David I just posted after 3 years and you were the first poster I looked for, hoping you were still around. So great to see you still posting....
Hi again. I'm now 12 years down the road as a PC survivor, having failed both surgery and salvage radiation. I've had no other treatment and, after consultation with many uros and ROs my plan has...
Just checking in for an update after many years. It's good to still see some names I recognize still successfully fighting this beast. I'm 12 years down the road from surgery in 2009 (4+3) and SRT...
Thanks. Wilderness, yes, I have reduced sugar a whole lot. The only guilty pleasure I have now is red wine, which I may occasionally over indulge in but hey my numbers are good. Oh, I love those new...
It's been a year or more since I posted and I wanted to give you an update on my PSA diet results. For reference, I have recurrent cancer after surgery (10 years ago) and radiation (5 years ago) and...
Interesting study. It's not clear if this was for primary radiation or also included salvage radiation. And, wonder if similar results would be found in slowing psa after recurrence?...
There are placebo controlled trials on supplements such as pomi-t and MCP but I'm too lazy to look them up right now. Diet to slow down or stop PSA doesn't work for everyone. Few treatments do. I'm...
Ak I take the Pomi T twice a day in the morning and at night. Again, I'm going by what they did in the studies....
Ak I can't tell you. The original study was done using the powder. This stuff really clumps together so if it was me I would not want to chew it. The reason it's modified it to make it fine enough to...
Ak I use Econugenics Pecta Sol C in a 454g powder jar that I get from Amazon. It comes in a fine powder and has a scoop with it. The dosage studied is 5g, or 1 scoop, 3 times a day but it does get...
Gemlin on the soy, I know the argument about soy and Asians. The counter I've heard is that Asians don't eat nearly as much soy as we think, and they also eat seaweed that counteracts the bad stuff...
Anyone get salivary gland blockages due to stones. I have them and they are getting worse. I had one removed through the duct by an ENT a couple of years ago. I now have a larger one in the right...
Cashless, I did away with soy because of Isoflavones, related to estrogen. Didn't want to take any chances. https://www.medicalnewstoday.com/articles/320011.php...
I don't know, but I use the fine powder, mix it in a warm beverage, and use a handheld frother. Dissolves very quickly....
Ak here is the report on modified citrus pectin in case you want to try it. I use Econugenics Pecta sol C. If you do use it, it's hard to dissolve. I put it in a cup of warm tea and use an...
Ak I'm sorry that the diet so far isn't working for you. As far as bread, I do eat it but choose natural breads without soy. I'm not following cashless diet exactly, more like a hybrid between his...
Cashless, I adopted your diet and some supplements 6 months ago. I've now had 3 PSA tests and my PSA increase slowed down from doubling every 5 months to remaining nearly constant. My last 3 PSAs...
bubbatc my next test isn't until November. My RO suggested going 6 months but my MO would like 3 months. So for the next 3 months I can forget about PSAs until the anxiety begins again a week before...
I'm now 6 months into a vegan diet, inspired by cashless and others. For reference, I'm 10 years post surgery and 5 years post SRT. My psa had gone to <0.014 both times but had come back. In February...
It appears that most on this board are considerably younger than me, with different issues. One of the many side effects of aging. So I think it's best if I make decisions based on my state in life....
This might have some relevance to the question of ADT effectiveness, and addresses my concerns over the true value of ADT compared with quality of life and overall survivability....
Fair question. It does not apply directly, or may not apply at all, as far as how long ADT was used for, or the prostate cancer specific survivability. I am more interested in what they observed as...
jmadrid yes that helps. So at 7.4 years they had 4.1% to 7.8% prostate specific mortality depending on what group they were assigned to. They also had 13.9% to 19.4% overall mortality. I think I see...
So far I haven't gotten any answers to my questions, so I'm thinking all they have published so far is this abstract but are keeping the rest of the data until they publish a paper. Tall Allen, can...
Yes, that's what I meant by SRBT. Have a PET scan and If appropriate get them zapped by SRBT. But even if that happens I don't expect it to be a cure, just hopefully delay things a year or two....
Right now I'm just trying diet changes to increase my doubling time. It's about one year right now so it's not critical. I am seeing a RO and a urologist right now but if it gets to .7 the RO is...
The RADAR study looked at 6 vs 18 months of ADT along with radiotherapy. One of their main results was 30% fewer prostate cancer specific deaths in the 18 month arm after 10 years. I've looked but...
The catheter removal is no big deal. The bigger issue is whether you can hold it after it's out. Don't worry if you dribble, it often takes a while....
The worst mistake I ever made was to delay my biopsy for two years because I was afraid it would be painful and I might get an infection. It was totally painless. Any good urologist will inject you...
Good to hear from you, and congrats on your PSA. I'm an example of those who come back when PC returns. I had almost put it out of my mind....
I have a good friend who was diagnosed with Gleason 9 about 10 years ago. I asked him about his PSA and he has no idea, he figures the surgery cured him. I hope it did. He has some other health...
Damn, if it works as well as they claim, I'll take two or three of those shots. I did try the trimix for a while but I didn't care for the feel and it began giving me pyrones (sp?) so I stopped using...
OK I ordered the powder and one of those frothing things to mix it well. Wilderness, I love your psa history, hopefully I can duplicate it....
Let me tell you my story, not to bash doctors who thought they were doing the right thing, but so newbies can be on the lookout. Also, I think my case is a little unusual but aren't they all? My...
Here's a review article. Apparently this has been looked at for a long time. There's been good results in extending doubling time on mice (with control group), in vitro human cancer cells, and now...
Yes I understand. Given that ADT has been in use for 65 years, though, you would think there would be lots of studies out there that characterized its effectiveness for different gleasons, ages, etc....
I just noted this important comment by Dr Strum on the paper that TA linked, concerning whack a mole: "I have 34 years experience with ADT and IAD (intermittent androgen deprivation) and in the...
Cigafred do you get it in capsules or powder. From what I read it tastes pretty bad in powder but may be absorbed better. In pill form looks like you have to take 3 to 6 pills three times a day to...
I had never heard of it, but a supplement called PectaSol-C, a modified citrus pectin, is showing good results in extending doubling time for those of us whose cancer has returned. It's a small study...
To be more precise, my RO didn't say he couldn't radiate the lymph node field, he said he didn't think he could deliver enough radiation to the entire field to make much of a difference, while...
Oops, that's right, it was 70.2. I was going by memory which is an increasingly dangerous thing for me....
I got 82 Gy to the prostate bed. I don't know why he said what he did, but I had no evidence of lymph node involvement. So he probably thought that it wasn't worth giving me a lower dose to the lymph...
I truly believe that to be the case. I think in my own situation my psa growth rate increased substantially over the last six months because of several stress factors that all coincided. A couple of...
I had a consult with another RO before I chose the one I did. The first one told me that towards the end of the SRT he liked to do a couple of extra treatments to the lymph nodes. The one I chose...
Also, don't forget that there is natural variation in test results that probably are influential than whatever rounding they do. I've seen references to coefficients of variation as high as 15%,...
Thanks, that helps. As to which ones to remove, the idea would be that a sensitive PET scans lights up the ones affected and if it just a few they could be treated. But those SEs are a concern,...
Although I had surgery and radiation, my lymph nodes were left untouched at surgery due to lack of evidence of spread, and when I asked my RO if he was going to also radiate them he said no, because...
To paraphrase Dick Butkus, the past is gone, the future isn't here, and the present is all we have. That's why it's called a present....
I certainly wouldn't discount the value of extending doubling time. The bottom line is that it's all about doubling time. As an oversimplistic example, suppose that a PSA of 200 represents a fatal...
Ak, nobody can really say because there is so much variability. But I have looked up some papers because I am in a similar situation and here is one that is pretty hopeful. They looked at 61...