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NewspaperLover

HealingWell Forum
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Member Profile
Display Name
NewspaperLover
Profile Created
9/4/2009 6:46 PM
Last Seen
Today 6:00 AM
Total Posts
383

Last 50 Posts

PCa Cancer Diagnosis and Mortality Increasing

This is a very valuable, if disquieting thread. Thanks to the contributors above. I agree with mufjem that the problem rests not in the test but the decision making process after. After PSA emerged...

Yesterday 9:21 PM

Prostate Cancer
Tough Decisions....Advice Appreciated

Depends on how much uncertainty your Dad can tolerate. There is no one size fits all at your Dad’s point of disease progression. As you know ADT does present quality of life issues and also has a...

1/25/2021 9:05 PM

Prostate Cancer
It's a new era, with new Hope!

Yes mattam, to all of us....

1/20/2021 8:06 PM

Prostate Cancer
St. Peters Albany NY

I had surgery at St Peter’s in the fall of 2009. Very much a mixed bag. Moved my case to Sloan-Kettering in the fall of 2011. If you would like further information, please use email. Best wishes......

1/2/2021 9:24 AM

Prostate Cancer
Help With Treatment Decision

DonJ, I am considering the same trial. In a nutshell, my PSA doubling time started accelerating this past summer, my MO sees my current doubling time as five months (year ago it was one year), PSA...

12/28/2020 1:44 PM

Prostate Cancer
FDA approves PSMA Imaging

Good news!...

12/1/2020 5:01 PM

Prostate Cancer
Darth Vader is gone

Oh, I thought you meant the Election?...

11/29/2020 9:32 PM

Prostate Cancer
Survey: age at diagnosis

66....

11/27/2020 12:43 PM

Prostate Cancer
OT, kind of

Coen Brothers film “A Serious Man” speaks to the kind of year you have had. Dark comedy, but what can we do? Hope ‘21 is better. Best wishes,...

11/19/2020 1:23 PM

Prostate Cancer
Incisional Hernia

I had an umbilical hernia in consequence of PCa surgery. Waited a year and a half to have it fixed. Great surgeon on the patch up. No mesh required. Did require general anesthesia. IN and OUT like...

11/13/2020 9:02 PM

Prostate Cancer
Prostate Cancer Runs in Familes

My son is 51, very well and expensively educated (I am sure I bought one of his Ivy League professors a nice beach condo say on Maui), successful lawyer. He declines to have regular PSA monitoring....

11/12/2020 2:13 PM

Prostate Cancer
RIP 007

What I remember most about the James Bond movies was not James Bond, but Ursula Andress emerging bikini clad from the ocean in the first film “Dr No.” Made an indelible impression on my 17 year old...

11/2/2020 7:32 AM

Prostate Cancer
Checking in

Great to read!...

11/2/2020 7:26 AM

Prostate Cancer
Newly diagnosed with bladder cancer

BB, Sorry to read this. I remember you from when I first joined this forum. My treatment history back in 2009-12, similar to yours. Wishing you well....

10/30/2020 10:25 AM

Prostate Cancer
The creepiness of Halloween would seem to apply to the whole year so far ...

The Year of Living Dangerously....

10/29/2020 8:59 AM

Prostate Cancer
OT-Sleep

Less. Sleep 6 - 7 hours, usually starting around midnight. Eight hours or more is long past. My wife goes to bed around 10, so the next two hours are spent reading, unless I indulge myself with...

10/26/2020 7:54 PM

Prostate Cancer
PSA results in less than 24 hours?

Always get mine in about two hours using patient portal. Incredibly fast and inexpensive tool....

10/23/2020 8:28 AM

Prostate Cancer
Another 3 Month Pass Today

Excellent news!...

10/13/2020 10:46 AM

Prostate Cancer
Steady as she goes...

Great numbers. Steady on....

9/9/2020 7:52 PM

Prostate Cancer
Please welcome Soccer1171

Soccer, I would echo the view that testing PSA at least quarterly going forward is the way to go. Most cancers cannot be readily tracked with quick, inexpensive blood work. PCa can. This is a...

9/6/2020 12:24 PM

Prostate Cancer
Steady On

Prato, No, we have never discussed a “trigger” point. My MO says the decision to start ADT will be contextual, as opposed to a fixed number. I am good with that, and rely on his call....

7/29/2020 12:39 PM

Prostate Cancer
Steady On

Had my six month set of scans at Memorial Sloan Kettering last week -- actually nine months, due to COVID restrictions back in April. My pattern continues. Bone and CT still clean, PSA continues its...

7/29/2020 11:26 AM

Prostate Cancer
Any experiences with MSKCC?

I have been a patient at MSK since the fall of 2011. I went there after it became evident that the surgery I had in 2009 in upstate NY had failed. All my experience has been at the Main Hospital or...

7/28/2020 8:56 AM

Prostate Cancer
10 years later and I'm back here again

Depends on how much uncertainty you can tolerate. At this point you might consider going to a Medical Oncologist who probably would order imaging scans to look for mets. If negative, the issue...

6/19/2020 5:48 AM

Prostate Cancer
Texas reopened early, here's the result

Masks work best when everyone wears masks. Here in our part of upstate NY the “mask line” is still holding. Very busy at the supermarket today, more shoppers, baskets full as they have been since...

6/14/2020 7:40 PM

Prostate Cancer
Special Place

Great post. Yes this site is special, and important for me for 10+ years now. Thanks for saying it... Bill...

6/10/2020 4:14 PM

Prostate Cancer
Texas reopened early, here's the result

Mattam, I agree with your take. I do flu shots each fall, but still seem to get a cold/flu every winter. My guess a vaccine will be a step forward, but hardly a game changer. I expect that I will be...

6/9/2020 5:35 PM

Prostate Cancer
60 years today

Happy Birthday! And many more....

6/2/2020 9:33 AM

Prostate Cancer
PSA Coming up change in protocol

Prato, I am getting set of scans at MSK Main on July 23 — had originally been scheduled in April. So have had no scans now for nine months — time to take a look, and I have been all in with MSK since...

6/1/2020 4:12 PM

Prostate Cancer
CDC: Covid-19 deaths projected to rise to 3000 per day, new cases to 200,000 per day

Economically, the US could borrow tens of trillions more to help hospitals, medical practices, businesses, the sick, the underinsured, and the unemployed for the next two-three years. Capitalism has...

5/20/2020 3:58 PM

Prostate Cancer
9 years and holding.

Super. Congrats!...

5/11/2020 12:38 PM

Prostate Cancer
In the current scenario are you delaying your PSA checks ?

I am patient at MSK in NY. Mutually agreed to indefinitely postpone set of scans that had been scheduled for late April. I live upstate, out of the “hot” zone in and around the City. Trying to do...

5/5/2020 7:02 AM

Prostate Cancer
Containing COVID: saving lives versus saving jobs

With you mattam about being in no hurry to trundle back into restaurants, bars etc. As to hair cuts, that had been a moot point for some time now. Customers are the other side of the opening up...

4/27/2020 4:36 PM

Prostate Cancer
Containing COVID: saving lives versus saving jobs

No exact blueprint is available to any governor. The virus is too new, surprises seem to unfold week by week, and testing is at best inadequate and often appears to be inaccurate. Each governor will...

4/27/2020 9:24 AM

Prostate Cancer
Asymptomatic COVID-19

Michael_T, Read the same article. Wife back ordered an oximeter. Maybe will show up? Way we read the article, much more important in monitoring possible disease at home than a thermometer....

4/24/2020 1:40 PM

Prostate Cancer
Hard to believe Americans are protesting for the right to catch, and spread, COVID-19

Around here, in upstate NY, I would say about 90% of people in public are wearing masks — a month ago, only a handful. My wife sewed up 25, and these went to family and friends in a NY minute. Some...

4/21/2020 8:32 AM

Prostate Cancer
RANT & RAVE & MAYBE MORE

Much has been said and written about the “New Normal”, but I am thinking the pandemic may in many respects return us to the “Old Normal.” Some thoughts. .. Pestilence has stalked the human race since...

4/18/2020 6:57 AM

Prostate Cancer
New Normal Medical Appointments

Like Pratoman, I am a patient at MSK in New York City. Started at MSK in fall of 2011. Had a set of scans and blood scheduled at end of April. These are now postponed. Instead I will do PSA near my...

4/12/2020 7:41 PM

Prostate Cancer
Biopsy Pathology

Seven is no small thing. If your husband is a young man, that is under age 70 or so, you might think about surgery, holding ADT and radiation in reserve. In a nutshell, a seven can kill. With a bit...

3/25/2020 12:24 PM

Prostate Cancer
Holding Off As Long as Possible on ADT

In a nutshell. I had surgery in upstate New York in the fall of 2009. Gleason 8. By the summer of 2011, that had clearly failed (to me, not my surgeon) and that fall I moved my case to MSK in New...

3/11/2020 7:50 AM

Prostate Cancer
Coronavirus affecting April/May Decisions

Or March plans. My wife and I went to Spain in mid February, planning three weeks walkabout on the mainland, then three in the Canary Islands. With reluctance, we decided we could not chance staying...

3/10/2020 10:47 PM

Prostate Cancer
OT -- Do you ever feel the world is full of wussies

The setting: The Roman Coliseum in the tenth year of the reign of the Emperor Hadrian. Among the 60,000 or so spectators, two old friends, Titus and Marcus, now in their late 60s, retired, not...

2/15/2020 1:24 PM

Prostate Cancer
The living funeral: a service for oneself while still alive: useful or odd?

Mattam, I am with you on that. Cremation, no service, spread ashes at a favorite beach, the world moves on....

2/14/2020 1:32 PM

Prostate Cancer
Returning customer. PSA is back.

PCa can act in a similar fashion to bankruptcy — barely perceptible for a long time, then a cascade. Agree with other posters, time for a consult with an RO. Many SRT veterans here on this Board for...

1/23/2020 5:40 PM

Prostate Cancer
Thoughts about adaptive therapy for Prostate Cancer ?

PCa is overwhelmingly a disease of aging. For example, I have read thousands of posts on this Board, and do not recall ever reading a new diagnosis reported by a man under the age of 40. And not...

1/21/2020 9:01 AM

Prostate Cancer
Thoughts about adaptive therapy for Prostate Cancer ?

The Life Sciences enjoy a unifying theory that has held up for more than 150 years. The Physicists are still looking for theirs. My MO defines “genetic variability” as the core challenge of cancer...

1/21/2020 5:52 AM

Prostate Cancer
PCa is not the good cancer. A rant.

No such thing as a “little” cancer, much less a “good” cancer. That said, there are two fortunate tools available for treating PCa patients that are absent with other cancers. The first is PSA....

12/28/2019 9:21 PM

Prostate Cancer
Prostate-specific antigen blood tests

Sky, As far as I know, PCa and cancers of the blood are the only cancers that can be easily and cheaply (very cheaply) identified and treatment tracked by straightforward numeric counts. I have a...

12/6/2019 2:48 PM

Prostate Cancer
Prostate cancer test carried out at home avoids physical check

DRE exam can only reach part of the gland, and diagnosis depends on how good a “touch” the doctor has. No where near as reliable as PSA as a leading indicator. PSA requires only a small blood sample...

12/1/2019 3:05 PM

Prostate Cancer
Are our doctors truthful?

I have never liked the casual use of words like “cancer free” when the media report about a celebrity who has undergone surgery or other treatment. Even when I was “undetectable” for three years...

11/23/2019 9:04 PM

Prostate Cancer



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