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Jmon

HealingWell Forum
>
Member Profile
Display Name
Jmon
Profile Created
2/2/2006 6:03 PM
Last Seen
3/28/2023 7:49 AM
Total Posts
84

Last 50 Posts

16 Year update now 73 years old Most likely will not die from PC

Hey Pontiac, I follow your posts. As I've said before our cases are nearly identical. I'm 74, had DaVinci at City of Hope in 2005. PSA was around 4, 3+4. PSA started creeping a few years later and...

6/14/2022 8:49 PM

Prostate Cancer
15 Year Update Any of My Old Friends Still Here from 2006

Wow Pontiac, sounds like you and I are on the same journey. I'm 73, had DaVinci at City of Hope in 2005. Gleason 3+4, PSA = 4. Easy surgery, a positive margin. PSA was <0.1 thru June '11=0.06 (first...

6/10/2021 8:38 AM

Prostate Cancer
12 years since surgery update 07/04/2018

Hey 56, good to hear from you again. Our situations are nearly the same, so your case is of great interest to me. I had DaVinci in August 2005 at age 57 (I recently turned 70). Pre op PSA was 3.9,...

12/5/2017 6:53 PM

Prostate Cancer
SHARP radiation for salvage?

Thanks for that info TA. Very much appreciated. SHARP = Stereotactic Hypofractionated Accelerated Radiation for the Prostate. Over 12 years post DaVinci prostatectomy at CoH it looks like I am headed...

10/30/2017 7:33 PM

Prostate Cancer
SHARP radiation for salvage?

Is the SHARP radiation protocol available for salvage treatment? Is it being done anywhere on the West Coast?...

10/28/2017 5:44 PM

Prostate Cancer
12 years since surgery update 07/04/2018

Hello Pontiac, Your post interests me very much. My sitch is very similar. Had DaVinci in August 2005. PSA 4.0, Gleason 3+4. Started out out at <.03 and crept up over the years. In December last year...

6/20/2016 1:35 PM

Prostate Cancer
SRT? No thanks...

Sorry to hear that you are in the position to have to make such a decision. Your post caught my eye 'cause I am in a similar situation. Had DaVinci in Aug 2005, age 57, 3+4, PSA 4.0. Procedure went...

2/15/2016 11:08 AM

Prostate Cancer
Seem to be more recurrences after many years at zero

Case in point. Just had my 6 mo PSA. Ten years out from DaVicni and just hit 0.20. Six months ago it was 0.19. Started rising about 5 years ago and has crept up from <0.03 to current level. I am very...

11/20/2015 5:10 PM

Prostate Cancer
Rising of PSA level after 10 years after RP

I too am 10 years out, 68 years old, very fit and healthy. Just keep getting your PSA checked every 6 months. Your PSA is still well below the "worry level". Pay attention to the doubling time. My...

11/14/2015 5:21 PM

Prostate Cancer
L Arginine

Careful if you get cold sores. Argineine will encourage the Herpes virus. Lots of info online about this....

5/5/2015 10:04 AM

Prostate Cancer
City of Hope

Had nerve sparing DaVinci at City of Hope with Dr Kawachi in August 2005. I researched quite a bit before deciding on CoH. Kawachi was the deciding factor. The staff and facility was exemplary. For a...

3/10/2015 6:53 PM

Prostate Cancer
Distant Recurrence Years Later Data?

I know there are other guys like me who don't fit into any available nomogram. The one for SRT only allows up to 72 months to be entered for "time to 0.20". In my case I am almost 10 years out from...

1/24/2015 7:04 PM

Prostate Cancer
Pomegranate Extract

I began to take supplements when my PSA began to rise 5 years after DaVinci. Now over 9 years out my doubling time is currently around 8 years much to the surprise of my uro. Beside green tea,...

12/23/2014 8:45 PM

Prostate Cancer
Eight Years after Surgery PSA up DANG

Hello 56, Your post is very interesting to me since we are progressing much the same. My DaVinci was in August 2005 and PSA was undetectable for several years. It has progressed very slowly, was 0.15...

12/23/2014 8:31 PM

Prostate Cancer
Foods To Avoid

Flax and chia seed are bad? I heard that flax oil might be bad but intact seeds were beneficial. I guess if you look long enough you'll find conflicting opinions/studies on nearly everything....

12/10/2014 4:46 PM

Prostate Cancer
Avodart and Metformin for recurrent pc

ksk54, After reading several studies about metformin and prostate cancer I convinced my doctors to let me give it a try. Unfortunately it gave me bad muscle aches -- much like statins do. Also, even...

11/29/2014 3:11 PM

Prostate Cancer
Avodart and Metformin for recurrent pc

Viper Guy, I really think you need to take a couple steps back. SRT is not to be taken lightly. At your PSA level I wouldn't even think about it. I am 9 years out from DaVinci and PSA started rising...

11/29/2014 3:03 PM

Prostate Cancer
3 yrs of Bliss Comes to an End - Advise Needed

Definitely retest. I had a 5 year (from RRP) test that went from <.03 to 0.5 in 6 months. Of course I freaked out, went running to my Uro who ordered a retest. It came back at 0.055. Not great but...

5/20/2014 7:04 PM

Prostate Cancer
Slowly Rising PSA 13 Years After Prostatectomy

Hello Bill, It is a tough call. I am very interested in the responses since I have a similar situation. Surgery in 2005 for gleason 3+4, psa 4. Positive margins, otherwise clear. At 3 years psa was...

5/1/2014 3:13 PM

Prostate Cancer
(no subject)

You don't say if you are having open surgery or laproscopic. I had DaVinci at age 57 (almost 9 years ago). I was otherwise physically fit and healthy. In the hospital 2 nights 'cause one of my...

2/8/2014 7:54 PM

Prostate Cancer
Graviola and Paw Paw

I think Paw Paw is basically papaya. In the interest of being as informed as possible, you should check out side effects. There is some indication that it may exacerbate some Parkinson's-like...

1/15/2014 10:42 AM

Prostate Cancer
About to get kicked out of zero club - what threshold for SRT?

Proscapt, You are getting a lot of different points of view here and we all know the decision on how to proceed is personal and, ultimately, only yours to make. Some people would urge you to get...

1/8/2014 11:06 PM

Prostate Cancer
About to get kicked out of zero club - what threshold for SRT?

proscapt, I understand your dilema. I had DaVinci in 2005 (positive margin) and my psa stayed undetectable (<0.1) for about 5 years when it started creeping up. It hit .07 in August 2011, six...

1/8/2014 7:20 PM

Prostate Cancer
Cialis - my Larry David moment

Good story David. Congrats on your success. Keep it up (so to speak)!! I had DaVinci nerve sparing in 2005 at age 58. Never really had a problem with ED but I took advantage of the situation to try...

9/9/2013 5:56 PM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Robert, That is a nice "library" of articles. I'm sure a lot of the guys would find it interesting. Maybe you should start a new thread to share it. I read everything I can find and have even printed...

9/3/2013 9:29 AM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

RobertC, Do you think the Metformin is responsible for your drop in psa? I think if we get some anecdotal evidence coming in regarding Metformin it could benefit a lot of guys on this forum (and...

9/1/2013 3:34 PM

Prostate Cancer
Fianally a positive post from me

Cool!! Very cool. I love those kinds of stories. Keep things pointed in the right direction!!...

9/1/2013 3:21 PM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

RobertC, Just curious on the Metformin. Did you get a scrip for it due to potential diabetes or specifically for you PCa? Looks like something is working for you....

8/31/2013 7:50 AM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

BTW, regarding diet, I try to avoid dairy. Don't drink milk but I love cheese so that is a struggle. Also, I include chia and flax seeds on my cereal or smoothies. Again, don't know if any of this is...

8/31/2013 7:11 AM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Thanks for all of the encouragement. BB, to answer your question: 1) I've been taking for a long time: Curcumin with pepperine, pomegranite extract, Zyflamend, resveratol, astaxanthin, reishi...

8/30/2013 7:34 AM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Update. Just had my latest psa test. IT WENT DOWN. Now 0.10. I won't get too excited until I have another test in 4 months. If it is still going in that direction, then I will celebrate. For now I...

8/29/2013 6:28 PM

Prostate Cancer
Decision time - adjuvant radiation vs wait and see - indecision seems insurmountable obstacle for me

Yep, 3+4...

6/26/2013 12:02 PM

Prostate Cancer
Decision time - adjuvant radiation vs wait and see - indecision seems insurmountable obstacle for me

Forgot to mention, as you will see in my signature, I had positive margins (2) as well....

6/26/2013 11:28 AM

Prostate Cancer
Decision time - adjuvant radiation vs wait and see - indecision seems insurmountable obstacle for me

Aachen, Only you can make that decision but, with your numbers I would not even consider getting zapped at this point. In fact, I am 8 years out from DaVinci and my psa was undetectable for 5 years...

6/26/2013 11:26 AM

Prostate Cancer
pomi-T

If you go to their website and check out the ingredients you will find that they are fairly low dosage. Like 100 mg of pomegranite extract and curcumin. It take 2-3 grams of each every day as well as...

6/23/2013 12:59 PM

Prostate Cancer
Pomegranate study

DOH!! /community/emoticons/blush.gif ...

6/3/2013 9:39 AM

Prostate Cancer
Pomegranate study

PTB for men's health? What is that? Anyone have experience/thoughts on modified citrus pectin?...

6/3/2013 6:42 AM

Prostate Cancer
Salvesterols?? and other musings.

Thanks for the repsonse SpecialLady. I usually follow Dr. Meyer's comments/blogs online but don't recall seeing that one. I did read, however, in one of the articles that one should not take...

5/29/2013 3:46 PM

Prostate Cancer
Salvesterols?? and other musings.

Thanks for the responses. Yes this is a real dilema for me. Don't misunderstand, I know that many of the guys here are dealing with much worse situations and I almost feel like a whiner. But, I am...

5/28/2013 7:18 PM

Prostate Cancer
Salvesterols?? and other musings.

Lots of chatter on some of the other PCa sites regarding Salvesterols. Calims that it slows/stops advancing PCa, even some claims of resolving metastisized tumors and advanced hormone independant...

5/27/2013 1:15 PM

Prostate Cancer
Vitamin Supplements

Take a look at IP-6 and Modified Citrus Pectin. I don't have links to any studies but have seen some that show, at least, some promise....

5/21/2013 4:55 PM

Prostate Cancer
IP-6 and Modified Citrus Pectin anecdotal input?

Anybody??...

5/8/2013 6:19 AM

Prostate Cancer
IP-6 and Modified Citrus Pectin anecdotal input?

Hi All, Still trying to keep my PSADT at a snails pace (now about 2 years). Getting closer to pulling the trigger on SRT but really have things pretty good right now and I don't look forward to...

5/7/2013 4:56 PM

Prostate Cancer
Hey, Robotic RP survivors, how long before back to work?

Had DaVinci at CoH, stayed overnight, came back in one week to get the catheter yanked out, went to work that afternoon. So 7 days from operation to work. My job is not physical so that helped. Also...

4/25/2013 2:05 PM

Prostate Cancer
Does the surgeon have to take the nerves using Davinici when no cancer is seen during surgery?

Hi Cowgirl, In my case my original surgeon said that he would decide once he was "in there". If the nerves looked like they might be involved he would take them out. I heard that same answer a couple...

4/22/2013 6:21 PM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Thanks Logo. Correction made....

4/18/2013 1:15 PM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Thanks for all of the replys guys. I have bounced around all over the 'net and find this to be the best, most interactive forum on PCa. So, thanks again for all the valuable input and to the...

4/18/2013 8:06 AM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Hi Dave, No scans yet. DOc says it would be highly unlikely for anything to show up with a PSA of 0.13. Do you have different info? Thanks...

4/17/2013 3:44 PM

Prostate Cancer
UPDATE: Psa dropping, supplements working?

Hi All, Just an update. Had my 4 month PSA and it has ticked up again another .01 to 0.13. Not a big move but still going up /community/emoticons/mad.gif . It's been 7 years, 8 months since my date...

4/17/2013 12:35 PM

Prostate Cancer
Vitamin E and selenium??

Paul, Thanks for the response. Yes, that has been my take on E and selenium. But just recently I have seen a couple articles advocating their use. I'll pay more attention next time I see an article,...

2/10/2013 1:21 PM

Prostate Cancer
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