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JNF

HealingWell Forum
>
Member Profile
Display Name
JNF
Profile Created
12/18/2010 6:16 AM
Last Seen
Today 2:44 PM
Total Posts
5054

Last 50 Posts

5 Years out from HDR BT & EBRT

Dolphin you are doing great. I just crossed the 10 year mark after HDRBT and PSA has stayed <.1 the whole time. Some of us get very low, even undetectable PSA after radiation. Radiation strong enough...

Today 10:31 AM

Prostate Cancer
New member looking for help in analysing my PSA results

Please don’t confuse testosterone with PSA. When the shot of Lupron/Eligard/Firmagon/zoladex (the drugs that stop your body from producing gonadal testosterone) is given it acts quickly. When your T...

1/16/2021 6:36 AM

Prostate Cancer
Bad Karma-Skipping to the Front of the Line-OT

Get it as soon as you can. It takes several weeks after the first shot to start to be effective and then both shots to get the protection from the disease that is advertised. The sooner the better to...

1/16/2021 5:58 AM

Prostate Cancer
Bad Karma-Skipping to the Front of the Line-OT

But Charles Barkley says the 25 year old professional athletes should get it because they pay so much in taxes. That means my 91 year old mother-in-law who lives on social security should not get it...

1/15/2021 3:53 PM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

Thanks John. Very large practice. Looks like Orr is primarily a surgeon first reading his education, training and practice interest he states. It will be interesting for your meeting with him. You...

1/15/2021 5:07 AM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

John, a fellow Hoosier. I grew up in New Castle and am a transplant to Georgia. The IU Medical Center is renowned for urological cancers. It was there that Dr Einhorn wrote the book on testicular...

1/14/2021 7:51 PM

Prostate Cancer
A huge decision and I’m terrified

Based on that you should be good. Go for it....

1/14/2021 5:20 PM

Prostate Cancer
A huge decision and I’m terrified

Todd, 99% of SSDI is real tough and it doesn’t matter where you live or the state by state political climate. Not trying to bring you down, just pointing out some of the realities I have witnessed....

1/14/2021 3:24 PM

Prostate Cancer
PSA bounce

John, it could be a bounce or cancer, not enough information to know which it is yet. If you follow the trend for awhile and see the PSA reduce, then it would indicate a bounce and not cancer. If you...

1/14/2021 3:04 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

The temporary emergency approval granted by the FDA for both Moderna and Pfizer are for two doses to be given about 2-3 weeks apart. There were numerous reports that the effectiveness of a single...

1/14/2021 11:58 AM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

John, if Eligard is a problem, both Lupron and Firmagon accomplish the same result. In fact Firmagon has some distinct advantages-takes as it has been shown to have fewer adverse coronary events than...

1/14/2021 11:49 AM

Prostate Cancer
A huge decision and I’m terrified

Regarding your health insurance it is good that your employer plan continues for a year. Then Mandy’s plan will most likely be better for you than either COBRA or an individual plan. Then, after you...

1/14/2021 11:39 AM

Prostate Cancer
PSA values several years after Rad treatment

Hi John. There are several on the board that used radiation and are several years out from treatment. I just crossed the 10 year mark and continue to be undetectable. A couple others in my range with...

1/13/2021 2:56 PM

Prostate Cancer
PSA up to 1.9 after 4yrs RaD

Generally a nadir plus 2.0 is considered cancer recurrence following radiation as the primary treatment. You are not there yet, but apparently your PSA trend is prompting your doctor to act. Have any...

1/13/2021 11:37 AM

Prostate Cancer
PSA 3 weeks after radiation

Yes that is to be expected from the Lupron, but not the radiation. It takes quite a while for the radiation effect to show up on PSA and most men take 3-5 years to get to the low point (nadir)....

1/12/2021 2:08 PM

Prostate Cancer
A huge decision and I’m terrified

Just wanted to make sure you had all your ducks in a proper row. Go for it. Make it work and have as much fun as possible....

1/12/2021 10:33 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Montee, where in Georgia are you?...

1/12/2021 9:57 AM

Prostate Cancer
A huge decision and I’m terrified

Todd, I understand. But a few thing about the Compassionate Allowance and SSDI have to be understood. While you are working, you are not disabled and can not apply, regardless of the medical...

1/12/2021 9:52 AM

Prostate Cancer
A huge decision and I’m terrified

Brother Todd, my very good friend. As Elmer Fudd famously said....”be caweful....be vewy vewy caweful”. I want you to take the following very seriously and understand there are no do-overs with what...

1/12/2021 8:26 AM

Prostate Cancer
A huge decision and I’m terrified

Todd, get with your benefits specialist. Many employer sponsored disability plans integrate with Social Security Disability, meaning you don’t get both. Most often The SSDI offsets the company plan....

1/12/2021 5:23 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

As I remember the trials showed only about 50-60% effectiveness for the first shot with some differences between Moderna and Pfizer. The shots are generally 2-3 weeks apart. So what happens if you...

1/11/2021 3:37 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Where ever you can Hal. Sign up in both and take the first one available....

1/11/2021 3:18 PM

Prostate Cancer
VA and prostate cancer

There is a three page fact sheet on the VA website. Just search “VA Mission Act Fact Sheet”. It spells out the qualifications and procedure....

1/11/2021 5:16 AM

Prostate Cancer
VA and prostate cancer

The VA Mission Act was signed into law in 2019. It greatly expands the use of non-VA services primarily based on the distance the veteran has to travel and the type of treatment needed. I am not a...

1/10/2021 6:54 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

To be clear, the vaccine does not give you immunity. Immunity would mean you could not get infected. It does not do that. It helps to prevent the development of moderate and severe disease....

1/10/2021 6:46 PM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

The vaccines do not prevent infection. They make our body better able to handle the infection and prevent developing severe symptoms for up to 95% of people after the second shot. Thus less...

1/10/2021 12:35 PM

Prostate Cancer
Failed Radiation therapy surgery option?

OK Swan, let’s go outside the box. What I am proposing you consider will most likely draw a lot of giggles, but may also be taken seriously by some. It is a given that your numerous comorbidities...

1/10/2021 5:17 AM

Prostate Cancer
castrate resistent therapy

Longway, I am still troubled by your very low T and very high PSA. You are reporting castrate levels of T without being medicated. Severe hypogonadism usually measures total T in the 60-100 range...

1/10/2021 4:37 AM

Prostate Cancer
Failed Radiation therapy surgery option?

Hard to believe that surgery would be easier than radiation. I had a Boatload of radiation but no surgery. So I can not talk for the surgery guys. But it isn’t like a colonoscopy....

1/9/2021 4:13 PM

Prostate Cancer
castrate resistent therapy

Longway, you also need to look into your insurance to see whether you need referrals and network issues. You say your are age 64. When do you turn 65? At that time you can go on Medicare with a...

1/9/2021 8:48 PM

Prostate Cancer
castrate resistent therapy

Longway, As I mentioned before some of ADT uses blockade drugs like Zytiga. This is very common when PCa becomes castrate resistant and simply lowering testosterone no longer works. Cytotoxic...

1/9/2021 12:02 PM

Prostate Cancer
castrate resistent therapy

Actually the question is very relevant as he reports a T level of just 20. That is a castrate level and, if correct, with advanced cancer would signal refraction. If his T is 20, there is no reason...

1/9/2021 10:56 AM

Prostate Cancer
hello

It looks like Dr. Becker is a urologist. Again, start looking for a top medical oncologist. Clearly ask Dr. Becker for referrals, but don’t wait on them to start looking. Do the research on the...

1/9/2021 9:48 AM

Prostate Cancer
hello

Certain elements of ADT are blockades like Zytiga, Xtandi and Erleada. These block the testosterone from getting to the cancer receptors, but do not reduce the testosterone like Lupron, Eligard and...

1/9/2021 7:22 AM

Prostate Cancer
hello

At your stage it is nearly certain that you won’t have surgery and probably not radiation therapy either to the prostate area as neither would be curable. If you are having bone pain problems from...

1/9/2021 7:11 AM

Prostate Cancer
hello

Who is treating you? South Florida is a very big area, can you be more specific? Very few medical oncologists have treated a man with your PSA. You need to be with someone that has. This is serious...

1/8/2021 6:41 PM

Prostate Cancer
hello

Hello Long way to go. Not a good situation with an amazingly high PSA. Have you had a prostate biopsy? I assume you have not had regular PSA tests. We have seen higher PSA, but not many. The pain...

1/8/2021 5:38 PM

Prostate Cancer
SBRT , 5yrs out , PSA

Looks like so far, so good. You know you will have some PSA since you have an intact and, probably somewhat, functioning prostate. The question always is, how much PSA is from benign tissue and is...

1/7/2021 3:47 AM

Prostate Cancer
Necessary to see Uro for every PSA test?

Michiganman, Good that you are PSA undetectable and a nice testosterone recovery after ADT. Looks like you have had extensive work to correct surgery effects. Hope you are doing well with all that....

1/4/2021 6:14 PM

Prostate Cancer
Necessary to see Uro for every PSA test?

Not at all, Howard. All about an individual’s health....

1/4/2021 5:14 PM

Prostate Cancer
Necessary to see Uro for every PSA test?

Great point Ed. This is not a blanket, one-size-fits all situation. If I had been a few cores of G6 and PSA of 8 or so, my current approach would be entirely different. So to the poster and everyone...

1/4/2021 5:08 PM

Prostate Cancer
Necessary to see Uro for every PSA test?

I see my urologist every three months for a chat and blood draw for PSA. I find it far more valuable than with my PCP because he defers to my uro. Cost is about the same either way. Apart from great...

1/4/2021 3:39 PM

Prostate Cancer
Brother Fairwind

‘You get braver as your options dwindle...”. The famous quote from Fairwind, who has demonstrated bravery throughout his pursuit utilizing most every option imaginable. Our brother F8 uses Fairwind’s...

1/3/2021 7:17 AM

Prostate Cancer
Brachytherapy & Recurrence

You could just be having the very common post-radiation PSA bounce. This often occurs in the 18-36 month time frame, which you are within. It is thought to signal the remaining PCa cells that were...

1/3/2021 7:13 AM

Prostate Cancer
Brother Fairwind

Thanks for the information. He is a very caring and supportive man....

1/2/2021 9:31 AM

Prostate Cancer
How do I find a good Oncologist on the Mississippi Gulf Coast?

Don’t be silly, ntzguy. He has been on the leading edge for research and treatment for advanced and difficult cases for several decades. Several men that have been members on HW have been treated by...

1/2/2021 6:20 AM

Prostate Cancer
How do I find a good Oncologist on the Mississippi Gulf Coast?

Drive a few miles west to Tulane medical Center in New Orleans. Dr. Oliver Sartor. The best in the Deep South....

1/1/2021 7:13 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Actually, I think all the politicians should be first in line. If they are all OK after the shot, then it is good for all of us. If they are not OK after the shot, then it is even better for the rest...

12/30/2020 10:29 AM

Prostate Cancer
From CDC: COVID vaccine priority recommendations: who gets it first

Hal, Thank God we are not China. I lived there for several years and any of you that believe what they report are fools. Incidence there is at least 10 times what they have reported. And remember...

12/30/2020 10:12 AM

Prostate Cancer
Prostate Oncology Specialists--Membership now required

In the last decade many concierge medical practices have been established in the Atlanta area. Generally they charge anywhere from $150-$1,000 per month depending on the types of services provided...

12/30/2020 8:50 AM

Prostate Cancer



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