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Inchoation

HealingWell Forum
>
Member Profile
Display Name
Inchoation
Profile Created
1/1/2014 10:53 PM
Last Seen
3/18/2022 11:17 PM
Total Posts
350

Last 50 Posts

Low Testosterone after RALP?

I was always under the impression this was the case, that a significant drop in T was found after RALP. I don't know what my score was prior, but I have to believe it was very very high. The change...

3/18/2022 12:41 AM

Prostate Cancer
Low Testosterone after RALP?

Sorry, to read of your struggles. I can relate. I was once very active here after I had RALP back in 2013. I believe this is my first post since then. EDIT: I did make a handful of posts in 2018, and...

3/17/2022 2:45 AM

Prostate Cancer
First Post...Bear with me.

If you're younger, and you are... this article might be pertinent. It's something the 2nd opinion doc cautioned me about: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4274043/...

12/5/2018 6:03 PM

Prostate Cancer
First Post...Bear with me.

The interview tour is crtical. I'm glad you're confronting your uro with tough questions. My uro told me and I quote, "I know a guy." when he was trying to sell me on surgery. That's a phrase you're...

11/30/2018 5:31 PM

Prostate Cancer
Night Time Incontinence Years After Robotic Prostatectomy

You know what. Ding, ding, ding. I've been experiencing random bouts of extreme fatigue. I was/am the kind of guy who can go for hours like a toddler with boundless energy. Sometimes, it's like I'm...

11/29/2018 2:06 PM

Prostate Cancer
Night Time Incontinence Years After Robotic Prostatectomy

Nope. I've never had a drink in my life. I just wanted this to be something that was one and done. Have surgery work hard on making sure the issues that could crop up were dealt with and move on....

11/29/2018 11:18 AM

Prostate Cancer
Night Time Incontinence Years After Robotic Prostatectomy

That's kind of a caustic reply. Am I thinking that weak pelvic muscles are helping? What do you think? Of course not. I'm just taken aback that issues I thought were over years ago could be back. I...

11/29/2018 8:19 AM

Prostate Cancer
First Post...Bear with me.

I haven't been on this forum in 4+ years. I saw DaMayor's post and I couldn't stop reading. I'll say this, DaMayor... This is a MONUMENTAL decision. There are no takebacks. I live everyday with the...

11/29/2018 8:03 AM

Prostate Cancer
Night Time Incontinence Years After Robotic Prostatectomy

Hello gentleman... It's been many years since I've posted here and a little jarring to be back in some ways. My return is based on my inablity to find anything via googling on night time incontinence...

11/29/2018 5:46 AM

Prostate Cancer
Welcome New Member ScientificLifestyle Who is Asking Some Questions

Ah, the good old days with Cathy Catheter. Such good friends like you're joined at the tip. :) Prayers for a great pathology report. Did they give you an initial report? Be careful getting in and out...

12/23/2014 12:30 AM

Prostate Cancer
Pomegranate Extract

I've seen studies that indicate it slows the growth by 50%...yet, it puzzles me to read sugar is what feeds cancer and to stay away from fruit. Pomi-T is a renowned supplement. Personally, I consumed...

12/22/2014 6:37 AM

Prostate Cancer
Low Grade PCa Survivors, need some advice

I can relate to everything you wrote... what I did is choose not to get follow up PSA's because I've chosen not to get further treatment. I was a pre-op G7 and a post op G6. Oh, how I would've...

12/22/2014 6:30 AM

Prostate Cancer
The Mindgame

If it makes you feel better, had my uro kept me waiting another 2 minutes, I would've put my pants back on and headed for the hills before my biopsy. I did not want to do it... so, very very close to...

12/19/2014 12:49 AM

Prostate Cancer
Does firmness increase with time?

I took Cialis for one month...about 2 months after surgery. I didn't really notice any benefit, so I didn't pick up my 2nd month's worth. How long did it take for you? Much appreciation to gedman...

12/18/2014 12:25 PM

Prostate Cancer
Does firmness increase with time?

Been gone from here for several months...nothing new to report, not that anyone would remember me. :smile: I'm going to post a little about me as I'm not sure my stats will show below... 46 year old...

12/18/2014 9:17 AM

Prostate Cancer
Advocate for hire.

The liability issue would be through the roof....

3/30/2014 9:55 PM

Prostate Cancer
OK, but am I cured?

Hey Gene, yeah, I do like Dr. Catalona. Very straight forward. As for you HGPIN and the other funny word, I had neither but I researched both and wouldn't be worried about either finding. Inchoation...

3/30/2014 6:22 PM

Prostate Cancer
OK, but am I cured?

Gene, what a strange coincidence...I just read a post on healingwell.com...read this... It goes to the heart of what we've just spoken to... Just wanted to share the good news with you guys - my HW...

3/30/2014 3:31 PM

Prostate Cancer
6 Year Update

Incredibly GREAT news, Sephie! Congratulations. You have no idea how much your great news comforts me! Thank you for indirectly helping me....

3/30/2014 3:28 PM

Prostate Cancer
OK, but am I cured?

I think he's saying that testing below .3, not .03, is difficult. That is why you want to see three consecutive PSA's above .1 before you start thinking recurrence. He is also very liberal in his...

3/30/2014 2:58 PM

Prostate Cancer
OK, but am I cured?

Here's what makes these issues tough for me, personally... My current uro, whom I won't be going to see, again, unless it's to get my medical records was, apparently, not concerned with my 2nd...

3/30/2014 2:38 PM

Prostate Cancer
OK, but am I cured?

Here is something from www.drcatalona.com regarding PSA testing when you start getting to low levels. It is very difficult, per him, to get accurate reading below... .3 Yes, .3...not less than 0.03...

3/30/2014 2:17 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

LOL. Yes, he is a bummer. I have to balance my intelligence with my faith often. I love to learn and I love faith. One has to carry more weight and most of the time it is faith, but not always. My...

3/30/2014 10:09 AM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Thank you, Turp... I thought about that study you posted but didn't recall the exact specifics. That is very comforting to me. It is so strange to really get into the nuts and bolts of this because...

3/30/2014 8:59 AM

Prostate Cancer
OK, but am I cured?

I suppose after pondering what Peter is saying was this... If two people have the different tests the person whose PSA came back less than 0.03 could possibly be less than the persons who came back...

3/30/2014 8:48 AM

Prostate Cancer
OK, but am I cured?

Peter, I'm confused. How is less than 0.01 not better than less than 0.03? Yes, the person being tested to less than 0.03 could have a lower PSA than the person being tested at 0.01, however, unless...

3/30/2014 8:40 AM

Prostate Cancer
OK, but am I cured?

Hey Gene... I received some news that is alarming in the context of being at healing well. If I had never heard of this site, I wouldn't be all that concerned about an undetectable second reading....

3/30/2014 6:32 AM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

I don't either, An! Not enthused by this but most of this journey has left me on pins and needles regarding what "might happen". It drives, and is a good thing for me, me deep into my faith where I...

3/30/2014 6:28 AM

Prostate Cancer
UPDATE Biopsy results back, Not Good.

Hurting for you dow... Diagnosis day is a tough day. I know being a Marine it is in your nature to fight. Do that and don't give up hope. That is the biggest challenge when the news hits that...

3/30/2014 6:25 AM

Prostate Cancer
OK, but am I cured?

< 0.01 is better. .01 is one hundredth...not tenth. .1 is one tenth. One one hundredth is lower than 3 one hundredths....

3/29/2014 5:35 PM

Prostate Cancer
New to the zero club!

Yes! Love being a zero! Here's to a lifetime of them....

3/29/2014 5:31 PM

Prostate Cancer
Situps after prostatectomy?

Thanks, guys! I suffered a couple of hematomas getting out of bed and trying to carry two heavy suitcases early on after my procedure. Aggravated my abdomen the day I lifted my daughter to hug her at...

3/29/2014 4:29 PM

Prostate Cancer
Situps after prostatectomy?

When would you feel comfortable attempting them? I'm 7 months out, today, and still feel a little soreness on occasion. I guess there's this latent fear of doing some damage to the largest incision...

3/29/2014 3:18 PM

Prostate Cancer
I know. I’m a man, not a statistic.

I asked about that 3 months ago at my last visit, he thought that it was possibly a small amount of prostate tissue that was left at the bladder neck, prostate tissue on the urethra at the bladder...

3/29/2014 3:15 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

LOL! Sorry, Tall. I have access to many things through Mayo's online patient services. Not sure that's out there for me to look at online. It's probably best I communicate with Mayo in some form...

3/29/2014 1:22 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Here's my pathology report, in full... 08/29/2013 Surgical Pathology Page 1 of 3 (CR13-5991) Requested By: 4-6507 SLIDE DISPOSITION: DIAGNOSIS: A. Lymph nodes, right pelvic, dissection: Multiple (6)...

3/29/2014 1:15 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Thanks BillyBob...I saw iSpark's numbers and was comforted by them. What a ride for him that must've been. Yeah, I think my uro has some contempt for me because I asked him a lot of really difficult...

3/29/2014 12:18 PM

Prostate Cancer
I know. I’m a man, not a statistic.

iSpark...I vacillate from time to time but I'd say LIVE over NUMBERS. BTW, your numbers are of great interest to me. Would love to hear the story of what your uro has to say about your numbers...

3/28/2014 8:05 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Thanks, again, David... I felt I rushed into my surgery, and won't do that again. I know you've been through way more than your fair share. You're a shining star, here. I admire how you carry...

3/28/2014 7:48 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

That is my thinking, ed... Perhaps, nothing will ever happen other than the concern this can cause. I may choose to just stop all PSA testing, period, as it is counterproductive with what it does...

3/28/2014 6:29 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Billy Bob... I was assured this was nothing and to do nothing about it. However, I wasn't content with that so I was sent for some skull X-rays back in July 2012. I still haven't gotten the results...

3/28/2014 5:47 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

Uro wants to see me in 4 months. Apparently, he's not alarmed. Wish we could trade places. :) Won't be pulling the trigger on SRT at any point in the journey. Would consider hormone therapy if this...

3/28/2014 5:40 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

David...thank you...I found comfort in your words. God bless you, brother....

3/28/2014 3:24 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

G6 Post Op... rest of report as clean as could be. p2n0mx However, on my bone scan they found a small spot of questionable origin. Uro told me if the spot in my left orbital was cancer it was "game...

3/28/2014 2:31 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

.2 is the line that is accepted by most, but not all. Some have it higher, some lower. I'm rapidly closing on .100 .018 behind. We'll see where it goes....

3/28/2014 1:31 PM

Prostate Cancer
*UPDATE w/full pathology report* 2nd Post Op PSA is RISING!

I finally got the results I just had to have. Now, I'm not so sure it's the news I wanted to hear. My 1st Post Op PSA was 0.06...there was an issue of whether that included a < (less than) in front...

3/28/2014 1:07 PM

Prostate Cancer
*UPDATE* Would you find a new Uro?

No answers provided today. I was told the person I needed to talk to was out of the office and to call her back on Monday. First class. EDIT: I was able to finally get someone live in the office and...

3/28/2014 11:33 AM

Prostate Cancer
How many PCa-related websites do you regularly visit?

I only have none prostate and only... wait....

3/28/2014 11:10 AM

Prostate Cancer
How many PCa-related websites do you regularly visit?

The one...the only....

3/28/2014 8:58 AM

Prostate Cancer
*UPDATE* Would you find a new Uro?

ed... I decided to try your suggested route. I found an old printout from a lab I had done in July. I called them and they weren't able to give me my results over the phone but suggested I download...

3/28/2014 8:53 AM

Prostate Cancer
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