Yes he had Lupron as part of his treatment. I'm not sure how often he has had blood work done, but at least once a year, so I guess the testosterone probably started showing up over the past...
Not sure. I think his family doc that did the blood tests is going to set up an appointment for him with his urologist to review, so he'll prob get the numbers again at that time, within a few weeks....
Thanks, I may ask him for the specific numbers, but at the same time don't want to spook him.....
Hi all, 10-12 years after having PC, and all this time having low to no testosterone and low or no PSA, my father just had a blood test last week that showed his testosterone levels have surprisingly...
Hi all, I haven't posted for a long time, I used to post when my father was diagnosed. I guess it has been just over 10 years now......gleason 9/10, treated with IMRT and taxotere. It was a rough...
If it does 'jack up' your PSA, it would only be a temporary response to the pressure on the prostate. So if you know you have a PSA test coming up, lay off the biking for a few days before (as well...
He may be on Avodart just to help with urinary issues/flow. It is used for that sometimes. My father's doctor put him on it for that reason during his prostate cancer treatment....
So aside from what others have said, I'm wondering if someone should have pointed out one of the last lines in your report: PERINEURAL INVASION when discussing treatment options. That term means that...
Sorry to hear about your diagnosis, don't give up. I assume/hope you've started ADT right away, as you'd be doing that regardless of what other primary treatment you choose. Best to start knocking...
I hate to be a 'debbie downer', but how many drugs/therapies do we hear about each year that work in mice, but never end up working in humans?...
Naples - your latest PSA reading is very encouraging! There are lots of folks beating / living with a past of g9, don't pay attention to the 5 year thing and move on with life. :)...
My father was diagnosed in 2009, gleason 9 & 10, large tumor, seminal vesicle involvement. He underwent ADT and IMRT, and low dose taxotere (as part of a study). It was a very rough year of treatment...
Anyone know how he's doing?...
Thanks, good advice....
If they told you to take 5 at once, I'm -guessing- they were .5mg??...
Unfortunately we don't have any open MRI machines here (East coast Canada). And if we did, there would probably be a 2 year wait to get into it!!! This MRI is -without contrast, so that plus my...
Hi all, I've been a member here for a while as an advocate for my father who was diagnosed with PC around 2009 (he's doing well now!)... Somewhat off topic question for myself this time! I have to...
Awesome news!...
Pretty sure GBS doesn't come on all of a sudden after a fall! Best wishes to Mel...
Please don't waste your money. Unless he is actually clinically low on Vit B (need blood test to show it), which is highly unlikely, he will simply pee it out. The injectable version (sub-q...
"So all my doctors, as a group, got together and compared notes, with my therapist taking charge, and they managed in a few hours to get everything done." Well that is a good step! Really hope...
Aside from the noseless option, you should look into the saddles that triathletes use, specifically to take pressure off that area because of the extreme aero positions they are bent over into. These...
My father did when going through IMRT (not SRT). Now granted, part of his issue was that his prostate/tumor had gotten large enough that it was pushing in a little bit on his rectum, so double...
Very sorry to hear about your father's diagnosis. Lots of good advice above. Just wanted to add, with regards to the lymphedema, my father also experienced this. His was more likely due to his...
I guess the obvious question is where do they get those numbers from? And one obvious statement to question: "110 in 1,000 will be diagnosed with PC from screening; most would have remained...
I think it sounds like a huge step in the right direction! Fingers crossed for you....
Congrats! It sounds like you had very similar stats to my father, he was G9/G10 with seminal vesicle involvement. Had IMRT and ADT. Knock on wood, roughly 5 years later, his PSA is still...
Actually, I'm his son.... :) Anyhoo...your husbands PSA is nice and low. I'd say he has many many good years ahead of him. Do whatever you need to do for treatment to stay on top of it, and keep...
My father was on Lupron for three years. Honestly I don't think he found it that bad. I think the tiredness he experienced for a long time after his main treatment (IMRT) was from the radiation. But...
Sorry, I didn't necessarily mean chemically different. My thinking is, and of course this is strictly my opinion, probably worth less that .02.... :) is that the vitamins we get through food work...
Sephie, We'll agree to disagree... :) Just to play devil's advocate, here is the latest on Calcium - risks for macular degeneration: http://www.medscape.com/viewarticle/842931 And cardio risks (among...
Sheepguy: Its not just about high doses....its the fact that synthetic vitamins have simply never been shown to offer any real benefit....ever. People need to accept the fact that vitamins you get in...
What you are describing about seeing through the lady in front of you definitely sounds like some pressure on the optic nerve or similar. Kind of like if you blocked one eye partially, your other eye...
Doesn't surprise me one bit. There are so few -real- studies showing any real benefit from off the shelf supplements, and then news like this..... Eat healthy. Buy a vitamix blender and drink...
Sorry to pile on, but yeah, the fact that your surgeon is even talking about surgery after radiation seems really odd. From all the research I've done, it is -very- rare that this would ever be done....
Hope your December appointments go well. I agree with RCS....light up (as long as it doesn't really bother your wife! :)). Not being a smoker myself, I don't know how the e-cigs compare to the real...
I agree, it's -possible- that your testosterone is very slowly coming back a bit, which could cause psa to rise a bit, but not necessarily mean cancer. Might want to ask about getting a couple more...
Purg: For the constipation, best thing I've ever seen for it is the clear magnesium citrate drink you can get at the pharmacy. Might want to check with the pharmacist first, but this stuff is almost...
Purg, Not sure if you can see Mel's posts.... If you can, geez, I gotta agree. After all the doctors, all the failed treatments, all the times they've been wrong or just haven't had the...
Are you allowed to take some extra pain meds before getting into the chamber? Maybe help ease the discomfort and make you a bit drowsy?...
Glad your dental stuff is moving along! As for the calories, have you tried experimenting with different types of smoothies, other than off the shelf boost drinks, etc? So something like a high...
Hope they find some answers for you soon. I have to admit, after googling cachexia, i too couldn't help but wonder if it is in fact because of the prostate cancer, given that cachexia is defined (at...
Hope you get some answers soon. It seems like regardless of what the underlying cause is, correctable or not, your digestive system simply is not working now. Aside from still inquiring about...
Thanks for stopping in David, I always keep a lookout for your posts. No idea if this is a realistic option, or how much it would help, but if your digestive tract isn't working/absorbing food...
Can't help but think the RN is a really good thing right now. Won't put it as bluntly as some... :) but, I agree, at this point, it's gotta be worth trying whatever is available! I've thought all...
Just to add to what others said, there is still a -very- good chance that with hormone therapy, your dad will have several years left. Assuming the rest of his health is OK, then I too would aim for...
You're a better person than me. I would have clocked her (the rad oncologist)... In this day and age where people win lawsuits for the most frivolous reasons, it's unbelievable that they can't be...
Hi all, I joined back around 2009/10 to get info for my father who was diagnosed with Gleason 10 (some cores 9, some 10), with seminal ves. involvement. He was immediatlely put on hormone therapy,...
Good luck with your appointments, you certainly deserve a break. After following your posts for a few years, I sure wish that they could at very least control your pain better. In this day and age of...
Was also reported on a mainstream Canadian news site: http://www.cbc.ca/news/health/prostate-cancer-chances-rise-with-vitamin-e-selenium-supplements-1.2546998...