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kmclark1

HealingWell Forum
>
Member Profile
Display Name
kmclark1
Profile Created
3/8/2014 4:53 AM
Last Seen
Today 6:59 PM
Total Posts
222

Last 50 Posts

Considerin Radium 232

Michael clark Treatment Status for Prostate Cancer Tumors in liver/mild progression in bones. 1 – Chemo and Radiation may set back my recovery and set me to hospital. No guarantee’s on longivitey. 2-...

1/20/2021 4:34 AM

Prostate Cancer
Considerin Radium 232

Hey all, Busy day tomorrow. Leave rehab at 730 for blood draw at Dana Farber at 910 Bone scan with contrast at Brigham and women's 10-12. Cat scan at 315 pm Return to rehab. Today was a good day and...

1/13/2021 7:16 PM

Prostate Cancer
Considerin Radium 232

Not sure what you mean. Feel free to post always,...

1/13/2021 7:05 PM

Prostate Cancer
Considerin Radium 232

GoBucks Thanks. I am hoping my teammates can continue to provide their experiences and decision making on my journey to get double digits (decade long fight). Milestones upcoming. KC graduates...

1/7/2021 8:32 PM

Prostate Cancer
Radiation therapy shrinks penis

It is a muscle needs exercise. Mike aka kmclark1 "I miss my morning wood" - kmclark1...

1/7/2021 10:35 AM

Prostate Cancer
Considerin Radium 232

As you know, three chemo regimes kicked my ass, along with 10 days of whole head radiation. Once treatment stopped, my team got my GI issues under control, went to rehab to get my strength up.Got...

1/7/2021 2:59 AM

Prostate Cancer
Biopsy vs MRI Guided Biopsy

Had mine done in 2013. Extra cost $300 Well worth it....

1/5/2021 10:02 PM

Prostate Cancer
UPDATE

thks all for the encouragement, left BMH and back at rehab Power on into the new year...

12/31/2020 10:45 PM

Prostate Cancer
UPDATE

After two weeks in Rehab, back at BWH with blood in urine. Liquids and two bags of blood. waiting for uro. keep you posted....

12/29/2020 10:45 AM

Prostate Cancer
UPDATE

Day 4 of rehab. Eating and drinking are going well. THe food here is actually pretty good. My GI issues appear to getting better. Passing, with no violent diarrhea. It feels good not to be worried...

12/19/2020 2:27 PM

Prostate Cancer
UPDATE

Left Brigham and WOmen's Yesterday. Off all cancer treatment drugs, except long lasting Lupron Side Effects. Looks like GI issues got straighten out. The Medical team at BWH and DFCI really focused...

12/16/2020 8:26 AM

Prostate Cancer
Serious Question - When to stop treatments QOL

Thanks for the response and encouragement. I purchased a copy of the book today. An actual hard copy, my Kindle will be upset, will need to keep them separated....

11/17/2020 2:27 PM

Prostate Cancer
Serious Question - When to stop treatments QOL

I hope everyone can give me some insight here. FIrst it will be seven years since I have been diagnosed with Stage 4 PC with bone mets. Treatment synopsis Lupron and Casodex Lupron and Zytiga Lupron...

11/16/2020 11:57 AM

Prostate Cancer
Treatment Changes

Tuesday full Chemo haze. Today a little better, going to try to work from home....

11/11/2020 7:06 AM

Prostate Cancer
Treatment Changes

All - SO this was so long in the chair. FIrst fluid, than calcium, then magneseum, followed by one chemo, then the other. ANd finally a blood transfusiion. 6 hours. No side effects. THis was Friday,...

11/9/2020 2:20 PM

Prostate Cancer
Treatment Changes

As you may recall, I just finished a bunch of hole head radiation to kill the reminanents of PCA in my sinusis. During that time I was also being treated with cabazitaxel every three weeks. On...

10/31/2020 9:18 AM

Prostate Cancer
Gave myself a present

Matt - I have some of those also, along with a large Celtic Cross on my left shoulder. The RTs are on my lower back. Dan - I hope to keep chasing you and never catch up. Its so great to see the...

10/29/2020 9:21 AM

Prostate Cancer
Gave myself a present

Went with my youngest daughter to get a tattoo. She had a celtic cross done on her ankle to match my older daughters, and in support of me. I have a fairly large cross on my left upper arm. I...

10/27/2020 8:03 AM

Prostate Cancer
Radiation and Treatment Advice (SInus)

Thanks All. Got a great night sleep last night. n Feeling a little energitic. Purchased some trekking poles and going to head for 300o steps today, increasing as I go. Get my energy back up. Once I...

9/30/2020 7:37 AM

Prostate Cancer
Radiation and Treatment Advice (SInus)

Just finished my ten treatments. The last one was yesterday. Side effects Fatigue - Huge and I underestimated it. dry mouth. Oral sores - just got a couple. Dehydration. - Hydrate hydrate hydrate....

9/29/2020 1:28 PM

Prostate Cancer
UPDATE ON MY JOURNEY

Just wanted to confirm what my battle buddy ISU Cyclone says. ADT monitoring = PSA + testosterone monitoring. Dana Farber team stressed this....

9/14/2020 5:20 PM

Prostate Cancer
Radiation and Treatment Advice (SInus)

Duck No shite. Just went through two months of hell recovering from the sinus surgery. I am being as aggressive as possible with the radiation. Want to kill any PCA in the head. However, anybody...

9/11/2020 8:56 AM

Prostate Cancer
Radiation and Treatment Advice (SInus)

So I am in a new world. As you may know, I had mets to the bone structure in my sinus cavity. Spent time in the hospital due to the situation. I was on taxotere at the time, and it did not work. I...

9/8/2020 7:05 AM

Prostate Cancer
Milestone and treatment status

At Dana Farber for my second Cabazitaxel treatment. PSA down from 560 to 169. Alkaline phosphate down 1600 to 1000. No pain and feeling great. Also my youngest reached 21 yesterday. Another milestone...

8/31/2020 12:28 PM

Prostate Cancer
Another big reason for wearing a mask during a pandemic (Article)

Cyclone Wishing you and and parents well....

8/19/2020 5:30 AM

Prostate Cancer
Switching Doctors: Lessons Learned ...

Cyclone This is just one of another challenge in the process. Be your on advocate....

8/17/2020 9:41 AM

Prostate Cancer
Metastasis in sinus - Listen to you body.

Home - All under control. Started Cabexitaxel with neulasta. Will start a new thread. Thanks all....

8/8/2020 6:43 AM

Prostate Cancer
Zoom support group

Hope to be there...

8/5/2020 3:26 PM

Prostate Cancer
Metastasis in sinus - Listen to you body.

All please listen to you bodies. As some of you know I had a hard time with taxotere. Brutal Side effects, and then we found out it wasn't working. We scheduled cabazataxel. This week, A week ago my...

7/30/2020 9:48 AM

Prostate Cancer
Taxotere

Be careful with the flare. My rise in PSA was attributed to flare and then bang my scans showed progression. Keep an eye on your alkaline phosphate which rises during progression. Mike...

7/20/2020 3:56 PM

Prostate Cancer
Cabazitaxel (Jevtana) Here I come (Maybe-High Testostrone Trial?)

Just got of the phone with my MO. We are going to investigate a Clinical Trial at John Hopkins which involves high dosing with testosterone and immunotherapy. Will move forward in this direction if I...

7/16/2020 11:10 AM

Prostate Cancer
Cabazitaxel (Jevtana) Here I come (Maybe-High Testostrone Trial?)

Crazy two days. Had scans and blood work yesterday. PSA 291.9 Alkaline Phosphate 651. Looks like it wasnt flare from the taxoere. Scans moderate increase in volume of bone mets. Doxcetal (aka...

7/15/2020 3:55 PM

Prostate Cancer
Taxotere Holiday!!!

Had my latest appoint with my MO Dr. P on July 2nd. I walked in, said hello, and the conversation turned into lets look at a Taxotere holiday. PSA is still through the roof (195) and being attributed...

7/7/2020 9:17 AM

Prostate Cancer
Taxotere

Micky The train hits me on the 3rd or 4th day. Taxotere is well strong medicine. As my friend cyclone says, drink plenty of water, do not be afraid to ask them for a bag of saline before hand if you...

7/7/2020 8:32 AM

Prostate Cancer
Taxotere Side Effect

Wings No thank the Lord. I have had that a little drinking alcohol in the past. It is enough to make you stop drinking a good Bourbon or Irish!...

7/1/2020 12:30 PM

Prostate Cancer
Taxotere Side Effect

So, I am having a hard time describing this side effect. It feels like my glands are swollen and my esphougas is inflamed. Very unpleasant. Anybody experience something similar. GO to MO tomorrow for...

7/1/2020 10:31 AM

Prostate Cancer
Virtual prostate support group

I can make it....

6/9/2020 9:58 AM

Prostate Cancer
Test Anxiety? Read This!

So waiting desperately for a scan read tomorrow, spent the day fishing with my brother and friend. It worked!...

6/7/2020 3:35 PM

Prostate Cancer
Treatment Advice!!!

Has stayed constant until mets progressed. My MO opinion is that it is driven by an increase in Mets. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4129955/ ...

6/5/2020 12:02 PM

Prostate Cancer
Treatment Advice!!!

I finished my third taxotere treatment and went in to Dana Farber yesterday for my fourth infusion (6/4/2020). I had scans on June 1 at South Shore Hospital. The radiologist report was available, but...

6/5/2020 8:13 AM

Prostate Cancer
60 years today

Brother in the PC Battle Happy Birthday. You have knocked off another milestone. Mike (aka kmclark1)...

6/4/2020 8:16 AM

Prostate Cancer
Taxotere Rant

Thanks all. Fairwind. Everything depends at this stage on PSA and the scans. If after the end of my first six cycle taxotere treatment, my scans show regression and stabilization we will hold of on...

5/16/2020 8:55 AM

Prostate Cancer
Taxotere Rant

So had my treatment yesterday and woke this morning feeling like I did before Lupron. Spent a fair amount of time going through my blood work. PSA up to 60, but alkaline phosphate way down, so it...

5/15/2020 12:59 PM

Prostate Cancer
Taxotere Rant

Gents Hope everybody is well. Going if for may third treatment tomorrow. The treatment process is easy and not a big deal and the after effects where pretty smooth after the first infusion. Actually...

5/13/2020 3:21 PM

Prostate Cancer
XTANDI: Our Collective Experiences

All Was on Xtandi from May 2019 until February 2020. Issues with Xtandi included additional fatigue and high blood pressure. When I came off xtandi, blood pressure came down like a rock. Good luck...

4/28/2020 7:36 AM

Prostate Cancer
I'm back... because IT is back... : (

I was on Xtandi (with Lupron) after Zytiga for a year. The side effects were similar with the exception that my blood pressure went through the roof. We watched it closely, and I was put on blood...

4/24/2020 8:14 AM

Prostate Cancer
Hard to believe Americans are protesting for the right to catch, and spread, COVID-19

I would suggest you look at what these other countries did to their own citizens and their neighbors over the last 100 years....

4/22/2020 2:36 PM

Prostate Cancer
OT: Song Suggestions?!! Let's ROCK !

Late 70s. I was at UMass Amherst, then known as the Zoo. Lots of memories. Three albums always ready for the turntable, Atlanta Rhythm Sections' Champagne Jam, Bob Seger's Live Bullet, and a two disk...

4/15/2020 4:07 PM

Prostate Cancer
Another change in Therapy

Hey - Just finished my first infusion. The process was pretty easy and all the anxiety I had before the infusion seems like wasted energy. Some insomnia last night. Will keep you posted....

4/2/2020 8:07 AM

Prostate Cancer
Another change in Therapy

Just made my Appointment. April Fools Day. Dana Farber has shut down any visitors, so this will be a curbside drop and pick up. LoL. Planning to hydrate fully prior to test, and get some rest. Any...

3/25/2020 8:36 AM

Prostate Cancer



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