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Cyclone-ISU

HealingWell Forum
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Member Profile
Display Name
Cyclone-ISU
Profile Created
10/19/2014 11:50 AM
Last Seen
Yesterday 7:48 PM
Total Posts
3038

Last 50 Posts

Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

Here's a groaner to pass along ... We've all been hearing about the spectacular NORTHERN LIGHTS display in the night sky ... Turns out my old friend Rory was obsessed with the light show so much that...

Yesterday 7:48 PM

Prostate Cancer
Any hope?

Hello, Mr. Moon ~ You and your father are finding your way forward. We are rallied around you and your father. We are here to support you both, every step of the way. With my best ~ CYCLONE ~ # Iowa...

Yesterday 4:40 PM

Prostate Cancer
Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

After a long, snowy winter, George ~ the avid gardener ~ exclaimed: "Ahhh, sunshine! Spring is here at last! I got so excited, I wet my PLANTS!" ☺ CYCLONE ~ # Iowa State University...

3/26/2023 5:37 PM

Prostate Cancer
Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

While on safari, Ted noticed a LIZARD, standing up on its hind legs, telling jokes to passersby along the safari trail in the jungle. Ted said to the safari guide, "Hey! Let's take a break and watch...

3/26/2023 9:45 AM

Prostate Cancer
Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

This one gave me a chuckle: "It is said that finding true love ranks above ALL else ~ until the day you experience a case of unexpected diarrhea ~ and then finding a toilet will forever rank higher!"...

3/26/2023 9:38 AM

Prostate Cancer
Prostate Cancer saved my life!

I'm so glad to read your first-hand story, Youkilis! I'm very thankful you have joined us here, as well! It's about surviving ... AND thriving! CYCLONE ~ # Iowa State University...

3/26/2023 8:31 AM

Prostate Cancer
10 years later...

Ten-year milestone! Great day for this great news! Here's to new vistas & horizons ~ CYCLONE ~ # Iowa State University...

3/26/2023 6:14 AM

Prostate Cancer
Any hope?

Hello, Mr. Moon ~ I received a tough diagnosis of prostate cancer when I was in my 40s. My PSA was spiking up over 100 ~ and scans revealed that the prostate cancer had infiltrated both of my lungs....

3/26/2023 6:10 AM

Prostate Cancer
ZYTIGA: Our Collective Experiences

Definitely would reach out to your doctor for the hearing situation. That's something your doctor would want to know. Is the ringing constant or intermittent? Any history of this happening in the...

3/26/2023 5:35 AM

Prostate Cancer
Xtandi started instead of Zytiga - adverse side effects?

Hello, MBOCK ~ We have an extensive XTANDI experiences thread, that I just boosted up to the top of the feed this morning. It is entitled "XTANDI: Our Collective Experiences." You will see it towards...

3/25/2023 6:20 AM

Prostate Cancer
XTANDI: Our Collective Experiences

We have some battle brothers asking about XTANDI, so I am sending this to the top today. Best to all ~ CYCLONE ~ # Iowa State University...

3/25/2023 6:16 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ I remember waiting for a multi-month LUPRON injection to "expire" ~ so that my oncologist and I could start trying other forms of ADT that served me better. I was experiencing...

3/25/2023 6:14 AM

Prostate Cancer
Shortage of Drug for Castrate Resistant Metastatic PCa

As we hear updates on the supply chain issues for PLUVICTO (Lutetium-177), I think it would be beneficial to update this thread, since we have battle brothers here who are planning to embark upon...

3/25/2023 5:55 AM

Prostate Cancer
Where are the doctors?

Hello, Jack64 ~ Just my thoughts ... I think the sterling hallmark of this website stems from the feeling of fellowship and camaraderie that stems from knowing there are other battle brothers who...

3/25/2023 5:48 AM

Prostate Cancer
Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

Date night went from bad to worse, for poor Anthony ... As they said goodbye at Sofie's front door, Anthony's heart leapt with excitement when Sofie invited him in for a nightcap. He never dreamed...

3/24/2023 7:01 PM

Prostate Cancer
Friday joke: A pastor, a priest and a rabbi are in a boat fishing on a lake ...

Anthony's social gaffe on a first date at a nice restaurant: Sofie stated charmingly to Anthony: "I'm SO glad you asked me out. I have been looking forward to this all week. It really has been a...

3/24/2023 6:03 PM

Prostate Cancer
Friday humor: okay, some more shorties and one-liners

Here's a groaner ... STAR TREK's Captain Kirk had three ears ... the left ear, the right ear, and ... not to be forgotten ... the "final front ear." ☺ CYCLONE - # Iowa State University...

3/22/2023 7:24 PM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ I'm glad to hear that side effects are slightly lessening. I really hope the time it takes for this three-month dosage to wane pass by quickly. You will want to start planning a...

3/22/2023 6:08 PM

Prostate Cancer
Shortage of Drug for Castrate Resistant Metastatic PCa

That is worrisome news, when so many battle brothers ~ globally ~ are now hoping to start PLUVICTO (Lutetium-177) treatments. I really hope they can shine a bright light on this situation ~ and ramp...

3/21/2023 4:32 PM

Prostate Cancer
Recent PSA increase

Hello, Larry ~ We have some common threads in our diagnosis, including high PSA at diagnosis and lung involvement. My treatment history is revealed in my signature below. I will second Tudpock's...

3/19/2023 3:35 PM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

It's certainly an unfortunate reaction to a medication that was used to help you. I hope your side effects fade and dissipate. However, it was a 3-month dose, so the medication will stay in your...

3/19/2023 4:52 AM

Prostate Cancer
ZYTIGA: Our Collective Experiences

Hello, SteveO ~ Cards on the table, for my case, diagnosed in my 40s with prostate cancer that had already infiltrated both lungs, I have worked very hard to maintain my health goals. It's 10 years...

3/18/2023 11:17 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Mindful of the situation our comrade Youkilis is enduring right now, I think it speaks to the issue of our doctors starting with a one-month dose of ADT, at the beginning ~ to gauge its impact and...

3/18/2023 4:38 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ It's almost like your body is having an adverse reaction to the ELIGARD injection. With the swelling - and now the rash - could it be akin to an allergic reaction? Has your medical...

3/17/2023 7:19 PM

Prostate Cancer
Another Zytiga update

News of the best kind! I'm SO thankful to read this latest update! I'm literally cheering - and I am so thankful for the amazing STEPS FORWARD in the recovery process! Best news of the day, right...

3/17/2023 4:45 PM

Prostate Cancer
G9 update. Slow but steady progression.

Hello, TooYoung4This ~ Spring is around the corner, and I am hoping things are going well for you lately. Your pen name here on the board always resonated with me ~ "TooYoung4This." Diagnosed in my...

3/17/2023 9:16 AM

Prostate Cancer
ZYTIGA: Our Collective Experiences

[i] I was just reflecting today, realizing ZYTIGA (Abiraterone Acetate) has been helping fellows for over a DECADE now ~ since it received full FDA approval in April 2011. Even better ~ as more...

3/17/2023 7:22 AM

Prostate Cancer
Friday humor: okay, some more shorties and one-liners

In honor of Saint Patrick's Day ... well, here we go ... RIDDLE: "What nickname was given to the IRISH cop, who always wore a bullet proof vest on his beat in a tough neighborhood?" ANSWER:...

3/17/2023 5:31 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Hello, Youkilis ~ I'm mindful of your situation. Diagnosed in my 40s, my medical team has helped me immensely. I am a teacher, and have continued working full-time, since being diagnosed in 2013. To...

3/16/2023 6:53 PM

Prostate Cancer
Update after stage 4 post

This update instills a lot of hope, Sparky9! It underscores something that's important to remember ~ there's weapons, both old and new, in the treatment arsenal ~ and treatments can bring newfound...

3/16/2023 3:52 PM

Prostate Cancer
Why finish Taxotere/Docetaxel treatment?

Hello, Startech ~ Just checking in with you, hoping things are staying smooth, steady, and stable. Hoping you are faring well & hope your doctors continue to share good news with you! With my best ~...

3/16/2023 3:08 PM

Prostate Cancer
Mystery PSA

Hello, Steve ~ Wondering if your medical team has suggested a new treatment plan? Would it be worth trying a course of ADT & see what impact that has? Have medications such as ZYTIGA or XTANDI been...

3/16/2023 11:23 AM

Prostate Cancer
psa level 2800

Hello, JAYMZ0075 ~ It's great to hear your treatments have already begun! The multi-tiered treatment approach is what was needed in my case, too ~ ADT shots, chemotherapy infusions with TAXOTERE (six...

3/16/2023 10:59 AM

Prostate Cancer
Eligard 22.5mg (swollen ankles and feet)

Sending supportive thoughts your way, Youkilis! It's encouraging to MANY of us here that you are a 16-year prostate cancer SURVIVOR. That being said, I'm sorry for the side effects that you are...

3/16/2023 10:08 AM

Prostate Cancer
Lu 177 trial.

Hello, OLMANHUNK ~ Checking in with you, wondering how things are going? Have you wrapped up your series of PLUVICTO treatments? I hope your treatments paid dividends, and thought I would write a...

3/16/2023 4:33 AM

Prostate Cancer
I can't believe it's been 5 years

Glad to hear you're doing well, LDOG! Your message underscores the value of being your own advocate, considering one's options, and getting a second opinion when merited. My original urologist saw...

3/16/2023 4:23 AM

Prostate Cancer
psa level 2800

Hello, JAYMZ0075 ~ Circling back, checking in with you ... Hoping you and your medical team have mapped out a course of action. You can see the course of treatments I have had, over time, revealed...

3/15/2023 6:56 PM

Prostate Cancer
Post - LU-177/Pluvicto

Hello Steve55777 ~ Have been thinking of you, hoping you are doing your best. I can understand why you switched back to LUPRON, in terms of insurance coverage. Did you get your biopsy scheduled yet?...

3/15/2023 6:04 PM

Prostate Cancer
The Central Problem of Castrate Resistance: A New Possibility?

Hello, NewspaperLover ~ I think this preliminary research holds great potential ~ and could ultimately lead to a new treatment! This topic is one to follow, going forward! One discovery leads to...

3/15/2023 2:40 PM

Prostate Cancer
Starting Hyperbaric Therapy for Radiation Cystitis

Hello, AZ Guy ~ Let us know how the upcoming treatments go! Hopefully, music can be played during the time block. I went through 45 radiation treatments. I found that I only had to focus on one...

3/15/2023 2:29 PM

Prostate Cancer
ZYTIGA: Our Collective Experiences

Hello ~ Since you are just starting ZYTIGA (Abiraterone Acetate) , you will find it insightful to read back through this thread Grab a notebook and jot down notes that you find meaningful and...

3/14/2023 5:33 PM

Prostate Cancer
New guidelines ?

Just looking out for you ... You have 2 1\2 months between "now and then" at the end of May. Why not book a visit to the lab soon & see where levels are at? Just a thought to share, wanting the best...

3/14/2023 2:13 PM

Prostate Cancer
New guidelines ?

This rise in PSA is obviously on your mind. A couple of questions: * Do you have nagging, worrisome thoughts about your PSA? * Do you feel you have a proactive doctor in your court? * Lastly, do you...

3/14/2023 5:15 AM

Prostate Cancer
Another Zytiga update

I was thinking of the old adage that states, "Every journey begins with one step." Nine steps! I know in my heart how much these nine steps meant! I'm sending you both my encouragement and support....

3/13/2023 6:24 PM

Prostate Cancer
New guidelines ?

And that's WHY we have an EDIT button, to go back and revise or clarify or brush out verbiage, as needed. CYCLONE...

3/13/2023 4:17 PM

Prostate Cancer
New guidelines ?

Brotherly advice ... The fact that you have questions about your rising PSA, IS the very answer to your own question. Follow up with your doctor. That's the place to start. Please don't target...

3/13/2023 4:03 PM

Prostate Cancer
Another new study

All of this REALLY concerns me. The "angle" in the message and bias in the reporting sends the wrong message. True active surveillance requires strict protocols, if handled correctly. It seems other...

3/13/2023 3:55 PM

Prostate Cancer
People who get paid to portray patients, sometimes hostile ones, in med school training skits

Interesting! Who knew?!! Thinking through this ~ as a teacher, I have worked with a wide range of students. As a patient, visiting the clinic every month, it's easy to see that there are a wide range...

3/13/2023 9:22 AM

Prostate Cancer
3-Month Check Up - Still Undetectable

News that will "light up the night!" KA-BOOM! C-E-L-E-B-R-A-T-E! With my best ~ CYCLONE ~ # Iowa State University...

3/13/2023 7:04 AM

Prostate Cancer
The wait for pluvicto has started.

Hello, Mrs. B.D. & Jerry ~ I have been keeping you both in my thoughts, and wonder how you are faring? Have you gotten through the full series of PLUVICTO treatments (Lutetium~177) by now? I wanted...

3/13/2023 6:37 AM

Prostate Cancer
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