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RobLee

HealingWell Forum
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Member Profile
Display Name
RobLee
Profile Created
4/1/2017 2:36 PM
Last Seen
3/2/2023 8:14 AM
Total Posts
1489

Last 50 Posts

Checking in again and sharing my decision making

https://malecare.org/treatments/hormonal-therapy/chondroitin-sulfate/ https://pubmed.ncbi.nlm.nih.gov/?term=prostate+chondroitin https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4036554/...

3/2/2023 8:10 AM

Prostate Cancer
Goodbye Gary, we will miss you

Sadly, I learned over the holiday weekend that Garyi (Gary Hellman) died a week ago from an inoperable mediastinal dedifferentiated liposarcoma​, which he fought for over a year. He was last active...

12/26/2022 10:36 AM

Prostate Cancer
No subject (Part 5)

What a lovely sentiment! I wish you well, and hope that I am able to do the same. My wife and I both had cancer the same year, and we realize that eventually, one of us will be forced to live...

10/14/2022 8:49 AM

Prostate Cancer
Pathology results from Prostatectomy 09-26-2022

I hear that! After twenty or so surgeries, I consider myself fortunate that only three or four became disasters. When I start to think back I have to yell at myself "What are you doing going over...

10/10/2022 10:36 AM

Prostate Cancer
Study for Very High Risk (VHR) PCa, comparing EBRT+ADT with EBRT+BT+ADT

You hit the nail on the head Djin. My MRI indicated the cancer to be organ confined, however surgeon found extensive local spread. The main advantages of primary RP in VHR cases remains 1) accurate...

10/7/2022 9:30 AM

Prostate Cancer
Advise on next treatment and side affects

The original article is here: https://theconversation.com/why-cancer-cells-go-to-sleep-94956 ...

10/1/2022 11:44 AM

Prostate Cancer
How many months of Lupron?

I was NOT node positive and have never had a PSMA scan, but I was on Lupron during the time of my adjuvant RT... ART that was recommended due to adverse pathology discovered during RP. The urologist...

10/1/2022 11:08 AM

Prostate Cancer
Advise on next treatment and side affects

Quite a bit of territory covered here, so just a few tidbits... I read somewhere that the average time to recurrence is eight years, assuming that the many patients who have zero recurrence or the...

10/1/2022 10:43 AM

Prostate Cancer
OT, Florida

Glad you're safe and didn't have to evacuate. I'm familiar with the office complex behind the shopping center at that corner, guessing that's where your doc is located. I had one there also. I would...

10/1/2022 7:26 AM

Prostate Cancer
OT, Florida

I'm just up the road in Safety Harbor, and went to bed Tuesday night expecting the storm to hit us head on the next day, with 10' storm surge and flooding. Instead we woke up Wednesday - the day of...

9/30/2022 8:29 AM

Prostate Cancer
Friday fun: Sound therapy for your prostate woes!

Was your tinnitus caused by your cancer treatment?...

9/26/2022 7:36 AM

Prostate Cancer
AUS AMS 800 revision surgery

My AUS required replacement two weeks after the initial implant surgery. The cuff was too small and I was unable to urinate. The day of the original surgery was a nightmare and I ended up with a...

9/23/2022 7:06 AM

Prostate Cancer
OT: Something curious that we have in common with our ancestors of 17,000 years ago

Did everyone catch Georgio on last night's Resident Alien?...

9/22/2022 8:27 AM

Prostate Cancer
OT: Something curious that we have in common with our ancestors of 17,000 years ago

Ancient Astronaut Theorists... say yes. ...

9/16/2022 8:50 PM

Prostate Cancer
The fear and loathing that cancer brings: one patient's take on it

Can't say that I do. Been having these throughout the day, usually morning, evening, and over night, for five and a half years now. Venlafaxine has helped reduce the frequency, duration, and...

9/16/2022 8:48 AM

Prostate Cancer
Decision Dilemma

Jack - hope your surgery went well. FWIW both my wife and my mom had the bubble in the eye surgery and everything turned out okay. Mel - I feel for you. I had to take my mom for her periodic eye...

9/16/2022 8:02 AM

Prostate Cancer
OT--A revised dental question

I had my lower wisdom teeth removed in my 40's and still have the uppers, as they have never erupted. Brief mention of wisdom teeth removal was made around age 20 but no one gave me any particulars,...

9/13/2022 8:13 AM

Prostate Cancer
Radiation question

The primary case for surgery over radiation would be based on your age. You are a young man and have an excellent chance of fully recovering from the surgery itself, and given time ahead of the...

9/13/2022 7:59 AM

Prostate Cancer
SEPTEMBER: Prostate Cancer Awareness Month!

A brief history for those who were not forced to live thru this, as Matt and I were (and surely many others here). The PSA blood test came into broad use around 1995, and many men were found to have...

9/10/2022 11:22 AM

Prostate Cancer
AMS 800. Life?

FWIW there is a Facebook AUS support group https://www.facebook.com/groups/ams800] ...

9/8/2022 9:42 AM

Prostate Cancer
SEPTEMBER: Prostate Cancer Awareness Month!

A full month dedicated exclusively to prostate cancer would be great, but instead we get included in a month which is apparently set aside for "any cancer not noted elsewhere". September is not only...

9/8/2022 9:31 AM

Prostate Cancer
Suprapubic catheter

I had the SPC briefly after my second AUS procedure. I tend to forget that I'd even had it unless the subject comes up. I don't remember any problem with it other than after a while it would tend to...

7/19/2022 7:54 AM

Prostate Cancer
Combating hot flashes

Thanks for the link! I'll try to get my Uro interested. My GP is dead set against any hormone supplementation....

7/19/2022 7:27 AM

Prostate Cancer
Combating hot flashes

I was on ADT for two years around the time of ART and my testosterone never recovered afterwards. My T level has been around 50 for several years now. Daily venlafaxine has cut the hot flashes about...

7/14/2022 10:48 AM

Prostate Cancer
Rates of referral to radiation oncology prior to RP

My urologist stated that my scans indicated that the cancer was contained within the capsule and that surgery had a 50/50 likelihood of getting it all, but also mentioned that the need for salvage...

7/1/2022 6:23 AM

Prostate Cancer
ADT Hormone Treatments: Our Collective Experiences

I put on a little weight, but probably not from the venlafaxine. More likely it was the ADT. Plus BP and pulse rate, A1C and triglycerides all increased and remained there. Slight man boobs which...

6/29/2022 7:42 AM

Prostate Cancer
Dental Issue -- need advice

When I was considering whether or not to start Prolia, my oral surgeon said that he will NOT work on anyone who has been on Prolia or any bisphosphonates....

6/29/2022 7:18 AM

Prostate Cancer
ADT Hormone Treatments: Our Collective Experiences

Yes, definitely. I too had never had any MH or emotional problems, but the absence of testosterone really threw me into the emotional rabbit hole... and it was EXTREMELY difficult to pull out. My...

6/29/2022 5:00 AM

Prostate Cancer
Dental Issue -- need advice

At present I have four implants, where a decade ago I did not have any. Most of the saga of having all but eight of my teeth root canalled, recrowned, or implanted (at a total cost of approx $75K)...

6/28/2022 9:52 AM

Prostate Cancer
Trends in the surgical management of urinary incontinence after RP

After several months of PT my Uro told me that I was "definitely" not a candidate for the sling. My RO was urging me to get ART underway and said that there is rarely significant improvement in...

6/27/2022 4:36 PM

Prostate Cancer
The AUS and Hernia Surgery

Glad you're doing well after the hernia repair. You did mention the Italy trip in your OP and yes, I've been pulled over by TSA because my AUS shows up like I was the underwear bomber. Even without a...

6/25/2022 10:19 AM

Prostate Cancer
The AUS and Hernia Surgery

I've had fun explaining to medical staff in various hospitals just what an AUS is. I liken it to a BP cuff in my demonstration. Most have never heard of such a thing. Going into surgery I always wear...

6/25/2022 7:07 AM

Prostate Cancer
Surgery Vs Radiation in High Risk Men

He probably meant to type "My cancer". The T and Y key are next door neighbors. Agreed. IIRC HR and VHR includes criteria such as double digit PSA, stage >= t3b, with four or more cores grade 4 or...

6/17/2022 5:37 AM

Prostate Cancer
Surgery Vs Radiation in High Risk Men

Good catch Mumbo. The link works for me, taking me to the abstract. BTW, just to rattle the chains of primary RT fans, I will quote the "take home message" from the article: [b]While prospective...

6/14/2022 7:52 AM

Prostate Cancer
Surgery Vs Radiation in High Risk Men

Five year survival, even ten year, is essentially meaningless in the case of prostate cancer, because stage IV is such a slow death (sorry). I hate when stats show 99 or 100% survival from PCa, makes...

6/14/2022 6:24 AM

Prostate Cancer
AUS 800

The surgeon who implanted my AUS five years ago - and replaced it two weeks later - assured me ahead of time that he had PLENTY of experience. Afterwards it became obvious that he did not. I even...

6/13/2022 6:10 AM

Prostate Cancer
Gynecomastia

My previous Uro had suggested that I see a surgeon about my painful boobs. but I already have surgeries stacked like airplanes waiting for a runway. Originally I was supposed to see a specialist this...

5/15/2022 12:35 PM

Prostate Cancer
Official Rant Thread - Go for It

It's the Festivus equivalent of a Christmas tree, though it also symbolizes the "tinselization" of Christmas....

5/13/2022 6:30 AM

Prostate Cancer
Official Rant Thread - Go for It

Will there be feats of strength?...

5/13/2022 5:42 AM

Prostate Cancer
ADT Hormone Treatments: Our Collective Experiences

I am considering having my one remaining atrophied testicle removed while I'm under anesthesia for my next AUS replacement, probably next winter. My T level has been between 45-60 since ending...

5/13/2022 5:00 AM

Prostate Cancer
Interesting viewing yesterday

Been on Lupron wa-a-ay too long!😉...

5/11/2022 9:30 AM

Prostate Cancer
Prostatitis AntiBiotics - Duration/Efficacy

One little tidbit of info that no one tells you unless you ask... Apparently it's an insurance thing, but in most cases, insurance will not pay for an MRI guided biopsy unless you've previously had...

5/11/2022 6:15 AM

Prostate Cancer
Interesting viewing yesterday

Exactly the way most people see it, unless they have a father or husband with PCa. The only published stat is something like a 99% five year survival rate. No one knows what's really involved unless...

5/11/2022 6:03 AM

Prostate Cancer
Prostatitis AntiBiotics - Duration/Efficacy

Thanks for the well wishes, Jack, and the same to you. Not to hijack the OP's thread, but there are explanations for everything. First, we don't know anything unless the doctor tells us, and they...

5/11/2022 5:28 AM

Prostate Cancer
Prostatitis AntiBiotics - Duration/Efficacy

Most of it is on my signature. In 2012 my GP informed me at a routine physical that my PSA was 4 and that I should see a urologist. I already had a urologist who had excised a spermatocele a decade...

5/10/2022 5:05 PM

Prostate Cancer
Prostatitis AntiBiotics - Duration/Efficacy

A bit of a story on this. I was plagued by frequent burning in my urethra. It would keep me up at night. At the same time, my PSA was skyrocketing. My urologist performed a biopsy that FAILED, though...

5/10/2022 6:15 AM

Prostate Cancer
OT: Dan Fogelberg song

I loved Dan Fogelberg in his day, especially The Leader of the Band. This thread has brought back some great memories. BTW, not to beat a dead horse, but thanks Cyclone for not using the [b]bold...

5/10/2022 5:59 AM

Prostate Cancer
OT: Dan Fogelberg song

But that horse, which had only been added to the field two days earlier, by total happenstance, went on to beat the worst odds in Derby history and win the race, in one of the greatest stories ever....

5/8/2022 4:51 AM

Prostate Cancer
SIDE EFFECTS (Proton Radiation & ADT)

Radiation is exhausting. I would come home from treatment every day and take an hour or two nap. In the final weeks in was 2-3 hours. But a month later we took our grandchildren to Universal Studios...

5/2/2022 11:12 AM

Prostate Cancer
Anything new in Hot Flashes?

It was about five weeks as I recall, after my first shot before the hot flashes started. It was not much longer after that when I stopped having any sexual thoughts. It does indeed feel odd after a...

4/30/2022 7:50 AM

Prostate Cancer
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