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sheepguy

HealingWell Forum
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Member Profile
Display Name
sheepguy
Profile Created
11/8/2010 10:46 AM
Last Seen
3/18/2020 8:34 PM
Total Posts
763

Last 50 Posts

radiation vs surgery

44 fractions of IMRT wasn't exactly punishment for me. Just sayin....

3/19/2018 1:58 PM

Prostate Cancer
SpaceOAR during external beam radiation therapy

Once again, ad nauseum, it depends on your life circumstances and what is available to you. Not everyone can go anywhere they want at any time. SBRT requires only 5 actual sessions but fair amount of...

2/27/2018 2:16 PM

Prostate Cancer
Active Surveillance -- Back to MSKCC six months after diagnosis

OK I guess I'm only speaking for myself. I'm not saying things don't affect me , but I don't ignore the possibility of "shit happening". On the opposite end there are those that are so freaked out...

2/23/2018 9:32 AM

Prostate Cancer
Active Surveillance -- Back to MSKCC six months after diagnosis

Or they don't completely freak out when trouble arrives, having expected it all along....

2/22/2018 6:08 PM

Prostate Cancer
Johns Hopkins results in; what next?

Don't forget IMRT, either hypofractionated or conventional. I recently had 44 sessions of IMRT with the only issue being some fatigue. SBRT and HDRBT were not options for me logistically. My uro did...

2/22/2018 9:15 AM

Prostate Cancer
What do you do when urinating is painful?

It might be critical, might not. I had no flow issues with 44 fractions over nine weeks. No medication....

2/3/2018 8:50 AM

Prostate Cancer
Bad news, but good news. So much for PC being the "good cancer"

Well , shoot, I would like to call it the "good" cancer and in comparison to lung cancer or glioblastoma it is "better". On the other hand they don't call cancer "the emperor of all maladies " for...

2/2/2018 9:14 AM

Prostate Cancer
Positive update for ADT and RT

I just completed 44 treatments of IMRT. No big issues, some "pain" on urination at first, frequent urination. A couple of bouts diarrhea in the first 3 weeks. Some fatigue, not bad. I did regular...

1/6/2018 4:23 PM

Prostate Cancer
Met with RO, treatment plan is all set

More people aren't doing SBRT because it is not easily available to all of us. Me, for instance, it was more convenient for me to do 44 IMRT tratments locally and travel 300 miles for SBRT,even if it...

12/23/2017 2:23 PM

Prostate Cancer
How to decide on treatment, facts, and prejudices.

Oh, yeah, the stats. LOL PSA rising to 11.0 from 3.5 over a period of 6 years. Gleason 3+3 in less than 5% of 4 cores total. No PNI. Two conventional biopsies both with the exact same results. To...

12/20/2017 7:24 PM

Prostate Cancer
How to decide on treatment, facts, and prejudices.

My uro does not like LDBT..he's seen too much urinary stricture to be comfortable with it. He didn't say I shouldn't do it and he would treat someone elses mess but doesn't recommend it. The only...

12/20/2017 4:17 PM

Prostate Cancer
Radiation - Side effects

Thanks, TA , I had kept your reference from before I chose EBRT..and have reviewed it since. A friend of mine who had RT for bladder cancer told me the best thing you can do is keep a positive mental...

11/23/2017 4:23 PM

Prostate Cancer
Radiation - Side effects

Thanks, TA , I had kept your reference from before I chose EBRT..and have reviewed it since. A friend of mine who had RT for bladder cancer told me the best thing you can do is keep a positive mental...

11/23/2017 3:13 PM

Prostate Cancer
Radiation - Side effects

Oh..yeah...and "random wierd pains" is right. But I have so many from farming and sheep shearing I hardly know what causes them. I'm blaming anything on radiation now though..not old age. LOL...

11/23/2017 9:50 AM

Prostate Cancer
Radiation - Side effects

Yeah, I agree with andrew..if he is uncomfortable he needs to tell the RO...

11/23/2017 9:23 AM

Prostate Cancer
Radiation - Side effects

I'm 4 weeks, 20 treatments , into IGRT and have the same side effects. They seem to peak for me at 2 weeks and haven't gotten much worse. A real pain in the ass to be sure, no pun intended....

11/23/2017 8:19 AM

Prostate Cancer
Stereotactic radiotherapy for prostate cancer: A review and future directions

But the standard of care for conventional IMRT, IGRT is hardly the same now as it was 10-15 years ago. So one would not be getting that level of care but much better....

11/8/2017 9:21 AM

Prostate Cancer
RT, RP and TRT

NOT a nuanced guy ,that is...

10/6/2017 8:28 AM

Prostate Cancer
RT, RP and TRT

I'm not sure how symptomatic he is, but I think he,like you, is reluctant to back there either. On he other hand, he is exactly a nuanced type of guy..if you will. He's probably going to go for the...

10/6/2017 8:24 AM

Prostate Cancer
RT, RP and TRT

A shearing client of mine was recently diagnosed with PC 2 pos cores of 12 1 grade group1, one grade group 2. He is currently on TRT. His uro told him that he can resume TRT one year after RP, but...

10/5/2017 2:43 PM

Prostate Cancer
Vero SBRT at Upstate in Syracuse, NY?

A friend of mine visited Upstate last year and they told him they have had problems with the Vero machine and don't use it for much of anything let alone prostate cancer. They offered him...

8/12/2017 8:17 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

That's correct TA. We have discussed SBRT and Hypofractionation and the RO is well aware of the oncological effectiveness but also the toxicity..he is not comfortable with that possibility . He may...

6/25/2017 12:06 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

I think I might twist my RO's arm a little about hypofractionation. :)...

6/23/2017 7:56 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

I certainly encourage anyone, if there is any way they can do it to at least check out SBRT at a center that is experienced with it. It's the wave of the future boys, as far as RT is concerned....

6/23/2017 5:28 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

Yes..I do wish I was closer to SBRT. Upstate Medical Center in Syracuse, 50 miles away. Opened their brand spanking new , state of the art cancer center a couple of years ago along with the vaunted...

6/23/2017 5:26 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

Searchinginla, Location,location,loction. The nearest SBRT center for me is MSK..260 milesaway. Possibly Roswell Park, although they are notkeen on SBRT...180 miles. Local IMRT 6 miles. A four hour...

6/22/2017 2:56 PM

Prostate Cancer
No reason ever* to endure 40 IMRT treatments as primary therapy anymore

There is some reason , ever to use conventional IMRT. In my particular case IMRT is the most convenient for my lifestyle and my livlehood . It is offered locally and I don't need to miss much time...

6/22/2017 1:33 PM

Prostate Cancer
Biopsy Results:Pca found

IGRT would not be out of the question..although not recommended my Mr. Allen. In Houston, it probably would be given the access to many tretments. But there are doctors out there that are a bit leery...

5/7/2017 8:11 AM

Prostate Cancer
Treatment Selection Close

(dullards like myself) There's your answer Steve , you just don't understand. LOL...

4/10/2017 5:34 PM

Prostate Cancer
Active surveillance

Boy I'll say, that's quite the opposite of paternalistic...what would you call it...patientistic? :) Wherein the patient decides what treatment is best...that's not even "shared decision making". But...

3/18/2017 8:08 PM

Prostate Cancer
Looking for opinions and update after seeing local Radiation Oncologist (first consultation)

Well, it depends.My local RO in consultation with Roswell Park recommends the standard IGRT of 40 treatments but is willing to do hypofractionation if I insisted..he hasn't done it but sees nothing...

3/12/2017 5:09 PM

Prostate Cancer
Prostate removed..PSA went up

In fact you might say it is the sine qua non for internet forums....

3/10/2017 5:49 PM

Prostate Cancer
Prostate removed..PSA went up

Hubris is very common on internet forums..regardless of subject....

3/10/2017 5:47 PM

Prostate Cancer
Prostate removed..PSA went up

Careful,now , Bolo...

3/10/2017 9:55 AM

Prostate Cancer
New Member is Western PA. Comsidering SBRT. Looking for info, recommendations, alternatives.

As I understand it. SBRT for the PCa is a lot different and more challenging that for say, breast cancer or even brain tumors. There are a lot of organs very close to the target. I would think , that...

3/10/2017 9:49 AM

Prostate Cancer
SBRT for High Risk Prostate Cancer (update)

I meant before you know it works....

3/9/2017 5:56 PM

Prostate Cancer
SBRT for High Risk Prostate Cancer (update)

What is the patient incentive to participate in these new methods ?...

3/9/2017 5:11 PM

Prostate Cancer
My first biopsy

The worst it will be is bad day at Joliet prison..and I don't mean the food. :)...

2/11/2017 5:04 PM

Prostate Cancer
maple syrup and baking soda for prostate cancer

OH..and personally I subscribe to the maple syrup and baking soda treatment in the form of pancakes....

2/10/2017 6:58 PM

Prostate Cancer
maple syrup and baking soda for prostate cancer

The irony is lost on me...nor do I consider it to be appalling. I'm the last guy defend internet doctors or "guys that act like doctors" but the fact that they discuss studies and treatment data is...

2/10/2017 6:56 PM

Prostate Cancer
IMRT success story's

There are two sayings for RP that apply as well as these do to RT. 1) You'll never get an erection without injections and pills.. 2) Your definition of "continent" is you only leak when you move fast...

2/8/2017 1:16 PM

Prostate Cancer
Lupron brain. Is it real?

I must say this whole thread on ADT/Lupron is beginning to creep me out though...even without him. Good info but I ain't gettin' no confirmatory bias out of it. LOL...

2/6/2017 6:09 PM

Prostate Cancer
Lupron brain. Is it real?

They do have a kind of nasty tone to them. I know Bolo thinks he is being clever..maybe he is...too clever by half as they say. Every now and then I get the gist of them,though. :)...

2/6/2017 6:06 PM

Prostate Cancer
Lupron brain. Is it real?

Well, boys, if "lupron brain" is real or not it certainly sounds like it's an oxymoron. :)...

2/5/2017 2:09 PM

Prostate Cancer
Personal Experience with Diet and Exercise

But my PSA jumped to in 6 months to 11.2 from 8.9 which it had been for 18 months. ..so it hasn't helped that...bye bye AS :)...

1/28/2017 6:09 PM

Prostate Cancer
Personal Experience with Diet and Exercise

Yep.. what I did that was big was drop soda..I used to drink 2-3 cans a day..now about 2-3 cans a year. I eat more leafy greens..although they give me heartburn...but not bad. I'm a baker , though,...

1/28/2017 6:06 PM

Prostate Cancer
mpMRI gives unwelcome downgrade

That's kind of interesting that Dr. Martinez places so much value on the Decipher test. HT is a big step with pretty serious QOL issues isn't it ?...

1/28/2017 9:18 AM

Prostate Cancer
mpMRI gives unwelcome downgrade

oop ..that was sent by mistake..sorry...

1/28/2017 8:32 AM

Prostate Cancer
mpMRI gives unwelcome downgrade

ggg...

1/28/2017 8:31 AM

Prostate Cancer
Gleason 9 first post here!

fded...

1/27/2017 5:57 PM

Prostate Cancer
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