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Berb

HealingWell Forum
>
Member Profile
Display Name
Berb
Profile Created
3/1/2007 9:56 PM
Last Seen
6/12/2022 3:28 PM
Total Posts
93

Last 50 Posts

Advance vs Invance sling - AUS/AMS 800 Update

Interesting post, Tallguy. I had an AUS fitted 4 years ago. Initially used a small pad, but over time that has gone out to 2-3 large pads a day. The AUS is less satisfactory in my case than it would...

8/25/2012 12:05 AM

Prostate Cancer
Running-jogging

Hi to all HW runners. I also am a runner, and it was very important to me to get back to running as soon as I could after the operation. Did my first 5K 8 weeks after the prostatectomy - totally...

12/15/2009 11:27 PM

Prostate Cancer
KW's AUS Journey

Hi Gene. Glad to hear all is good with the AUS. Hope you get some good results with the next PSA. The following document can be downloaded and gives you instructions on deactivating and re-activating...

7/16/2009 12:50 PM

Prostate Cancer
KW's AUS Journey

Hi KW, Nice to hear that things are still good for you. My story... I had the AUS fitted just over 12 months ago. For the first 6 months, I had minimal leakage and used 1 or 2 light liners a day,...

7/15/2009 9:10 PM

Prostate Cancer
Wavebrilliance - anyone used it?

Hi All, Been a while since I have posted. Has anyone had any experience with the magnetic pulse chair system deployed by www.wavebrilliance.com for strengthening pelvic floor muscles? As some may...

7/1/2009 12:22 AM

Prostate Cancer
Any experience out there with a product called Dribblestop?

Hi RFP, Yes, AUS stands for Artificial Urinary Sphincter. Excellent information is available on the AMS 800 website as follows: http://www.americanmedicalsystems.com/DAM_public/5107.pdf (patient...

3/27/2009 7:04 PM

Prostate Cancer
Newbe with incontinence problems

Hi Jim, I had an AUS fitted 9 months ago. Like you, I keegled until I went mad and made no difference whatever. Tried the clamps, used condom catheters for a while, and eventually had the AUS...

3/27/2009 12:57 PM

Prostate Cancer
Any experience out there with a product called Dribblestop?

Hi RFP I used one off an on for a few months, after concluding that I was unlikely to regain continence naturally. If adjusted correctly, it was not painful, although you could feel the pressure...

3/27/2009 12:46 PM

Prostate Cancer
KW's AUS Journey

That's a good outcome KW. Pretty much my story also. All the best Berb...

2/13/2009 7:39 PM

Prostate Cancer
bladder sling installed by my DaVinci team

I can hold nowhere near the level of urine I did pre PCA surgery. My pre-op capacity was measured and was 450 mls. Today, the most I can hold after sitting in the car for a couple of hours is 250...

2/6/2009 3:01 PM

Prostate Cancer
biofeedback testing

I did 8 weeks with the probe in the anus every night, 30 minutes with a small electrical pulse. Uncomfortable but tolerable. Didn't do an ounce of good for me though, and ultimately had the...

12/21/2008 9:59 PM

Prostate Cancer
KW's AUS Journey

Hi KW. I've had nothing like that at all. I can sense no change in the positioning of the components at all. Hope that your doc has a reasonable explanation - am very interested in his response....

12/3/2008 11:19 PM

Prostate Cancer
KW's AUS Journey

Hi Divo, Like Gene, sorry to hear that the AUS is not working as well as it was. Hopefully your surgeon will be able to help. Regards, Berb...

11/20/2008 12:38 PM

Prostate Cancer
KW's AUS Journey

Good for you KW. I'm back to using the urinals now. Here's my technique: I undo my belt and lower my jeans about 4 inches, holding them up by spreading my legs apart in the normal stance. After lots...

11/14/2008 12:32 PM

Prostate Cancer
Dealing with urinary incontinence

And I'll fourth it. Berb...

10/31/2008 1:53 PM

Prostate Cancer
THE AMAZING AUS 800!!!

That's really great Divo, and quite remarkable that it works so well, given Peter's history. Congratulations on perservering. Berb...

10/28/2008 2:05 PM

Prostate Cancer
KW's AUS Journey

Great news KW. Your experience appears to be the best of any of us - bladder retaining lots of fluid, no premature urges, and no mention of after dribbles... very pleasing result. Berb...

10/7/2008 7:30 PM

Prostate Cancer
KW's AUS Journey

Good luck with the activation KW. I continue to be happy with mine. The urge episodes seem to be getting less and it seems that I can carry a little more in my bladder than when the activation was...

10/4/2008 8:56 PM

Prostate Cancer
disappearing errectons ?

I achieved around 40% 3 months after prostatectomy. Gradually the 40% has diminished. It seems that it finally went to 0% after the operation for the AUS, but the surgeon points out, no doubt...

10/1/2008 9:16 PM

Prostate Cancer
Burning and Stinging after Catheter is Removed

Hi Codger. I had burning for weeks followong prostatectomy, also awful discomfort and leaking around the catheter. After the cathater was removed at 2 weeks, I had a urine test which confirmed a had...

9/23/2008 2:02 PM

Prostate Cancer
Artificial Sphincter Fitted

Glad to hear I'm not the only one with rubbing on the scrotum skin. When you run, the scrotum contracts and places the testicles hard against the body. All the loose skin disappears. So the pump...

9/14/2008 8:50 PM

Prostate Cancer
Artificial Sphincter Fitted

Gave the AUS a solid work out yesterday. Completed a 100 km ultra marathon over rough trails and mountain areas, finishing in 15 hours 48 minutes. I was very happy with the AUS, especially given that...

9/13/2008 10:34 PM

Prostate Cancer
Had AUS & IPP implanted...

Hi Gene, Thanks for your valuable input to the AUS story. Berb...

9/13/2008 10:16 PM

Prostate Cancer
Mild Burning in Urethra

I found that even 18 months after surgery (I was still severely incontinent then), I would experience buring if my urine became too strong. Drinking more water solved the problem every time. The...

9/13/2008 10:03 PM

Prostate Cancer
Blood after AUS?

Hi Divo, I had the same procedure as your husband - incision in the perinium and also in the lowwer abdomen where they placed the reservoir. This soreness you are describing does not sound normal. I...

9/13/2008 9:54 PM

Prostate Cancer
Blood after AUS?

Hi Divo. Mine did not bleed at all. May be nothing to worry about , but I would contact the surgeon and set your mind at rest. Berb...

9/11/2008 12:09 AM

Prostate Cancer
For AUS guys: How is the activation process working?

Hi Divo, I'm very happy with my AUS. My results are not quite as good as Gene's - I have more than a few drops a day. I usually put on a fresh small liner type pad in the morning and change it in the...

9/6/2008 9:46 PM

Prostate Cancer
KW's AUS Journey

Hi Divo. I was advised not to drive for 2 weeks. There was no problem with the driving itself, but in the event that I had to take emergency action while driving, the stress on my body might damage...

9/1/2008 7:48 PM

Prostate Cancer
KW's AUS Journey

Well done KW. Home after only a day and things going well! Interesting that they did your second incision in the scrotum. Mine was in the groin 2" above the thigh where the reservoir is located. I...

8/25/2008 2:46 PM

Prostate Cancer
Artificial Sphincter Fitted

Hi JerryV, I had one cut of 2" along the perinium where they inserted the cuff and pump. Another cut about 2" long just above the groin where they inserted the reservoir. In both cases, all stitching...

8/23/2008 1:17 PM

Prostate Cancer
KW's AUS Journey

Good luck KW. They don't keep you in hospital long. I was in for 3 days. Berb...

8/21/2008 1:12 PM

Prostate Cancer
Artificial Sphincter Fitted

Gene Like you, I am dry entirely if I go every hour. My doc believes that my bladder has shrunk from not holding anything for 18 months - I never became continent overnight, so never got a full...

8/20/2008 10:32 PM

Prostate Cancer
Artificial Sphincter Fitted

Hi Gene. I asked if it needed deactivation at night and he said no. I recall someone on this website some time ago, sorry can't recall his name, saying he deactivated at night because he had a lot of...

8/20/2008 3:54 PM

Prostate Cancer
Had AUS & IPP implanted...

Congratulations Gene. Great to be dry, isn't it? Berb...

8/18/2008 11:40 PM

Prostate Cancer
Artificial Sphincter Fitted

Good luck for Friday KW. Big day for you. Hope it goes as well as mine has. Here's an update on my situation 2 weeks after the AUS was activated. I have no pain and don't even know the device is...

8/18/2008 2:19 PM

Prostate Cancer
Had AUS & IPP implanted...

Hi Gene. I had mine fitted by an incontinence nurse, and that was very satisfactory. They generally come in around 4 different diameters, and have variations in length also, and it’s best to get a...

8/9/2008 7:10 PM

Prostate Cancer
Had AUS & IPP implanted...

Hi Gene. This is a tough break for you, but sounds like you are on the road to healing and will hopefully be activiated on schedule. I think the practical solution for keeping actve and dry during...

8/9/2008 4:30 PM

Prostate Cancer
Artificial Sphincter Fitted

A further update… I got no leaking during my running yesterday, which went for 75 mins in 2 sessions. I included some sprints and some stairs to see if that would induce leakage and it didn’t. It was...

8/6/2008 1:43 PM

Prostate Cancer
Artificial Sphincter Fitted

I know some of you are contemplating the fitment of an AUS, so I’ll give you an update on my progress. I had my AUS turned on today. It’s early days and I’m not one to sound the horn of victory...

8/5/2008 12:57 AM

Prostate Cancer
artificial sphincter questions: First time here

Hi Jerry, Here’s what I use. Bag: Conveen leg bag 500 ml capacity with 50 cm tube reference number EA5161 Straps: Conveen leg straps with buttons reference number 50501 Sheath: Conveen Easifit Self...

7/14/2008 1:50 PM

Prostate Cancer
artificial sphincter questions: First time here

Good luck with the surgery Gene214. Regards, Berb...

7/11/2008 7:30 PM

Prostate Cancer
artificial sphincter questions: First time here

Hi Diane It wasn't me who wore the clamp 15-16 hours a day - someone else maybe. The doctors never had me on a clamp, although I did try a couple of the ones you buy on the Internet. I found they...

7/11/2008 1:59 PM

Prostate Cancer
artificial sphincter questions: First time here

Hi Divo. I had an AUS installed 2-1/2 weeks ago and am still in the recovery phase. So far no problems. I can't give advice on the suitability of an AUS after what your husband has gone through (poor...

7/9/2008 11:01 PM

Prostate Cancer
Artificial Sphincter Fitted

Hi Jack, I think it's sensible to reconsider the AUS, especially after 12 years of leaking (that's a long, long time!!). In the meantime, you might want to consider the condon catheter drain bag...

6/29/2008 1:26 AM

Prostate Cancer
Artificial Sphincter Fitted

Hi AnxiousWife, Sorry to hear about[b] your husband’s ordeal. He clearly has had some unhappy complications. [3] Back in January I sent an email to the Innsbruck University but I never got a...

6/28/2008 3:35 AM

Prostate Cancer
Artificial Sphincter Fitted

Hi KW. I live in Australia and the doctor was Don Moss who performed the surgery at St John of God Hospital in Ballarat. Regards, Berb...

6/27/2008 2:53 AM

Prostate Cancer
Artificial Sphincter Fitted

I had an artificial urinary sphincter (AUS) fitted 3 days ago. The procedure lasted a couple of hours and I was under full aesthetic. The surgeon made two small incisions, one under the scrotum to...

6/25/2008 11:41 PM

Prostate Cancer
KW's Journey (Part 2)

Hi KW, Sorry to read about the negative outcome of the various approaches you are taking to resolve your incontinence. I'm booked to have an AUS installed in late June. Currently my wife and I are on...

5/27/2008 10:17 PM

Prostate Cancer
urethral dilation

I had dialation done in conjunction with a flexible cystoscopy in October, as there was some narrowing at the bladder neck. It was done with the rods, which he wriggled and levered as if he was...

3/4/2008 2:30 AM

Prostate Cancer
KW's Journey (Part 2)

Thanks for posting so quickly, KW. Very glad to hear that early signs are positive. Look forward to hearing progress reports in the weeks ahead, especially since you and I appear to have similar...

2/22/2008 9:47 PM

Prostate Cancer
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