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trailguy

HealingWell Forum
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Member Profile
Display Name
trailguy
Profile Created
7/14/2015 4:02 AM
Last Seen
Today 4:45 AM
Total Posts
775

Last 50 Posts

Salvaage Radiation

First round 8 years ago (40 treatments to prostate bed and surround, total ~70 Gy) gave me explosive, painful diarrhea + bleeding, serious fatigue and painful urination. That lasted 3 & 1/2 years...

2/26/2021 5:16 AM

Prostate Cancer
Vaccine-seeking, DISGRACEFUL

You are doing much better than I, Mel. All I got so far is a "don't call us, we'll call you" from Beaumont, Ascension and the county health dept. :( Rich...

2/26/2021 5:04 AM

Prostate Cancer
Morning thoughts.

It was about 0* F and 18 inches of snow this AM, maybe up to 15* F when the wife, Labrador and I hit the back country this AM for 6 miles or so. I love it all. :)...

2/21/2021 3:13 PM

Prostate Cancer
Cost of 6 month lupron

Detroit area here. About $5500 for a 6 month Eligard and $100 for the injection. Medicare pays for all of it....

2/21/2021 3:07 PM

Prostate Cancer
Update from me

Thanks for the info aleph, I will ask my MO about switching to that on my next appointment. As for the docs - my first urologist missed the cancer 2 years running and caused me quite a bit of pain....

2/17/2021 6:25 AM

Prostate Cancer
Why choose standard radiation over SBRT

My experience this time around was based on the ORIOLE study. I first got an axumin PET scan that showed I had 3 mets in my pelvis - cancerous lymph nodes 1.2, 1.3 and 1.4 cm in diameter. These...

2/17/2021 5:54 AM

Prostate Cancer
Lupron vs Eliguard

Eilgard in the butt here. Same chemo, same se's....

2/11/2021 2:47 PM

Prostate Cancer
Lymph node radiation

I am currently undergoing salvage + spot radiation for 3 hot pelvic lymph nodes at Beaumont Royal Oak Rose Cancer Center. 2 more treatments tomorrow + Tuesday and I am done (again). I got my Axumin...

2/7/2021 6:42 AM

Prostate Cancer
RALP recovery

I used the leg bag & strap the hospital gave me and just slept on the couch with that leg down and foot on the floor for the week after I got out the hospital. Also became that old naked guy you may...

2/7/2021 5:30 AM

Prostate Cancer
Political Posts

...and I will again add that 142 and I discussed the wide variety of religious and NON religious members we have here from all over the world. We represent a great variety of cultures, practices and...

1/25/2021 5:28 AM

Prostate Cancer
Political Posts

Me too....

1/24/2021 6:30 AM

Prostate Cancer
Pee test for prostate cancer

.....and they think it can be used to discover a bunch of other cancers as well. https://phys.org/news/2021-01-cancer-precisely-urine-artificial-intelligence.html Sounds a lot easier than the biopsy...

1/23/2021 6:34 AM

Prostate Cancer
OT--interesting post--what do you think? (Alias Dear Abby/HW)

I used to have a bunch of 'friends' that didn't treat me very well. About 20 years ago I just dumped the lot, keeping the friends that treated me fairly. Those are still with me, as are a whole bunch...

1/21/2021 4:45 AM

Prostate Cancer
Where do you get your Lupron/Firmagon shot?(In the tush not the answer)

Medical Oncologists injection suite, in my butt last time but in my side before at the Urologists office. The side shot hurt more and longer....

1/18/2021 2:50 PM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

My experience: My doc waited until my PSA hit 3.0 before he scheduled an axumin PET scan and another bone scan. He said when the PSA was lower there was not enough cancer to see in the scans. When I...

1/14/2021 5:53 AM

Prostate Cancer
It's A New Day ... HAPPY NEW YEAR!

Like Cyclone, I have just finished my 8th year since starting treatments. (RP was 12/27/2012) I have a short story for entertainment purposes.... I am on the same protocol as Mattam - Eligard and...

1/2/2021 6:51 AM

Prostate Cancer
Salvage radiotherapy: a new standard of care

I am doing both...did adjuvant after surgery and am doing salvage now. So far so good....

1/1/2021 5:42 AM

Prostate Cancer
Xtandi for COVID 19?

Hi guys. I found this most entertaining, thought I would share it here: Science News from research organizations Prostate cancer regulator plays role in COVID-19, providing a promising treatment lead...

12/25/2020 6:50 AM

Prostate Cancer
Help With Treatment Decision

You should have gotten the MRI and bone scan before you got the PET scan. With PSA about at 3.0 the mets should have shown up. Unless there are a bunch of micro-mets scattered all over. If that is...

12/22/2020 5:09 AM

Prostate Cancer
SBRT for Oligometastatic Lymph Nodes

Going in to the hospital today to get my butt cast + barium + I.V. dye resist for an MRI + CAT to more clearly locate my 3 'hot' pelvic lymph nodes (1.2, 1.3, 1.4 mm diameter) so they can get...

12/17/2020 5:31 AM

Prostate Cancer
The Multiple Effects of Aspirin in PCa Patients

I take aspirin when I have pain or a headache, but not too much or for too long. More than a couple of days and my stomach starts to get skanky and I start to bleed really easily. Doc wanted me to...

12/15/2020 5:33 AM

Prostate Cancer
Distance Running

Runner here, but no stories like yours, sorry. Have dropped to ~45 miles/week running, hiking, walking through the forests with my lovely lady Labrador. That is down from my usual 50 miles/week...

12/8/2020 5:23 AM

Prostate Cancer
ORIOLE ain't just a tweety bird

Nice. :)...

12/4/2020 1:44 PM

Prostate Cancer
ORIOLE ain't just a tweety bird

Nah - my tumor was actually kinda small - about 1/3 of the prostate which came out at 35 grams total. Normal prostate weight is about 20 grams. That puts the tumor at a little less than 12 grams,...

12/4/2020 5:45 AM

Prostate Cancer
ORIOLE ain't just a tweety bird

Some may remember my story - 2012 PSA=11.1, G7 in 12/12 cores. RARP Dec 27, 2012, ADT chemo started 2 weeks later, 40 radiation treatments 3 months after that. Total duration of 1st round ADT chemo...

12/3/2020 6:12 AM

Prostate Cancer
Questions on Xtandi

I have been on Xtandi + Elgard since last Jan 20. So far so good, next blood test is tomorrow, next injection of Eligard is Dec 10. When I speak to my new MO Dec 3 (telephone Dr appointment due to...

11/26/2020 6:20 AM

Prostate Cancer
Curcumin against Prostate Cancer: Current Evidence (review)

Thanks for the link Djin, it is in my library now. :)...

11/24/2020 2:59 PM

Prostate Cancer
Ok here is what my brother found out today

Yes, G7 is serious. :(...

11/17/2020 5:26 AM

Prostate Cancer
Alex Trebek Passes

Jeopardy has been a part of the wife's and my nightly ritual for 30+ years. We will miss him very much....

11/8/2020 3:37 PM

Prostate Cancer
Movember 2020

I used to wear a long full beard and hair down to the middle of my back when I was a young greasy biker. When I grew up I trimmed both back quite a bit. When we arrived at the future in 2000 CE, I...

11/6/2020 5:43 AM

Prostate Cancer
Famed sportscaster speaks out about being diagnosed with prostate cancer

The intervention was in 2013, he is still getting PSA tested every 3 months. That infers there is a reason for the testing, like a rising PSA, for example. A G7 can well progress to much worse,...

10/2/2020 5:11 AM

Prostate Cancer
Study suggests gut bacteria play role in PCa treatment response

Thanks for the link, its in my library now. My mum graduated from Western U. I love London. :)...

10/2/2020 5:01 AM

Prostate Cancer
New Blood Test for Castrate Resistant Metastatic Patients

Put the link in my library, thanks. :)...

9/25/2020 4:51 AM

Prostate Cancer
Flu Shot

Got the enhanced flu shot a month ago at Rite Aide, BCBS paid for it. Get 1 every year. No side effects. Got the others too, only 1 left to get is the TDaP and I am completely up to date. :)...

9/22/2020 4:30 AM

Prostate Cancer
Longer term effects of ADT

7 years ago my T was 750, then I got 2 & 1/2 years of 'ADT'. 2 & 1/2 years after stopping that my T hit a new max of 350, then fell to 160 over a couple pf months. 1 of my testicles had died from the...

9/21/2020 4:11 AM

Prostate Cancer
Regretting life choices

It is indeed the journey, not the destination. If you make each decision with all of the information you can get at that time, there should be no regret later. IMHO, it is really important to "be...

9/8/2020 5:00 AM

Prostate Cancer
Prestigious medical journal The Lancet publishes findings on Russian Covid vaccine

"Timing is everything."...

9/6/2020 4:35 AM

Prostate Cancer
Risk of dementia following ADT for PCa: an updated systematic review and meta-analysis

The complete shutdown of your hypothalamus and pituitary gland by leuprolide acetate chemotherapy stops production of a bunch of hormones. These include gonadotrophin (stops testes from making...

8/26/2020 6:04 AM

Prostate Cancer
Odds of being diagnosed with PCA

Layman's rule: your odds of having PCa is your age in years over 100. Yours would be 41/100 or roughly 4 in 10....

8/18/2020 4:47 AM

Prostate Cancer
Pandemic denial: why some people can't accept COVID-19's realities (Article)

Quite a few, actually. Denial is the most common - and the least effective - coping strategy people utilize to deal with (or not deal with) problems/threats of any kind. "The island is not sinking."...

8/17/2020 4:23 AM

Prostate Cancer
Lupron SEs

Serious AM exercise session right after breakfast every day - I choose a long run with my lovely lady Labrador - to fight depression and moderate weight gain. Afternoon nap now extended to 1 hour to...

8/17/2020 4:19 AM

Prostate Cancer
LEAKING, LEAKING, LEAKING

It is my understanding that the average time to regain continence after RP is 3 - 4 months. Took me 3 and 1/2 months. Still, 7 years later, I have some stress incontinence - a couple of drips during...

8/16/2020 4:51 AM

Prostate Cancer
New model predicts control of the pandemic, if we all just do a few things (Article)

Been through Sturgis, but not for the cluster ****, despite being an old greasy biker from back in the day. Virus gotta do what a virus gotta do, just give it a couple of weeks. Got a bunch of...

8/13/2020 4:19 AM

Prostate Cancer
How fast does he need to act?

I agree. PSA of more than 10 is problematic and the long term outlook gets worse as it goes higher. I wouldn't wait, myself....

8/10/2020 4:03 AM

Prostate Cancer
New model predicts control of the pandemic, if we all just do a few things (Article)

The neat thing about science is that it is all about facts and logic. You can have all of the opinions and beliefs you want but a viral contagion will act like a viral contagion regardless. How loud...

8/7/2020 4:58 AM

Prostate Cancer
Radiation side effects 10 years after salvage therapy

I also continue to improve 7 years after radiation treatment ended. Rectal bleeding never really stopped though....

8/3/2020 1:04 PM

Prostate Cancer
New model predicts control of the pandemic, if we all just do a few things (Article)

Like the man said - if we all wear our masks, socially distance and take basic sanitary precautions, C - 19 will drop to manageable levels in 6 - 8 weeks and we can all go back to near normal life....

7/29/2020 3:56 AM

Prostate Cancer
New model predicts control of the pandemic, if we all just do a few things (Article)

The wife and I just finished a lengthy discussion on this topic. She got an email from the boss this AM during breakfast that the parts guy in the back warehouse spiked a 105* temp last night and is...

7/28/2020 4:16 AM

Prostate Cancer
Lupron,ADT and Heart Rate

No problems here. :)...

7/23/2020 2:14 PM

Prostate Cancer
Good News...11 years post op gl9 only TX still here @77

:)...

7/20/2020 1:05 PM

Prostate Cancer
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