I think you're making the right choice considering your mother's age and temporary nursing home environment. We wanted to fly out to the west coast for my husband's 60th birthday in May but have...
[quote="Buddy Blank"]"Newly Completed Genomic study strongly suggests that there has been cryptic (undetected) transmission in Washington State for the past 6 weeks."...
Maybe some radiation directed at the bone mets that are giving him so much pain? Sending positive thoughts and prayers....
ADT can cause anemia. In my husband's case he can run out of breath walking up the stairs sometimes. He hasn't smoked in thirty five years and exercises on the treadmill daily. It's just another...
My husband received his first injection from his urologist. I was at the appointment and he never mentioned the side effects. I asked because I had already done the research and he basically shrugged...
There are some options with Zytiga that you can talk over with your doctor. Sometimes men are able to drop back to a half dose and gradually build back up to a full dose. Another option is taking a...
This is the battle we're all going to have to be aware of: https://www.cdc.gov/media/releases/2019/s0424-advises-misapplication-guideline-prescribing-opioids.html CDC is raising awareness about the...
Congratulations! That's wonderful news. Your diagnosis is almost identical to my husbands who is coming up on three years. It gives me me hope!...
You may want to see if he is on any other medicines that can cause elevated liver enzymes. There may be alternatives that will work better with Zytiga. For example, when my husband was going through...
Thank you for posting the Lupron .pdf - it's always good to review. And I'll let my husband know that he has choices - arm, hip, buttocks, or thigh. I know he sits sideways for a few days. :(...
We ran into something like this with my husband's biopsy - the doctor that did the biopsy was in network, the one that read the biopsy was not in network. You have to question everything even with...
I would also consider the quality of life issues. Knowing what I know now, if it was my father (who passed away at 73 with PCa) I would suggest with a Gleason 7, low PSA, and low tumor burden to just...
My husband has lost 20 pounds with low carb diet and exercise since July. It does work but he's worked really hard to get the weight off. I'm very proud of him! The doctors - MO or GP - haven't said...
Spouse 21 - The MO's sort of laughed at the ice mitts idea but we ignored him. We used ice packs and very very cold coke/pop/soda cans that he could hold during his infusion. He also has Renauld's...
When my husband did chemo, he was able to work from home on the day after his infusion and then a couple of days when his WBC was at it's lowest. Our son-n-law was in the hospital (he has MS) for 5...
Sending prayers of peace for you and your family as you begin this transition....
My husband was diagnosed in Dec 2016, Gleason 7 (4+3), PSA 75, lots of lymph node involvement and three bone mets. He started on Casodex/Lupron, dropped casodex after a month, did 6 rounds of...
Todd - my husband is on his second "generic" brand. He was on name brand Zytiga for 1.5 years, now 6 months on the two different generics - I don't really understand but the speciality drug store...
It may be the prednisone that he's taking with lunch. It tastes really bad. See if he can take it at a different time of day. My husband takes two prednisone a day - one an hour after his Zytiga in...
I belong to a Facebook group that promotes low carb - low fat. The question comes up time and time again about cholesterol and triglycerides - the person's reading almost always goes up before it...
We have Blue Cross Blue Shield of Tennessee with CVS carrying the prescription piece. They sent a letter in early January saying that Zytiga would no longer be covered only the generic starting March...
I'm sorry for your loss. My father died of prostate cancer, my mother died in her sleep due to COPD. I was happy for them. No more pain. No more struggling to breathe. They lived full lives and it...
Edit: I didn't read through all the posts or see that the original date was a few months back. But I still highly recommend Dr. Joseph Busch at Prime Imaging in Chattanooga. Helping men with PCa is...
"1.Doctors don't always keep up with current research. 2. Patients sometimes have more current information than the docs." Let's see, I explained to husband MO that Provenge doesn't only collect...
https://www.statesman.com/zz/news/20190604/pfizer-had-clues-its-blockbuster-drug-could-prevent-alzheimers-but-kept-it-secret Interesting article about Pfizer and how drug companies work. I can see...
When my husband started Lupron had I had already researched quite a bit regarding the side effects - especially the loss of interest in many areas. We already had a habit of hugging each other in the...
My two cents. . Late 90's my husband's father was scheduled for surgery. He told everyone he had to get his prostate removed. None of us knew what a prostate was. It was after the fact that we found...
Found these articles that may help....
Trailguy - very interesting. Husband was put on thyroid meds to regulate his TSH just before his diagnosis. I was just telling him yesterday to talk to his GP and see if this thyroid could be...
Facebook groups perhaps? I'm a moderator for a group Stage IV Prostate cancer and we only allow women in the group. There are a lot of prostate cancer groups on Facebook. . Perhaps more forums on the...
Thank you all! He probably needs to find an urologist - the one he was sent to after the GP did the DRE and PSA neither one of us really liked. When we asked what were the side effects from Lupron he...
My husband is starting to experience urgency to urinate - if he has to ignore it (no restroom) it can go away. He hasn't had any accidents or leakage (that I know of). I was just wondering if this is...
My husband just told me that his pharmacy offered the generic for Zytiga this month. Husband didn't know there was a generic and since the pharmacy said there was only a difference of $10.00 he...
Interesting topic. My husband has been getting both a CT and bone scan every 6 months since diagnosis 12/2016 and a dexa scan once a year. Perhaps the difference is that he had bone mets and lymph...
Just my opinion. I don't have cancer but knowing what I know now, I would encourage my husband to wait if he was in your shoes I'd advise him to set a goal 2-5 and wait it out as long as possible....
Logoslidat - we just spent two wonderful weeks in Hawaii for our 35th anniversary - five nights on Oahu staying at Pats in Punalu'u and then the remainder of the time on Maui in Kahana Point. We will...
Logoslidat - you always make sense. :) Am I remembering correctly that you live in Hawaii? If so, Mahalo....
JNF my understanding is that even if one is castrate resistant, Lupron (or it's equivalent) is still given as some of the cells will continue to respond to the Lupron. Oncologist usually add...
Husbands came today in a plain FED EX mailer. The only signs that it's medication is that the label refers to our Oncologist office. FED EX delivers to our back door and leaves it there. It's still...
Has anyone been diagnosed castrate resistant without PSA rise or progression of disease? Husband's PSA at diagnosis (12/2016) was 74, Gleason 4+3, 3 bone mets and lymph nodes. After taxotere his PSA...
I just wanted to add because my husband told friends about his diagnosis, one of those friends found himself agreeing to a PSA test that he may (or may not have) agreed to before. He has never told...
My son-n-law will be 40 in December. He was diagnosed with MS when he was 18. Two years ago he had a massive relapse - 3 months in the hospital and 3 months in a nursing home. He now needs 24/7...
Thank you! I don't mind being wrong; it's how we learn. :)...
Kittytalk371 - It will get better - at diagnosis most partners go through the typical stages of grief. It's a new normal that we have to adjust to as our partners go through this massive change...
As a wife of almost 35 years I believe that all treatment options start and stop with him. His body, his life, his decision. In some ways, I think I can answer both of TA's questions. I have to...
Debbie - good news about Dan! And to all the comments about Gatorade and sugar we use sugar free Powerade but in so many forums you mention sugar free anything and you get slammed, so I tend to state...
Following this one. My husband has been wanting to lower his Zytiga. We've also talked about asking the MO if he can half the Predisone as I've heard of that being done as well. He did the same thing...
My husband went to doctor before his diagnosis due to health insurance requirements. They put him on statins for high cholesterol and he started walking everyday. When he complained of fatigue,...
Thanks everyone - and Todd and TA - I didn't think about the dose, just the drug. That's a very good point. His doctor tends to look at the big picture rather than the details - drugs and side...
This is the part that is concerning: "...using immunosuppressive agents at the same time may alter the effectiveness and/or safety of PROVENGE." To me it sounds as if even Provenge isn't sure if it's...