Randy, my heart goes out to you. What an experience to go through! Since you mentioned that you "prayed" in your recent post, I guess I can say I'll be "praying" for you too! Hopefully you will...
NPLover, Thanks for posting. I'm right there with you knowing it's time to fight. We've both enjoyed "time-off" so to speak. Arm C does sound like overkill. I don't want to be so burdened by SE's...
Tomson, thank you for posting. It is so helpful to hear from someone that was in the trial. I hadn't done that math on the PSA doubling time but your example shows me how quickly my PCa could grow...
Thank you all for taking the time to respond. I realize that I needed a reality check. Gleason 9/10 cancer can get out of control quickly and if I let it do that to soon I may look back and wish I'd...
Hi again, So I am at a decision point on treatment. After 4.5 years after surgery(2013), 2yrs of ADT (ended 2015) and 62gy of radiation (2014) my PSA started to rise in July 2018. It has now reached...
Thank you for your answers. I contacted the Mayo Clinic here in Phoenix and was told they are not doing 2nd opinions until after the COVID-19 crisis is over. So with that news and what I read here, I...
I haven't posted in awhile but have been reading posts. I was hoping to get some advice about my treatment path. In summary, I was undetected for 4 years but in July 2017 my PSA showed at 0.2....
So after 4.5 years of being undetected my PSA in July was 0.07. It has slowly climbed to .2 as of end of November. My oncologist here in Arizona has put me on Dutasteride (Avodart) @ 0.5mg 1/day. He...
Thank you for your responses. I will continue with the plan for a retest in September. Since the PSA is so low hopefully it will stay that way for a long time. I was afraid that this meant I was in...
After over four years of being undetected my PSA came in at 0.07 when I was tested in July. I was visiting in Colorado so went to see my MO that I liked at the University of Colorado (UCH) His...
Very happy for you Gunner! We need this kind of encouragement!!!!...
Hi, I wanted to provide an update from a fellow G9'r. I am undetected as of Oct 2017! I'm coming up on 4 years since surgery and I've been off of Lupron since June of 2015. With all my positive...
Hi, We just moved to Sun City West, AZ and I was wondering if anyone has a recommendation for a medical oncologist in the area? I have been treated at the University of Colorado in Aurora by Dr....
Just met with my MO and the results are good. PSA <.01, T-393. Annual Bone and CT scans clear! He said "cancer free". Not too bad for a T3B, GL9 with all the positive margins etc. Gives me a lot of...
Hello Everyone, I just had my Sept Labs done and came in with another zero. My last 3 month Lupron shot was March 5th so the side effects are fading for the most part (except hot flashes). My T level...
Sonny, DonJ and Wendi will not be able to attend. Sorry to make you revise the list after you added us. A relative passed away in the NW where I grew up and I need to try to get up to Seattle to...
I am also a T3B. I was diagnosed in April 2013. After 2 years of HT (ugh!) and RP and ART I am undetected. I am on HT vacation since June 5th and in Sept have my next PSA check. Here's hoping that we...
My Hero, You have really been through an emotional ringer. There is nothing quite like losing a parent and in such a difficult way. You and you Mum are in my prayers. My Mother died from lung cancer...
I am also a T3B M0 N0. Isn't it fun (!???)...
Kristi, I am so glad to hear the good news! It was a pleasure to meet you and Paul at GFMPH! You are such a great advocate for Paul! He is very fortunate to have such a devoted partner! Wendi and I...
Wendi and I wanted to thank you Jeff and Pat (and Sonny & Neil and ...... everyone) for such a relaxing and fun time! We both felt revived after spending time with all of you and meeting so many that...
Hi goatts, I have been on HT since July of 2013. I was on Degarelix for a year and then Lupron until now. At first the fatigue was not too bad. It did get more noticeable the longer I was on it. But...
I meant "3" month Lupron shot not "2"month. Also, he said if after awhile my PSA starts to rise, he would recommend Chemo and HT....
Thought I'd post an update. I met with my MO on March 5th. My PSA came in at <0.01. So the good news continues! So far I've been undetected since after my surgery in Oct 2013. My MO recommended one...
Good to hear from more of you! LupronJim - I have really appreciated your posts! I am also looking forward to meeting you in GFMPH. BTom - We didn't know about the SV invasion. Biosy was T2. Final...
Thank you for the great welcome. It is amazing but I feel so good about finally being a member of this forum. I have read the posts here since shortly after my diagnosis in April of 2013. But joining...
Paul - I am lookiing forward to meeting you. I was with Dr. Crawford for about a year and then due to advice I had read here to get a MO, I saw Dr. Flaig USC (Anshutz Cancer Ctr). He took over my...
Thanks Lupron Jim. I think it would be really good for my wife to meet the other wives. It will be great for me to see the faces behind the names and advice I've been reading! I will wait to hear...
Hi Cajun Jeff. I just registered on the forum. I have been helped by this forum since diagnosed in April 2013. My wife and I are considering coming down from Colorado. Is there still room? We would...