It's like "whack a mole" .... his body did a major immune response to the Heprin (blood thinner) and destroyed platates. He had to have two platelet infusions yesterday. We did get him up sitting in...
Got to spend the day with hubby yesterday. He slept 99% of the time, but I just rubbed his legs and held his hand. Once he woke up and said "oh .... I thought it was a nurse holding my hand" .... I...
Well, as far as an update, it’s not great. Hubby went in for surgery - met pinching his C5,6,7 last Thursday. Something had to be done as his weakness and pain was very severe. According to the...
Thank you, Cyclone....
Thank you for all your suggestions and experiences. My hubby has had too much radiation to his spine as it is - so can't do the radiation thing to help the pain. He does take Xgeva for his bone mets...
Just updated my signature (husbands stats); he is not doing well ... lots of pain and fatigue. He is trying to stay off the opiods by getting medical marijuana - but currently isn't working well. He...
Today is better ... but I will talk to his doctor about the possibility of adding some meds. Thanks...
Hubby has just started chemo (Docetaxel and carboplatin) because BAT didn't work and PSA rose to 12 in a month and a half. Also MRI showed very active tumor on C5. He was radiated back in 2012 on his...
Zytiga has failed for my husband and he he was given his first (BAT) testosterone shot on Tuesday (4-2-19). Dr. Oliver Sartor at Tulane in New Orleans has 34 patients on the therapy at this time ......
Just left Dr. Sartor's office. Husband's PSA is rising on Zytiga ... so stopping the Zytiga and starting next week on Bipolar androgen therapy (BAT). High doses of testosterone given every 3-4 weeks....
I found this forum when my husband was first diagnosed back in April 2012. It has been beyond helpful. My husband does not want to be on the forum or even look at it .... he relies on me to tell him...
Yes, Dr. Sartor is absolutely the best! He is very hands on with each and every one of his patients. My husband has been lucky enough to be with him since he was diagnosed back in 2012....
Well ... semi update. Dr. Sartor emailed us back and said that there were a few things "of interest" ... but not in regards to his PCa. So, that is good .... but again, PSA is rising, so we will see...
No, he hasn't done any chemo yet. We were really hoping to avoid it as he isn't really "healthy" anyway ... COPD....
PSA has gone up as well ... just got the results from this morning 2.24 :-(...
I don't know if it was a full body x-ray. It was a full body CT scan that was ordered ... he's still getting the x-rays. Yes, we will ask the doctor - but our appointment isn't for 2 weeks....
My husband went for his annual bone scan and CT scan today. They are keeping him and decided to get x-rays after reviewing the scans. Of course, the techs aren't telling him anything .... any...
Sadly my husband's PSA is still on the rise with Zytiga. Now 1.61. Next month he is scheduled for CT, Bone and PET scans ... so will see what those produce. We were really hoping that after Provenge,...
Actually, for us, the generic was more expensive than Zytiga ... so, staying with the name brand right now. Go figure .......
My husband has been on Zytiga now since the summer and really hasn't had many additional side effects. He's still doing Elgard injections. Tired ... but that is about it....
Congratulations! I understand how this thread really helps folks that have recently been diagnosed G9. My husband was diagnosed G9 back in the spring of 2012 and his urologist gave him a max of 4...
Well, our Dr. Sartor also said my hubby could go on the generic version. Called the pharmacy and the generic is a couple hundred dollars more per month than Zytiga. Currently paying $2,500 per month...
My husband's PSA rose a bit again ... now 1.44. So, Dr. Sartor is trying something a bit different ... taking him off Pregnazone and starting Dexamethzone. He said sometimes, that along with the...
My husbands Zytiga arrives in a Federal Express box ... no special packaging at all. Interesting .......
Redwing ... the link to it doesn't work. Says error .... fyi...
As an update ... hubby's PSA is starting to rise. He's been on Zytiga since August .... hoping that it will start going in the other direction soon....
Chask - Don't get too disappointed. My husbands PSA has been going up, then down, then up on Zytiga, and he started it in July as well. We went to Dr. Sartor two weeks ago ... and he said "not to...
Just a perspective ... my husband was diagnosed G9 with a PSA of 177 in March 2012 with bone mets ... he's doing well almost 7 years later .... enjoy your cruise, you are not on your way out yet!...
Agree with others here ... don't worry ... All that PSA score means is to do some more investigation. And lots of changes to treatments of PCa now ... as Doctor Sartor told my husband two weeks ago...
Update 8/29/18- Dan had his latest PSA test last week. Seems the Zytiga is doing its job. PSA went down to 1.0 and all his other labs were good. Very pleased. BTW ... he is not having any adverse...
Well, hubby's PSA rose in July .... so he starts Zytiga now. I'm telling him to take the 4 pills when he gets up around 5 am to go to the bathroom .... then the pregnazone when he actually does get...
Husband finished Provenge last Thursday and was scheduled to start Zytiga. However, met with Dr. Sartor today and they have collectively decided to hold off on the Zytiga for now. His PSA has been...
I'm looking at Pedialyte .... from this ... Gatorade: Gatorade is a sports drink meant to combat dehydration better than water. It supposedly does this better than regular old water by packing in...
He didn't seem to have a problem being approved for Provenge. At least not that we are aware of. He is now officially castrate resistant ... so maybe that helped? Not sure ... but he is really...
Sorry ... meant to say his affair with H2O is NOT over after Provenge .... :-)...
Update ... hubby finishes Provenge week after next and then he starts Zytiga. We have already gotten his first bottle from the specialty pharmacy. I've been bugging him about drinking his water...
Cyclone-ISU - yes, thank you. I have read that thread several times, and he will start on Zytiga as soon as the PROVENGE is completed. I will again reread it before just to make sure I haven't missed...
Just an update. The first infusion was last Thursday and all went well. No side effects of it as of yet (Wednesday) .... so, thinking he is one of the lucky ones that will handle this quite well. We...
The leukapheresis procedure went well ... no real side effects other than being a bit tired. The infusion process today also went ok. He's very tired tonight from the infusion. Our son and daughter...
Thank you all. He got his port today and he is sore, but otherwise ok. Strange, but they had him stay for 2 1/2 hours after surgery to monitor him. That's fine, but when I asked for a chair, the...
Thank you .......
I take my husband in tomorrow (May 17th) to get a port put in for his Provenge treatment. Then we start on Monday. Any words of wisdom, things to do, things NOT to do, from folks that might have gone...
Very nice. Sounds like you are responding well to HT :-) My husband was diagnosed in 2012 with a PSA of 177 - G9. He did radiation in 2012 for several mets on his spine and also his prostate. He's...
Results from the PET and CT scan shows some more active spots ... PSA has been rising. According to Dr. Sartor, it is time for my husband to begin the next phase of treatment. He will be starting...
Thanks Fairwind ... I think Dr. Sartor is thinking Provenge and then follow up with Zytiga. But, I could be wrong. He did have another Eligard shot today and is to stop taking the casadex....
Our Onocologist is now thinking that since my husband is castrate resistant and his PSA is rising, he might have him do Provenge + Zytiga + Eligard shot .... I'm reading that Provenge may have...
Update - We just returned from Dr. Sartor and he ordered a PET scan and CT scan. From that he will determine the best "next" course of treatment since he is now resistant. What he is thinking is...
Fairwind, You are correct, I was taking it the other way .... thanks for pointing that out! Yes, that, indeed, does make a difference. Again .... I really do appreciate all the assistance. My hubby...
Thanks Fairwind .... to qualify for that program you must: Patient's income must fall below 400% of the Federal Poverty Guideline (FPG) with consideration of the Cost of Living Index (COLI) and the...