I submitted a saliva sample to get some genetics info I think I get results in about a month. OK, I know very little about this. I keep seeing mention of BRCA1 and 2. Suppose a defect or issue is...
M1: I just came back to this thread. I'm so sorry. Just ignore my posted reply here. You said Lipitor and I read Lupron. So, just chalk it off to HT Fog! BTW, I do take 10 mg Lipitor per day. No...
Well, I do recall Dr. Lam saying liver tends to recover/heal quickly. (good blood supply) Mel...
Jack: I've really appreciated your erudite and compassionate contributions on HW. I am very glad that you are staying. I've been on a number of HT's + vacations. I understand. I've been wrestling...
About a decade ago I had the increased liver enzymes while doing Lupron shot + daily Casodex (50 mg pills -- 1 per day). My MO, Dr. Lam, was pretty sure it was the Casodex (couldn't stop the 3-mos...
TJ: I had actually crafted this reply earlier, but got interrupted. I say this because F8 CALLED IT PERFECTLY, USING ALMOST IDENTICAL LANGUAGE. GOOD JOB, F8. Here is that post. I am totally satisfied...
Hi Glenn and Akai: I have been following your posts with interest as I am having the same problems, almost identical to Glenn's. The bleeding did get much more extensive for about 3 days. I then...
TJ: Interesting take on this, but not my experience. I recovered very quickly from RP and had minimal incontinence for 2-3 weeks, then totally fine. I did research and chose Mani Menon as my surgeon....
What is the recovery time for your upcoming surgery? Do you come home the same day? Do you have to have a cath afterwards? Mel...
Glen: I've been following your posts and I am having a VERY similar issue. Starting about 1-2 months ago, I've been having severe burning leading up to urinating. Burning lessened afterward. Bleeding...
Something I've been thinking about. My normal body temp was about 98.6...until 2010, shortly after completing my SRT (IMRT, 37 sessions). Suddenly, I felt completely normal at 97.3. Ever since, if I...
81: I've discovered a cure for me!! I'll search for "Prostate Cancer, NOT COMPILER" mEL...
Just recently started Orgavyx. Soon after got an email entitled: >>>>>>>>>>>>>> Welcome to ADT >>>>>>>>>>>>>>> ...for their security systems, of course. I've seen their signs. Always has a...
Thanks again for the responses. I have an appt (video) with Dr. Lam on the 19th. I might ask him if it is worth getting a 2nd opinion by some top RO. I bet Dr. Lam could recommend one. He/she could...
Thanks for your concern. This was a purely academic/hypothetical question... for now. I was just thinking about future eventualities and realized I had this confusion about bone mets txs. My current...
I am confused about typical tx in such a scenario. Suppose someone has say 1-3 small spots on bone. Assume no pain/symptoms. I've read that one can radiate those spots. I've also read that one should...
In the past, Lupron SE seemed to start with hot flashes at about 4-6 weeks. I know Orgovyx drives the T down MUCH faster. Can I assume that the SE will also arise much faster? Mel...
Sorry you are not getting the answers you want (ie: nothing to worry about). Your symptoms are akin to prostatitis, but it could be cancer. You need to follow up. Let us know; there are loads of...
Djin: Thanks again for all the fine research you do. Mel...
Does the article indicate the dosage? I am on 10 mg and my wife is on 80 mg. (It works wonders for her-- heh heh). Mine was for slightly high cholesterol (about 230 or so when prescribed -- about 165...
Thanks Sr. That link was VERY informative. In fact, I've bookmarked it. Mel...
Steve: I'm sending you an email with an attachment with screenshots Mel...
EXTREMELY EXPENSIVE. With a 40+% discount via my insurance's specialty pharmacy, it is $982 per month. However, Orgovyx has a patient assistance program. I applied. More on that in mid-December. Mel...
I've gotten both your test messages. Still don't know why my attempts don't work. My workaround is easy: I just copy your email address (rather than clicking on it) into the TO field of my own email...
Well, my PSAs have started rising. I have one more late next week. In the past, Lupron/Casodex has successful knocked the snot out of my PSA's. Dr. Lam has suggested that I do Orgovyx next time. I...
A fellow HWer mentioned he had issues with sending me an email. So I investigated. I tried to send him an email. It said my Yahoo email was out of date. I clicked on Learn More. It ended up on...
Guyster: Email sent. Let me know that you got it. The problem is HWs. I'll post a thread on it. Mel...
Guyster: Got a question for you, but I prefer email. So, if you can, I'll give you my take on your question (been there) and ask you mine. Please email me as your email address is unavailable. Mel...
Just joking...wanted to wake up the moderators (Saturday Humor??) Mel...
mICHAEL: I always enjoyed Vin Scully. I wish our Tigers announcers would study him. Somehow they seem to think that every on-air second must be filled with their drivel. Vin actually used very few...
A most timely topic! Even as a child I was an extreme night owl. I would even sneak a transistor radio in bed with me (remember those -- what an invention!) and stayed up listening. I grew up in...
Mumbo: I sent you an email Mel...
Well, my next PSA will be about 12/8. Assuming a continued increase, Dr. Lam recommends Orgovyx. Biologics, his recommended pharmacy, provides a free 30-day supply (best pusher tradition). They...
I meant to add: I hope I heard him right on the zero co-pay as I had to leave just at that (most?) important part. Also, I don't even know how this ZERO occured. Is it via my insurance company or...
Major Update: BioLogic called me to get information. They are sending me my 30-days worth Thursday overnight and will be here Friday, although I won't be starting it until after my next PSA on about...
Thanks for all the responses. Dr. Lam just pushed the convenience (pill a day, sans shots) and works quicker both ways (start/stop). From my reading, MUCH less chance of heart disease and it might be...
I've done Lupron/Casodex before and the cost is very reasonable. In fact, I've already reached my max and assuming my early Dec. PSA continues upward, if I do the usual at the doctor's office, my...
OK, up to now I've been EXTREMELY pleased with my retired MI teacher BCBS Medicare Advantage Plan. I have/had all sorts of bills stemming from a spinal injury and have benefitted by their out of...
We visited Sonny and his wife about 10 years ago. They were wonderful hosts. Mel...
So sorry to read this. Sonny Wolf was very helpful to me when I first joined HW 13 years ago. We had VERY similar dxs. and similar progressions. In fact, when I was investigating surgery, he...
Yeah, I read a bit more after posting. As Matam pointed out, I would need to be castrate resistant and have had chemo. I CAN WAIT. LU177 seems to have a lot of promise to be in more widespread use....
I posted elsewhere that a PET PSMA scan found 2 hot nodes (PSA started climbing). History: dx in '09. Failed surgery, then flunked SRT. Since then did VERY well with Lupron/Casodex (combined) so that...
In answer to questions: "there are 2 new nonenlarged lymph nodes with intensely increased PSMA expression, one in the left periaortic region at the level of L2-L3 disc space, SUV max 44.0, and...
My post wasn't clear. The two small hot nodes are located in an area previously radiated. Mel...
Video meeting with RO today. I was excited about the PSMA scan report because it showed once again no organ or bone involvement, but 2 small lymph nodes. I was hoping we could once again play wack a...
For many years before my dx., I had BPH. I was on Flomax for about 5 years. For the 12-18 months before dx. the drug's effectiveness was greatly diminishaing. Twice I had my jacket on ready to go to...
I joined in late 2009 when my PSA started rising a tad before my formal dx. It helped tremendously. When I got "THE CALL" I already had a total plan in place (Epstein 2nd opinion + consultations with...
Here are the scan results. I sure hope I'm reading this correctly. I am assuming "physiological" uptakes are not significant. This was also mentioned in my 2018 scan and seemed to not mean anything....
Mattam/Clock: That's what I'm debating! Mel...
Jack: I thought you don't take anything lying down. I will certainly chat with my doctor (Lam) before making any decisions. Hope the eye surgery went well? I had a stroke in my right eye. Had to have...