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Cyclone-ISU

HealingWell Forum
>
Member Profile
Display Name
Cyclone-ISU
Profile Created
10/19/2014 11:50 AM
Last Seen
Yesterday 3:35 PM
Total Posts
3019

Last 50 Posts

Recent PSA increase

Hello, Larry ~ We have some common threads in our diagnosis, including high PSA at diagnosis and lung involvement. My treatment history is revealed in my signature below. I will second Tudpock's...

Yesterday 3:35 PM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

It's certainly an unfortunate reaction to a medication that was used to help you. I hope your side effects fade and dissipate. However, it was a 3-month dose, so the medication will stay in your...

Yesterday 4:52 AM

Prostate Cancer
ZYTIGA: Our Collective Experiences

Hello, SteveO ~ Cards on the table, for my case, diagnosed in my 40s with prostate cancer that had already infiltrated both lungs, I have worked very hard to maintain my health goals. It's 10 years...

3/18/2023 11:17 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Mindful of the situation our comrade Youkilis is enduring right now, I think it speaks to the issue of our doctors starting with a one-month dose of ADT, at the beginning ~ to gauge its impact and...

3/18/2023 4:38 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ It's almost like your body is having an adverse reaction to the ELIGARD injection. With the swelling - and now the rash - could it be akin to an allergic reaction? Has your medical...

3/17/2023 7:19 PM

Prostate Cancer
Another Zytiga update

News of the best kind! I'm SO thankful to read this latest update! I'm literally cheering - and I am so thankful for the amazing STEPS FORWARD in the recovery process! Best news of the day, right...

3/17/2023 4:45 PM

Prostate Cancer
G9 update. Slow but steady progression.

Hello, TooYoung4This ~ Spring is around the corner, and I am hoping things are going well for you lately. Your pen name here on the board always resonated with me ~ "TooYoung4This." Diagnosed in my...

3/17/2023 9:16 AM

Prostate Cancer
ZYTIGA: Our Collective Experiences

[i] I was just reflecting today, realizing ZYTIGA (Abiraterone Acetate) has been helping fellows for over a DECADE now ~ since it received full FDA approval in April 2011. Even better ~ as more...

3/17/2023 7:22 AM

Prostate Cancer
Friday humor: okay, some more shorties and one-liners

In honor of Saint Patrick's Day ... well, here we go ... RIDDLE: "What nickname was given to the IRISH cop, who always wore a bullet proof vest on his beat in a tough neighborhood?" ANSWER:...

3/17/2023 5:31 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ I'm mindful of your situation. Diagnosed in my 40s, my medical team has helped me immensely. I am a teacher, and have continued working full-time, since being diagnosed in 2013. To...

3/16/2023 6:53 PM

Prostate Cancer
Update after stage 4 post

This update instills a lot of hope, Sparky9! It underscores something that's important to remember ~ there's weapons, both old and new, in the treatment arsenal ~ and treatments can bring newfound...

3/16/2023 3:52 PM

Prostate Cancer
Why finish Taxotere/Docetaxel treatment?

Hello, Startech ~ Just checking in with you, hoping things are staying smooth, steady, and stable. Hoping you are faring well & hope your doctors continue to share good news with you! With my best ~...

3/16/2023 3:08 PM

Prostate Cancer
Mystery PSA

Hello, Steve ~ Wondering if your medical team has suggested a new treatment plan? Would it be worth trying a course of ADT & see what impact that has? Have medications such as ZYTIGA or XTANDI been...

3/16/2023 11:23 AM

Prostate Cancer
psa level 2800

Hello, JAYMZ0075 ~ It's great to hear your treatments have already begun! The multi-tiered treatment approach is what was needed in my case, too ~ ADT shots, chemotherapy infusions with TAXOTERE (six...

3/16/2023 10:59 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Sending supportive thoughts your way, Youkilis! It's encouraging to MANY of us here that you are a 16-year prostate cancer SURVIVOR. That being said, I'm sorry for the side effects that you are...

3/16/2023 10:08 AM

Prostate Cancer
Lu 177 trial.

Hello, OLMANHUNK ~ Checking in with you, wondering how things are going? Have you wrapped up your series of PLUVICTO treatments? I hope your treatments paid dividends, and thought I would write a...

3/16/2023 4:33 AM

Prostate Cancer
I can't believe it's been 5 years

Glad to hear you're doing well, LDOG! Your message underscores the value of being your own advocate, considering one's options, and getting a second opinion when merited. My original urologist saw...

3/16/2023 4:23 AM

Prostate Cancer
psa level 2800

Hello, JAYMZ0075 ~ Circling back, checking in with you ... Hoping you and your medical team have mapped out a course of action. You can see the course of treatments I have had, over time, revealed...

3/15/2023 6:56 PM

Prostate Cancer
Post - LU-177/Pluvicto

Hello Steve55777 ~ Have been thinking of you, hoping you are doing your best. I can understand why you switched back to LUPRON, in terms of insurance coverage. Did you get your biopsy scheduled yet?...

3/15/2023 6:04 PM

Prostate Cancer
The Central Problem of Castrate Resistance: A New Possibility?

Hello, NewspaperLover ~ I think this preliminary research holds great potential ~ and could ultimately lead to a new treatment! This topic is one to follow, going forward! One discovery leads to...

3/15/2023 2:40 PM

Prostate Cancer
Starting Hyperbaric Therapy for Radiation Cystitis

Hello, AZ Guy ~ Let us know how the upcoming treatments go! Hopefully, music can be played during the time block. I went through 45 radiation treatments. I found that I only had to focus on one...

3/15/2023 2:29 PM

Prostate Cancer
ZYTIGA: Our Collective Experiences

Hello ~ Since you are just starting ZYTIGA (Abiraterone Acetate) , you will find it insightful to read back through this thread Grab a notebook and jot down notes that you find meaningful and...

3/14/2023 5:33 PM

Prostate Cancer
New guidelines ?

Just looking out for you ... You have 2 1\2 months between "now and then" at the end of May. Why not book a visit to the lab soon & see where levels are at? Just a thought to share, wanting the best...

3/14/2023 2:13 PM

Prostate Cancer
New guidelines ?

This rise in PSA is obviously on your mind. A couple of questions: * Do you have nagging, worrisome thoughts about your PSA? * Do you feel you have a proactive doctor in your court? * Lastly, do you...

3/14/2023 5:15 AM

Prostate Cancer
Another Zytiga update

I was thinking of the old adage that states, "Every journey begins with one step." Nine steps! I know in my heart how much these nine steps meant! I'm sending you both my encouragement and support....

3/13/2023 6:24 PM

Prostate Cancer
New guidelines ?

And that's WHY we have an EDIT button, to go back and revise or clarify or brush out verbiage, as needed. CYCLONE...

3/13/2023 4:17 PM

Prostate Cancer
New guidelines ?

Brotherly advice ... The fact that you have questions about your rising PSA, IS the very answer to your own question. Follow up with your doctor. That's the place to start. Please don't target...

3/13/2023 4:03 PM

Prostate Cancer
Another new study

All of this REALLY concerns me. The "angle" in the message and bias in the reporting sends the wrong message. True active surveillance requires strict protocols, if handled correctly. It seems other...

3/13/2023 3:55 PM

Prostate Cancer
People who get paid to portray patients, sometimes hostile ones, in med school training skits

Interesting! Who knew?!! Thinking through this ~ as a teacher, I have worked with a wide range of students. As a patient, visiting the clinic every month, it's easy to see that there are a wide range...

3/13/2023 9:22 AM

Prostate Cancer
3-Month Check Up - Still Undetectable

News that will "light up the night!" KA-BOOM! C-E-L-E-B-R-A-T-E! With my best ~ CYCLONE ~ # Iowa State University...

3/13/2023 7:04 AM

Prostate Cancer
The wait for pluvicto has started.

Hello, Mrs. B.D. & Jerry ~ I have been keeping you both in my thoughts, and wonder how you are faring? Have you gotten through the full series of PLUVICTO treatments (Lutetium~177) by now? I wanted...

3/13/2023 6:37 AM

Prostate Cancer
Annual Physical with PSA blood test .. STILL UNDETECTABLE.. Woohoo

C--E-L-E-B-R-A-T-E! CYCLONE ~ # Iowa State University...

3/12/2023 5:42 PM

Prostate Cancer
Another new study

So ~ I am left with the feeling, that we didn't really "gain" anything collectively, by this new study. I will await news of the next revolutionary treatment. I want to see the words "GAME CHANGER" ~...

3/12/2023 5:39 PM

Prostate Cancer
Another new study

What worried me is that this fellow they interviewed - maybe around 65 - recently diagnosed with prostate cancer ~gave the indication to viewers that he was "off the hook" and didn't need to seek...

3/12/2023 8:23 AM

Prostate Cancer
Another new study

This was featured on national news last evening. It was touted as a revolutionary "breakthrough" in prostate cancer treatment, and I thought a NEW approach was going to be revealed. I felt this...

3/12/2023 6:48 AM

Prostate Cancer
Gallium-68 PSMA PET Finds No New Mets

Hello, NewspaperLover ~ Thankful for the good news contained in your update, in terms of no new spread. Let us know how your next consultation goes. Has your medical team suggested what system-wide...

3/12/2023 4:31 AM

Prostate Cancer
Weakness in legs

Hello, SteveO ~ I'm wondering if a doctor would recommend a specific physical therapist for you? I walk daily and I know this has helped me these past ten years, being on continuous ADT. I avoid ice...

3/11/2023 10:32 AM

Prostate Cancer
Stopping ADT- trepidation

Hello, Jack64 ~ I can understand your emotions, as many of us here rely on medications, injections, or treatments to "keep the wolves at bay" ... I remember my 45 radiation treatments, and counting...

3/9/2023 9:04 PM

Prostate Cancer
Going from Orgovyx to Eligard with Zytiga

Hello, MBOCK ~ Glad you are forming a battle plan. I imagine you could try CASODEX for a month or two, and closely monitor that PSA level. Up until very recently, my PSA was recorded every four...

3/8/2023 4:02 PM

Prostate Cancer
Time for Champagne

It's a GREAT day to read this GREAT NEWS! Here's to marking the moment, and celebrating your great news! CYCLONE ~ # Iowa State University...

3/5/2023 6:24 PM

Prostate Cancer
Genetic counseling & testing, need advice

Long story, short ... Diagnosed in my 40s, my grandfather, uncle and father have all been prostate cancer patients ~ representing three consecutive generations of my family. That's seemingly a...

3/5/2023 5:10 PM

Prostate Cancer
Update after Zytiga

I'm sending my supportive thoughts ... I'm thankful the kidney numbers are improved. Rehabilitation centers can work small miracles, day by day, with specially trained staff, adaptive equipment, &...

3/5/2023 3:09 AM

Prostate Cancer
Halfway through chemo, status report

I know your last chemo infusion was scheduled for February 28, so I will be thinking of you this week, ISLANDBOY! Chemotherapy isn't an "easy row to hoe" as Midwestern farmers say, but I know Dr....

2/26/2023 8:00 AM

Prostate Cancer
Post - LU-177/Pluvicto

Hello, Steve55777 ~ You might be hearing a CELEBRATORY cheer from across the miles ~ and that "ruckus" is from me ~ after I read your update. I have been thinking of you, and reflecting on the...

2/25/2023 9:47 AM

Prostate Cancer
Checking in again and sharing my decision making

Hello, Dr. V. ~ Glad to read your new post and update! I remember your initial posts! You have taken a multi-tiered treatment approach, and it is paying dividends. I endorse your belief in remaining...

2/25/2023 6:54 AM

Prostate Cancer
Interesting read

Always a fan of Ken Burns' cultural and historical documentaries on public television ~ in the medical realm, he created a documentary based on the book "Cancer: The Emperor Of All Maladies" which...

2/25/2023 6:42 AM

Prostate Cancer
Orgovyx vs Abiraterone

Hello, Mr. Bill ~ You are a loyal "battle brother" of mine here, and I always follow all of your posts. I don't have first-hand experience with ORGOVYX yet ~ a newer form of ADT treatments. However,...

2/25/2023 5:52 AM

Prostate Cancer
Thoughts..??

Diagnosed in 2013, I have had lab draws every month until very recently. Because of this, I might have the longest string of PSA scores of anyone here. As a result of having lots of PSA data, over...

2/25/2023 5:36 AM

Prostate Cancer
My New PSA Results...

Love reading your GOOD NEWS, as the weekend begins! You "rode the wave" ~ experienced the crest in the waves ~ and experiencing "lower tides" now ... I like your proactive plan ~ checking in for...

2/25/2023 5:18 AM

Prostate Cancer
Questions on Degarelix vacation

Hello, SteveO ~ You have been a loyal compadre of mine here, and we have common threads in our diagnosis and treatment story ~ including lung involvement. What thoughts did your medical team share,...

2/24/2023 5:21 PM

Prostate Cancer
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