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mattam

HealingWell Forum
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Member Profile
Display Name
mattam
Profile Created
8/9/2015 1:34 PM
Last Seen
Today 6:25 PM
Total Posts
3798

Last 50 Posts

Lu 177 trial.

Good luck! Hoping you have a good response....

Yesterday 4:00 PM

Prostate Cancer
Off Topic but...

A world without anxiety might not be so great as it would seem. Some claim not to have it, but I find such claims suspect. I didn't know they are replacing elbows too. Amazing stuff. Have a good...

Yesterday 3:12 PM

Prostate Cancer
3 years and 4 months of <0.01

Paul, I've been undetectable for almost exactly the same amount of time. For me, that's on ADT. But hey, undetectable is undetectable....

8/4/2022 7:42 PM

Prostate Cancer
Radiation after Prostatectomy - PSA back to .09

As mentioned, waiting another 6 weeks to see what your PSA is doing is an option. I suspect this is what your doctor will recommend....

8/2/2022 8:14 AM

Prostate Cancer
Friday ponder: this is totally unimportant, but something I'm curious about ...

Donna, A lot of similarities with Randy's treatment path and mine, as well as our ages now and age of diagnosis. As you say, it hasn't been easy but we are still here. I've always felt that your...

8/1/2022 2:48 PM

Prostate Cancer
Friday ponder: this is totally unimportant, but something I'm curious about ...

** We also have many readers who don't officially post, but they are loyal readers. ** I have wondered about that. The number of views on threads seem to be much greater than I would expect. I lurked...

7/29/2022 4:19 PM

Prostate Cancer
XTANDI: Our Collective Experiences

Great to hear! Down is good! Do you have any further opinion on Regulolix side-effects? Less than Lupron?...

7/29/2022 11:11 AM

Prostate Cancer
Friday ponder: this is totally unimportant, but something I'm curious about ...

For many years people thought I looked younger than my age. Not anymore. Some of us will remember that watershed moment when we overheard someone referencing us as "that old guy over there."...

7/29/2022 10:06 AM

Prostate Cancer
Not today beast,not tomorrow either. PSA undetectable 7 years 9 months

Dan, it never gets old when those undetectables keep rolling in. Let's hope that all ADT for life guys do so well. Congratulations!...

7/28/2022 9:34 AM

Prostate Cancer
Confusing Test Result

The difference in the tests does not indicate any change in your PSA. You are still undetectable. The assay used has changed. The assay used in 2021 is very slightly more sensitive than the assay...

7/27/2022 7:18 PM

Prostate Cancer
LU-177 - My Next Treatment

Steve, I guess what you can do is not panic and hold steady, which seems to be exactly what you're doing. I guess you haven't talked to the doc yet? Please let us know how that meeting goes....

7/27/2022 1:30 PM

Prostate Cancer
When was the turning point, when you really started to believe you were going to beat this thing?

There might be a little different angle for the guys who clearly will never be "cured" but can still beat PCa in other ways. One major way to flip the bird at PCa is to die from something else, but...

7/26/2022 5:04 PM

Prostate Cancer
5-Year post-RP PSA

Djin, For a guy who likes the ultra-sensitive tests, you really do have a lot of data. 🙂 It's sure looking like you're good to go. Congratulations!...

7/26/2022 10:15 AM

Prostate Cancer
Question Regarding Alcohol Consumption

Seems like every few years a contradictory study comes out supporting or dismissing the benefits of having a daily drink. I don't drink because I don't care for it. Considering what many of us on the...

7/25/2022 7:16 PM

Prostate Cancer
Intermitten or Continuous ADT

PS, I forgot to add that I didn't know spot radiation was going on back in 2011. Judging by guys on the forum I thought it was a more recent development. It would interesting to know the history of...

7/23/2022 12:32 PM

Prostate Cancer
Intermitten or Continuous ADT

Jerry, You have a very interesting and successful story. My plan was to stay off ADT as long as possible (maybe too long) and then go on ADT for life, which is where I am. I would love to go on a...

7/23/2022 11:59 AM

Prostate Cancer
Lu 177 trial.

Olmanhunk, Congratulations on getting into the Lu-177 arm of the study. I think this can be the treatment of the future for many types of cancer. As far as being "radioactive," I don't think you or...

7/23/2022 8:17 AM

Prostate Cancer
Update on Salvage Radiation + Hormone Treatment - July 2022

Rick, That's a very fast T recovery while maintaining an undetectable PSA. Things are looking good!...

7/22/2022 9:46 AM

Prostate Cancer
All nerves removed during Operation seven years ago. Any suggestions for Erection

Bob, If you opt for Trimix, pay attention to your "guy" for Peyronie's disease, which is curvature of the penis. I've seen online that over 15% of men using Trimix or Bimix develop Peyronie's. I...

7/21/2022 7:23 PM

Prostate Cancer
Fatigue on Xtandi - tips?

Onthgodiy, There are some journal papers that describe using reduced dose Xtandi. They certainly aren't rigorous scientific studies but they provide evidence that men can have marked improvement in...

7/21/2022 4:55 PM

Prostate Cancer
Interesting New PCa Study

https://scitechdaily.com/cornell-scientists-have-identified-a-new-incredibly-common-subtype-of-prostate-cancer/ ...

7/20/2022 9:01 PM

Prostate Cancer
still 0 after all these years!

Congratulations!...

7/20/2022 7:09 PM

Prostate Cancer
Confusing Test Result

My results are posted on the MyBanner portal. When my PSA initially went undetectable it was reported as <0.020. I went to the portal and checked but it did not list which assay was being used. After...

7/20/2022 7:06 PM

Prostate Cancer
Why am I drinking this milk

Lol alephnull! Thanks for helping me get my day off to a good start....

7/20/2022 9:49 AM

Prostate Cancer
Why am I drinking this milk

Cow's milk is probably best used to feed baby cows. The stuff used to give me a runny nose. Years back casein was used for making Elmer's glue. I like almond milk but some claim it takes a 1000...

7/19/2022 4:26 PM

Prostate Cancer
Confusing Test Result

** This leads me to believe that something is going on with equipment or reporting systems recently. ** Maybe doctors are tired of getting phone calls and emails from patients asking what that "<...

7/19/2022 9:45 AM

Prostate Cancer
No subject (Part 5)

Maybe these guys are like crocodiles. They don't eat for 6 months after a big meal. 😁...

7/19/2022 9:24 AM

Prostate Cancer
No subject (Part 5)

63 hot dogs. Do they puke it up later? If not, I'd hate to know what the other end of the body is like for a few days. 🙄 If I remember, the champions tend to be of normal body weight, but that can't...

7/18/2022 6:48 PM

Prostate Cancer
No subject (Part 5)

Cyclone, You know it! Always fun playing the intra-state rival. It's the only game I'm not rooting for the Cyclones. 🙂...

7/17/2022 7:36 PM

Prostate Cancer
No subject (Part 5)

I'm looking forward to the start of the Hawkeyes' season, but I lament the state of college sports. I liked it better when the "Big 10" was really the Big 10. Now USC and UCLA are joining the "Big...

7/17/2022 4:52 PM

Prostate Cancer
LU-177 - My Next Treatment

Olmanhunk, I can't say for certain, but I think a patient would stay on ADT during and after LU-177 treatment because even though some cancer cells have become ADT resistant, there are plenty of...

7/17/2022 2:06 PM

Prostate Cancer
OT: In Memoriam

Seems that many of our fathers had PCa and served in WWII. My dad was allowed to graduate HS a semester early so he could enlist in the Navy shortly after Pearl Harbor at age 17. He had the tattoos...

7/17/2022 1:50 PM

Prostate Cancer
LU-177 - My Next Treatment

Great news!!! I'm loving the potential of this treatment!...

7/16/2022 2:36 PM

Prostate Cancer
OT--Music taste or are we just getting OLD

Something related that I sometimes muse about. My three favorite bands are the Stones, Beatles, and Doors. The bands are brilliant in their own ways. What's interesting to me is the key figures of...

7/14/2022 7:08 PM

Prostate Cancer
OT--Music taste or are we just getting OLD

In high school my bedroom was connected to a second story open air porch where my crew and I did our thing and then we'd come back inside and listen to some pretty loud music. On a couple of...

7/14/2022 4:29 PM

Prostate Cancer
Update after stage 4 post

Sparky9, You have a treatment plan. That's a great way to reduce anxiety. I'm glad you're feeling better about things....

7/14/2022 9:38 AM

Prostate Cancer
Update

All looks good for you!...

7/13/2022 2:03 PM

Prostate Cancer
PSA post Robot Assisted Radical Prostatectomy

Congratulations!...

7/13/2022 2:01 PM

Prostate Cancer
10 years post LDR BT

Congrats!...

7/12/2022 5:15 PM

Prostate Cancer
PSA Test Confusion

After I posted my response I was thinking I could have noted that you have a very low PSA, regardless of which test you are using. And I agree, your worries can be low to none....

7/10/2022 10:48 AM

Prostate Cancer
PSA Test Confusion

Evidently you have been changed to a more sensitive PSA test. Tests with cutoff points down to 0.01 or 0.02 are common. It's possible your PSA has been floating around between ~ 0.05 and 0.14, which...

7/9/2022 4:31 PM

Prostate Cancer
I am still alive - just passing by for old times sake

David, No one will ever match your dedication to the Forum. All my best to you....

7/9/2022 10:06 AM

Prostate Cancer
OT: Most doctors have favorite patients, study finds. One reason why they do is interesting

I doubt that my oncologist views me as a favorite patient but it seems like he likes me. It also seems like he appreciates my efforts to keep up with PCa treatment from the questions I ask. But who...

7/5/2022 8:22 AM

Prostate Cancer
Pain management alternatives

Thanks Stephanie, I suspect that many people who have cancer aren't afraid of death as much as they are afraid of the path leading to death. It's very helpful knowing that the pain and discomfort can...

7/5/2022 5:45 AM

Prostate Cancer
Small Blood Clots 6 weeks Post-RALP?

"most men are wimps" Lol. Until it happens to the doctor. I worked for an MD/researcher. She used to say that if she tells a patient it won't hurt, then it shouldn't hurt....

7/4/2022 6:59 AM

Prostate Cancer
The Cancer Bear -- Intended Humor

Amen...

7/3/2022 6:55 AM

Prostate Cancer
OT: It's a couple of days early, but ...

Maybe the Founders would be surprised at our modern day quagmire, or maybe they wouldn't be surprised at all. But, we are still standing. I loved the 4th of July as a kid. Now, I'm in bed before the...

7/1/2022 8:42 AM

Prostate Cancer
No subject (Part 5)

The Tour de France is up and running. It's going to be an exciting three weeks!...

7/1/2022 6:55 AM

Prostate Cancer
Rates of referral to radiation oncology prior to RP

My Uro thought I would need surgery and ART from the get go. The RO agreed. Considering my urinary issues at the time, I think it was the correct call. Incidentally, both doctors had financial...

7/1/2022 6:53 AM

Prostate Cancer
Writing a review of one's doctor and posting it on a doctor-rating website

** On that site, Nine out of (of those) 10 doctors absolutely hate their job.** I also have an anecdote that may not mean much in the bigger scheme of things. Years ago I had a friend with a good...

7/1/2022 5:40 AM

Prostate Cancer
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