with psa 5.5. Finished mid feb psa 6.7. Ended up in ER w left kidney blockage late March. Invaded lymph nodes restricting left...
Prednisone &Zytiga yes Xtandi no...
Iam probably the newest Xtandi member here. Started Xtandi yesterday the 26th. So far so good. Will post updates. However,I also came across this VERY interesting read on Saturday. It would be nice...
Todd,I hear ya. As I progress onto xtandi or zytiga in the next weeks I've also pondered the same. All I can offer is if you get 5yrs out of zytiga,there will most certainly be new therapies/trials...
I sure hope not. Iam well into my 3rd yr on the "crap" and haven't had any issues with my Manhattan's or Jack/Crown on the rocks. Too much of anything is bad,but too much of good Whiskey is barley...
Da Sounds painful. I need 2 TKR....someday. Its not so much the surgery as the long painful recovery process. Hopefully you can get it loosened up and get back on that "Geezer Glide"soon -_-...
Interesting list Peter. I think putting songs under your play list is a safe way go. Here is my take on direct linking of videos. I,like others posted direct links to some videos in Big Macs list...
Stephen. Your post sounds hauntingly familiar to me. Look at my sig. As others have said,its a little early to be trying to figure this all out. Another psa test or two will give you a better idea. I...
What great news Jerry. If I ever make it to Jamaica,i'll have some rum punch for you and Todd. Tom-stranded in Atlanta Ga :(...
Todd. Atypical your are. Keep rockin on!!...
Mel. May you bug the wife a little more each month. Hope I can bug my wife just a little bit this week in Jamaica -_-...
Ditto. Damn this HT. Completely forgot about him. Add this to my ever growing list of things i space out. Thanks for the reminder...
Bob-Glad to hear from you. Not so glad to hear of your situation. You are one of the early guys to me here and other sites. As a fellow Michigander, ive followed your posts closely. Has Xgeva been a...
Congrats SC. You threw the book at it right off the bat. Herez to continued zeros. Mel. I believe sc tx was all adjuvant. I would assume he wouldnt do IHT unless he has a psa relapse. I am feeling...
David. Your story sounds exactly like mine except i started testing at 43. I never knew my number. Was just told every year it was "normal" Oh, Ok......
update: Provenge completed 2-14-14. side effects: 1st infusion a bit tired 2nd infusion- awoke 3am with chills and aches 3rd infusion -12 hrs of slight chills&major flu-like aches&pains/fatigue No...
Thank you all. 81-As you know,there are good days&bad ones. Enjoying the good ones for all there worth!...
Sonny- welcome to the "crap"club. Hope it wasn't too painful. You'll adjust fine. I just had my 11th inj last fri. Pool may come in handy. Only good thing about this winter in Michigan...relief is...
This week marks my 5th anniversary of my Pca diagnosis. If I only knew then what the next 5yrs would bring...its a good thing we don't have a crystal ball. I wouldn't have been able to handled all...
Congratulations Mel! Just knowing that the "crap" will slowly be leaving your body gives one a whole new outlook on life. May you have a long vacation. Enjoy,Tom...
Excellent topic. Just look at the number of replies. David Crosby said it best at CSN's induction to the RRHF "Music is magic. Music bridges the gap between human beings. That each man is an island...
I was given the consent form for this trial at Karmanos last fall. It does require numerous trips to Detroit for tests/ blood work,especially in the first month. Then every 2-4 weeks there after. As...
Congrats! welcome to the club...
Glad to hear that. Thanks for the update...
I was also wondering......
Mel I seem to have run out of space to update my sig. Yes, stopped casodex aug 12. Lupron continues. Had good results till this fall. Trial was IMC-A12. Left U M (hussain)fall of 12 as they did not...
Mel Well into my 3rd yr on this crap. I guess on the bright side ive only just recently gained 2-4 lbs. Due to my osteoarthritis & my need to have both knees replaced, i cant do much exercising....
Careful there. You're walking on thin ice. My wife has made Similar comments however, i would never mess with her livelihood -_-...
Todd Congrats! What great news. This is making my 2nd apheresis apt today a special one -_- I hope I can pull those #s someday. Thank you Todd...
Todd We all have our days. All I have to add is this. Very few men have started this journey with your initial stats. The fact that you are where your are today is a feat in its self. I believe its a...
Jack You might ask about dropping the casodex. It worked on me for 15 months. Provenge is worth looking into also. I have 1 cycle in&2 to go. I know how you feel. WE ARE NOT TOAST!!!...
Todd Congrats, this buds for you!!...
Kayak Its gonna be a tuff sale without a rising psa. That's what sucks...we need this earlier in in the recurrent stage!!! . Good luck, Tom...
Iam scheduled to start Jan 14. Had Provenge orientation last Friday. Lucky me gets the triple lumus catheter. Kind of a pain in neck :) Major concern is fast rising psa. Hopefully going on to Xtandi...
Tony. Not what i was expecting as i sat down for lunch. How sad that it has come to this. Thankyou for all your hard work here&for Pca awareness. You are the only member here i have had the pleasure...
Great post Tony. David was my first (of many) heroes in this battle. Seems so long ago that he passed. I remember reading his blog when i first relasped. He was a true warrior and an inspiration to...
Thank you Tony. Will do...
SpecialLady My Dr said they have the dose figured out from earlier phases. Now its a lot scans&biopsys to learn how it works on turmors. I just don't know how I could be in Detroit 2times a week...
Update: Met with onco Monday. Ct shows some nodel /soft tissue activity despite my <20 T level. Talked about a Cabozantinib (XL184) trial that has openings. However,it requires a lot of scans/labs...
Boogee Even with similar stats,no two people will respond or progress the same. I took a break this june after 21 months only to go to .2 in july then .4 in aug. &restarted Lupron only to progress to...
Now what? A summary of my journey since signature update. Started clinical trial&Adt2 in Aug of11'. June 12' psa rising. Stopped casodex. psa drops back to .1 June 13' took a break from...
Gongrats Tony. You are destined to do great things!...
Todd like the others have said...you are right on target. Iam in my 3rd year on " the crap". Thankyou for saying what the rest of us arnt able to. I will also be sharing this with my wife. Thanks...
DYank Welcome. You've landed in a good place here. Lots of great,knowledgable people here. Those are some tough stats. Remember... They are only numbers. You will notice stats& numbers of all kinds...
Clock You made me panic for a little bit. After reviewing,Iam still OK with the pics. It is what it is. Thanks for watching my back though -_- After 2 yrs on the "crap" Iam getting a little scatter...
Tony,its public. forum issue??I guess theres always copy&paste...
Here goes: http://s152.photobucket.com/user/tomwg2003/library/Pca%20Sucks?sort=6&page=1 scroll down to last pics...
Todd I Always check in here for your updates. I had the pleasure of meeting Tony&Ruth in Vegas shortly after they returned form your visit. My wife,daughter and I went to a 51s ball game the night...
"Mel - Tigers game is a good place for a talk" Like tonite when they are losing(lost) :D...