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Tony Crispino

HealingWell Forum
>
Member Profile
Display Name
Tony Crispino
Profile Created
12/26/2006 10:55 PM
Last Seen
9/24/2022 12:34 AM
Total Posts
8160

Last 50 Posts

MUST READ: New Guidelines for Localized Prostate Cancer

Here's a better link. https://www.auanet.org/guidelines/guidelines/clinically-localized-prostate-cancer-aua/astro-guideline-2022 I recommend the Unabridged version though. That's a link here....

5/12/2022 8:55 AM

Prostate Cancer
MUST READ: New Guidelines for Localized Prostate Cancer

While I am under information embargo right now until after AUA 2022 this weekend, I can say that we wrote the most patient centric guideline to date. We combined low and very low risk to get...

5/12/2022 8:34 AM

Prostate Cancer
Low grade PC should or should not be called Cancer

TY Jim, I do hover over all the prostate cancer websites. The guys in these groups are my guidance to maintaining the thoughts shared by patients in the real world and bring those thoughts to the...

5/3/2022 8:44 AM

Prostate Cancer
Low grade PC should or should not be called Cancer

In response to the paper published in the Journal of Clinical Oncology about renaming low grade prostate cancer to something other than cancer I wrote this published rebuttal from the layman...

5/2/2022 10:56 AM

Prostate Cancer
Phase 3 Clinical Trial Results for TAK-700 - Metastatic, Hormone Sensitive

Jerry, here is the Phase III results and final reporting on the Titan trial that tested in the same scenario as the TAK-700 trial. mHSPC and mCSPC are the same patients. As you can see TAK-700 had no...

7/11/2021 1:33 AM

Prostate Cancer
This may cheer some of you up...but there is a caveat

Here's to healing and a quick recovery. All the best. PS: I'll be on O'ahu and Maui in September. Maybe to say "hi"? Tony...

7/7/2021 11:02 AM

Prostate Cancer
Phase 3 Clinical Trial Results for TAK-700 - Metastatic, Hormone Sensitive

mattam, When this trial began, the trial had flexibility in the use of changing standard of care. There were a lot of trials and treatment options added after S1216 got launched. This includes early...

7/5/2021 9:14 PM

Prostate Cancer
Phase 3 Clinical Trial Results for TAK-700 - Metastatic, Hormone Sensitive

Jerry, First I totally agree with gratitude to all participants in clinical trials. I remember when Sonny and a few other guys I have associated with that were on this trial. Of course all I could do...

7/4/2021 2:32 PM

Prostate Cancer
Phase 3 Clinical Trial Results for TAK-700 - Metastatic, Hormone Sensitive

It's important to note that this trial was a potential standard of care changing trial that did not meet that criterial (25% OS improvement over SOC) There are still uses for the drug but it's not...

7/3/2021 11:48 PM

Prostate Cancer
Sad news to share. Our friend Goodlife has passed.

A great friend indeed. He drove 300 miles to meet me while I was a moderator here. That as ten year ago. I met him again at a GFMPH meeting near the Kennedy Space Center. Sonny's house. Dick Baldwin...

11/29/2020 12:18 AM

Prostate Cancer
Who here has been undetectable the longest? (Survey)

13+ years. Even though stage 3b after RP I never had a climb in PSA. Technically 11 years after stopping adjuvant HT. Great to see all of the long term success stories....

10/10/2020 6:15 AM

Prostate Cancer
My correct position on PSA Screening.

ASAdvocate, You are absolutely correct. When I wrote that I fully reworded a thought and did not reread what I typed well enough. I have changed the statement to: "Last note: And many probably won't...

9/14/2020 6:08 AM

Prostate Cancer
Prostate cancer referrals have dropped by half since lockdown, figures show

Mattam, Precisely my point. But then again we do use mice in research? :-)...

9/11/2020 1:47 PM

Prostate Cancer
PCRI Conference

2019Guy, Please look for comments from Klotz on recent reports on AS and increase in higher mortality. I'd love to watch it but my son came over this afternoon and I can't. I doubt he'll comment on...

9/11/2020 1:46 PM

Prostate Cancer
My correct position on PSA Screening.

No worries, Jim, You'll see it if you look. But I'm glad it was able to outline the PSA screening history. There were a lot of opinions on the topic. I know there still are on PCa boards on FB. I...

9/11/2020 1:04 PM

Prostate Cancer
My correct position on PSA Screening.

Pratoman stated: "P.S. My son had his first PSA done at age 37 and has it checked annually since, he is now 40. Surprisingly, and thankfully, no pushback from his PCP when he first requested it." I...

9/11/2020 12:39 PM

Prostate Cancer
My correct position on PSA Screening.

Djin Tonic, TY for the input. You are an excellent poster here. You describe the use on molecular tools but they're only good after the screening and diagnosis part has detected cancer. In December...

9/11/2020 12:32 PM

Prostate Cancer
Prostate cancer referrals have dropped by half since lockdown, figures show

mr bill I am currently serving on the NIH PCa task force and also have served on a Covid and Cancer committee a few months back. At the height of the outbreak of Covid-19 in April our trusted docs at...

9/11/2020 12:16 PM

Prostate Cancer
My correct position on PSA Screening.

In another thread someone stated: "probably have the same effect as not PSA testing young guys like Tony C ironically used to push on this forum a few years ago. we can now see how that worked out."...

9/11/2020 11:43 AM

Prostate Cancer
Moving on

Andrew, Good luck and best wished in retirement. I love Reno and prior to Covid19 I traveled there regularly. The university of Nevada has been my account in technology sales since 2002. Same with...

8/27/2020 10:45 AM

Prostate Cancer
Seeking info about Seattle doctors

Just a thought to share. i went through my very old and undeleted emails. I had 12 old emails from Dr. Peter Grimm. My last one was in 2015. He and I started communicating in 2009. Again in 2010 when...

8/26/2020 5:22 PM

Prostate Cancer
Risk of dementia following ADT for PCa: an updated systematic review and meta-analysis

Great post, I have been working on a couple prospective trials that are way too early to yield information. 1st the neuro-biomarkers were not easy to establish. And working with older men in trials...

8/26/2020 3:04 PM

Prostate Cancer
Seeking info about Seattle doctors

Hi Melaine, I did receive your message in email and came here to answer. I do know many doctors in the Northwest area in both the Portland and Seattle area. The University of Washington has a strong...

8/26/2020 2:08 PM

Prostate Cancer
ASCO Guideline Update. Chemo Induced Peripheral Neuropathy

Hi again everyone. As panelists for the AUA/ASTRO/SUO clinical treatment guideline for advanced prostate cancer we went through the chemotherapy options and we remained pretty silent on what to do...

7/15/2020 8:38 PM

Prostate Cancer
New Advanced Prostate Cancer Guideline

I think alephnull touches a point that I need to clarify and the document does not. nmHSPC was a 6th state we dropped after peer review in March due to conflicting opinion. We added it to BCR and we...

6/26/2020 12:38 PM

Prostate Cancer
New Advanced Prostate Cancer Guideline

I hope you are doing well, alephnull. Here's what's in the test. I'll add to it. Biochemical recurrence is a rise in PSA in prostate cancer patients after treatment with surgery or radiation (PSA of...

6/26/2020 11:05 AM

Prostate Cancer
New Advanced Prostate Cancer Guideline

SJO, That's a lot of great points. In our comments on evaluation there is this statement: Optimize pain control or other symptom support and encourage engagement with professional or community-based...

6/26/2020 9:45 AM

Prostate Cancer
New Advanced Prostate Cancer Guideline

Tud and JNF, TY for the kind words. But I'd be forgetful if I didn't mention that my journey to becoming a published patient representative started right here at HealingWell in 2006 when I was...

6/26/2020 9:08 AM

Prostate Cancer
New Advanced Prostate Cancer Guideline

Steve, It will help to define visceral in your case. Visceral is basically soft tissue organs such as: liver, kidney, lung, brain, etc. So if your lung nodules are confirmed (through biopsy or...

6/26/2020 8:40 AM

Prostate Cancer
New Advanced Prostate Cancer Guideline

The American Urological Association, American Society of Radiation Oncology, and Society of Urologic Oncologists has released a new guideline today for Advanced Prostate Cancer (APC). This is...

6/25/2020 12:38 PM

Prostate Cancer
Decipher test

It's been quite a while since posting on Healingwell. But it's great to see this site still helping people after all these years. I'm posting because I have some good inside on molecular biomarkers...

12/30/2019 5:07 PM

Prostate Cancer
What is it about PCa that scares/annoys you the most?

Not posting as much here as I used to, but a great question. I can say that 13 years ago when I first joined HW I would have chosen a different answer other than "other". Today I would say recurrence...

6/12/2019 1:17 PM

Prostate Cancer
YEEE freaking HAAAhhhh-

Haha, I luv sushi. Why cook it at all? And now that it's the Lent season I get it every Friday. Stay Well! and Stay Positive!...

2/14/2018 9:59 PM

Prostate Cancer
PSA where I expected it and cancer free

Valentines day 11 years ago I was checked into the City of Hope for tests prior to surgery for my prostate cancer. After the surgery couldn't get it all the next few years were game on. I was late...

2/14/2018 8:49 PM

Prostate Cancer
Active Surveillance - Time to End?

Hey Allen, You are not kidding about whether all institutions and non-institutions (private practice urology centers) but the panel was academia and the peer reviewers represented pretty much the top...

1/31/2018 5:27 PM

Prostate Cancer
Active Surveillance - Time to End?

Having worked with Laurence Klotz over the two years development of the AUA/ASTRO/SUO clinical guideline for localized prostate cancer I know his thoughts well on what tests to use and when to jump...

1/31/2018 10:41 AM

Prostate Cancer
New Study: Adjuvant Radiation Saves Lives vs. Salvage

When I had my surgery in February of 2007, I had a bad enough post op pathology and went searching out the next steps. My PSA at the time of surgery was 20, by post op pathology was bilateral seminal...

1/29/2018 8:56 PM

Prostate Cancer
If you decided to quit this forum, would you announce it or just go?

I went through these emotions at the forum when I was a regular/moderator/survivor. For me when I decided I got what I needed here, I wanted to stay and help others but learned a valuable lesson, not...

1/17/2018 3:43 PM

Prostate Cancer
WAKE UP CALL

I never got a chance to meet you Steve. That's something I regret. I've got an agreement with my wife to enter a secession program. She is 5 years younger than I am (she's a "light" smoker) and now...

11/30/2017 9:55 PM

Prostate Cancer
Year 8 for this G9 guy w/bone mets

Thumbs up, Jerry. This is awesome....

11/17/2017 6:50 PM

Prostate Cancer
Cancer and Drinking

"I have always been a friend of the drinking man; I respect him for his courage to withdraw from the world of the thinking man." ~ W.C. Fields...

11/8/2017 9:25 AM

Prostate Cancer
Deciding on a surgeon in LA area.

I was one of Tim Wilson's patients in February 2007. He had it down way back then. Excellent results. He is very highly regarded. He has also come out to Las Vegas where I run a support group and...

11/2/2017 3:13 PM

Prostate Cancer
Movember?

NowhereMan, I have been on the scene for 11 years now as a survivor but I remised on the mustaches. I have worn a beard for more than 20 years (with exception to one time when I accidentally started...

11/2/2017 12:51 PM

Prostate Cancer
Is statin use a good idea for "treatment" for PC?

Hi Jerry, TY for the nitpick! :-) But I digress, many people don't know if they are at high risk for diabetes. Even with a bathroom scale screaming it's time to lose weight. But I guess the good news...

10/27/2017 3:46 PM

Prostate Cancer
Is statin use a good idea for "treatment" for PC?

Good post Allen, As with any medication being repurposed we lack sufficient data on them for recommending them as treatment. In fact the likelihood is that there is more harm than good when doing so....

10/27/2017 2:54 PM

Prostate Cancer
Clinical Trial

As an active cancer researcher I have taken to heart those willing to participate in trials. Thank you for your participation. I recently co-authored an article due out by the year end in Urologic...

10/27/2017 10:17 AM

Prostate Cancer
Genomic test

PSA, Gleason, and stage are the gold standard for determining risk. That has not changed with the newest genomic tests available today....

10/27/2017 8:33 AM

Prostate Cancer
Questioning my doctor's comment regarding genetic testing

Your MO is likely right. Though I am surprised he missed an opportunity. Many clinical trials are out there that are gathering data as primary and secondary end points looking at molecular biomarkers...

10/26/2017 6:29 PM

Prostate Cancer
Looking for good/experienced robotic prostate surgeons in Los Angeles area

City of Hope is where I had my RP in early 2007. The doctor that did it was Dr. Tim Wilson. He is still in the LA area but no longer at CoH. but my bias says if I had to do this all over again it...

10/24/2017 11:45 AM

Prostate Cancer
How 'bout a little pot-stirring? Article: Why You Should Stop Saying “Sugar Feeds Cancer”

Good topic for discussion. I'll add on to a thought by my friend Brian Lawenda. The topic here is how do Pet scan's work? Pet scan's use basically simple sugar molecules because they will be absorbed...

10/24/2017 11:25 AM

Prostate Cancer
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