Hi. I have been bothered by pain “ in the muscle” of my right thigh over the passed nine months. Very bad at times. Both of my legs are swollen right more than left. This is likely due to swollen...
Yup. Been finding other things to do rather than make a final post to the forum, but things are lining up for the moment, so..... I was diagnosed in May 2016 with hormone sensitive metastatic PCa,...
Fairwind- I am very glad you are in the treatment arm. We are three weeks apart for injection dates; I get #4 next week. keep us posted and great luck to you- grandpamarv- everything in your posts...
reply to Sr Sailor regarding variable responses to 177Lu-PSMA- some correlations exist- Some extreme responders also carry BRCA mutations, which cause defect in repair of double strand breaks, which...
UPDATE on VISION trial I am tracking PSA response to 177Lu-PSMA therapy in my signature. My clinical response has been very good but not steady up. 10 days before and after 3rd dose, I felt like a...
Thanks to all for support and kind words- Fairwind: yes, I am getting treated at UCHealth in Denver- a note about Scottsdale- the address they gave me for the Gallium PET-scan location was not useful...
UPDATE on Lutetium-177 PSMA 617 therapy (VISION trial) As described in my previous post, this targeted treatment attacks PCa cells with radioactive molecules that bind to PSMA, get engulfed by the...
Cateydid- I know rising PSA is scary and the urge to hit back is strong. As others have said, second-line ADT is likely one of the options your doc will consider when the PSA number becomes...
BOOKEND CLINICAL TRIALS- an update Almost three years since initial diagnosis of metastatic G10 PCA. I started the journey with a PROSTVAC/docetaxel clinical trial at NIH, which, along with ADT,...
An update from a metastatic G10, 2.5 years since diagnosis. Quick summary: ADT for life, early docetaxel with Prostvac, then Provenge, Xtandi (quick fail), BAT for 6 months, zytiga (total fail), and...
I am very sorry to hear this. Peace and comfort now I hope for a life lived in love. Whatever the stage of the journey, I know that love makes it better. In each day, it is the sacred gift, it is...
It's all a journey, right? Zytiga looks to be my last approved systemic therapy and I have been WAITING on it to tell me, one way or another, what to do about potential clinical trials- They say you...
I wish the best for you in the next steps, Fairwind. I am about to prove resistant to Zytiga I fear and, barring a clinical trial enrollment, will likely face decisions similar to those you make now...
TO Fairwind- But the UCDenver trial is Denmeade's trial- unfortunate they cast you out- maybe another call is warranted? my understanding is they are most concerned with bone mets in dangerous spots...
Just a note about this trial; I had inquired about a Phase II trial on this drug just before this Phase III came out- same people running both trials- I asked about cost to patient- patient was...