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Sr Sailor

HealingWell Forum
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Member Profile
Display Name
Sr Sailor
Profile Created
9/23/2015 3:13 PM
Last Seen
3/19/2023 7:23 AM
Total Posts
1338

Last 50 Posts

Eligard 22.5mg (swollen ankles and feet)

Sorry to read about your troubles. My urologist started me off with a one-month dose (of Lupron) and told me he wanted to see how I would handle it. This should really be 'standard protocol'....

3/19/2023 7:23 AM

Prostate Cancer
New club member...i think. From Diagnosis to SBRT.

You got an A-plus for your homework and it really paid off! So nice to read about it....

3/17/2023 8:13 AM

Prostate Cancer
The Central Problem of Castrate Resistance: A New Possibility?

What percentage of castrate resistant prostate cancer cells change to the neuroendocrine type?...

3/15/2023 8:20 AM

Prostate Cancer
My PYLARIFY PET Scan was approved today

That outcome should be a big relief! And as Dr Sartor stated: He said he would be be very disappointed if I did not live for another 10 years, but you know you could get run over by a truck. ...

3/15/2023 7:46 AM

Prostate Cancer
Genetic testing for my daughter’s sake?

Informative post (and excellent follow up)....

3/15/2023 7:41 AM

Prostate Cancer
Another Zytiga update

Such a bad experience, but glad to read about current progress....

3/14/2023 4:11 PM

Prostate Cancer
New guidelines ?

I second the suggestions to repeat the test and to follow up at 3-month intervals. This is to establish a new frame of reference since you changed labs recently....

3/14/2023 4:10 PM

Prostate Cancer
New guidelines ?

What guidelines are you referring to? More in general, guidelines are for those who have a confirmed case of prostate cancer. So far, you are not in that group, but those increasing PSA values are...

3/13/2023 3:23 PM

Prostate Cancer
Another new study

Surprising that one of the really high-quality medical journals published this study... PS: Stampede's comment doesn't take into account that today's standards for AS are much stricter than those...

3/13/2023 7:31 AM

Prostate Cancer
basic genetics query

In addition to the valid points mentioned, there is good evidence that certain prostate cancer drugs will or won't work when a certain mutation is present. Therefore, in advanced prostate cancer...

3/12/2023 3:03 PM

Prostate Cancer
Not so Common Lupron Side Effects

As others already pointed out, these side effects are pretty common, actually....

3/10/2023 8:38 AM

Prostate Cancer
Stopping ADT- trepidation

Just watching your PSA rise after ADT is nerve wracking of course. But your PSA will go up. Let's just hope that it will not go above 2.01 (your nadir +2). On the other hand, as others have pointed...

3/10/2023 8:38 AM

Prostate Cancer
Outcomes of Salvage Whole-gland Cryoablation for Radiation-resistant PCa

This is of interest because there are few studies on this topic, I think. However, I find the term 'radiation-resistant prostate cancer' (in the title) misleading. The study relates to patients that...

3/10/2023 8:29 AM

Prostate Cancer
The Association of Radiation Dose With Overall Survival for SBRT Treatment

There really is a lot more to the fine art of SBRT than overall dose....

3/8/2023 5:19 PM

Prostate Cancer
SBRT: Comparing 3-year genitourinary toxicity between CyberKnife and VMAT

SBRT rocks (for the right kind of patient)!...

3/1/2023 6:03 PM

Prostate Cancer
Zytiga users. How long?

Is there a (good) scientific explanation why Zytiga works so very well for some, but not for others?...

2/9/2023 9:20 AM

Prostate Cancer
Second Year

Great news; so far, so good!...

2/6/2023 4:24 PM

Prostate Cancer
Active Surveillance Update

Your urologist has issues differentiating left from right... 😀...

2/6/2023 4:09 PM

Prostate Cancer
Statin Recommendations

Statins appear to have positive effects other than the ones related to our lipid profile. Consequently, there have been recommendations to take a statin even if one is not in danger of getting a...

2/5/2023 12:58 PM

Prostate Cancer
Biopsy under anesthesia

My experience is similar to the one described above by fiddlecanoe. I believe that full anesthesia requires a hospital setting rather than a urologists's clinic. Would be more expensive, I guess....

2/3/2023 8:23 AM

Prostate Cancer
2nd opinion biopsy with questions

Like you and your husband, I was new at all this and unaware of HDR brachy. But I had heard of SBRT because I live in the greater Washington DC area and Georgetown U Medical Center ran frequent ads...

1/26/2023 4:35 PM

Prostate Cancer
Prostate cancer cases on the rise

Here is a link to the badly reasoned (2012) report that caused so much grief: https://www.uspreventiveservicestaskforce.org/uspstf/recommendation/prostate-cancer-screening-2012 There's a very long...

1/26/2023 12:42 PM

Prostate Cancer
2nd opinion biopsy with questions

High-Dose Rate (HDR) brachy and SBRT are similar in several ways. Whether one is preferable for a case such as your husband's should be discussed with radiation specialists. You both have some time...

1/26/2023 12:33 PM

Prostate Cancer
Interesting Situation - PSA

Djin is the analytical specialist on this Forum, but those (very low; right at the borderline of sensitivity) numbers look fine to me....

1/19/2023 9:34 AM

Prostate Cancer
Fosamax - all good?

Please consider appropriate (bone strengthening) exercises. They really work and the drugs all have side effects. My spouse took Fosamax for multiple years and got stomach issues as a result. When my...

1/19/2023 9:31 AM

Prostate Cancer
It has been a long few weeks.

We all (almost all) need a nap now and then. 😀 Thanks for the report; Hawaii should be great. How is that lava flow going? Haven't seen anything lately about that, but I haven't been looking hard....

1/16/2023 8:46 AM

Prostate Cancer
30% drop in PSA after first Pluvicto

Yes; very nice to read your positive report. Best wishes with the next treatment....

1/16/2023 8:40 AM

Prostate Cancer
Post treatment PSA testing

I quite agree with your own intuition and the two prior posts. 'Cured' is forever and no one can look that far in the future. ' In Remission ' or ' No Cancer Detected ' are both proper to describe...

1/15/2023 2:16 PM

Prostate Cancer
Are My PSA Results Just A Bounce or...

hello and thank you for your response. i hope others chime in. allow me to ask what do you mean by only one data point?[/quote] Sorry, I was too hasty in my response. You did present more data....

1/12/2023 4:52 PM

Prostate Cancer
Are My PSA Results Just A Bounce or...

Only one data point; hence, I don't think you should be concerned about a recurrence but do follow up in six weeks as the NP recommended. Hopefully your PSA will stabilize (more or less) and stay...

1/12/2023 3:35 PM

Prostate Cancer
New Here--Looking for advice

It seems to me that Dr Qian is too pessimistic about SBRT long-term results. As Djin pointed out 15-year results are available for SBRT; by that time, you will be 91......

1/6/2023 9:48 AM

Prostate Cancer
Interpretation of PET MR GA PSMA verbage question

Excellent advice so far. Unfortunately, one can never be 100% sure about issues such as the one presented by ejc61. It looks like another biopsy would be appropriate. The last one appears to be more...

1/6/2023 9:40 AM

Prostate Cancer
6 months post IMRT

Result is not unexpected as has been explained above. For now, try to relax and wait for another PSA test in three or six months. Easier said than done, I know....

12/13/2022 3:11 PM

Prostate Cancer
Checking back in

A PSA of 1.9 after radiation therapy is close to the alarm for doing something. Two options to find out if a cancerous lesion can be identified: MRI PSMA scan With those results, one can explore...

12/13/2022 3:06 PM

Prostate Cancer
New Here--Looking for advice

Not sure about Stanford, but UCSF and UCLA are often recommended with respect to prostate cancer therapies....

12/11/2022 7:55 PM

Prostate Cancer
Measuring Gleason 9 Reoccurance

I agree with Mumbo; it's not generally (!) true that Gleason 9 cancers generate little PSA. Mine sure didn't!...

12/11/2022 7:50 PM

Prostate Cancer
OT: A remarkable new theory as to why people catch colds during winter

Please send some of that Montana air over to MD....

12/8/2022 11:56 AM

Prostate Cancer
What's the standard of care for men over 85?

Makes sense; some of what the Kaiser urologist told you is questionable. I do think that his statement about PSMA scans is correct though. Best wishes with the follow-up....

12/8/2022 11:52 AM

Prostate Cancer
What's the standard of care for men over 85?

All good info so far. As far as I am concerned there is no SOC for a person that old. Whether to treat him or not will depend on a lot of variables. For instance (among others), His Fitness His...

12/5/2022 2:58 PM

Prostate Cancer
Orgovyx Information (please) Thread

Advantages of Orgovyx are: No testosterone flare, hence no need for Casodex It acts more rapidly (lowers testosterone) than Lupron May be 'safer' for patients with certain cardiac issues It washes...

11/30/2022 11:41 AM

Prostate Cancer
Fucoidan supplement

Other forums on this platform do mention Fucoidan, but nothing relevant to prostate cancer, it seems to me. The clinical trials site shows 16 studies with Fucoidan, some are cancer related, but none...

11/30/2022 11:32 AM

Prostate Cancer
OT No Lung cancer forum?

The Ulcerative Colitis forum is pretty active as well (on this platform): https://www.healingwell.com/community/default.aspx?f=38 ...

11/28/2022 7:37 PM

Prostate Cancer
ASAP- atypical small acinar proliferations

Just in case, here is the relevant conclusion from the paper cited by Mumbo: The diagnosis of ASAP is a strong risk factor for prostate cancer. A repeat biopsy should be performed for the entire...

11/25/2022 9:32 AM

Prostate Cancer
PSA rise from 20 to 30

No need to worry; it's not good for you (or your Dad)....

11/16/2022 7:37 PM

Prostate Cancer
Prostate Cancer now spread in 3 lymph nodes

It seems to me that hormone therapy plus radiation is the way to go because you really want to prevent metastatic spread via the lymphatic system....

11/16/2022 5:57 PM

Prostate Cancer
Zytiga users. How long?

Wow; those are fantastic results!...

11/14/2022 9:00 PM

Prostate Cancer
Finished Rt and HDR.

Great outcome (so far). As you mentioned, keep going with the hormone treatment and the end will be in sight before long. Stay strong in the meantime!...

11/7/2022 4:38 PM

Prostate Cancer
Artificial sphincter

An obvious comment: You need to have the procedure done by someone who has a great deal of experience....

11/2/2022 9:39 AM

Prostate Cancer
Brachy Dosimetry G9 T3 - too low? What to do?

Good for you to be on top of this. However, the making of a radiation treatment plan is complex and way above my level. I recommend that you discuss your concern with the rad oncologist and/or the...

11/2/2022 9:35 AM

Prostate Cancer
Optimal Duration of ADT with Definitive RT for Intermediate and High Risk

No, the internet did not eat your post: here it is: https://www.healingwell.com/community/default.aspx?f=35&m=4306487 ...

10/31/2022 6:03 PM

Prostate Cancer
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