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Mumbo

HealingWell Forum
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Member Profile
Display Name
Mumbo
Profile Created
11/29/2018 8:52 AM
Last Seen
Yesterday 6:25 PM
Total Posts
2082

Last 50 Posts

psa level 2800

That is pretty quick turnaround in mental state and PSA, big improvement and good attitude. I seriously doubt that any man is not freaked out when advised they may have or do have prostate cancer....

3/28/2023 3:52 AM

Prostate Cancer
Post Prostate Biopsy

davie - you will need to read up on on the various radiation methods and see radiation oncologists who provide the different methods for their opinions and recommendations. Beam radiation is the most...

3/28/2023 3:35 AM

Prostate Cancer
Post Prostate Biopsy

davie - This is a good news/bad news situation. Good News: the wait is over, you have a small amount of cancer that took a lot of cores to find. Bad News: you have a small amount of cancer that is...

3/27/2023 5:58 PM

Prostate Cancer
Where are the doctors?

AKA Dan - I think doctors with PCa can be here looking for advice and support but I am neither a lawyer or doctor. Swan - My urologist told me that I know more about PCa than most doctors at the end...

3/27/2023 5:34 PM

Prostate Cancer
Sad Story

All metastatic cancer stories are sad but metastatic prostate cancer seems to be cancer in slow motion and the process is dragged out over many years, for better or worse. The writer concisely...

3/26/2023 7:01 PM

Prostate Cancer
Sad Story

https://www.usatoday.com/story/opinion/voices/2021/08/25/prostate-cancer-disease-killing-me-slowly/7773772002/ ...

3/26/2023 2:07 PM

Prostate Cancer
Prostate Cancer In The Family

BRCA1 and BRCA2 would be the typical factors, HOXB13 is another from my genetic testing. Easy to research. Any time there is prostate cancer in a family for any reason, the PCa radar should be turned...

3/24/2023 7:39 AM

Prostate Cancer
Any hope?

MrMoon - Please do not be too aggressive with your father at this point until the treatment path is determined. Any diets or supplements are longer term solutions. This link might point you in the...

3/23/2023 8:09 AM

Prostate Cancer
Strictures

This may be of interest. There are other compounds that have not not been perfected yet....

3/21/2023 4:15 AM

Prostate Cancer
Doctor Appointment

I am about where you are at. Last annual meeting (4 yr) with urologist was “you don’t need to see me anymore unless you want to … you can go to annual testing now or stay with 6 months testing if you...

3/21/2023 4:04 AM

Prostate Cancer
Med students nauseating, fainting at sight of blood etc.: how do they learn to get over it?

I also watched a RALP procedure before my surgery. I think I missed the part where they turn you upside down and throw the miniature grenade through one of the ports to get more room to work. I...

3/20/2023 5:41 PM

Prostate Cancer
Recent PSA increase

Larry - the HW post below may be of interest to you regarding Dr. Oliver Sartor moving to Mayo. Pretty strong team they will have there soon. Probably worth looking into to take your situation to the...

3/19/2023 5:12 PM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

I don't think cellulitis and drug reaction are the same thing although some of the symptoms may be similar. Cellulitis is a bacterial infection and can spiral out of control if not treated properly...

3/19/2023 1:36 PM

Prostate Cancer
Anyone here use Dr or hospital near Syracuse Ny ?

I don't recall seeing many folks from Syracuse area on the forum but there are some. NYC seems to have all the major cancer centers but there also is Roswell Park Comprehensive Cancer Center in...

3/17/2023 7:49 AM

Prostate Cancer
Mystery PSA

Steve_in_MD - My wife just had "eyes-to-thighs" PET/CT scan that included the shins and feet for the first time. All scans done at the University, same doctor, etc. She usually brings a disk home for...

3/16/2023 12:07 PM

Prostate Cancer
The Central Problem of Castrate Resistance: A New Possibility?

Link: https://medschool.duke.edu/news/closing-new-treatments-prostate-cancer ...

3/15/2023 8:07 AM

Prostate Cancer
New guidelines ?

You are overthinking this and it will drive you crazy. It is just as unusual for a new lab to have lower results. PSA is a dynamic value, it varies and can be aggravated by physical and sexual...

3/14/2023 6:54 PM

Prostate Cancer
New guidelines ?

Stay the course…. You need another PSA to see what is going on which sounds like it will be done soon. If you get a large jump then you can discuss with Uro and hopefully a MRI will be recommended to...

3/13/2023 6:26 PM

Prostate Cancer
Sexual Side Effects of Prostatectomy

Fred - No, I chose to have adjuvant radiation treatment as a preventive measure since my G7(4+3) from biopsy was upgraded to G9(4+5) per when the entire prostate was examined (this happens both ways...

3/13/2023 7:41 AM

Prostate Cancer
Sexual Side Effects of Prostatectomy

Fred - Most of what you are thinking is based on treatments of 20 years ago. Surgery and radiation have come a long way since then. There is still risk with treatments but it is greatly reduced with...

3/12/2023 5:09 PM

Prostate Cancer
Another new study

This link is a better explanation: https://www.cnn.com/2023/03/11/health/prostate-cancer-surveillance-survival/index.html ...

3/12/2023 4:46 PM

Prostate Cancer
Genetic testing for my daughter’s sake?

Lots of pro/con information on the web. Pro is results might prompt some people to get PSA, colonoscopies, and other screening tests. Con is that genetics does not mean you are going to get or not...

3/12/2023 11:41 AM

Prostate Cancer
Another new study

I think the article summary indirectly makes the point that hurrying to do anything is not a reasonable conclusion and that patients should take their time figuring it out. This is much easier said...

3/12/2023 10:57 AM

Prostate Cancer
Brother's PSA is 8

Sparky - Depends on what your brother’s PSA history is. Any infection could spike his PSA but if his normal was 5 then a biopsy is a good idea regardless of infection. Another PSA should show a...

3/11/2023 8:01 PM

Prostate Cancer
basic genetics query

Hey Mel, From my previous post: FYI - The company that actually did my genetic testing in 2019 was INVITAE. The information on the test results said: "The following genes were evaluated for sequence...

3/11/2023 7:51 PM

Prostate Cancer
Pain in Back side of Chest

Statin drugs can cause an assortment of issues. 10mg is a low dose but if you don’t get along with it, the dosage probably does not matter. Other causes are only limited by your imagination at this...

3/10/2023 4:33 PM

Prostate Cancer
Preliminary Questions

Some men have been able to get a newer PSMA PET scan (much more sensitive than conventional bone scan) after biopsy results to check for spread of cancer that can not be detected any other way. This...

3/9/2023 5:08 PM

Prostate Cancer
Stopping ADT- trepidation

ADT is depressing PSA at some physical and mental cost to you. You are using up its effectiveness and conditioning cancer cells to mutate and grow without testosterone. Time to see if your treatment...

3/9/2023 3:09 PM

Prostate Cancer
Rising uPSA

Too early to do much. If you chat with your urologist, he/she will say to get more PSA history behind you than you have with the small numbers. Radiation oncologist (RO) will probably say something...

3/9/2023 12:24 PM

Prostate Cancer
Preliminary Questions

Hello Fred - Gleason 8 is only good news if you had any doubts about having prostate cancer. You have it and there is no doubt about it. As F8 asked, PSA history would be helpful in assessing your...

3/8/2023 12:56 PM

Prostate Cancer
Is the party over or just starting

Looks like you were treated as metastatic from the beginning with just hormonal therapy and no physical treatment? The first party may be over but another party may be next. You should seek out the...

3/7/2023 4:47 PM

Prostate Cancer
Strictures

I am not familiar with online fishing in NY, how does that work?...

3/7/2023 7:22 AM

Prostate Cancer
Decision Regret in Patients with Localised PCa: A Systematic Review and Meta-analysis

Some if these studies go to great lengths to verify the obvious. Those with side effects have more regrets than those who don't and so on. The relationship between RT and RP is interesting but could...

3/7/2023 7:21 AM

Prostate Cancer
Experiences with salvage radiation

JLR - I had no side effects that one could plan for or do much about. The biggest headache is getting the full bladder, empty colon routine down so the appointments go fast. A steady diet and routine...

3/6/2023 7:37 PM

Prostate Cancer
Prostate Cancer Support?

I agree with more effort being used to title posts with "OT" when applicable. Most grey area stuff is not that grey if one takes a step back and looks at the entirety of the text of the post. Easy...

3/6/2023 1:52 PM

Prostate Cancer
Genetic counseling & testing, need advice

FYI - The company that actually did my genetic testing in 2019 was INVITAE. The information on the test results said: "The following genes were evaluated for sequence changes and exonic...

3/5/2023 8:14 AM

Prostate Cancer
Genetic counseling & testing, need advice

Can't help with Lynparza. However, I did both Decipher testing on a cancer sample after surgery and also did genetic counseling and testing. Based on the little I know, Decipher testing would not be...

3/4/2023 5:28 PM

Prostate Cancer
PSA level at the time of SRT after RP and the risk of death

Thanks for the trial link. A couple of key points: Primary Outcome Measures : Post-surgical potency rate defined as proportion of patients with International Index of Erectile Function score >= 17 [...

3/3/2023 12:02 PM

Prostate Cancer
PSA level at the time of SRT after RP and the risk of death

So, when does the urologist think is a good time to pursue a Decipher test? Getting a Decipher test and visiting a RO would have little to do with the trial other than provide you with information....

3/3/2023 8:28 AM

Prostate Cancer
PSA level at the time of SRT after RP and the risk of death

NJWarrior - The clickable article link is in the first few lines of the first post and welcome. (Sorry if you were referring to the webinar Djin casually mentioned). You need to provide some more...

3/2/2023 1:31 PM

Prostate Cancer
PSA level at the time of SRT after RP and the risk of death

The study did not appear to examine the "shades of grey" below PSA = 0.10. However, it makes a compelling argument for doing SRT once one's PSA reaches 0.10 without delay with the noted risk...

3/2/2023 10:32 AM

Prostate Cancer
PSA level at the time of SRT after RP and the risk of death

It must be me but I don’t like the way some things are stated: “Among patients with at most one high-risk factor, initiating sRT above a PSA level of 0.25 ng/mL was associated with increased...

3/2/2023 5:29 AM

Prostate Cancer
Are PCP appointment delays nationwide?

Startech - keep in mind many nice places to live tend to not offer the best health care options or are expensive (California). Cool and dry is a nice concept. Flagstaff and Bend, OR come to mind but...

2/28/2023 7:09 PM

Prostate Cancer
Question about pathology lab

I looked at their site quickly and it looks like a large organization. A couple of the bios had education from John’s Hopkins so draw your own conclusion. The reading of images is quite an art form...

2/23/2023 8:04 PM

Prostate Cancer
OT - Covid and Heart Disease

IT - My wife is immunocompromised from cancer drugs and finally got Covid from somewhere a few months back. She did not feel well with headache, achy, small cough, and low fever, but she also felt...

2/23/2023 7:52 PM

Prostate Cancer
Testosterone spiked

The only thing I have heard about testosterone is that it can be highly variable. Seems I recall having a lower T test one time and doctor said come in again in a couple of weeks for a morning blood...

2/23/2023 5:48 AM

Prostate Cancer
After Operation

I think the vacuum pump that I used often during the first year post-op may have helped. I doubt it would have helped much after that and probably not recommended after AUS....

2/20/2023 5:17 AM

Prostate Cancer
Strictures

Have they ruled out dilation at this point? My Dad had it done a couple times after brachytherapy....

2/19/2023 6:02 PM

Prostate Cancer
Lupron side effect Type 2 diabetes reversable?

From my reading since my A1C has crept up, statins and Lupron are both known to increase blood sugar for many older men and women. However, diet, exercise, and weight control can help in the other...

2/18/2023 9:10 AM

Prostate Cancer
4 years undetectable

MoPaul - We were both in 2018. Any consideration for annual testing at this point or in the near future? My Uro said it was up to me after 4 years (even though previous recommendation was 5 years). I...

2/18/2023 7:48 AM

Prostate Cancer
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