Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Phenom

HealingWell Forum
>
Member Profile
Display Name
Phenom
Profile Created
12/9/2011 5:06 PM
Last Seen
7/3/2020 4:01 PM
Total Posts
615

Last 50 Posts

Still curative or only palliative now?

Thanks, TA, that's what I figured from recent postings on HW. I'm inclined to put off HT until absolutely necessary, but will be taking the TOAD study into account in making my decisions. The...

3/23/2017 4:01 PM

Prostate Cancer
Still curative or only palliative now?

Surgery in 2011, SRT in 2015, PSA up to 1.4 but stable for the last 9 months. My oncologist says I'm no longer curable and might as well wait until PSA gets to 10 or 20 to start HT. Last week he told...

3/23/2017 3:29 PM

Prostate Cancer
My 5th Cancer diagnosis...bad news keeps piling up

Sorry to hear the latest hit of bad news, David. Why would anyone wonder why you're depressed, with what you've had to deal with? But you're also clearly a fighter, and it's encouraging to the rest...

10/4/2016 10:54 AM

Prostate Cancer
Bone scan ok... now what??

Allen, What's considered early HT, and what's the advantage? I thought the idea at one time was to delay HT to push out the time of castrate resistance? Thanks, Henry...

9/28/2016 4:16 PM

Prostate Cancer
CT Scan or not?

I had salvage radiation covered completely by Kaiser, it was routine when my PSA went up after surgery....

8/10/2016 10:30 AM

Prostate Cancer
02-16 Update

Good to hear from you, David, even if the news isn't. I wonder about you when it's been awhile. I'm still hoping for some good news one of these days. Hang in there. Henry...

2/21/2016 4:58 PM

Prostate Cancer
Latest Update: December 3rd

What a tough slog, your bravery has been proven over and over, I just wish it would get rewarded once in a while. Who knows if there's any rhyme or reason to what we go through, but it will be over...

12/5/2015 11:15 AM

Prostate Cancer
See you in December!

Good luck, Allen, you deserve a break. You're a real treasure to this forum....

11/1/2015 3:59 PM

Prostate Cancer
Seven years ago today

Happy Anniversary, David, if that makes any sense. Better than the alternative, anyway. Just curious, what's the status of your PC battle? Do you get PSAs or scans? I think the last I heard your PSA...

10/16/2015 4:42 PM

Prostate Cancer
Update: Pending Major Surgery

Good luck, David, this sounds very promising and worth going through. I'm hoping to hear that it has done wonders for your QOL. Henry...

9/22/2015 8:32 AM

Prostate Cancer
Update: 08-17-15

Thanks for the report, David, even if the news is not great. You're right, SRT is not without risk and no one should take it lightly, but I do think they are better at it now. I went through 33 SRT...

8/18/2015 9:20 AM

Prostate Cancer
Calypso 4D Localization System

I completed 33 SRT sessions with the Calypso markers several months ago, and had no side effects that I was aware of. I think it's pretty much state of the art now....

6/21/2015 2:15 PM

Prostate Cancer
Today's oncology visit with oncologist

I don't know you, but I liked your posts, if "like" is the right word for such a harrowing experience. I wish you the best, and hope you get some good news one of these days. And please keep posting,...

6/20/2015 10:27 PM

Prostate Cancer
SRT Completed Today

I finished my SRT several months ago, have decided not to get a PSA for awhile. So far I'm doing fine with that decision. I'm wondering why 4.0 is a trigger for you for further action, and what would...

6/19/2015 8:01 PM

Prostate Cancer
Just what I need, face surgery in 2 weeks

As always, wishing for a good outcome. Hope this knocks this one out. Henry...

6/10/2015 9:08 AM

Prostate Cancer
Sad news to report

That's tough, David. There's only one Mom. Mine is 92 and frail, and I see her every day and treasure each one. I know what's coming, but that won't make it any easier. Henry...

5/20/2015 7:08 PM

Prostate Cancer
Another potential serious problem

As always, wishing you the best and inspired by your strength. I hope this turns out to be nothing. Henry...

5/16/2015 5:08 PM

Prostate Cancer
Is there a generally accepted protocol to follow after failed SRT?

Thanks, Carlos, and please keep posting on this important topic, one I'm following closely. Henry...

5/7/2015 1:52 PM

Prostate Cancer
Long Term Care Insurance

Just be sure to have a good read on what the benefits are, and whether the premiums will be worth it. My mother, like many of her generation, paid for it for years, and is just now, at 92, starting...

4/28/2015 4:17 PM

Prostate Cancer
No Advantage to Immediate HT After Failed RP + SRT?

Thanks, guys, much appreciated. To explain the real point behind the question, I am so enjoying NOT knowing one way or the other. Since I do have a fair chance of being cured, so far, two months...

4/22/2015 3:07 PM

Prostate Cancer
No Advantage to Immediate HT After Failed RP + SRT?

That's my takeaway from posts in another current thread. I've just finished SRT and would love to forgo a followup PSA, just assume I've been cured, go on with my life, and then fight aggressively if...

4/22/2015 9:54 AM

Prostate Cancer
Fast Update

Thanks for the post, David, it's always good to hear from you even when the news isn't great. Keep kickin'!...

4/18/2015 2:55 PM

Prostate Cancer
Catheter out now or wait?

Five days seems short to me, but apparently a lot of the guys have been OK with that. Mine came out after seven days and everything seemed fine but then after 10 days I was back in the hospital for...

3/18/2015 8:16 AM

Prostate Cancer
Musings 2 days from surgery.

Wishing you all the best....

3/14/2015 5:03 PM

Prostate Cancer
Decision Time - Why do younger men choose surgery?

It seems that the brachy guys have a compelling argument with comparable cure rates, fewer SEs, and a quick outpatient procedure compared to major surgery and a hospital stay. (I was in four days,...

3/10/2015 2:29 PM

Prostate Cancer
When should the patient and doctor consider salvage radiation therapy?

I'm only one example, but I just completed 33 SRT treatments two weeks ago, and as far as I could tell, had ZERO side effects then and now. I had the Calypso implants, which seemed like a great idea,...

3/10/2015 2:16 PM

Prostate Cancer
RO SRT advise to me

Being a low-intermediate risk 3+4, as are you, both my uro and RO recommended against HT in conjunction with my SRT, which I was thrilled to hear, of course. And the RO on the day of my last...

3/3/2015 9:54 PM

Prostate Cancer
How important was maintaining erectile function in your primary treatment decision?

Yes, you did, my bad. Seems a lot of us skipped that....

3/3/2015 3:34 PM

Prostate Cancer
How important was maintaining erectile function in your primary treatment decision?

In that case, he should have framed it as "in your decision on which treatment to have?" I didn't read "primary treatment decision" as taking the question of cancer control off the table....

3/3/2015 3:11 PM

Prostate Cancer
RO SRT advise to me

Several comments: 1) You can certainly wait out another PSA or two or three before you have to make a decision about SRT. As I understand it, .2 is regarded as the "line in the sand." 2) I just...

3/3/2015 11:17 AM

Prostate Cancer
How important was maintaining erectile function in your primary treatment decision?

Sex is just one of many great pleasures in life, including orgasms, which are still there even with total ED. I don't get those who equate QOL with the ability to have an erection. Seems like a...

3/3/2015 10:46 AM

Prostate Cancer
Study: Surveillance Is for Middle-Risk Prostate Cancer - & more evidence of the success of LDR BT

I don't understand this. What would they be waiting for to initiate treatment? PSA over 20? That seems awfully high to wait for. I had six of 12 cores + with good %s of cancer. Would that be enough?...

2/19/2015 3:57 PM

Prostate Cancer
Big Meeting with my Oncologist tomorrow

All the best, Sonny, keep us posted. Henry...

2/12/2015 9:50 PM

Prostate Cancer
Risk for radiation-induced second primary cancer

Thanks, Allen, much appreciated!...

2/8/2015 11:45 AM

Prostate Cancer
Post SRT PSA Results

Great news, Keep it going!...

1/30/2015 3:48 PM

Prostate Cancer
After 6 years PSA shows small rise from .01 to .02 to.03

I would say that you need at least several more PSAs showing a steady rise to even begin to think about salvage treatment. You're at such a low level and have gone so long, I would be looking for...

1/29/2015 8:21 AM

Prostate Cancer
Post SRT Appointment

I would think you'd move on to the uro from here. What's left for the RO to do? It will either have worked or not, and if not, the uro will advise on the next step. But I'm only in the middle of my...

1/27/2015 10:12 PM

Prostate Cancer
Trying to decide about SRT 6 months after RRP

Thanks, Allen, so far so good on SEs. I think I have a little more gas than before, but that's it. I stay in good shape and work out regularly, and haven't noticed any decrease in energy or increased...

1/27/2015 8:28 AM

Prostate Cancer
Trying to decide about SRT 6 months after RRP

Thanks, Allen. That make me curious about where I would stand with the Briganti study. As you can see from my signature, I was up to .19 three years after surgery. And I am halfway through SRT of 33...

1/26/2015 9:57 PM

Prostate Cancer
Trying to decide about SRT 6 months after RRP

Ravine, Since we're in a very similar place in our numbers and apparent BCR, I will take a shot at your first question. As a radiation oncologist, with nothing to gain as he was strictly a consult...

1/26/2015 9:40 PM

Prostate Cancer
Trying to decide about SRT 6 months after RRP

Question for Tall Allen. It looks to me that they treat positive margins as a risk factor for BCR following SRT. I thought it was the opposite, that positive margins were a good thing with a post-RP...

1/26/2015 6:57 PM

Prostate Cancer
I'm a lucky guy with a winning ticket !

Congratulations, Bill, I hope it stays that way!...

1/21/2015 9:13 AM

Prostate Cancer
Do you do anything to help you get to sleep at night?

I believe that Melatonin, an OTC sleep aid, has worked well for me. I take a 5 mg pill an hour before bed. I also use nasal strips, which help me breathe better and lessen the effects of my sleep...

1/21/2015 9:09 AM

Prostate Cancer
Why salvage radiation is bad.

I'm two weeks into SRT, and naturally find this discussion of great interest. I'm in the camp of those who had every reason to believe surgery would take care of my PC, and the pathology report...

1/18/2015 3:56 PM

Prostate Cancer
It's Official, I am in the Diagnostic Clinical Trial at NIH

Sounds like a good plan. Best of luck with everything, Sonny! Henry...

1/4/2015 10:05 AM

Prostate Cancer
What was your age at Dx? (A look at how we break down, age-wise)

At 65, only because of Medicare. The Kaiser plan required an initial physical, which included a PSA test. To this day, I wonder how early I would have been diagnosed if I'd been getting regular...

12/19/2014 6:54 PM

Prostate Cancer
Best Christmas Gift Ever!

I love this news, as I am headed in SRT next month. Very encouraging, thanks for the report and continued success!...

12/19/2014 10:07 AM

Prostate Cancer
Post SRT still in 0 club!

Thanks for the report, I love to see SRT working as I'm about to do it....

12/10/2014 3:21 PM

Prostate Cancer
Still going strong

Congrats, and thanks for the report. Most encouraging for those of us headed down that road....

12/10/2014 3:19 PM

Prostate Cancer
Welcome back Tall Allen

I for one feel better knowing that Tall and his knowledge are there if needed. Thanks, Allen, and Happy Holidays to you and yours!...

12/4/2014 9:34 AM

Prostate Cancer



HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
FacebookFacebook TwitterTwitter PinterestPinterest LinkedInLinkedIn
© 1997-2021 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.