Hoping he's doing well. My husband went on hospice on July 17, 2019 and so far he's hanging in there, so one never knows how long it will take to accomplish that final mile. I must say signing up for...
As a wife, I want to chime in, because even though it has been a long time since we found out my husband had prostate cancer, I know just how you're feeling. When he was diagnosed they said he...
My husband was on Zytega for one month, his liver went crazy. His doctor then switched him to Xtandi, which was a much easier drug to take and it did him well for 4 1/2 years. It was a great drug for...
Your trial sounds interesting!!! Sure hope it works for you!!! Are they just working on prostate cancer or are there multiple cancers they are testing it on? My husband did a phase 1 trial earlier...
I just updated my profile. After I looked at it I cut some things and added more current info....
Been a long, long year and a half. My husband has been battling Prostate cancer now for over 17 years. He started with surgery, then radiation and of course he's been on Lupron almost the entire...
Thanks Celebrate life. I asked the doctor about restarting the Xtandi, we have about 1/2 months worth sitting in the cupboard and he acted like that won't work. Gets frustrating! We saw the doctor...
Updated my bio, but not everything got saved!! Anyway, looking back he has had a total of 34 chemo treatments, the last ones weekly at a weaker dose than normal....
Thanks for your replies. Guess we'll know more tomorrow. I have searched the sight and seen a few things on it, so will post after we've seen the doctor. From what I've read, since there are no new...
My husband is scheduled for a consultation this Tuesday to maybe start this treatment. It's been a long year for us, he has just completed 34 chemo treatments and his PSA is rising. 6.49 to 8.43 in 2...
My husband had #5 of 12 treatments yesterday and so far things are going pretty well. To look at him, he's doing great! Has had some stomach problems, is loosing a lot of hair and his strength has...
So sorry for your loss. Such a young age. Thoughts and prayers for you, your loved ones and friends....
Oh, it showed up, but not everything!!! Will try to get the rest on later!...
I've tried to get a signature on here, but no luck, so briefly: Diagnosed 2/2001 Surgery 4/2001 35 radiation treatments starting 8/2001 Lupron shots since 2001 The first record of medications I have...
Last I posted my husband was finishing up on treatment #5 of Jevtana. He had the bone biopsy which was sent to a lab back east and they found nothing helpful for him, so he has started on a combo...
Such great news! I had been stopping by to see if you checked in with the latest and I am so happy for you! Here's to many more great reports! Hopefully many more men will find this drug to be...
I'm so excited for you! Is the infusion given in the doctor's office, treatment center or hospital? I can't wait to hear that all is going well! Have a great day!!!...
How are things going with the Keytruda? I have a few questions for you as I see clinical trials out there using Keytruda, but am wondering if your husband's regular oncologist is giving him his...
Got to the hospital this morning in plenty of time, took my husband in a little after 8 and prepped him. He had an IV, was in and out in no time, we were leaving the hospital at 10:30. He said he...
Thanks for the update. We have to be at the hospital in the morning at 8. Someone called from the hospital and said it would be a needle about the size of an IV needle and we would need to stay...
My husband is going in on Monday for his biopsy to have this done. He had surgery 16 years ago, been on Lupron since, has had most of the drugs in those 16 years, 5 years ago 6 treatments of...
When you find out, please post! My husband is scheduled for one on Monday and they told us to expect to be at the hospital 4-6 hours!! Are you doing it for gene identification? That's what my...
Just wanted to update for anyone interested. My husband had his CT scan done last Wednesday then a visit Thursday with the oncologist. Only thing spotted were some maybe fatty deposits on his liver....
Saw the MO this morning and it was decided that Jevtana treatment #6 would not happen next week due to the rise in PSA before treatment #5. So, my husband is having a CT scan next week to see if...
Wow Beth, Just when I think I can't be more amazed by your strength, I read your last post! I just hope and pray I have your strength when and if that time comes for us. There are so many times...
Starfinder, Interesting! I wonder if my husband will be able to return to Taxotere if indeed this Jevtana isn't working??? I hope and pray we haven't messed up! Also wondering what the next treatment...
Oh Beth, I am so sorry to hear this. The words everyone has shared are so true. I will continue to keep you in my thoughts and prayers as you walk through this time. I can only imagine how you are...
ISU, I love the quotes! They are so true!...
I'm going to ask the doctor on Thursday when we see him what his reasoning was for changing treatment. I hate to think my husband has gone through all the side effects of this drug and may have to do...
Starfinder, Thank you for the information and article. I plan to look at it and try to comprehend what it says! Sue...
Beth, So happy the hospital bed has arrived. I admire you for what a great job you are doing! I hope you know how much this post means to so many of us! I must say that the two of you are one of the...
Thanks Tall Allen We were to see the oncologist yesterday but he is out for the week so we saw his PA and she said he would discuss the findings with us next week when we see him. My husband's next...
Starfinder, thanks for your reply. While my husband was on Xtandi, his PSA started to rise and the doctor said we needed to give it some time and sure enough it dropped back down and he got almost 1...
Beth, Your description of what is going on with Gary sounds so much like what happened with my dad. Maybe it is common, but I was so close with my dad that I saw it for the first time(?) He had about...
What great news! What a blessing to get such a good report! Hope it continues on!!!! Sue...
Tall Allen, Sorry I can't get my signature to show up. My husband had radical surgery in 4/2001, 35 radiation treatments following in 8/2001 and has had Casodex, Ketoconazole, then in 2012, 6...
Hopefully someone has a bit of experience on this, haven't seen anything anywhere. My husband's PSA was 4.4 when he started Jevtana, now before his 5th treatment, it was 4.8. Has this happened to...
Beth, Hope you have a better night tonight. So sorry to hear about your granddaughter. Just when you think you can't take anything else! I wrote a few nights ago, but didn't see that it posted, I...
AKFNomad Back again with another question. I don't see anything about your hubby's current PSA. Do they test that and use that at all for decision making, or do they go mainly on what they see on the...
AKFNomad, Angie, I have just been reading this thread and I have a few questions for you. For some reason my signature doesn't show up, but my husband was diagnosed 4/2001, PSA 9, age 54. He's had...
Beth thank you for being so faithful to this forum. I can only imagine how exhausted you have to be and yet so willing to meet every one of Gary's needs. I admire you so! I pray he is willing to...
RobLee, my husband is also eligible for VA drug coverage but when he went to the VA for his Xtandi, their oncologist board felt he wasn't in need of it at that time, so they wouldn't prescribe it for...
I forgot to mention in my above post that my husband also has a Medicare supplement plan (I believe it's an "F" plan) which costs about $226.00 a month. This covers his monthly Lupron shot given in...
Great info! We are in So Cal and my husband has a Part D plan through Humana. The cost is around $27 a month and when he was on Xtandi our out of pocket was about $2,380.00 in January, which quickly...
My husband was on Xtandi for over 4 years and never had problems like that, that's not to say you won't! Seems like everyone has different side effects and results! Hope you are able to continue on...
Beth, It's been a few days and I'm hoping and praying that everything is okay. Hope you have been able to find some quiet time and the opportunity to rest when possible! I know how wearing that can...
Wanted to bring this back to the top so it doesn't get lost. Just wanted you to know I'm thinking about and praying for you guys! Sue...
Thinking about you and Gary all day today. Hospice gave a small booklet to my mom when they came to care for my dad and everything happened so quickly I didn't even get to read it until after he was...
Thanks so much for asking. Yes, my husband, Jack, has completed 3 treatments of Jevtana. He looks so good it is hard to believe he could be sick. So far his biggest problem has been his stomach and...
So sorry the results came back negative. Just want you to know I think about the two of you so many times a day! Pray today will be filled with some moments of joy and rest! Sue...